Smart Patients
@smartpatients.bsky.social
Smart Patients - a peer-to-peer support forum where patients learn from each other about treatments, challenges, and how it all fits into the context of their experience.
www.smartpatients.com
https://linktr.ee/smartpatients
www.smartpatients.com
https://linktr.ee/smartpatients
One simple question turned into sharing meaningful moments. A hawk eating figs. A grandchild’s laugh. A pain-free morning. A cat sleeping on your lap. This is what joy looks like to Smart Patients. What does it look like to you?
Read I Am… Finding Delight : https://ow.ly/ZhRQ50XJzAk
#FindingJoy
Read I Am… Finding Delight : https://ow.ly/ZhRQ50XJzAk
#FindingJoy
December 16, 2025 at 5:01 PM
One simple question turned into sharing meaningful moments. A hawk eating figs. A grandchild’s laugh. A pain-free morning. A cat sleeping on your lap. This is what joy looks like to Smart Patients. What does it look like to you?
Read I Am… Finding Delight : https://ow.ly/ZhRQ50XJzAk
#FindingJoy
Read I Am… Finding Delight : https://ow.ly/ZhRQ50XJzAk
#FindingJoy
Starting tomorrow! Smart Patients is hosting an Ask the Expert with Dr. Dale Shepard from the Cleveland Clinic from Dec 16–18, 2025 on desmoid tumors. Learn more by signing up at https://www.smartpatients.com/communities/desmoid-tumor
#DesmoidTumor #RareDisease #ClinicalTrials #PatientEducation
#DesmoidTumor #RareDisease #ClinicalTrials #PatientEducation
December 15, 2025 at 9:00 PM
Starting tomorrow! Smart Patients is hosting an Ask the Expert with Dr. Dale Shepard from the Cleveland Clinic from Dec 16–18, 2025 on desmoid tumors. Learn more by signing up at https://www.smartpatients.com/communities/desmoid-tumor
#DesmoidTumor #RareDisease #ClinicalTrials #PatientEducation
#DesmoidTumor #RareDisease #ClinicalTrials #PatientEducation
Wishing a bright and peaceful first night of Hanukkah to all who celebrate.
May your week be filled with warmth, connection, and moments of joy. And if you’re carrying something heavy this season, we’re here to hold the light with you. Join us: www.smartpatients.com
#Hanukkah #SmartPatients
May your week be filled with warmth, connection, and moments of joy. And if you’re carrying something heavy this season, we’re here to hold the light with you. Join us: www.smartpatients.com
#Hanukkah #SmartPatients
December 14, 2025 at 7:00 PM
Wishing a bright and peaceful first night of Hanukkah to all who celebrate.
May your week be filled with warmth, connection, and moments of joy. And if you’re carrying something heavy this season, we’re here to hold the light with you. Join us: www.smartpatients.com
#Hanukkah #SmartPatients
May your week be filled with warmth, connection, and moments of joy. And if you’re carrying something heavy this season, we’re here to hold the light with you. Join us: www.smartpatients.com
#Hanukkah #SmartPatients
What brings you joy on a hard day? Each December, Smart Patients members share the small moments that keep them going. When one person shares delight, it multiplies. Read this & tell us what lifts you up: https://ow.ly/Ej8A50XGWTV
#DecemberReflections #HolidaySeason #SmartPatients
#DecemberReflections #HolidaySeason #SmartPatients
December 13, 2025 at 5:10 PM
What brings you joy on a hard day? Each December, Smart Patients members share the small moments that keep them going. When one person shares delight, it multiplies. Read this & tell us what lifts you up: https://ow.ly/Ej8A50XGWTV
#DecemberReflections #HolidaySeason #SmartPatients
#DecemberReflections #HolidaySeason #SmartPatients
“Something isn’t right.”
For many pancreatic cancer patients, that’s where the story begins.
Read our latest ATE summarizing the discussion held with Pancreatic Cancer Action Network and Dr. Efrat Dotan from Penn Medicine to learn more.
https://ow.ly/rh6g50XHvVZ
For many pancreatic cancer patients, that’s where the story begins.
Read our latest ATE summarizing the discussion held with Pancreatic Cancer Action Network and Dr. Efrat Dotan from Penn Medicine to learn more.
https://ow.ly/rh6g50XHvVZ
December 12, 2025 at 5:35 PM
“Something isn’t right.”
For many pancreatic cancer patients, that’s where the story begins.
Read our latest ATE summarizing the discussion held with Pancreatic Cancer Action Network and Dr. Efrat Dotan from Penn Medicine to learn more.
https://ow.ly/rh6g50XHvVZ
For many pancreatic cancer patients, that’s where the story begins.
Read our latest ATE summarizing the discussion held with Pancreatic Cancer Action Network and Dr. Efrat Dotan from Penn Medicine to learn more.
https://ow.ly/rh6g50XHvVZ
The holidays look different when you’re living with Crohn’s or colitis. While others reach for seconds, some of us reach for ginger tea, soft foods, or quiet corners where our bodies can keep up. Read more: https://ow.ly/fc5v50XFIns
#CrohnsAndColitisAwarenessWeek #IBDCommunity #SmartPatients
#CrohnsAndColitisAwarenessWeek #IBDCommunity #SmartPatients
December 11, 2025 at 5:01 PM
The holidays look different when you’re living with Crohn’s or colitis. While others reach for seconds, some of us reach for ginger tea, soft foods, or quiet corners where our bodies can keep up. Read more: https://ow.ly/fc5v50XFIns
#CrohnsAndColitisAwarenessWeek #IBDCommunity #SmartPatients
#CrohnsAndColitisAwarenessWeek #IBDCommunity #SmartPatients
Cancer takes something invisible but essential: trust.
Trust in your body. Trust in the future. Trust in what comes next.
Where do you go to rebuild trust when cancer breaks it?
#CancerIsScary #PatientCommunity #SmartPatients
Trust in your body. Trust in the future. Trust in what comes next.
Where do you go to rebuild trust when cancer breaks it?
#CancerIsScary #PatientCommunity #SmartPatients
December 10, 2025 at 3:35 PM
Cancer takes something invisible but essential: trust.
Trust in your body. Trust in the future. Trust in what comes next.
Where do you go to rebuild trust when cancer breaks it?
#CancerIsScary #PatientCommunity #SmartPatients
Trust in your body. Trust in the future. Trust in what comes next.
Where do you go to rebuild trust when cancer breaks it?
#CancerIsScary #PatientCommunity #SmartPatients
Curious about new treatments or clinical trials for desmoid tumors? Join us for our Ask the Expert session, Dec 16–18, to learn more from our expert, Dr. Dale Shepard.
To protect patient privacy, you’ll need to sign in through this link: https://www.smartpatients.com/communities/desmoid-tumor
To protect patient privacy, you’ll need to sign in through this link: https://www.smartpatients.com/communities/desmoid-tumor
December 9, 2025 at 5:25 PM
Curious about new treatments or clinical trials for desmoid tumors? Join us for our Ask the Expert session, Dec 16–18, to learn more from our expert, Dr. Dale Shepard.
To protect patient privacy, you’ll need to sign in through this link: https://www.smartpatients.com/communities/desmoid-tumor
To protect patient privacy, you’ll need to sign in through this link: https://www.smartpatients.com/communities/desmoid-tumor
Safe travels to everyone heading to the San Antonio Breast Cancer Symposium (SABCS), especially Smart Patients CEO, Kathryn Burn. We cannot wait to hear what you learn. If you’re attending, let's connect in person. What sessions are you most excited about?
#SABCS #SmartPatients
#SABCS #SmartPatients
December 8, 2025 at 9:00 PM
Safe travels to everyone heading to the San Antonio Breast Cancer Symposium (SABCS), especially Smart Patients CEO, Kathryn Burn. We cannot wait to hear what you learn. If you’re attending, let's connect in person. What sessions are you most excited about?
#SABCS #SmartPatients
#SABCS #SmartPatients
Our partners at Debbie's Dream Foundation are hosting 2 webinars this week.
1) A live cooking demonstration: https://ow.ly/s1U150XARLP
2) A webinar with Dr. Monika Laszkowska of Memorial Sloan Kettering Cancer Center to explore early detection and prevention: https://ow.ly/neaw50XARLM
1) A live cooking demonstration: https://ow.ly/s1U150XARLP
2) A webinar with Dr. Monika Laszkowska of Memorial Sloan Kettering Cancer Center to explore early detection and prevention: https://ow.ly/neaw50XARLM
December 7, 2025 at 7:10 PM
Our partners at Debbie's Dream Foundation are hosting 2 webinars this week.
1) A live cooking demonstration: https://ow.ly/s1U150XARLP
2) A webinar with Dr. Monika Laszkowska of Memorial Sloan Kettering Cancer Center to explore early detection and prevention: https://ow.ly/neaw50XARLM
1) A live cooking demonstration: https://ow.ly/s1U150XARLP
2) A webinar with Dr. Monika Laszkowska of Memorial Sloan Kettering Cancer Center to explore early detection and prevention: https://ow.ly/neaw50XARLM
For #Crohn’sAndColitisAwarenessWeek, we’re sharing an honest story from a member who has lived with Crohn’s for 30 years. She has some good tips to share.
Read the story and feel better this season: https://ow.ly/JnPZ50XAop9
#SmartPatients #CrohnsDisease #UlcerativeColitis #IBDCommunity
Read the story and feel better this season: https://ow.ly/JnPZ50XAop9
#SmartPatients #CrohnsDisease #UlcerativeColitis #IBDCommunity
December 6, 2025 at 11:45 PM
For #Crohn’sAndColitisAwarenessWeek, we’re sharing an honest story from a member who has lived with Crohn’s for 30 years. She has some good tips to share.
Read the story and feel better this season: https://ow.ly/JnPZ50XAop9
#SmartPatients #CrohnsDisease #UlcerativeColitis #IBDCommunity
Read the story and feel better this season: https://ow.ly/JnPZ50XAop9
#SmartPatients #CrohnsDisease #UlcerativeColitis #IBDCommunity
Did you know that when it comes to autoimmune disease, what’s around us — from air and water to diet and daily habits — can make a difference? The Autoimmune Association has put together a powerful collection of educational resources exploring exactly that. https://ow.ly/z5ml50XA78A
#SmartPatients
#SmartPatients
December 5, 2025 at 3:00 PM
Did you know that when it comes to autoimmune disease, what’s around us — from air and water to diet and daily habits — can make a difference? The Autoimmune Association has put together a powerful collection of educational resources exploring exactly that. https://ow.ly/z5ml50XA78A
#SmartPatients
#SmartPatients
How do you navigate #GERD when symptoms flare during the holiday season? Our latest story shares experiences & the small, evidence-based habits that help members manage GERD: https://ow.ly/GaGp50XA1TQ
What foods, routines, tips, & mindsets have helped you the most? Tell us: www.smartpatients.com
What foods, routines, tips, & mindsets have helped you the most? Tell us: www.smartpatients.com
December 4, 2025 at 5:00 PM
How do you navigate #GERD when symptoms flare during the holiday season? Our latest story shares experiences & the small, evidence-based habits that help members manage GERD: https://ow.ly/GaGp50XA1TQ
What foods, routines, tips, & mindsets have helped you the most? Tell us: www.smartpatients.com
What foods, routines, tips, & mindsets have helped you the most? Tell us: www.smartpatients.com
International Day of Persons with Disabilities reminds us that:
Support shouldn’t depend on ability.
Belonging shouldn’t have conditions.
Every voice matters.
At #SmartPatients, we’re proud to be a place where people can show up as they are.
#IDPD2025 #AccessibilityMatters
Support shouldn’t depend on ability.
Belonging shouldn’t have conditions.
Every voice matters.
At #SmartPatients, we’re proud to be a place where people can show up as they are.
#IDPD2025 #AccessibilityMatters
December 3, 2025 at 4:25 PM
International Day of Persons with Disabilities reminds us that:
Support shouldn’t depend on ability.
Belonging shouldn’t have conditions.
Every voice matters.
At #SmartPatients, we’re proud to be a place where people can show up as they are.
#IDPD2025 #AccessibilityMatters
Support shouldn’t depend on ability.
Belonging shouldn’t have conditions.
Every voice matters.
At #SmartPatients, we’re proud to be a place where people can show up as they are.
#IDPD2025 #AccessibilityMatters
Happy Giving Tuesday to our incredible partners who fuel awareness, research, support, & connection across so many conditions. Today, we’re celebrating you & all you do to make healthcare more compassionate & human. Keep going. We’re right beside you.
#GivingTuesday #SmartPatients
#GivingTuesday #SmartPatients
December 2, 2025 at 3:01 PM
Happy Giving Tuesday to our incredible partners who fuel awareness, research, support, & connection across so many conditions. Today, we’re celebrating you & all you do to make healthcare more compassionate & human. Keep going. We’re right beside you.
#GivingTuesday #SmartPatients
#GivingTuesday #SmartPatients
This story on antibiotic resistance follows a woman whose “simple UTI” spiraled into years of surgeries, IV infusions, & drug-resistant infections. Her message is clear: do your part to protect the antibiotics that still work.
https://ow.ly/foJR50XuVU6
#AntibioticResistance #SmartPatients
https://ow.ly/foJR50XuVU6
#AntibioticResistance #SmartPatients
December 1, 2025 at 8:50 PM
This story on antibiotic resistance follows a woman whose “simple UTI” spiraled into years of surgeries, IV infusions, & drug-resistant infections. Her message is clear: do your part to protect the antibiotics that still work.
https://ow.ly/foJR50XuVU6
#AntibioticResistance #SmartPatients
https://ow.ly/foJR50XuVU6
#AntibioticResistance #SmartPatients
Our new feature lifts the curtain on caregivers’ real experiences. Caregivers often sacrifice their sleep, career, health, and identity.
Thank you to the Family Caregiver Alliance for all you've done this #NationalFamilyCaregiversMonth.
https://ow.ly/6t4550XwTW5
Thank you to the Family Caregiver Alliance for all you've done this #NationalFamilyCaregiversMonth.
https://ow.ly/6t4550XwTW5
November 30, 2025 at 4:10 PM
Our new feature lifts the curtain on caregivers’ real experiences. Caregivers often sacrifice their sleep, career, health, and identity.
Thank you to the Family Caregiver Alliance for all you've done this #NationalFamilyCaregiversMonth.
https://ow.ly/6t4550XwTW5
Thank you to the Family Caregiver Alliance for all you've done this #NationalFamilyCaregiversMonth.
https://ow.ly/6t4550XwTW5
Did you know GERD affects about 1 in 5 adults and symptoms often spike during the holidays? In our new story for #GERDAwarenessWeek, Smart Patients members share what GERD feels like & strategies that help. If you or someone you love lives with GERD, read more: https://ow.ly/b96V50Xxv2C
November 29, 2025 at 3:55 PM
Did you know GERD affects about 1 in 5 adults and symptoms often spike during the holidays? In our new story for #GERDAwarenessWeek, Smart Patients members share what GERD feels like & strategies that help. If you or someone you love lives with GERD, read more: https://ow.ly/b96V50Xxv2C
Did family health history come up around the Thanksgiving table yesterday? Family stories are clues that can guide testing, prevention, & earlier diagnosis. If your family has questions about genetics or risks, join Smart Patients: www.smartpatients.com
#FamilyHealthHistory #SmartPatients
#FamilyHealthHistory #SmartPatients
November 28, 2025 at 5:00 PM
Did family health history come up around the Thanksgiving table yesterday? Family stories are clues that can guide testing, prevention, & earlier diagnosis. If your family has questions about genetics or risks, join Smart Patients: www.smartpatients.com
#FamilyHealthHistory #SmartPatients
#FamilyHealthHistory #SmartPatients
What are you most thankful for this year? Is it the progress you’ve made, the people beside you, or the strength you didn’t know you had?
At Smart Patients, we’re thankful for you. A heartfelt Happy Thanksgiving from all of us.
#SmartPatients #Thanksgiving #PatientVoices #Community
At Smart Patients, we’re thankful for you. A heartfelt Happy Thanksgiving from all of us.
#SmartPatients #Thanksgiving #PatientVoices #Community
November 27, 2025 at 5:00 PM
What are you most thankful for this year? Is it the progress you’ve made, the people beside you, or the strength you didn’t know you had?
At Smart Patients, we’re thankful for you. A heartfelt Happy Thanksgiving from all of us.
#SmartPatients #Thanksgiving #PatientVoices #Community
At Smart Patients, we’re thankful for you. A heartfelt Happy Thanksgiving from all of us.
#SmartPatients #Thanksgiving #PatientVoices #Community
Stomach cancer doesn’t strike one age, one risk group, or one life stage. This #StomachCancerAwarenessMonth, we’re honoring every story, generation, and step forward with our partners: Debbie's Dream Foundation, Gastric Cancer Foundation, and Hope for Stomach Cancer.
https://ow.ly/vLWj50XwS0o
https://ow.ly/vLWj50XwS0o
November 26, 2025 at 7:00 PM
Stomach cancer doesn’t strike one age, one risk group, or one life stage. This #StomachCancerAwarenessMonth, we’re honoring every story, generation, and step forward with our partners: Debbie's Dream Foundation, Gastric Cancer Foundation, and Hope for Stomach Cancer.
https://ow.ly/vLWj50XwS0o
https://ow.ly/vLWj50XwS0o
Most caregivers work the equivalent of two full-time jobs with zero pay and almost no support.
Read the story everyone should see: Invisible Patients: What Caregivers Wish the World Understood
https://ow.ly/muZE50XwRXV
Read the story everyone should see: Invisible Patients: What Caregivers Wish the World Understood
https://ow.ly/muZE50XwRXV
November 25, 2025 at 3:30 PM
Most caregivers work the equivalent of two full-time jobs with zero pay and almost no support.
Read the story everyone should see: Invisible Patients: What Caregivers Wish the World Understood
https://ow.ly/muZE50XwRXV
Read the story everyone should see: Invisible Patients: What Caregivers Wish the World Understood
https://ow.ly/muZE50XwRXV
Stomach cancer crosses generations and so does the hope for better treatments. This month, we highlight the voices of our Smart Patients community & #ASCO2025 research on gastric cancer care.
Read: I Am…22 to 89: https://ow.ly/lKST50XuVvL
#StomachCancerAwarenessMonth #SmartPatients
Read: I Am…22 to 89: https://ow.ly/lKST50XuVvL
#StomachCancerAwarenessMonth #SmartPatients
November 22, 2025 at 5:10 PM
Stomach cancer crosses generations and so does the hope for better treatments. This month, we highlight the voices of our Smart Patients community & #ASCO2025 research on gastric cancer care.
Read: I Am…22 to 89: https://ow.ly/lKST50XuVvL
#StomachCancerAwarenessMonth #SmartPatients
Read: I Am…22 to 89: https://ow.ly/lKST50XuVvL
#StomachCancerAwarenessMonth #SmartPatients
As we head into Thanksgiving week, may we all pause to notice the small things — the messy kitchens, the loud laughter, the quiet moments that make it all worth it. Gratitude isn’t just a holiday; it’s a practice of being here.
What’s one small moment you’re grateful for right now?
#SmartPatients
What’s one small moment you’re grateful for right now?
#SmartPatients
November 21, 2025 at 3:01 PM
As we head into Thanksgiving week, may we all pause to notice the small things — the messy kitchens, the loud laughter, the quiet moments that make it all worth it. Gratitude isn’t just a holiday; it’s a practice of being here.
What’s one small moment you’re grateful for right now?
#SmartPatients
What’s one small moment you’re grateful for right now?
#SmartPatients
Rare cancers bring rare questions. We invite you to learn more and read today:
https://research.smartpatients.com/resources/i-am-choosing-when-to-act-s4kxa
Thank you to our partner, Pancreatic Cancer Action Network for all you do, especially on #WorldPancreatic CancerDay.
https://research.smartpatients.com/resources/i-am-choosing-when-to-act-s4kxa
Thank you to our partner, Pancreatic Cancer Action Network for all you do, especially on #WorldPancreatic CancerDay.
November 20, 2025 at 5:30 PM
Rare cancers bring rare questions. We invite you to learn more and read today:
https://research.smartpatients.com/resources/i-am-choosing-when-to-act-s4kxa
Thank you to our partner, Pancreatic Cancer Action Network for all you do, especially on #WorldPancreatic CancerDay.
https://research.smartpatients.com/resources/i-am-choosing-when-to-act-s4kxa
Thank you to our partner, Pancreatic Cancer Action Network for all you do, especially on #WorldPancreatic CancerDay.