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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · 23d

Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN.

Sign up 👇

reg.eventmobi.com/ilcsc2025/regi…#LCSMSM

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Reposted by Yvonne Diaz

ALK Positive Inc. @alkpositive.bsky.social · 22d

🌍 The 2025 ALK+ Summit brought together our community from 30 countries — united in one mission: accelerating research and supporting ALK-positive lives.

💙 Together, we are stronger.

👉 Stay connected for ALK Summit 2026: mailchi.mp/alkpositive/...

#ALKPositive #StrongerTogether

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Yvonne Diaz @yvonnediaz.bsky.social · 23d

Lung cancer is increasingly being diagnosed in younger, fit women with no smoking history - like Sarah & Becca.

As Drs Cecilia Pompili & Alex Georgiou say, we need greater awareness, & more research so that women are seen, heard, and diagnosed sooner.

theguardian.com/society/2025/s…#lcsmsm

Photo of a lung cancer patient called Sarah who was diagnosed with lung cancer at age 40

A photo of Sarah holding up the guardian newspaper which features an article of her being diagnosed with lung cancer despite never having smoked and being young and a marathon

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Reposted by Yvonne Diaz

ALK Positive Inc. @alkpositive.bsky.social · 28d

Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙
#LCSM

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Yvonne Diaz @yvonnediaz.bsky.social · 28d

We are all here for you.

Reposted by Yvonne Diaz

D. Ross Camidge @drcamidge.bsky.social · Sep 8

After three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...

World Lung Cancer Expert Diagnosed with Advanced Lung Cancer

D. Ross Camidge, MD, PhD, has spent his career fighting lung cancer. In 2022, that fight turned personal when he received a diagnosis of his own.

news.cuanschutz.edu

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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · Sep 5

Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer.

Check it out👇📷
static1.squarespace.com/static/65ca0...

#LCSM

Photos of Jan Clark, our co-founder, with her daughter Amy who was diagnosed at age 20 which stage four lung cancer. They’re standing next to BBC radio presenter. John Darvall

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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · Aug 14

Surgery isn’t usually offered for stage 4 #lungcancer.

Steve, diagnosed w stage 4 ALK+ in 2020, believed it could help prevent resistance. After targeted therapy shrank his tumour, he fought for surgery & got it.

Read his story + our patient info: oncogeneresearch.org/surgery
#LCSM

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Reposted by Yvonne Diaz

ALK Positive Inc. @alkpositive.bsky.social · Jul 21

✨ What a weekend!✨

Our 2025 ALK+ Summit wrapped up today — but the connections, knowledge & hope keep going strong. Thank you for showing up & reminding us we’re #StrongerTogether.

Stay tuned for more moments from this unforgettable weekend! 💙

#ALKSummit25 #LCSM

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Yvonne Diaz @yvonnediaz.bsky.social · Jul 16

The ALK+ Summit is truly one of the most anticipated events for our ALK cancer community. Not everyone can travel to San Diego to join, but worth watching online. We will also post all videos after the event too.

Registration link below 👇

ALK Positive Inc. @alkpositive.bsky.social · Jul 16

✨ 3 days to go!

Our #ALKSummit25 is more than a conference — it’s hope, connection & the fuel that powers research forward.

Last year was unforgettable. This year? Even bigger. 💙

📅 July 18–20

Join us virtually: secure.qgiv.com/for/alksummit2…

Fantastic speakers & agenda#LCSMSM

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Yvonne Diaz @yvonnediaz.bsky.social · Jul 9

Was a pleasure to join @roycastle.bsky.social and Prof @prof-ali-g.bsky.social on topics very close to my heart.

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Reposted by Yvonne Diaz

OncoDaily @oncodaily.bsky.social · Jul 5

Oncogene Cancer Research - Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis
@oncogenecancer.bsky.social
@yvonnediaz.bsky.social
@prof-ali-g.bsky.social

oncodaily.com/blog/talk-of...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedOnc #MedNews #TalkofHope #LungCancer

Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis - Oncogene Cancer Research - OncoDaily

Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis - Oncogene Cancer Research / Alastair Greystoke, cancer, Liquid Biopsies, Lung

oncodaily.com

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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · Jul 9

We’re proud to donate £10,425 to @icr.ac.uk to advance oncogene-driven lung cancer research, supporting the vital work of Dr Paul Huang.

This is just the start — stay tuned for more big research plans. 💙🔬

oncogeneresearch.org/icr-donation

#LCSM

Screen grab of our co-founders Yvonne Diaz and Jan Clark with the OCR’s Dr Paul Huang.

We’re thrilled to announce a £10,425 donation to the Institute of Cancer Research (ICR) to support vital work into oncogene-driven lung cancers, including research led by Dr Paul Huang’s team.

This donation builds on the £90,000+ already contributed by our co-founders and community to help establish a cross-biomarker biobank and support world-class research at ICR.

A huge thank you to our incredible marathoners —
🏃‍♀️ Christina Roberts
🏃‍♀️ Ruth Price
🏃‍♀️ Aude-Aline Eugene —
for going the distance and raising these essential funds. You’ve inspired us all.

And this is just the beginning. Stay tuned — we’ve got more big plans to support research on the way. 🔬💙

#OncogeneCancerResearch #ICR #LungCancerAwareness #PatientLedResearch #BiomarkerDriven #MarathonForResearch #ThankYou

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Reposted by Yvonne Diaz

ALK Positive Inc. @alkpositive.bsky.social · Jun 16

Amy, Seth, Amanda & Nancy are powered by faith, family & the fight for more research.

This #ALKPositive Awareness Month, they’re taking action to raise $500K for lifesaving breakthroughs.

Join the #PoweredByPatients movement 👉 secure.qgiv.com/event/alkpos... #APAM

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Reposted by Yvonne Diaz

ALK Positive Inc. @alkpositive.bsky.social · Jun 12

🎥 Missed our #APAM kickoff ALKtALK?

Dr. Jesse Boehm shares how @break_cancer is advancing bold ALK+ research & how we’re helping fund it.

We’re raising $500K to continue to project the work at BTC & others like it.

🔗 Watch now youtu.be/GxrUsGIAFUs
#PoweredByPatients #lcsm

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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · Jun 5

📢 Help us understand the emotional toll of #lungcancer.

With @lungcancereurope.bsky.social & 46 orgs, we’re surveying patients & caregivers across Europe to explore the mental health impact of a diagnosis.

🧠 Your voice can shape better support.

🔗 surveymonkey.com/r/LuCESurvey20…#LCSMSM

💬 Help us understand the emotional toll of lung cancer.
Have you or a loved one been impacted by lung cancer?
We’re running a survey across Europe to explore the psychological impact of a lung cancer diagnosis—on both patients and caregivers.
🧠 We want to hear directly from you.
What’s been hardest to cope with?
What support (if any) have you received?
What’s missing?
📢 Your voice matters. By sharing your experience, you can help improve mental health services for others affected by this disease.
👉 Open to people diagnosed with lung cancer and their caregivers (excluding healthcare professionals) living in Europe.
Take the survey here

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Yvonne Diaz @yvonnediaz.bsky.social · May 18

Promising signals from the ALEK-B ph 2 trial: combining alectinib w bevacizumab achieved 97.1% 12-mo PFS & median PFS of 39.6 months in ALK+ #NSCLC. Intracranial control also notably strong.

Could this combo help overcome resistance in more aggressive ALK variants?
#research #lungcancer

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Yvonne Diaz @yvonnediaz.bsky.social · May 15

Seeing and treating the person before you is key in our cancer care. Silence doesn't necessarily mean agreement or no questions. Important to contextualise the person and meet them where they are. It's also a learning curve to get the courage to share thoughts. Great article - thank you

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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · May 15

Understanding cultural norms in cancer care is key.

Aurora Lucas, an advocate living w EGFR #lungcancer, shares how she went from staying silent—out of fear of being disrespectful — to speaking up in this editorial with Dr @lungoncdoc.bsky.social.

👇 openworks.mdanderson.org/aceqi/vol1/i...
#LCSM

Summary of an article:

This editorial emphasizes that patient education is a vital, not optional, part of lung cancer care. It argues that when patients are equipped with clear, culturally responsive, and accessible information, they are better prepared to engage in their treatment, make informed decisions, and adhere to care plans.

Key insights include:

Understanding the disease: Lung cancer is complex, and patients benefit from education tailored to different learning styles—visual aids, plain language, and culturally sensitive approaches are critical.

Shared decision-making: Empowering patients to speak up and collaborate with providers leads to better care alignment with personal values, especially when patients overcome cultural norms that may discourage questioning authority.

Treatment adherence: Clear explanations, ongoing support, and access to peer-driven resources like social media groups and journals improve patients’ ability to follow through with treatments and manage side effects.

Collaborative education: Interdisciplinary teams—including oncologists, nurses, pharmacists, social workers, and patient advocates—enhance the education process. Technology, like apps and videos, makes information more accessible and engaging.

Family involvement & cultural nuance: In many communities, decision-making is collective. Patient education must account for family involvement and be adaptable to cultural norms.

Measuring impact: While anecdotal benefits are strong, more structured research is needed to measure the effectiveness of educational interventions and guide best practices.

Conclusion:
Patient education must be embedded into cancer care, supported by trained teams and infrastructure. As one patient co-author highlights, being informed and empowered transforms the experience from passive care to active partnership.

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Yvonne Diaz @yvonnediaz.bsky.social · May 6

Dr @narjustflorezmd.bsky.social doesn’t shy away from tough, taboo topics. @lungevity.bsky.social #HopeSummit, she led a powerful convo on how cancer affects identity, relationships, intimacy & sexual health. Her message: you deserve care, pleasure & to feel whole.

Great party favours

#LCSM

Five female lung Cancer Patient Advocates with leading thoracic oncologist, Dr Narjust Florez

Photo of Yvonne Diaz, lung Cancer Patient Advocate with leading thoracic oncologist, Dr Narjust Florez

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Reposted by Yvonne Diaz

Oncogene Cancer Research @oncogenecancer.bsky.social · Apr 21

Sadly cancer knows no bounds & is common around the world.

That’s why Christina, Ruth & Aude, from US, Mexico & France, will take on the @londonmarathon.bsky.social next Sunday.

All funds raised will support @icr.ac.uk’s life-saving research.

Let’s cheer them on 👇

#lcsm #LondonMarathon2025

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Yvonne Diaz @yvonnediaz.bsky.social · Apr 13

Learned loads @lungcancereurope.bsky.social AGM, like: My behaviour style is different in advocacy from my employed work. Cannot crochet. “Chemo brain” is real & applies to cancer generally. Much more. Grateful for the unexpected LuCE Patient Advocate Award. Thank you LuCE family for all.

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Reposted by Yvonne Diaz

Hidehito HORINOUCHI @hhorinouchi.bsky.social · Mar 29

⏰NOW OUT‼️#ELCC25
🔥COCOON🦋: Preventing Moderate to Severe Dermatologic Adverse Events in 1st-line EGFR-mutant Advanced NSCLC Treated with Amivantamab + Lazertinib
🎙️ Dr. Nicolas Girard
🎯AEs ≥G2: OR 0.19 (95%CI, 0.09–0.40)
✅NCT06120140
#LCSM
@oncoalert.bsky.social
@myesmo.bsky.social
@iaslc.bsky.social

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Yvonne Diaz @yvonnediaz.bsky.social · Apr 9

Truly exciting. Hope more cancers can be detected this way in future.

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Reposted by Yvonne Diaz

Narjust Florez, MD, FASCO @narjustflorezmd.bsky.social · Apr 8

Our EQUAL study is open for enrollment!

More in this video!

@florezlab.bsky.social @latinasinmed.bsky.social

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