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smartpatients.bsky.social
Smart Patients
@smartpatients.bsky.social
Smart Patients - a peer-to-peer support forum where patients learn from each other about treatments, challenges, and how it all fits into the context of their experience.

www.smartpatients.com

https://linktr.ee/smartpatients
Wishing a bright and peaceful first night of Hanukkah to all who celebrate.

May your week be filled with warmth, connection, and moments of joy. And if you’re carrying something heavy this season, we’re here to hold the light with you. Join us: www.smartpatients.com

#Hanukkah #SmartPatients
December 14, 2025 at 7:00 PM
What brings you joy on a hard day? Each December, Smart Patients members share the small moments that keep them going. When one person shares delight, it multiplies. Read this & tell us what lifts you up: https://ow.ly/Ej8A50XGWTV

#DecemberReflections #HolidaySeason #SmartPatients
December 13, 2025 at 5:10 PM
“Something isn’t right.”
For many pancreatic cancer patients, that’s where the story begins.
Read our latest ATE summarizing the discussion held with Pancreatic Cancer Action Network and Dr. Efrat Dotan from Penn Medicine to learn more.

https://ow.ly/rh6g50XHvVZ
December 12, 2025 at 5:35 PM
The holidays look different when you’re living with Crohn’s or colitis. While others reach for seconds, some of us reach for ginger tea, soft foods, or quiet corners where our bodies can keep up. Read more: https://ow.ly/fc5v50XFIns

#CrohnsAndColitisAwarenessWeek #IBDCommunity #SmartPatients
December 11, 2025 at 5:01 PM
Cancer takes something invisible but essential: trust.

Trust in your body. Trust in the future. Trust in what comes next.

Where do you go to rebuild trust when cancer breaks it?

#CancerIsScary #PatientCommunity #SmartPatients
December 10, 2025 at 3:35 PM
Curious about new treatments or clinical trials for desmoid tumors? Join us for our Ask the Expert session, Dec 16–18, to learn more from our expert, Dr. Dale Shepard.

To protect patient privacy, you’ll need to sign in through this link: https://www.smartpatients.com/communities/desmoid-tumor
December 9, 2025 at 5:25 PM
Safe travels to everyone heading to the San Antonio Breast Cancer Symposium (SABCS), especially Smart Patients CEO, Kathryn Burn. We cannot wait to hear what you learn. If you’re attending, let's connect in person. What sessions are you most excited about?

#SABCS #SmartPatients
December 8, 2025 at 9:00 PM
Our partners at Debbie's Dream Foundation are hosting 2 webinars this week.

1) A live cooking demonstration: https://ow.ly/s1U150XARLP

2) A webinar with Dr. Monika Laszkowska of Memorial Sloan Kettering Cancer Center to explore early detection and prevention: https://ow.ly/neaw50XARLM
December 7, 2025 at 7:10 PM
For #Crohn’sAndColitisAwarenessWeek, we’re sharing an honest story from a member who has lived with Crohn’s for 30 years. She has some good tips to share.

Read the story and feel better this season: https://ow.ly/JnPZ50XAop9

#SmartPatients #CrohnsDisease #UlcerativeColitis #IBDCommunity
December 6, 2025 at 11:45 PM
Did you know that when it comes to autoimmune disease, what’s around us — from air and water to diet and daily habits — can make a difference? The Autoimmune Association has put together a powerful collection of educational resources exploring exactly that. https://ow.ly/z5ml50XA78A
#SmartPatients
December 5, 2025 at 3:00 PM
How do you navigate #GERD when symptoms flare during the holiday season? Our latest story shares experiences & the small, evidence-based habits that help members manage GERD: https://ow.ly/GaGp50XA1TQ

What foods, routines, tips, & mindsets have helped you the most? Tell us: www.smartpatients.com
December 4, 2025 at 5:00 PM
International Day of Persons with Disabilities reminds us that:

Support shouldn’t depend on ability.
Belonging shouldn’t have conditions.
Every voice matters.

At #SmartPatients, we’re proud to be a place where people can show up as they are.

#IDPD2025 #AccessibilityMatters
December 3, 2025 at 4:25 PM
Happy Giving Tuesday to our incredible partners who fuel awareness, research, support, & connection across so many conditions. Today, we’re celebrating you & all you do to make healthcare more compassionate & human. Keep going. We’re right beside you.

#GivingTuesday #SmartPatients
December 2, 2025 at 3:01 PM
This story on antibiotic resistance follows a woman whose “simple UTI” spiraled into years of surgeries, IV infusions, & drug-resistant infections. Her message is clear: do your part to protect the antibiotics that still work.

https://ow.ly/foJR50XuVU6

#AntibioticResistance #SmartPatients
December 1, 2025 at 8:50 PM
Our new feature lifts the curtain on caregivers’ real experiences. Caregivers often sacrifice their sleep, career, health, and identity.

Thank you to the Family Caregiver Alliance for all you've done this #NationalFamilyCaregiversMonth.

https://ow.ly/6t4550XwTW5
November 30, 2025 at 4:10 PM
Did you know GERD affects about 1 in 5 adults and symptoms often spike during the holidays? In our new story for #GERDAwarenessWeek, Smart Patients members share what GERD feels like & strategies that help. If you or someone you love lives with GERD, read more: https://ow.ly/b96V50Xxv2C
November 29, 2025 at 3:55 PM
Did family health history come up around the Thanksgiving table yesterday? Family stories are clues that can guide testing, prevention, & earlier diagnosis. If your family has questions about genetics or risks, join Smart Patients: www.smartpatients.com

#FamilyHealthHistory #SmartPatients
November 28, 2025 at 5:00 PM
What are you most thankful for this year? Is it the progress you’ve made, the people beside you, or the strength you didn’t know you had?

At Smart Patients, we’re thankful for you. A heartfelt Happy Thanksgiving from all of us.

#SmartPatients #Thanksgiving #PatientVoices #Community
November 27, 2025 at 5:00 PM
Stomach cancer doesn’t strike one age, one risk group, or one life stage. This #StomachCancerAwarenessMonth, we’re honoring every story, generation, and step forward with our partners: Debbie's Dream Foundation, Gastric Cancer Foundation, and Hope for Stomach Cancer.

https://ow.ly/vLWj50XwS0o
November 26, 2025 at 7:00 PM
Most caregivers work the equivalent of two full-time jobs with zero pay and almost no support.
Read the story everyone should see: Invisible Patients: What Caregivers Wish the World Understood
https://ow.ly/muZE50XwRXV
November 25, 2025 at 3:30 PM
Today is the last day of Antibiotic Awareness Week.
Antibiotics are a shared resource and protecting them starts with learning from each other.
Read “Antibiotics: A Shared Responsibility”
https://ow.ly/JoLz50XumR8

Join the conversation in www.smartpatients.com.

#AntibioticAwarenessWeek
Antibiotics: A Shared Responsibility — Smart Patients
In honor of Antibiotic Awareness Week, this story examines how repeated UTIs, long-term bladder issues, and multiple antibiotic courses pushed one patient into antibiotic resistance. This is why understanding antimicrobial resistance and everyday stewardship practices is essential for anyone navigat
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November 24, 2025 at 9:30 PM
Stomach cancer crosses generations and so does the hope for better treatments. This month, we highlight the voices of our Smart Patients community & #ASCO2025 research on gastric cancer care.

Read: I Am…22 to 89: https://ow.ly/lKST50XuVvL

#StomachCancerAwarenessMonth #SmartPatients
November 22, 2025 at 5:10 PM
As we head into Thanksgiving week, may we all pause to notice the small things — the messy kitchens, the loud laughter, the quiet moments that make it all worth it. Gratitude isn’t just a holiday; it’s a practice of being here.

What’s one small moment you’re grateful for right now?

#SmartPatients
November 21, 2025 at 3:01 PM
Rare cancers bring rare questions. We invite you to learn more and read today:
https://research.smartpatients.com/resources/i-am-choosing-when-to-act-s4kxa
Thank you to our partner, Pancreatic Cancer Action Network for all you do, especially on #WorldPancreatic CancerDay.
November 20, 2025 at 5:30 PM
Did you know that about 20% of lung cancer cases occur in people who have never smoked?

Let’s focus on awareness, early detection, and compassion this #LungCancerAwarenessMonth.

Join the conversation: https://www.smartpatients.com/communities/lung-cancer

#SmartPatients
November 19, 2025 at 7:01 PM