Transcript
record.assembly.wales/Plenary/1547...

• The health professionals in the Adferiad Teams who are trying their very best for #pwME – we want to work with you;
• WAMES , MESiG, ME Voices Wales, Action For ME, ME Association, 25% ME Group & Long Covid Support for backing us - & because ‘We are Stronger Together’! 5/5

Huge thanks to:
• Those who shared their lived experience of this devastating illness with their MSs;
• MSs who spoke in the debate on their behalf;
• The Senedd as a whole which voted to carry the motion unopposed;
• Jeremy Miles for his positive response on behalf of the WG

4/5

We’re grateful for Adam’s commitment in bringing to the attention of the Senedd the needs of people with severe and very severe ME. 3/5

The Welsh Government is sharing £8.3m for Adferiad services for #pwME & other chronic illnesses. Services should be co-produced locally & comply with NICE guidance. But, without national strategy, there is a danger those with most severe needs will continue to receive the least care. 2/5

Watch it live or on catch-up on Senedd TV senedd.tv   The debate is part of an all-afternoon Plenary Session, so the start time is approximate – here’s the timetable:  business.senedd.wales/ieListDocument… Diolch yn fawr / Thank you  �¿½� severeme.cymru@gmailil.#severeMEsevereME

Find your local Constituency/Regional MSs: senedd.wales/find-a-member-… - ring them / email them and ask them to speak up for you and others with ME. 
 
This is debate is relevant to provision for people with ME at all severity levels. 2/3

As ever, if you’d like to get in touch please email: [email protected]

Diolch / Thanks

Rob Messenger

Severe ME Difrifol Cymru

5/5

#pwme #longcovid #meawareness #senedddebate #mecfs #meawareness #severeme

…- they are the lived experiences which help politicians connect with the lives of their constituents, their voters. With Senedd elections approaching fast, now is a good time to enlist your Senedd Members’ support – because they also want yours! 4/5 #myalgicencephalomyelitis

There is a public gallery, and it would be great to fill it! The debate will also be live-streamed / recorded on Senedd TV. We’ll let you know more details as soon as we get them.

Adam stresses that personal stories carry great weight in such events… 3/5 #meawareness

We obviously have no control over how Senedd business is managed, and there are many demands on the Senedd timetable, especially in the build-up to next May’s elections.

The debate has been re-allocated to the Plenary Session on the afternoon of Wednesday, December 10th.

2/5

Other Senedd Members can take part in the debate, including yours, and can add weight to Adam's presentation.
 
So, in the meantime, if you’d like to get in touch please email: [email protected]

4/4

www.500milesfor.me

@wamesmecfs.bsky.social @meassociation.org.uk
@actionforme.bsky.social

…but we're grateful that we have a new date for which we can prepare.

Adam stresses that personal stories carry great weight in such events - they are the lived experiences which help politicians connect with the lives of their constituents, their voters. 3/4

The Senedd Business Committee has therefore agreed to allocate a new date for it: Wednesday 26th November - Put it in your diary! 
 
We know that this understandable and unavoidable delay will be a disappointment to #pwme in Wales, and to their families, friends and carers… 2/4

A BIG THANKS to all who’ve supported this effort. And there is still time to contact your MS & urge them to attend & participate in the debate.
Find your local MSs: tinyurl.com/3dea9my3
Personalise a template: www.500milesfor.me
Tell us: [email protected] 2/2

We know that it has a good chance of being selected. Can you help to push it over the line?
 
1. Find your local Constituency/Regional MSs: senedd.wales/find-a-member-… 
 
2. Personalise a template: (500milesfor.me) 
 
3. Tell us: [email protected] 
 
Diolch /Thank you 2/2