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Gregg Gonsalves @gregggonsalves.bsky.social · 4d

@joho.bsky.social is a practicing clinician at NYU & a public health hero. In his previous book he documented the unhinged campaign in the early years of COVID to tell us SARSCOV2 was no big deal, we should let people get infected. Now these maniacs are in charge. Read about it here in his new book.

Jonathan Howard @joho.bsky.social · 5d

The sequel to We Want Them Infected is done!

COVID killed 1.2 million Americans while vaccines saved millions.

Yet, disinformation superspreaders were empowered, where they are taking a wrecking ball to science & medicine.

How did that happen?🧵

sciencebasedmedicine.org/everyone-els...

Everyone Else is Lying to You: My Book is Done!

The pandemic’s biggest disinformation superspreaders are now in charge. How did this happen?

sciencebasedmedicine.org

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Not Many Spoons @tironbeard.bsky.social · 2d

Insightful. “Disabled people, and people with Long COVID, have been calling ourselves canaries in the coal mine for a reason. We may have been harmed first and worst, but we are warning you that COVID is dangerous because our bodies are made of flesh and blood - hearts and brains- just like yours.”

Julia Doubleday @juliadoubleday.bsky.social · 3d

Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:

www.thegauntlet.news/p/when-will-...

When Will the Lion Concern Himself

Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days

www.thegauntlet.news

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 7d

Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.

Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪

#MEAction Network @meactnet.bsky.social · 7d

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.”
Jaime Seltzer,
Scientific Director, #MEAction
Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.

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#MEAction Network @meactnet.bsky.social · 7d

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

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Prof Peter Hotez MD PhD DSc(hon) @peterhotezmdphd.bsky.social · 9d

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Dr. Lucky Tran @luckytran.com · 14d

Yesterday, history happened at the UN: For the first time hundreds of orgs signed a global pledge declaring that healthy indoor air is a human right.

Healthy indoor air is a key tool for preventing pandemics, building climate resilience, and increasing health equity. We need it everywhere!

People signing the Global Pledge for Healthy Indoor Air at the UN

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Conor Browne @brownecfm.bsky.social · 12d

Let me be clear. As someone who has been professionally involved with the biodefense / biosecurity sector for nearly 20 years, and has worked on biological risk analysis for Covid-19 since early 2020, reducing one's risk of being infected is not health anxiety. It's just smart.

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#MEAction Network @meactnet.bsky.social · 13d

We have wonderful events to add to your Fall calendar.

Register: www.meaction.net/event-list

Oct 1 3 pm ET: Q&A with Author Brian Buckbee

Oct 9 3 pm ET: Grief is Love by Marisa Renee Lee

Oct 21 3 pm ET: Dealing with Grief & Chronic Illness: A Workshop with Marisa Renee Lee

#pwME #MECFS

Graphic with the 3 events and information on each shared in the post. #MEAction October Events 1. Photo of book cover "We Should All Be Birds" Q & A with Author Brian Buckbee Oct. 1 3 pm ET 2. Photo of book "Grief is Love" Grief is Love by Marisa Renee Lee Oct. 9 3 pm ET 3. Photo of Marisa Renee Lee (Black woman smiling wearing black top) Dealing with Grief & Chronic Illness Oct. 21 3 pm ET

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 14d

Our current admin hates disabled people 🌈
www.afge.org/article/cdc-...

CDC Removes Disability as Reasonable Accommodation for Remote Work, Backtracks After Union Pressure

Leadership at the Centers for Disease Control and Prevention had said employees with disabilities would no longer be approved for telework or remote work as a reasonable accommodation – a stunning vio...

www.afge.org

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Dr. Lucky Tran @luckytran.com · 14d

Here's a Youtube link of Violet Affleck's full speech about COVID and clean air at the United Nations:

Violet Affleck's Fiery UN Speech On COVID and Clean Air

YouTube video by Lucky Tran

youtu.be

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Dr. Lucky Tran @luckytran.com · 15d

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”

Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

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Kelly @broadwaybabyto.bsky.social · 16d

Today’s autism announcement was just as bad as we feared

Trump blamed Tylenol & vaccines for autism

They encouraged women to just “tough out” their pain

They praised people who don’t “need” meds or vaccines

These are eugenicist talking points & they’re devastating to the disability community:

Trump's Big Autism Announcement and What It Means for the Disability Community

The MAHA team came out swinging today against vaccines, Tylenol and more. Their big autism announcement was riddled with eugenicist language designed to blame and punish people for their disabilities.

www.disabledginger.com

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O. Rose Broderick @rosebroderick.bsky.social · 22d

BREAKING: The CDC is temporarily ending remote work. The decision leaves scores of employees in the lurch, even forcing people with disabilities with high-support needs to come into the office. #disability

www.statnews.com/2025/09/16/c...

CDC temporarily revokes remote work approvals for employees with disabilities

The CDC revoked permission for employees with disabilities to work from home, at least temporarily

www.statnews.com

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Conor Browne @brownecfm.bsky.social · 22d

1. Pandemics shape politics and societies. Collective trauma is a powerful force, as is societal reaction to governmental responses to reduce transmission. This is not controversial; humanity experienced it after The Spanish Flu.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 23d

Try taking the COVID competency exam yourself, and share it around! Great way to bust myths (and the person who wrote it is an epidemiologist, and well-informed, so it really does).

seanmullen.com/covidcompete...

100%

You got 20 out of 20 questions correct (weighted score: 26.6/26.6).

*mask face emoji* EPIDEMIOLOGIST'S NIGHTMARE
Perfect score! You're so well-informed, conspiracy theorists actively avoid you at parties.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 28d

Made it to RECOVER TLC!

Me, with my brown hair pulled back wearing a dark blue business jacket and a bright patterned yellow and blue shirt wearing glasses and a black face mask

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Wildlife @worldwildlife.bsky.social · Sep 6

Sea Otter (Enhydra lutris): There is so much more to a sea otter than meets the eye. By munching on urchins, it helps kelp forests flourish, and by crunching on crabs, it promotes eelgrass in estuaries. This mammal has the thickest of fur per square inch and is native to Pacific coasts. #seaotter

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Wilhelmina Jenkins @wilhelminaj.bsky.social · Sep 5

Today the importance of donations to #MEAction is especially clear. In addition to the brilliant reporting from Scientific Director Jaime Seltzer, we have the announcement of a new staff member for the Minnesota Home Health Navigation Program. To continue this good work, please donate if you can.

It's ME(Jaime) @exceedhergrasp1.bsky.social · Sep 5

Reminder: if you find this translational work valuable, please drop a donation to #MEAction here: www.meaction.net/donate

We'd really appreciate it!

Donate - #MEAction Network

www.meaction.net

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Tom Kindlon @tomkindlon.bsky.social · Sep 5

Updated public information page on ME/CFS from New Zealand's health authority

info.health.nz/conditions-t...

Initial impressions from me & a few others are that it is quite good. It probably helps that feedback had been sought.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Chronic fatigue syndrome
Chronic fatigue syndrome is a debilitating, long-term illness that affects many systems in the body. It is also called myalgic encephalomyelitis or ME/CFS. It can affect people of all ages and ethnic and socio-economic groups. Women are more likely to be diagnosed with it than men.

On this page
What causes ME/CFS
Symptoms of ME/CFS
Diagnosing ME/CFS
Self care for ME/CFS
Medication and other help for ME/CFS
What causes ME/CFS
We do not yet understand what causes ME/CFS, but research suggests that the immune system is involved. It often starts after an infection such as:

glandular fever
the flu
COVID-19.
There is some evidence that the illness may run in families.

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Not Many Spoons @tironbeard.bsky.social · Sep 2

Great post. One critical point to me is that people are "not making decisions about COVID mitigation downstream of their ideas about disease severity, they’re developing ideas about disease severity downstream of decisions about mitigation."

Julia Doubleday @juliadoubleday.bsky.social · Sep 2

Those of us with Long COVID have been grievously harmed by our government’s failure to implement disease control measures. That same government's denial of COVID's dangers has also created massive stigma around our illness, redoubling that harm.

My latest:

www.thegauntlet.news/p/long-covid...

Long COVID stigma adds insult to injury

It's weird having an illness a lot of people simply don't believe in

www.thegauntlet.news

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#MEAction Network @meactnet.bsky.social · Aug 26

Essential telehealth provisions are set to expire on September 30th 2025. Congress needs to hear from all of us that telehealth saves lives.

Sample script and call instructions: www.meactions.org/telehealth

#pwME #telehealth #disability #MyalgicE #LongCovid #congress #MECFS

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ProPublica @propublica.org · Aug 12

NEW: In June, ProPublica reported that the FDA has given more than 20 foreign factories a special pass to send drugs to the U.S. even though they were made at plants the agency had banned.

Today, we’re publishing a list of those exempted drugs.

The FDA Let Substandard Factories Ship These Medications to the U.S.

ProPublica identified more than 150 products that were exempted from import bans since 2013. Our list provides the names of the drugs or ingredients and their manufacturers, many of which are no longe...

www.propublica.org

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It's ME(Jaime) @exceedhergrasp1.bsky.social · Aug 12

Everyone needs to read this

This is extremely bad

ProPublica @propublica.org · Aug 12

NEW: In June, ProPublica reported that the FDA has given more than 20 foreign factories a special pass to send drugs to the U.S. even though they were made at plants the agency had banned.

Today, we’re publishing a list of those exempted drugs.

The FDA Let Substandard Factories Ship These Medications to the U.S.

ProPublica identified more than 150 products that were exempted from import bans since 2013. Our list provides the names of the drugs or ingredients and their manufacturers, many of which are no longe...

www.propublica.org

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#MEAction Network @meactnet.bsky.social · Aug 8

Today is #SevereMEDay - a day we come together to especially take time to honor the 25 percent living with the most severe form of this disease and remember those who have died from ME.

Myalgic encephalomyelitis is a complex chronic disease that presents with symptoms in multiple body systems.

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betsy ladyzhets 😷 @betsyladyzhets.bsky.social · Aug 8

Today, on Severe ME Awareness Day, @thesicktimes.org is proud to publish this piece by @naomiwhitt.bsky.social sharing the story of singer Kara Jane and her new album, released posthumously by her family. thesicktimes.org/2025/08/08/p...

Posthumous album of singer Kara Jane released on Severe ME Awareness Day - The Sick Times

This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her...

thesicktimes.org

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