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oncogenecancer.bsky.social
Oncogene Cancer Research
@oncogenecancer.bsky.social
800 followers 690 following 160 posts
🔬 Advancing Research. Empowering Patients. Championing Advocacy.

We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
Posts Replies Media Videos
Reposted by Oncogene Cancer Research
lcrf.org
LCRF's Sr. Dir. Research & Administration, Dr. Dhru Deb, explains how early funding for NTRK gene fusion research led to the first targeted therapy for this driver. Our commitment to #LungCancer research continues to make an impact. Read more: LCRF.org/connecting3
January 9, 2026 at 5:31 PM
Reposted by Oncogene Cancer Research
edmonstone.net
Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social

We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working.

youtu.be/yIWw0U2yg5c?...
Duncan on brain surgery, work and redefining life with advanced lung #cancer | #podcast
YouTube video by Oncogene Cancer Research
youtu.be
January 4, 2026 at 5:43 PM
oncogenecancer.bsky.social
A must-read for the ALK+ community.

Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs.

Written for patients & clinicians alike.

oncogeneresearch.org/patient-publis…
This card says “Reserach spotlight”snd features a photograph of Professor Elena Kelnova in a white lab coat. She is a PhD, genetics and living with ALK+ lung cancer. The card says: read Elena‘s published paper designed to help patients and families understand ALK+ lung cancer in clear and empowering terms.
January 11, 2026 at 11:04 AM
Reposted by Oncogene Cancer Research
parademag.bsky.social
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
'70s Music Icon Posts Hospital Photo Two Weeks After Cancer Diagnosis
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
parade.com
January 3, 2026 at 4:50 PM
oncogenecancer.bsky.social
Months for some.
Years for others.
More than one doctor.
More than one misdiagnosis.

Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”.

Help us change the narrative. Help us create more awareness.

#LCSM
January 3, 2026 at 5:13 PM
oncogenecancer.bsky.social
2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress.

Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us.

Happy new year! #HNY2026
December 31, 2025 at 8:17 PM
oncogenecancer.bsky.social
Not all advanced #lungcancer is the same. And neither are patients.

This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer.

Have a read 👇
www.lungcancerstoday.com/post/the-ias...
December 30, 2025 at 11:12 AM
Reposted by Oncogene Cancer Research
oncodaily.bsky.social
Oncogene Cancer Research - The Part of Caregiving People Don’t Talk About

@oncogenecancer.bsky.social

oncodaily.com/voices/careg...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch
The Part of Caregiving People Don’t Talk About - Oncogene Cancer Research - OncoDaily
The Part of Caregiving People Don’t Talk About - Oncogene Cancer Research / cancer, Lung cancer, OncoDaily, Oncogene Cancer Research, Oncology
oncodaily.com
December 28, 2025 at 7:44 PM
oncogenecancer.bsky.social
Cancer does not pause for the holidays.

For those living with cancer, scans and worries do not stop.

We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes.

Wishing you rest, love, and peace.

#LCSM
December 22, 2025 at 4:56 PM
oncogenecancer.bsky.social
Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM
December 9, 2025 at 12:00 AM
Reposted by Oncogene Cancer Research
edmonstone.net
The 2nd part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social

In this part, I discuss my advocacy work, especially my work with Greater Manchester Cancer Alliance.

We also talk about who inspired me to become a patient advocate, Cameron Millar

youtu.be/8wRLznxVN0U

1/2
Duncan never saw lung #cancer coming. Now he's fighting to change the system. | #podcast
YouTube video by Oncogene Cancer Research
youtu.be
December 7, 2025 at 7:27 PM
oncogenecancer.bsky.social
Logan, diagnosed with stage 4 ALK+ #lungcancer age 32, thought he was protecting his son until this moment.

Be sure to watch the full interview to learn about how hard it was to get diagnosed and how he’s supporting others.

🎙️youtube.com/playlist?list=…

#LCSM
December 6, 2025 at 3:23 PM
oncogenecancer.bsky.social
#BiomarkerTesting has changed everything in #lungcancer. It gives those in our community the chance to receive the right treatment at the right moment.

It's why @thermofishersci.bsky.social José Luis Costa believes in continued innovation.

#StoriesOfLungCancer #LCAM25
Photograph of Dr Jose Luis Costa, of Thermo Fisher Scientific. He provides a quote for our lung cancer awareness campaign. He says: We want to see every patient receive the diagnostic that can guide the most precise treatment.
November 30, 2025 at 12:09 PM
Reposted by Oncogene Cancer Research
oncodaily.bsky.social
New Evidence Highlights the Power of the Patient Voice in Oncology - Yan Leyfman

@yleyfman.bsky.social

oncodaily.com/voices/yan-l...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Yan Leyfman: New Evidence Highlights the Power of the Patient Voice in Oncology - OncoDaily
Yan Leyfman: New Evidence Highlights the Power of the Patient Voice in Oncology / Ali Benour, Andrea Bezjak, Andrew Mihalache, cancer, Carlton Johnny, David
oncodaily.com
November 29, 2025 at 10:48 PM
oncogenecancer.bsky.social
Progress in #lungcancer happens when we refuse to accept today’s limits as tomorrow’s reality.

As Nuvalent’s Dr Henry Pelish reminds us — let’s keep pushing science’s limits.

#StoriesOfLungCancer #LCAM25
November 29, 2025 at 2:14 PM
Reposted by Oncogene Cancer Research
uclaradiology.bsky.social
Lung cancer causes more deaths than colon, breast & prostate cancers combined. Early detection saves lives.

If you're 50–80 with a smoking history, ask your doctor about a low-dose CT lung screening. bit.ly/487gjDn
November 28, 2025 at 4:42 PM
oncogenecancer.bsky.social
#Biomarkertesting helps people with #lungcancer get the right treatment at the right time. Yet too many still miss out.

This video created w @thermofishersci.bsky.social is a great resource for anyone diagnosed.

Help share to empower & inform more people👇
www.oncogeneresearch.org/biomarker-te...
The image shows a drawing of two women - one a journalist called Sofia and a doctor known as Dr Ana. It says: Biomarker Testing: Watch this new education video. It's all you need to know about lung cancer and biomarker testing. Produced by Thermo Fisher with support from Oncogene Cancer Research.
November 28, 2025 at 4:56 PM
Reposted by Oncogene Cancer Research
ktmuse.bsky.social
Sorry for both of your losses, words cannot replace what was lost😔
This troubling news came out.

www.nbcnews.com/nightly-news...
Troubling rise in young women getting lung cancer
Doctors from around the country say they are seeing more cases of young women with no history of smoking being diagnosed with lung cancer. What’s behind the trend is unclear but the authors of a new s...
www.nbcnews.com
November 26, 2025 at 10:49 AM
Reposted by Oncogene Cancer Research
alkpositive.bsky.social
It’s a simple wish: to see your child grow up. But for people with ALK+ lung cancer, like Amanda, Jenna, Carla, and Hope, there are no guarantees. You can help give them more precious years with their kids by supporting research.

What would you give for more time?
November 27, 2025 at 12:00 AM
Reposted by Oncogene Cancer Research
alkpostitiveaust.bsky.social
As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...
November 28, 2025 at 2:56 AM
oncogenecancer.bsky.social
Not all #lungcancer is the same - and neither should be our treatments. Today, we can personalize care to each person's unique biology.

As Dr Lauren Byers @mdanderson.bsky.social highlights, innovation is making precision care a reality. Let’s keep pushing for more.

#StoriesOfLungCancer #LCAM25
Photograph of Dr Lauren Byers from MD Anderson Cancer Center. In this quote she says: we have more ways to personalise patients’ treatments, especially in lung cancer which was previously treated as one size fits all.
November 28, 2025 at 1:53 PM
oncogenecancer.bsky.social
Behind a young adult facing #lungcancer, there’s often someone holding them up. For @Janclarkgirls, whose daughter Amy was diagnosed at 20, success means seeing Amy work, travel, hike & more. To every care partner who carries someone this, we see you. #StoriesOfLungCancer #LCAM25
November 27, 2025 at 4:06 PM
oncogenecancer.bsky.social
What brings Dr Melinda Hsu hope? Seeing researchers, clinicians & advocates advance survivorship science, creating innovative ways to improve long-term quality of life for people living with #lungcancer.

Every step forward brings hope.

#StoriesOfLungCancer #LCAM25
November 26, 2025 at 9:29 PM
Reposted by Oncogene Cancer Research
wiscsurgery.bsky.social
A @uwhealth.bsky.social story shares the importance of early detection for lung cancer. Last year, Dr. Andrea Axtell performed a life-saving procedure on a patient whose lung cancer was detected early. #ExceptionalPeople #ExtraordinaryResults go.wisc.edu/wqo9g3
Early action saves Shannon from lung cancer
Shannon underwent a biopsy and tumor removal surgery under one anesthesia at UW Health and is now lung cancer free.
go.wisc.edu
November 21, 2025 at 5:30 PM
oncogenecancer.bsky.social
Every advance in #lungcancer research is more than data - it’s hope for patients and families.

Mark Reale of Takeda reminds us that breakthroughs are measured in the lives they touch.

#StoriesOfLungCancer #LCAM25
November 25, 2025 at 1:07 PM