Simon Wheeler
banner
simonwheeler.bsky.social
Simon Wheeler
@simonwheeler.bsky.social
Health information specialist working for leading UK dementia charity | Loves good science and good policy that changes lives |
I only engage with real people on here with real names so please don’t be offended if I block you.
#dementia #alzheimers
That's not really what crossing the Rubicon means, Sean.
January 27, 2026 at 4:17 PM
She is very wise! Killing other people's darlings is what I do all day.
January 27, 2026 at 3:31 PM
Absolutely. The good news is that the paper is very well written. It's about as dense as they come and full of alien concepts but at least it's clear and well-reasoned, if one has the patience to carefully work through it (which I am, very slowly!). I feel there's a lot to be learned from doing so.
January 27, 2026 at 3:17 PM
Sorry, David. I tried listening to this and just can't get past the AI-generated simulation of human conversation. It's not for me, I'm afraid. Perhaps others might find it more to their taste but I can't engage with this sort of format. I'd rather just muddle through the paper!
January 27, 2026 at 2:07 PM
See also:
January 26, 2026 at 5:38 PM
Thanks, Beth. I've sent you an email this afternoon. Any help much appreciated. :)
January 26, 2026 at 3:46 PM
Oh no. I had similar when I thought ReSPECT was done but it turned out my mother had just had a chat with a nurse. I learned from that never to assume anything unless Ive seen it with my own eyes! It’s exhausting though.
January 25, 2026 at 6:02 PM
It sounds exhausting. Was the ACP in place but not enacted or referred to, or did it turn out it had just never been completed?
January 25, 2026 at 2:52 PM
I completely agree this is spineless.
We need to vociferously complain and change the BBC to make it better though, not defund it. Its role providing impartial news to the UK massively reduces the polarisation that has torn the US apart. We need to hold it to that task, not seek its destruction.
apart.is
January 25, 2026 at 9:11 AM
Wow. I think I understood about 20% of that but what I did get was very intriguing! I’ll have a look at the paper obviously but for something so groundbreaking to have impact it will need to be broken down so generalists can get the gist, if not the detail. If you do a talk on it please let me know!
January 25, 2026 at 12:30 AM
Still not an apology. That would have been something. This is just more meaningless sewage.
January 24, 2026 at 5:43 PM