rpgeneresearch.bsky.social
@rpgeneresearch.bsky.social
In case you haven't seen it, PBS did a segment on Retinitis Pigmentosa and our family. Here is a direct link to it on YouTube
youtu.be/jbykP5ytPA8
Martina Retinitis Pigmentosa
YouTube video by Jason T
youtu.be
February 24, 2025 at 4:22 PM
The PBS segment about RP and our family premieres tonight on channel 42 WTVI PBS Charlotte. It will run several times over the next week. My website is www.rpgene.org and here is the link to the special.

www.youtube.com/watch?v=jbyk...
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
February 19, 2025 at 2:31 AM
In case you know anyone who qualifies, I'm putting a link to a Retinitis Pigmentosa trial on here. Let's get this cured! www.rpgene.org

vistatrial.com?utm_source=g...

#retinitispigmentosa #cureblindness
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
December 15, 2024 at 2:41 PM
At www.rpgene.org, we’re dedicated to advancing research and support for those affected by Retinitis Pigmentosa (RP). Together, we can work toward better treatments and a brighter future for those living with RP. #RetinitisPigmentosa #RPResearch
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
December 6, 2024 at 2:21 AM
This #GivingTuesday, support RPGene in advancing research for rare genetic eye diseases. Your donation helps fund innovative treatments, raise awareness, and empower families. Join us in making a lasting impact today! 💙 Donate at www.rpgene.org #GiveHope #RPGene #DonateToday
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
December 3, 2024 at 5:56 PM
Reposted
Retinitis Pigmentosa (RP) causes progressive vision loss and blindness. This year the children of our founders were diagnosed, making our mission more urgent. We need your support to fund critical research. Please donate and help us find a cure: www.rpgene.org
#CureRP #RP #FightBlindness #DonateNow
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 18, 2024 at 10:21 PM
Reposted
🌟Do you or a loved one suffer from Retinitis Pigmentosa?🌟 Visit RP Gene Research Foundation www.rpgene.org for valuable insights into medical research, clinical trials, and resources to understand this condition better. Together, we can work toward a cure. 💙 #RetinitisPigmentosa #HopeforVision
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 22, 2024 at 7:59 PM
Trying to get the word out. Spent our week seeking out doctor's offices to leave brochures in. We are determined to raise money to fund cutting edge research. This is personal. #retinitispigmentosa #cureblindness #rpgeneresearch
November 24, 2024 at 12:03 AM
🌟Do you or a loved one suffer from Retinitis Pigmentosa?🌟 Visit RP Gene Research Foundation www.rpgene.org for valuable insights into medical research, clinical trials, and resources to understand this condition better. Together, we can work toward a cure. 💙 #RetinitisPigmentosa #HopeforVision
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 22, 2024 at 7:59 PM
Retinitis Pigmentosa (RP) causes progressive vision loss and blindness. This year the children of our founders were diagnosed, making our mission more urgent. We need your support to fund critical research. Please donate and help us find a cure: www.rpgene.org
#CureRP #RP #FightBlindness #DonateNow
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 18, 2024 at 10:21 PM
Reposted
🌟 Exciting News! 🌟

We’re teaming up with Duke Eye Center to raise funds for groundbreaking ocular genetics research. Learn more at www.rpgene.org!

Join us in the fight against retinal degenerative diseases. 🧬👁️

#FundResearch #EyeHealth #RPGenetics
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 18, 2024 at 1:53 PM
🌟 Exciting News! 🌟

We’re teaming up with Duke Eye Center to raise funds for groundbreaking ocular genetics research. Learn more at www.rpgene.org!

Join us in the fight against retinal degenerative diseases. 🧬👁️

#FundResearch #EyeHealth #RPGenetics
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 18, 2024 at 1:53 PM
Reposted
We are dedicated to raising funds for groundbreaking research to find a cure for Retinitis Pigmentosa, a degenerative retinal disease that leads to blindness. This year the children of our founders were diagnosed with RP, making the search for a cure more urgent than ever. www.rpgene.org
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 18, 2024 at 12:46 AM
We are dedicated to raising funds for groundbreaking research to find a cure for Retinitis Pigmentosa, a degenerative retinal disease that leads to blindness. This year the children of our founders were diagnosed with RP, making the search for a cure more urgent than ever. www.rpgene.org
RP Gene Research Foundation
Join RP Gene Research Foundation in our mission to find a cure for Retinitis Pigmentosa
www.rpgene.org
November 18, 2024 at 12:46 AM