Sarah
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sjsher.bsky.social
Sarah
@sjsher.bsky.social
Punk rock, love, and reading. Oh! And some sewing.
Multiple Sclerosis is... learning that my brain has Black Holes. What the Fuck!?

#mslife #multiplesclerosis #multiplesclerosissucks #ms
November 5, 2025 at 3:35 AM
Reposted by Sarah
Amazon is helping fund a $300 million build of a ballroom for the White House.

Independent bookstores are donating to food banks and organizations that help with food insecurity.

They are not the same.
October 30, 2025 at 4:01 PM
Multiple Sclerosis is...stabbing fucking eye pain out of nowhere.

#mslife #mssucks #multiplesclerosissucks
October 26, 2025 at 2:40 AM
I made RJ because Jin makes me happy. Feels good to accomplish something. #jin #woobles #jinrj #crochet
October 12, 2025 at 5:06 PM
Multiple Sclerosis is... knowing that I will never feel good again. WTF!?
September 23, 2025 at 10:36 PM
Multiple Sclerosis is... Fucking Tinnitus. Always fucking tinnitus.

#mssucks #multiplesclerosis #mslife #fuckyoums #ms
September 6, 2025 at 2:52 PM
Finished my 2nd Cornell Shirt by Elbe Textiles. Deadstock fabric from Sew By Sew. I love it.

#sewing #sewingwithmusicinmind #elbetextiles
September 1, 2025 at 11:41 PM
Multiple Sclerosis is... Falling hard in the kitchen before work. Brain's messed up, body's messed up, back hurts so bad. Fuck you MS. Yes, I went to work. It sucked.

#mslife #multiplesclerosis #mssucks
August 21, 2025 at 1:40 AM
The best description I have on days like today - I am unwell. Now quite strong enough, but it doesn't do any good when I yell - I feel like fucking shit today. So, I am unwell.

#mslife #multiplesclerosis #mssucks
August 15, 2025 at 2:31 AM
MS has made me scared of driving. I started taking the bus to work. I forgot how much people think there is something wrong if you ride the bus. "what are you doing?" "Are you ok?" "Do you need a ride?" Actually, riding the bus gives me freedom at a time when I'm losing freedom to MS.
#mslife #ms
August 8, 2025 at 9:52 PM
Beard competition last weekend. I didn't win, but Calcifer and I had fun. Mile High Beard Bout 2025.

#beardbout #whiskerina #calcifer #beard #competition
July 30, 2025 at 3:57 AM
Multiple Sclerosis is... waking up so tired I need to go back to bed and rest. If I go rest, I miss out in life. I would like to be a participant instead. Fuck you MS.

#mslife #multiplesclerosis #multiplesclerosissucks #fuckyouMS #mssucks #ms
July 23, 2025 at 4:55 PM
I wrote some more stuff. If you are interested in bad and great reading, have a look. Not so much crochet this week. I got naps to take.

#reading #crochet #stitching #books #read

open.substack.com/pub/sarah498...
Good and Bad Reading These Past Weeks
Really, really bad and also really, really good
open.substack.com
July 21, 2025 at 11:20 PM
Spent some days in Pittsburgh at the World Beard and Moustache Championship. Wrote some words about it too.

open.substack.com/pub/sarah498...

#multiplesclerosis #2025beardandmounstachechampionship #beardbout #mslife #mssucks #beardcompetition
July 11, 2025 at 4:11 AM
Multiple Sclerosis is ... pissing all over the floor right IN FRONT of the toilet because your body absolutely can't wait until you sit down.

#multiplesclerosis #multiplesclerosissucks #mssucks
June 21, 2025 at 2:15 AM
I finished my scarf, and I am reading Small Worlds by Caleb Azumah Nelson. Anyone else? I love the book so much. The scarf not as much.

Scarf - Complete substack.com/@sarah498011...
Scarf - Complete
Book - Not So Much
substack.com
June 5, 2025 at 2:43 AM
Multiple Sclerosis is ... not feeling like I'm dying for 2 and a half days. Seriously. I thought I was cured (not really). Waking up today in hell. Silly me.
#MS #multiplesclerosissucks #mssucks #multiplesclerosislife #multiplesclerosis #lame
May 15, 2025 at 2:02 AM
I started a Substack to write about my Stitch and Story Box Journey. Anyone else joining in? This box, I am making a scarf. #stitchandstorybox #crochet #reading #read #scarf

substack.com/@sarah498011...
Started!
Book and Project
substack.com
May 14, 2025 at 11:01 PM
Great day. A bunch of former students came out to support. Also family and friends. The walk itself was brutal. I had to sit down half way through. Also, putting a port-a-potty on an incline was kinda mean. lol. #mswalkdenver2025 #Multiplesclerosis #mssucks #mslife #mswalk #somuchlove
May 4, 2025 at 3:07 PM
Multiple Sclerosis is... always thinking I'm wrong.

Me: I feel like fucking hell
Also Me: Suck it up
Me: I can't get up or do anything
Also Me: Idiot. Just get up. You're fine.

#multiplesclerosissucks #multiplesclerosis #MS #MSsucks #feelingyucky
April 29, 2025 at 2:40 AM
Reposted by Sarah
Please share to help promote Tie One on For Multiple Sclerosis on Friday 2nd May 2025 Use the hashtag #tie1on4ms
Would you consider wearing an orange tie on Friday, 2nd May 2025, to help promote Multiple Sclerosis Awareness?
April 8, 2025 at 6:31 AM
Multiple Sclerosis is ... constantly questioning my sanity. When did I do that? Are you sure I did that? How is this cup in the house? I know it was outside!

#multiplesclerosis #chronicdisease #multiplesclerosissucks #degenerativediseasesaredumb #ms
April 16, 2025 at 11:12 PM
Multiple Sclerosis is ... constantly thinking that I' drinking decaf.

#multiplesclerosis #mssucks #msproblems
April 9, 2025 at 12:06 AM
I waited roughly 23 years to see Laura Jane Grace live. Last night was the night. Fuck yes! So good. Thank you! I brought my youngest daughter, and I was so happy to share last night with her.

#meowwolf @laurajanegrace.bsky.social
#punkrocklive
April 6, 2025 at 4:25 PM
Multiple Sclerosis is ... being so tired driving home from work you're not sure how to make it all the way.

#mssucks #multiplesclerosis #msfatigue
April 1, 2025 at 12:08 AM