sonorawent
banner
sonorawent.bsky.social
sonorawent
@sonorawent.bsky.social
queer art and underwater living, 40s she/her 🏴‍☠️🏳️‍🌈
I am absolutely hooked already 🤩🤩
November 19, 2025 at 6:30 PM
Ahhh happy birthday!! I hope it’s full of lovely things 💜
November 19, 2025 at 6:27 PM
soup is everything 🫂💜
November 19, 2025 at 2:28 AM
It’s a good night to stay in, put on a bad rowing movie, and plan out tomorrow’s call to the insurance folks (if for nothing else than having this all squared away before next month’s rx😂)
November 18, 2025 at 11:12 PM
Wooooooooooo!!! Oh I hope you get all the best things — you are amazing, your art is amazing, and both give us all so much joy 🤩😍💜
November 18, 2025 at 10:47 PM
A thing I didn’t know about sharing a change dot org petition after signing it is that later you get emails saying “[FirstName] (and no other identifying information) used your link to sign!” And I don’t know most crew first names 😂 but I’m so grateful to everyone for the added joy of each email 💜
November 18, 2025 at 8:22 PM
💜💜💜💜💜
November 18, 2025 at 7:17 PM
absolutely infuriating 🫂🫂
November 17, 2025 at 8:33 PM
👀👀👀👀
November 17, 2025 at 6:45 PM
hahahahaha devastatingly relatable
November 17, 2025 at 6:43 PM
💜💜💜
November 17, 2025 at 1:52 PM
Honestly I’d watch so much of that as long as I knew how it ended first 😂
November 17, 2025 at 1:52 PM
ooooh those’ll be DELICIOUS 😍
November 16, 2025 at 7:40 PM
oooooh very very much so!!
November 16, 2025 at 5:54 PM
💜💜💜
November 16, 2025 at 4:50 PM
/ back to regularly scheduled gay pirating 🏴‍☠️🏳️‍🌈
November 16, 2025 at 4:23 PM
Here’s the petition again - I very much hope you’ll sign and share it, too. If you have any questions, I’ll do my best to answer 💜

c.org/Z6yPyYQqTj
Sign the Petition
Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval
c.org
November 16, 2025 at 4:23 PM
And because when the advocacy orgs need to marshall broad support for upcoming hearings and public comment periods - not just for HD but for every disease community that might benefit from gene therapy and an FDA process we can rely on - I want to be on that email list, and I want to help.
November 16, 2025 at 4:23 PM
I don’t expect a petition to change anything directly (even if the FDA was working like it used to).

But I’m sharing it - and will, again and again - because the good news about the UniQure trial broke containment and this news hasn’t. Because it’s a huge show of support for folks who need it.
November 16, 2025 at 4:23 PM
I’ve been advocating for this community for more than a decade. I’m devastated and full of rage (for this community, for everyone who has already been and everyone who will be affected by this anti-science crusade—everyone).

And I want to explain why I’m sharing this petition:

c.org/Z6yPyYQqTj
Sign the Petition
Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval
c.org
November 16, 2025 at 4:23 PM