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Royal Free 1955 @rfh1955.bsky.social · 4h

Cannot find any record of Diste Products Ltd but can find Dista Products Ltd...

collection.sciencemuseumgroup.org.uk/people/cp276...

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Royal Free 1955 @rfh1955.bsky.social · 4h

Going through the Epidemic Neuromyasthenia Group minutes last night something jumped out at me. Melvin Ramsay may have made a video about #myalgicencephalomyelitis as far back as 1977. Video technology would have been in its relative infancy and would not have been cheap.

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Reposted by Royal Free 1955

Chris Ponting @cgatist.bsky.social · 11h

The research used to claim reliability of a ME/CFS blood test has important limitations, shown here.

www.theguardian.com/society/2025...

Three possible confounders in a study proposing an ME/CFS blood test : sex/age, batch and inactivity/severity. Better designed studies by independent researchers are necessary.

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Reposted by Royal Free 1955

The Guardian @theguardian.com · 13h

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed Scientists say they have developed the world’s first blood test to diagnose myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). There is no currently no test for the condition and patients tend to be diagnosed based on symptoms, which means many can go undiagnosed for years. Continue reading...

www.theguardian.com

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Royal Free 1955 @rfh1955.bsky.social · 17h

Forty-nine years ago today - 8th October 1976. The minutes from the third meeting of the Epidemic Neuromyasthenia (Myalgic Encephalomyelitis) Study Group. #myalgicencephalomyelitis #myalgice #mecfs

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Royal Free 1955 @rfh1955.bsky.social · 18h

Simon Wessely's reply, two days later - 8th October 2003. #myalgicencephalomyelitis #mecfs #myalgice

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Reposted by Royal Free 1955

Dr Elisa Perego @elisaperego78.bsky.social · 1d

SARS-CoV-2 infection is associated with increased risk of new-onset vascular dementia in adults ≥50 years

#LongCovid

www.nature.com/articles/s44...

COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years - npj Dementia

npj Dementia - COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years

www.nature.com

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Royal Free 1955 @rfh1955.bsky.social · 1d

Today, thirty-four years ago. The Hull Daily Mail, England. 7th October 1991. #mecfs #myalgicencephalomyelitis #cfsme #myalgice

"GPs give ME lecture a miss".

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Royal Free 1955 @rfh1955.bsky.social · 1d

The Nursing Mirror, October 7th 1981 - forty-four years ago today. Melvin Ramsay. #myalgicencephalomyelitis #myalgice

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Royal Free 1955 @rfh1955.bsky.social · 2d

Twenty-two years ago today. The Scotsman, 6th October 2003. Apparently the piece that got Margaret Cook allegedly sacked from the paper after Simon Wessely complained. #myalgicencephalomyelitis #myalgice

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Royal Free 1955 @rfh1955.bsky.social · 3d

The Times, UK. 5th October 1955.

A report from the medical staff. of the Royal Free Group of Hospitals on the recent epidemic of glandular fever, which affected more than 100 nurses, patients, and hospital staff, was considered by the group's board of governors
yesterday.
The following
statement was issued: -
" The board of governors, having considered the report, are pleased to announce that the epidemic has now subsided sufficiently to permit the readmittance of patients to the wards at the Gray's Inn Road Hospital which have been closed since July 24.
Accordingly, four wards—having a total of
87 beds-will be opened immediately.
Further beds will be opened as staff becomes available.

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Reposted by Royal Free 1955

The Sick Times @thesicktimes.org · 4d

Since developing Long COVID, Armani Guerra has battled debilitating symptoms, even as he applied for and began his MBA at the University of Michigan’s Ross School of Business. Now, he is organizing the first-ever IACC Case Competition. bit.ly/46Bv0iy

A black and white photo of Armani Guerra wearing a suit and tie. Behind him is a blue-ish tinted photo of the University of Michigan’s Ross School of Business with yellow business doodles on top of it. The text reads, “The Sick Times. Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved. By Armani Guerra.”

I set out to recruit fellow MBA candidates at my business school to develop the first international case competition focused on IACCs like Long COVID, postural orthostatic tachycardia syndrome (POTS), myalgic encephalomyelitis (ME), and more. A task I initially thought would be difficult proved easy, as my peers empathized with my story and saw the daily toll this illness had on me, when I barely made it to class each day.

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Royal Free 1955 @rfh1955.bsky.social · 4d

Twenty-nine years ago today.
The Independent, UK. 4th October 1996.
Article by Yvette Cooper.
#myalgicencephalomyelitis #myalgice #cfsme #mecfs

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Royal Free 1955 @rfh1955.bsky.social · 5d

The covid con is the con that keeps on conning.

www.conservativewoman.co.uk/the-covid-co...

The covid con is the con that keeps on conning - The Conservative Woman

The covid con is the con that keeps on conning

www.conservativewoman.co.uk

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Reposted by Royal Free 1955

Lucibee @lucibee.bsky.social · 5d

Just back a page, SMcF says, "She still lives with those symptoms, although better managed but only because we've accessed private care."

...because there is no NHS care.

Did Hallett fail to understand that?

#LongCovid

No-one should be having to access private care!

transcript:

Transcript of Module 8 Public Hearing on 01 October 2025. UK Covid-19 Inquiry Archives

Transcript of Module 8 Public Hearing on 01 October 2025.

covid19.public-inquiry.uk

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Royal Free 1955 @rfh1955.bsky.social · 5d

The London Evening Standard, 3rd October 1996. #mecfs #myalgicencephalomyelitis #cfsme #cfs #myalgice

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Royal Free 1955 @rfh1955.bsky.social · 5d

The Guardian, UK. 3rd October 1996. #mecfs #cfsme #cfs #myalgice #myalgicencephalomyelitis

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Royal Free 1955 @rfh1955.bsky.social · 5d

The Daily Telegraph, UK. 3rd October 1996 - twenty-nine years ago today.
#cfsme #mecfs #myalgicencephalomyelitis #myalgice

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Reposted by Royal Free 1955

valebodi.bsky.social @valebodi.bsky.social · 5d

NIH’s Perspective on #ME/CFS and Mitochondrial Dysfunction
In its Research in Context feature, NIH explicitly described ME/CFS as a post-viral syndrome where mitochondrial breakdown may be central. They noted that people with ME/CFS often experience exhaustion, exercise intolerance, cognitive

Mitochondria in the Spotlight

When the National Institutes of Health (NIH) released its recent Research in Context feature on mitochondria, it did something that may have gone unnoticed by many but was profoundly significant for…

batemanhornecenter.org

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Reposted by Royal Free 1955

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 6d

Scientists Finally Reveal Biological Basis of Long COVID Brain Fog.

Patients with brain fog may have disrupted AMPA receptor (AMPAR) expression—key molecules for memory and learning. Imaging of Long COVID patients showed elevated AMPAR density tied to more severe cognitive impairment.

Scientists Finally Reveal Biological Basis of Long COVID Brain Fog

Researchers employed a specialized brain imaging technique to identify a potential biomarker and therapeutic target for Long COVID. More than four years after the onset of the COVID-19 pandemic, scien...

scitechdaily.com

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Reposted by Royal Free 1955

Long Covid Advocacy @longcovidadvoc.com · 6d

📺 Important clip from the Covid Inquiry from @cvcev.bsky.social about the issues for children & families in education:

🚸 Safety - gov did not recognise airborne transmission
🚸 Flexibility
🚸 Politicisation of masks - that has led to stigma & even safeguarding

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Royal Free 1955 @rfh1955.bsky.social · 6d

English translation - Two social courts have ruled that social security offices may not classify #LongCovid and #MECFS as mental illnesses - those affected have been granted the opportunity to have their disability recognized.

Martin Rücker @martinruecker.bsky.social · 6d

Gleich zwei Sozialgerichte urteilen, Versorgungsämter dürfen #LongCovid und #MECFS nicht als psychische Erkrankung einstufen - Betroffenen wurde die Tür zur Anerkennung einer Schwerbehinderung geöffnet www.riffreporter.de/de/gesellsch... @riffreporter.bsky.social

Gerichtsurteile: Long Covid ist keine psychische Erkrankung

Wegweisende Sozialgerichtsurteile stufen Long Covid und ME/CFS als körperliche Erkrankungen ein - und öffnen die Tür zur Anerkennung als Schwerbehinderung.

www.riffreporter.de

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Royal Free 1955 @rfh1955.bsky.social · 6d

ITN (ITV News -UK), 2nd October 1996. The name #myalgicencephalomyelitis is dropped in favour of #chronicfatiguesyndrome.

Includes someone whose name is an anagram of 'Some sly swine'.

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Reposted by Royal Free 1955

Tom Kindlon @tomkindlon.bsky.social · 9d

Switzerland:
The Council of States has approved a motion calling for a national strategy to improve the health situation of people with ME/CFS & Long Covid

@europeanmealliance.bsky.social :
www.europeanmealliance.org/news-Q32025-...

Screenshot from Science for ME weekly update

#MEcfs #LongCovid

Switzerland
The Council of States has approved a motion calling for a national strategy to improve the health situation of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long Covid. The patient organisations Long Covid Switzerland, ME/CFS Switzerland, and the Swiss Society for ME & CFS welcome the decision.

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Reposted by Royal Free 1955

Adam Dixon @adam-dixon.bsky.social · 7d

A bit of #railwayarchaeology at Hampstead Heath with some nice #brutalism of the Royal Free Hospital behind!

#architecture #C20 #LNER #modernism #london

Image of a gable ended painted with an LNER advert

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