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Touretteshero @touretteshero.bsky.social · 5d

Great guest blog by our Senior Producer Nisha on Epilepsy & organists. One of the complexities of living with brain conditions is that it's also where so much of who we are is located. Navigating the reality of this can be practically & emotionally complex: www.touretteshero.com/2025/09/01/l...

Living with the Organist – Nisha Oza

If living with Tourettes has taught me one thing it’s that brains are incredibly complex and that medical understandings of neurological conditions and the reality of living with them can often feel q...

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Touretteshero @touretteshero.bsky.social · 6d

We're planning to reprint our welcome pack for children with #Tourettes & are adding a letter for siblings. If you're a person with tics, their sibling, or parent/carer please complete a short survey & help us make the letter as useful as possible: www.touretteshero.com/safe/2025/10...

Siblings Letter – Your Help Needed

Last year we launched the Touretteshero Welcome Pack, a set of artist designed letters that we provide free to children who are newly diagnosed with tics or Tourettes, and their families. The welcome ...

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Touretteshero @touretteshero.bsky.social · Aug 15

Our Practical Intervention fund's back! This time with a Mobility focus, we can't provide actual mobility aids but we have 8 great items we can gift to disabled people who aren't able to buy them. Simple application process, more here: www.touretteshero.com/2025/08/12/p... closes 03/09/25

Practical Intervention Fund – Mobility Edition

It’s been four years since we launched our Practical Intervention Fund (PIF). The fund enables disabled, deaf and neurodivergent people to experiment with different items which can support their wellb...

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Touretteshero @touretteshero.bsky.social · Aug 1

When it works properly & I can remember a time when it did #AccessToWork is liberating & transformative. I want to make it absolutely clear that disabled people are here to stay, that our lives, experiences, skills and imaginations matter & we are not disposable. 2/2

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Touretteshero @touretteshero.bsky.social · Aug 1

I've not been able to do my job for the last 3 months because of a DWP decision to cut my #AccessToWork support. This week I received a letter reinstating my support, while this is good news for me there are many others still affected by cuts & delays touretteshero.com/safe/2025/07... 1/2

We Are Not Disposable

A couple of weeks ago some colleagues and I gathered round a phone in the Touretteshero office to speak to my newly allocated caseworker from the Department for Work and Pensions about my Access to Wo...

touretteshero.com

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Touretteshero @touretteshero.bsky.social · Jul 11

An important article by Andrew Miller in @ArtsPro please read and share: www.artsprofessional.co.uk/magazine/fea... #ProtectAtW #TakingThePip

Benefit reforms risk pushing disabled creatives back to the margins - Arts Professional

Without equitable access to life enhancing benefits, disabled people's participation in culture is severely limited, writes the UK's arts access champion Andrew Miller.

www.artsprofessional.co.uk

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Reposted by Touretteshero

Dee @deeruddock.bsky.social · Jun 30

I’m so shocked this is happening, in 21st century Britain, under a Labour govt. - the words say “get people working “ the policies are causing the complete opposite!

Touretteshero @touretteshero.bsky.social · Jun 30

My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...

My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed?

Shortly before my emergency pacemaker operation at the end of March, I had a meeting with a couple of my colleagues to talk about what should happen to our company if I didn’t survive the procedure. T...

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Kieran Hurley @kieranhurley.bsky.social · Jun 30

I don't know Jess personally, but for pretty much the entire time I've been working professionally she has been widely regarded as a valued and respected figure in the British theatre sector. That it has taken a Labour government to force her out of work is an indelible mark of shame.

Touretteshero @touretteshero.bsky.social · Jun 30

My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...

My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed?

Shortly before my emergency pacemaker operation at the end of March, I had a meeting with a couple of my colleagues to talk about what should happen to our company if I didn’t survive the procedure. T...

www.touretteshero.com

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Touretteshero @touretteshero.bsky.social · Jun 30

My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed? www.touretteshero.com/2025/06/20/m...

My Job Hasn’t Changed, My Disability Hasn’t Changed, So Why Has My Support Changed?

Shortly before my emergency pacemaker operation at the end of March, I had a meeting with a couple of my colleagues to talk about what should happen to our company if I didn’t survive the procedure. T...

www.touretteshero.com

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Reposted by Touretteshero

Ramandeep Kaur @mumof3amigos.bsky.social · Jun 30

Channel 4 news interviewing Jess Thom who cannot continue working due to cuts in Access to Work funding.

It was Jess’ organisation, @touretteshero.bsky.social that enabled my learning disabled son, to perform at the Southbank in London.

The cuts in support for #disabled people must stop.

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Touretteshero @touretteshero.bsky.social · Jun 28

A Tale of Two Pods, offering us two versions of the future, which would you choose? www.touretteshero.com/2025/06/25/a...

A Tale of Two Pods

Content Notice: References to genocide and Euthanasia In 2016 much to my surprise and delight I became a Wellcome Trust Engagement Fellow. This Fellowship from an internationally recognised health re...

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John Pring, DNS @johnpring.bsky.social · Jun 26

Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister
www.disabilitynewsservice.com/making-all-s...

Making all self-driving pilot schemes accessible would be ‘counter-productive’ and slow us down, says minister

A transport minister has told peers that it would be “counter-productive” – and take too long – to draw up rules that would ensure all pilot schemes of self-driving taxis are accessible to disabled…

www.disabilitynewsservice.com

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Touretteshero @touretteshero.bsky.social · Jun 20

Sharing this in solidarity with all those who, like me, are deeply worried and concerned about the outcome of the #AssistedDying vote today: www.touretteshero.com/2025/06/20/l... #TakingThePip #ProtectAtW

Labour’s Pincer Movement

Is it just me or is it feeling a lot like the 1930s all of a sudden? I’m giving myself permission to ask big questions like this in part because I’m not working at the moment. The reason why I’m not d...

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Touretteshero @touretteshero.bsky.social · Jun 20

Family coercion is one risk, the much bigger risk, in a society that often fails to comprehend the reality of sick & disabled lives, is systemic coercion. There’s a lot of talk of ‘choice in death’ but many of us don’t have choice over how we live 3/3

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Touretteshero @touretteshero.bsky.social · Jun 20

I’m worried this will make my support much more expensive and I may be pressured to move to residential care - loosing my home as a result. This is the context in which #AssistedDying is being discussed. 2/3

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Touretteshero @touretteshero.bsky.social · Jun 20

I’ve been vocal about the impact the cuts to my Access To Work support have had on my job. I haven’t explained publicly my biggest fear - I’ve lost 45hrs of support a week and if this isn’t reinstated I’ll have to go back to #SocialCare & #NHS to cover these lost hours 1/3

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Cassetteboy @cassetteboy.bsky.social · Jun 18

The only thing preventing Jess from working is Keir Starmer.

Touretteshero @touretteshero.bsky.social · Jun 17

My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social

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Cassetteboy @cassetteboy.bsky.social · Jun 17

Please watch the videos in this thread. It's unbelievable that a Labour government is forcing disabled people out of work #LabourIsn'tWorking

Touretteshero @touretteshero.bsky.social · Jun 17

My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social

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Touretteshero @touretteshero.bsky.social · Jun 17

Keir Starmer says Labour is the party of work, equality and fairness, but less than a year after the election, changes at the Department for Work and Pensions have forced me to stop doing the job I love. The full video can be found here: www.youtube.com/watch?v=fxpq... #AccessToWork

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Touretteshero @touretteshero.bsky.social · Jun 17

We must hold our elected officials to account, and demand not to be ignored. Let them know what you think now: wearebap.co.uk/campaign 4/4

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Touretteshero @touretteshero.bsky.social · Jun 17

Access to Work can be glorious, and it’s worth fighting for, find out more on how here: wearebap.co.uk/campaign 3/4

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Touretteshero @touretteshero.bsky.social · Jun 17

My job hasn’t changed, my disability hasn’t changed, so why has my support changed? #AccessToWork wearebap.co.uk/campaign 2/4

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Touretteshero @touretteshero.bsky.social · Jun 17

My urgent message to Keir Starmer's Labour government about the devastating impact of cuts to #AccessToWork funding for working disabled people. wearebap.co.uk/campaign 1/4 @tomryalls.bsky.social @disabilityarts.bsky.social

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Touretteshero @touretteshero.bsky.social · Jun 9

The start of my 3rd week not being able to work because of a decision by the DWP under Keir Starmer to cut my #AccessToWork support by 61%. With support I can work, without it I can't. The shock & sadness is still overwhelming: www.touretteshero.com/safe/2025/05... @miattafahnbulleh.bsky.social

A Career-Ending Decision?

Fifteen years ago, I co-founded Touretteshero as a creative response to the increasing impact that my tics were having on my life. I also started writing this blog. Over the years I’ve tackled some tr...

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Touretteshero @touretteshero.bsky.social · Jun 8

With the cut to my #AccessToWork support meaning I can’t do my job & impacting creative projects, it’s been a while since I felt excited & moved by theatre but experiencing the #RelaxedPerformance of #MatildaMusical with my niece this afternoon was the reminder I needed.

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