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Usha Grieve @ushagrieve.bsky.social · 9d

Good to hear @sharonbrennan.bsky.social @nationalvoices.bsky.social championing the crucial role that VCSE’s will play in realising the shift to community and brilliantly making the point that the 10YP care plan target must not result in tokenistic recording of patient wishes. #LabourConference2025

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Reposted by Usha Grieve

Compassion in Dying @compassionindying.bsky.social · Aug 20

Thanks @nationalvoices.bsky.social

As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.

National Voices @nationalvoices.bsky.social · Aug 20

🚀 New to the blog!

Over 2300 people told @compassionindying.bsky.social what they need to make informed choices about assisted dying. Jemma Woodley shares their findings, and why the third sector must lead the way with clear information and supportive conversations.

👉 tinyurl.com/yhum8eyn

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Reposted by Usha Grieve

Compassion in Dying @compassionindying.bsky.social · Jun 2

Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.

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Usha Grieve @ushagrieve.bsky.social · May 23

How do you make culture change real?

Compassion in Dying @compassionindying.bsky.social · May 23

“If you’re like me, you’ve been to endless conversations where we say we need culture change, but not much happens to make this a reality" @charlotteaugst.bsky.social

Join our webinar to explore how we make culture change real at the end of people's lives

www.eventbrite.com/e/supporting...

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Reposted by Usha Grieve

Compassion in Dying @compassionindying.bsky.social · May 2

📢 New webinar!

Join us as @charlotteaugst.bsky.social chair’s a 60 minute solutions-focused webinar where we discuss what’s needed to build a successful public health campaign that helps people to make end-of-life decisions that are right for them.

www.eventbrite.com/e/supporting...

Supporting people to make end-of-life decisions: A public health campaign

A free webinar to consider what’s needed to build a successful campaign to help people make end-of-life decisions that are right for them.

www.eventbrite.com

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Reposted by Usha Grieve

Clare Fuller @clarefuller.bsky.social · Apr 21

🎙️ New episode in our #ACPDay2025 series!

Dani, James & I talk:
🎯ADRTs @kitzingercelia.bsky.social
🎯LPAs
🎯How YOU can be part of the movement on 7 May & beyond

🎧 speakforme.co.uk/podcast-epis...
📣https://advancecareplanday.org/

#AdvanceCarePlanning #DyingMatters #LPA #ADRT #OpenJustice

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Usha Grieve @ushagrieve.bsky.social · Apr 23

This is a great example of what we do at Compassion in Dying - find practical solutions to help people navigate decisions when they're not being listened to.

We see lots of examples that show how policy is good but the gap between that and practice can be vast.

Compassion in Dying @compassionindying.bsky.social · Apr 23

Health attorneys call us because they need urgent help.

Often they struggle to be heard when trying to refuse treatment on behalf of the person they love.

In our blog we discuss the lack of support for attorneys and what we're doing to fill this gap 👇

compassionindying.org.uk/blog-post/re...

Resolving disputes: Health and welfare attorneys tell us they need more support

There are significant gaps in the support available to enable health attorneys to make decisions for the people they love.

compassionindying.org.uk

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Reposted by Usha Grieve

Charlotte Augst @charlotteaugst.bsky.social · Mar 19

This is such an important point. We can't 'sort' dying just by investing in services (important though that is). We need to invest in community: its understanding, choices and agency.

Compassion in Dying @compassionindying.bsky.social · Mar 19

There are many conversations happening now about improving dying.

They often focus on service design & resources.

What's sometimes missing is how, at the end of life, we don’t just need service change, we need culture change.

Read our blog👇
compassionindying.org.uk/blog-post/at...

At the end of life, we don’t just need service change, we need culture change.

How can we foster a societal shift where people and communities own dying, not healthcare services?

compassionindying.org.uk

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Usha Grieve @ushagrieve.bsky.social · Mar 19

We need to make sure what comes out of the 10 year plan for end of life care includes a new focus on listening to and foregrounding the wishes of people.

👀 Some thoughts from me 👇

Compassion in Dying @compassionindying.bsky.social · Mar 19

There are many conversations happening now about improving dying.

They often focus on service design & resources.

What's sometimes missing is how, at the end of life, we don’t just need service change, we need culture change.

Read our blog👇
compassionindying.org.uk/blog-post/at...

At the end of life, we don’t just need service change, we need culture change.

How can we foster a societal shift where people and communities own dying, not healthcare services?

compassionindying.org.uk

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Reposted by Usha Grieve

Lucy Seymour @lucysey.bsky.social · Mar 18

In 2023 my lovely former colleague, Pavi Brar, & I identified a gap – there was no space for those beginning their career in the VCSE sector to meet & grow together.

This acted as the catalyst for @nationalvoices.bsky.social's Next Generation Network.

www.nationalvoices.org.uk/project/nati...

National Voices’ Next Generation Network

National Voices’ Next Generation Network events are aimed at early career policy, communications and engagement professionals with an interest in health, care, and addressing inequalities.

www.nationalvoices.org.uk

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Reposted by Usha Grieve

Compassion in Dying @compassionindying.bsky.social · Feb 5

New findings from @mariecurieuk.bsky.social @nuffieldtrust.bsky.social and Health Economics Unit make for an important read.

Current health spending for people in their last year of life is disproportionately distributed towards hospital care rather than primary and community care services.

Marie Curie UK @mariecurieuk.bsky.social · Feb 5

‼️🗨️ New research finds that UK public expenditure for people in the last year of life across healthcare, social care and social security is in the region of £22 billion.

Here's a breakdown of what UK governments spend on people in their final year of life. 👇

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Usha Grieve @ushagrieve.bsky.social · Nov 27

I agree with this wholeheartedly. We need both.

Charlotte Augst @charlotteaugst.bsky.social · Nov 27

I have written a short piece in BMJ about why the debate about Friday's vote on the Assisted Dying Bill is smacking of medical paternalism - creating some false dichotomy between wanting better palliative care AND the right to a gentler death. We can have both, you know! www.bmj.com/content/387/...

Medical and political paternalism and the end of life

www.bmj.com

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