Thoughts While Surviving Chronic Illness
@tatebasildon.bsky.social
Private chef. Sarcoidosis-infused life commentary.
Heart failure, AICD, Diabetes and a stubborn refusal to quit.
Hosting a podcast, trying to stay alive and stay funny.
#sarcoidosis #chronicillness #heartfailure #livedexperience #patientvoice #diabetes
Heart failure, AICD, Diabetes and a stubborn refusal to quit.
Hosting a podcast, trying to stay alive and stay funny.
#sarcoidosis #chronicillness #heartfailure #livedexperience #patientvoice #diabetes
Places are named for great people. Stupid people name places for themselves. Just saying.
December 24, 2025 at 10:54 PM
Places are named for great people. Stupid people name places for themselves. Just saying.
When sarcoidosis and heart failure get heavy, I reach for childhood comfort—nostalgia, humor, and Asterix & Obelix. It helps more than people think.
#chronicillness #coping #livedexperience
#chronicillness #coping #livedexperience
Rediscovering Joy: Why Asterix & Obelix Became My Unexpected Chronic Illness Therapy
Living with chronic illness can be exhausting—but sometimes, the best medicine isn’t in a prescription bottle. For me, it came in the form of two tiny Gauls named Asterix and Obelix. This heartfelt reflection explores how nostalgia, humor, and childhood comfort shows like Asterix & Obelix...
www.buzzsprout.com
December 24, 2025 at 9:48 PM
When sarcoidosis and heart failure get heavy, I reach for childhood comfort—nostalgia, humor, and Asterix & Obelix. It helps more than people think.
#chronicillness #coping #livedexperience
#chronicillness #coping #livedexperience
My sleep is wrecked and energy gone. Sarcoidosis is screaming this week, so I took vacation. This is what “listening to your body” looks like when your body has its own agenda.
#sarcoidosis #heartfailure #chronicillness #livedexperience
#sarcoidosis #heartfailure #chronicillness #livedexperience
a little girl is playing on a swing in a park
Alt: a little girl is sleeping on a swing in a park. Her body is hung over the seat if the swing, her head, arms and feet hanging loosly
media.tenor.com
December 24, 2025 at 4:20 PM
My sleep is wrecked and energy gone. Sarcoidosis is screaming this week, so I took vacation. This is what “listening to your body” looks like when your body has its own agenda.
#sarcoidosis #heartfailure #chronicillness #livedexperience
#sarcoidosis #heartfailure #chronicillness #livedexperience
December 23, 2025 at 5:00 PM
Six months of delayed shipments and missing meds was enough. I left PillPack for a local pharmacy. If you rely on multiple prescriptions, learn from my mistake.
#chronicillness #medicationfail #patientstory
#chronicillness #medicationfail #patientstory
Why I Ditched PillPack: The Truth About Mail-Order Pharmacies and Medication Chaos.
After six months of delayed shipments, missing meds, and endless insurance headaches, I finally ditched Amazon’s PillPack and went back to my local pharmacy. If you live with chronic illness or juggle multiple prescriptions, here’s what you should know before trusting your meds to a mail-order ph...
www.buzzsprout.com
December 23, 2025 at 1:13 PM
Six months of delayed shipments and missing meds was enough. I left PillPack for a local pharmacy. If you rely on multiple prescriptions, learn from my mistake.
#chronicillness #medicationfail #patientstory
#chronicillness #medicationfail #patientstory
When Family Goes Silent: A Chef’s Unfiltered Truth About Sarcoidosis, Heart Failure, and Letting Go
When Family Goes Silent: A Chef’s Unfiltered Truth About Sarcoidosis, Heart Failure, and Letting Go
Dealing with chronic illness is hard enough, but throw family dynamics, silent siblings, and a surprise heart failure diagnosis into the pot and watch the whole stew boil over. This honest, humorous look at navigating distance, disappointment, and sarcoidosis reminds you how choosing peace sometimes means choosing yourself.
tatebasildon.com
December 23, 2025 at 11:08 AM
When Family Goes Silent: A Chef’s Unfiltered Truth About Sarcoidosis, Heart Failure, and Letting Go
Chronic illness teaches restraint fast.
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
Silence, Sass, and Self-Control: How I Learned Not to Clap Back at Every Rude Receptionist
Tired of rude medical staff and customer service that feels more like combat? As a private chef living with sarcoidosis and heart failure, I’ve learned that silence and self-control—not clapbacks—are my best defense against everyday negativity. Here’s how staying calm transformed my life, my work...
www.buzzsprout.com
December 23, 2025 at 12:56 AM
Chronic illness teaches restraint fast.
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
I stopped fighting rude medical staff and angry customers—and my life got better. Sometimes calm is the power move.
#chronicillness #sarcoidosis #coping
Chef, husband, pet-parent, writer.
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Cooking Through the Chaos: My Life With Sarcoidosis, Heart Failure & Debut Novel Dreams
I’m a chef, husband, pet-parent, and emerging novelist living with pulmonary sarcoidosis, heart failure and the wild ride of long-term prednisone treatment. If you’re juggling a chronic illness, creative ambitions and ordinary life chaos—you’re in the right place. Let’s talk survival, cooking, wr...
www.buzzsprout.com
December 22, 2025 at 10:06 PM
Chef, husband, pet-parent, writer.
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Sarcoidosis, heart failure, prednisone side effects.
I talk my survival, creativity, and finding hope anyway.
#sarcoidosis #chronicillness #patientstory
Sarcoidosis flares exactly when you start trusting your body again. #sarcoidosis #chronicillnessreality
December 22, 2025 at 7:59 PM
Sarcoidosis flares exactly when you start trusting your body again. #sarcoidosis #chronicillnessreality
December 22, 2025 at 5:48 PM
Two more days until Christmas. Hopefully my sarcoidosis and my heart failure both don’t expect me to wait up for Santa!
December 22, 2025 at 6:05 PM
Two more days until Christmas. Hopefully my sarcoidosis and my heart failure both don’t expect me to wait up for Santa!
Rare disease. Daily reality. Sarcoidosis isn’t rare when you’re the one living with it. #sarcoidosis #patientvoice
December 22, 2025 at 3:35 PM
Rare disease. Daily reality. Sarcoidosis isn’t rare when you’re the one living with it. #sarcoidosis #patientvoice
Sarcoidosis symptoms rotate faster than my laundry schedule. #sarcoidosis #livedexperience
December 22, 2025 at 1:32 PM
Sarcoidosis symptoms rotate faster than my laundry schedule. #sarcoidosis #livedexperience
🫁SARCOIDOSIS: REAL LIFE🫀
Static Info Post
This feed pulls real-life posts from people living with Sarcoidosis.
Not medical news. Not research abstracts. Not pharma promos.
#sarcoidosis #chronicillness #livedexperience
Static Info Post
This feed pulls real-life posts from people living with Sarcoidosis.
Not medical news. Not research abstracts. Not pharma promos.
#sarcoidosis #chronicillness #livedexperience
Sarcoidosis: Real Life by @tatebasildon.bsky.social
Real-life posts from people living with sarcoidosis, plus community check-ins, support, and shared experiences — not medical news or research.
bsky.app
December 22, 2025 at 7:57 AM
🫁SARCOIDOSIS: REAL LIFE🫀
Static Info Post
This feed pulls real-life posts from people living with Sarcoidosis.
Not medical news. Not research abstracts. Not pharma promos.
#sarcoidosis #chronicillness #livedexperience
Static Info Post
This feed pulls real-life posts from people living with Sarcoidosis.
Not medical news. Not research abstracts. Not pharma promos.
#sarcoidosis #chronicillness #livedexperience
🫀HEART FAILURE: REAL LIFE🫀
Static Info Post
This feed pulls real-life posts from people living with heart failure.
Not medical news. Not research abstracts. Not pharma promos.
bsky.app/profile/did...
#heartfailure #chronicillness #livedexperience #patientvoice
Static Info Post
This feed pulls real-life posts from people living with heart failure.
Not medical news. Not research abstracts. Not pharma promos.
bsky.app/profile/did...
#heartfailure #chronicillness #livedexperience #patientvoice
Heart Failure: Real Life by @tatebasildon.bsky.social
Curated feed centering real-life lived experiences of heart failure. Focused on personal stories, daily challenges, humor, and survival—not medical news, research, or promotions.
bsky.app
December 22, 2025 at 7:57 AM
🫀HEART FAILURE: REAL LIFE🫀
Static Info Post
This feed pulls real-life posts from people living with heart failure.
Not medical news. Not research abstracts. Not pharma promos.
bsky.app/profile/did...
#heartfailure #chronicillness #livedexperience #patientvoice
Static Info Post
This feed pulls real-life posts from people living with heart failure.
Not medical news. Not research abstracts. Not pharma promos.
bsky.app/profile/did...
#heartfailure #chronicillness #livedexperience #patientvoice
Sometimes, I think ChatGPT wants me unalive. I entered my symptoms and it said I should get the ER stat. It sounds like a pulmonary embolism. You know what? I’m too tired. It’ll have to wait for tomorrow for my sarcoidosis to end me.
#sarcoidosis #chronicillness #pulmonartembolism #reality #fatigue
#sarcoidosis #chronicillness #pulmonartembolism #reality #fatigue
December 22, 2025 at 2:12 AM
Sometimes, I think ChatGPT wants me unalive. I entered my symptoms and it said I should get the ER stat. It sounds like a pulmonary embolism. You know what? I’m too tired. It’ll have to wait for tomorrow for my sarcoidosis to end me.
#sarcoidosis #chronicillness #pulmonartembolism #reality #fatigue
#sarcoidosis #chronicillness #pulmonartembolism #reality #fatigue
Living with sarcoidosis means my plans are always tentative—even the imaginary ones. #sarcoidosis #chroniclife
December 22, 2025 at 12:34 AM
Living with sarcoidosis means my plans are always tentative—even the imaginary ones. #sarcoidosis #chroniclife
19 years after my sarcoidosis diagnosis, I’m finally telling the truth about my open lung biopsy—what went wrong, what it took, and what recovery really felt like.
#sarcoidosis #chronicillness #livedexperience #patientstory
#sarcoidosis #chronicillness #livedexperience #patientstory
Nineteen Years Since Diagnosis: My Open Lung Biopsy Story
Nineteen years after my sarcoidosis diagnosis, I’m finally sharing the story of my open lung biopsy—the surgery that changed everything. From failed bronchoscopy to five hours on the operating table, this brutally honest account reveals what recovery from an open lung biopsy really feels like. If...
www.buzzsprout.com
December 21, 2025 at 11:31 PM
19 years after my sarcoidosis diagnosis, I’m finally telling the truth about my open lung biopsy—what went wrong, what it took, and what recovery really felt like.
#sarcoidosis #chronicillness #livedexperience #patientstory
#sarcoidosis #chronicillness #livedexperience #patientstory
Sarcoidosis fatigue isn’t tired. It’s your body quietly closing apps. #sarcoidosis #chronicfatigue
December 21, 2025 at 10:27 PM
Sarcoidosis fatigue isn’t tired. It’s your body quietly closing apps. #sarcoidosis #chronicfatigue
They say sarcoidosis is rare; my calendar strongly disagrees. #sarcoidosis #raredisease
December 21, 2025 at 7:41 PM
They say sarcoidosis is rare; my calendar strongly disagrees. #sarcoidosis #raredisease
When a friend claims they make the BEST hummus and you taste it
a baby making a funny face with a serious look on his face
ALT: a baby making a funny face with a serious look on his face
media.tenor.com
December 21, 2025 at 6:52 PM
When a friend claims they make the BEST hummus and you taste it
My immune system, with sarcoidosis, has the confidence of someone who never checks their work. #sarcoidosis #autoimmune
December 21, 2025 at 4:46 PM
My immune system, with sarcoidosis, has the confidence of someone who never checks their work. #sarcoidosis #autoimmune
I am so at this stage with my sarcoidosis. It’s been twenty years and now I feel like enough is enough.
December 21, 2025 at 4:23 PM
I am so at this stage with my sarcoidosis. It’s been twenty years and now I feel like enough is enough.
Happy Winter Solstice!
The Sun returns! Yea!
The Sun returns! Yea!
a deer is standing in a snowy forest with a glowing moon in its antlers
ALT: a deer is standing in a snowy forest with a glowing moon in its antlers
media.tenor.com
December 21, 2025 at 4:13 PM
Happy Winter Solstice!
The Sun returns! Yea!
The Sun returns! Yea!