The HH Life
@thehhlife1.bsky.social
Learning to live with Hereditary Hemochromatosis (iron-overload)🩸Learn, Live, Lighten the load 🧘🏻♀️
#HighIronLife
#HighIronLife
Had my first hematology appointment today. Still no solid understanding on where I’m starting from exactly. New blood work - more confusing numbers. Next step: a Liver MRI. Hopefully this will give us the baseline to build on.
September 10, 2025 at 11:53 PM
Had my first hematology appointment today. Still no solid understanding on where I’m starting from exactly. New blood work - more confusing numbers. Next step: a Liver MRI. Hopefully this will give us the baseline to build on.
I got my HH “diagnosis” about 7-weeks ago now and immediately everyone (myself included) started using words like ‘chronic illness’ and ‘condition.’
But sitting here today, something clicked with me.
Want to know what that was? Come see me over on IG for the rest of the story …. @thehhlife1
But sitting here today, something clicked with me.
Want to know what that was? Come see me over on IG for the rest of the story …. @thehhlife1
September 5, 2025 at 9:12 PM
I got my HH “diagnosis” about 7-weeks ago now and immediately everyone (myself included) started using words like ‘chronic illness’ and ‘condition.’
But sitting here today, something clicked with me.
Want to know what that was? Come see me over on IG for the rest of the story …. @thehhlife1
But sitting here today, something clicked with me.
Want to know what that was? Come see me over on IG for the rest of the story …. @thehhlife1
ECHOCARDIOGRAM RESULTS:
Just got my echocardiogram results back and my heart is PERFECT. No changes since 2020, everything functioning beautifully despite my recent HH diagnosis. I'm not gonna lie - I was scared.
Just got my echocardiogram results back and my heart is PERFECT. No changes since 2020, everything functioning beautifully despite my recent HH diagnosis. I'm not gonna lie - I was scared.
September 4, 2025 at 5:27 PM
ECHOCARDIOGRAM RESULTS:
Just got my echocardiogram results back and my heart is PERFECT. No changes since 2020, everything functioning beautifully despite my recent HH diagnosis. I'm not gonna lie - I was scared.
Just got my echocardiogram results back and my heart is PERFECT. No changes since 2020, everything functioning beautifully despite my recent HH diagnosis. I'm not gonna lie - I was scared.
Echocardiogram Day - I’m not terribly concerned, but I do know that there is quite possibly damage to my heart from the “free iron” running unchecked in my system right now. Here’s the morning ritual I’m leaning on to help me get centered and grounded for my appointment today.
September 3, 2025 at 4:11 PM
Echocardiogram Day - I’m not terribly concerned, but I do know that there is quite possibly damage to my heart from the “free iron” running unchecked in my system right now. Here’s the morning ritual I’m leaning on to help me get centered and grounded for my appointment today.
The more you know ….
September 2, 2025 at 2:25 PM
The more you know ….
HH & Overheating
Excess iron messes with cellular energy production, making our bodies unable to regulate our temperature.
Symptoms include: • Hot flashes that make menopause look mild • Sweating that soaks through clothes • Feeling like you're melting • Inability to handle normal temperatures.
Excess iron messes with cellular energy production, making our bodies unable to regulate our temperature.
Symptoms include: • Hot flashes that make menopause look mild • Sweating that soaks through clothes • Feeling like you're melting • Inability to handle normal temperatures.
August 31, 2025 at 9:09 PM
HH & Overheating
Excess iron messes with cellular energy production, making our bodies unable to regulate our temperature.
Symptoms include: • Hot flashes that make menopause look mild • Sweating that soaks through clothes • Feeling like you're melting • Inability to handle normal temperatures.
Excess iron messes with cellular energy production, making our bodies unable to regulate our temperature.
Symptoms include: • Hot flashes that make menopause look mild • Sweating that soaks through clothes • Feeling like you're melting • Inability to handle normal temperatures.
This page is a real-time documentation of my HH journey. I’d never even heard of it before being diagnosed with it in mid-July. 1 in 300 people are diagnosed with Hereditary Hemochromatosis. Between 80-90% of those with Hemochromatosis have Type 1. It’s a moderate to severe condition.
a cartoon drawing of a blood drop in a hospital bed with the words be a hero donate blood below it
ALT: a cartoon drawing of a blood drop in a hospital bed with the words be a hero donate blood below it
media.tenor.com
August 29, 2025 at 2:20 PM
This page is a real-time documentation of my HH journey. I’d never even heard of it before being diagnosed with it in mid-July. 1 in 300 people are diagnosed with Hereditary Hemochromatosis. Between 80-90% of those with Hemochromatosis have Type 1. It’s a moderate to severe condition.
Preparing for this upcoming echocardiogram next week, I’m learning what happens to the heart when “free iron” goes wreaking havoc in your system. My growing list of questions for my healthcare team grows as I research more into what HH can do & what I can do to keep my heart healthy. #thehhlife1
August 28, 2025 at 6:33 PM
Preparing for this upcoming echocardiogram next week, I’m learning what happens to the heart when “free iron” goes wreaking havoc in your system. My growing list of questions for my healthcare team grows as I research more into what HH can do & what I can do to keep my heart healthy. #thehhlife1
My latest Substack.
When Your Body Changes The Wellness Rules
A Certified Wellness Practitioners Tale
open.substack.com
August 27, 2025 at 8:18 PM
My latest Substack.
Though I’m new to Hereditary Hemochromatosis, I’m learning a ton. It’s so important to get as much information as you can so you can safely make lifestyle adjustments - with your healthcare professionals assistance, of course - as soon as you can.
Join me on IG @thehhlife1 to follow my journey.
Join me on IG @thehhlife1 to follow my journey.
August 27, 2025 at 8:17 PM
Though I’m new to Hereditary Hemochromatosis, I’m learning a ton. It’s so important to get as much information as you can so you can safely make lifestyle adjustments - with your healthcare professionals assistance, of course - as soon as you can.
Join me on IG @thehhlife1 to follow my journey.
Join me on IG @thehhlife1 to follow my journey.
