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Oncogene Cancer Research @oncogenecancer.bsky.social · 15d

Proud to be part of this important conversation on cancer-related cachexia on today - the first ever Cancer Cachexia Awareness Day. Be sure to tune in today at 13.30 ET/1830 UK.

Not too late to register: reg.eventmobi.com/ilcsc2025

@lungevity.bsky.social @cancercachexia.bsky.social 👇

Oncogene Cancer Research @oncogenecancer.bsky.social · 15d

Today is the first #CancerCachexiaAwarenessDay

Cachexia affects up to 80% of people w advanced cancer - not just weight loss, but loss of strength, energy & will.

Help @cancergrand.bsky.social Challenges Team CANCAN & these 6 patient groups in raising awareness & driving research. #CCAD #LCSM

Today, 26 September, is the first Cancer Cachexia Awareness Day Cachexia is a little-known but devastating condition that affects up to 80% of people with advanced cancer. It’s not just weight loss — it robs people of strength, energy, and the will to keep going. That’s why six patient groups are uniting as part of Cancer Grand Challenges’ Team CANCAN to recognise this important day and raise awareness through our new carousel. 👉 Swipe through to learn: ✔️ What cachexia is ✔️ The symptoms to look out for ✔️ Who is at risk ✔️ What can be done to help There is reason for hope. Thanks to the $25m Cancer Grand Challenges award, Team CANCAN and the wider research community are working to unravel the biology of cachexia and develop the treatments people urgently need. The first Cancer Cachexia Awareness Day has been created by the Cancer Cachexia Society — and we’re proud to stand with them to bring cachexia out of the shadows and closer to solutions. 💙 Please save this 🔖 and share to help us drive awareness and help others.

Oncogene Cancer Research @oncogenecancer.bsky.social · 25d

Cancer #cachexia is an urgent but under-recognised challenge in lung cancer. At @LUNGevity’s #ILCSC25, @yvonnediaz.bsky.social will join Dr Richard Dunne to highlight hope underway from @cancergrand.bsky.social Team CANCAN.

Sign up 👇

reg.eventmobi.com/ilcsc2025/regi…#LCSMSM

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Reposted by Oncogene Cancer Research

D. Ross Camidge @drcamidge.bsky.social · Sep 8

After three years I feel ready to enter a new phase of patient empowerment by publicly disclosing my own disgnosis. This went live today and all good. news.cuanschutz.edu/cancer-cente...

World Lung Cancer Expert Diagnosed with Advanced Lung Cancer

D. Ross Camidge, MD, PhD, has spent his career fighting lung cancer. In 2022, that fight turned personal when he received a diagnosis of his own.

news.cuanschutz.edu

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Reposted by Oncogene Cancer Research

ALK Positive Inc. @alkpositive.bsky.social · Sep 10

Congratulations to friends at Nuvalent on the exciting and pivotal #ARROS1 data released @iaslc.bsky.social #WCLC25. Proud to continue to collaborate on outcomes for our patient community globally. 💙
#LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · Sep 5

Our cofounder @janclark1.bsky.social & her daughter Amy shared their story on BBC Radio highlighting why more research is vital & how our first Charity Ball on 1 Nov will raise funds for this vastly underfunded cancer.

Check it out👇📷
static1.squarespace.com/static/65ca0...

#LCSM

Photos of Jan Clark, our co-founder, with her daughter Amy who was diagnosed at age 20 which stage four lung cancer. They’re standing next to BBC radio presenter. John Darvall

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Reposted by Oncogene Cancer Research

OncoDaily @oncodaily.bsky.social · Aug 24

FDA Begins Real-Time Reporting of Adverse Event Data
@fda.gov

oncodaily.com/voices/adver...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #FDA #AdverseEvents #AEs #FAERS

FDA Begins Real-Time Reporting of Adverse Event Data - OncoDaily

FDA Begins Real-Time Reporting of Adverse Event Data / cancer, FAERS, FDA, FDA Adverse Event Reporting System, OncoDaily, Oncology, public health

oncodaily.com

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Oncogene Cancer Research @oncogenecancer.bsky.social · Aug 25

We’ve launched the Patient Voices Podcast: Stories & Hope in Lung Cancer!

Our first episode features Kathrin from Germany, diagnosed at 44 w stage 4 ALK+ #lungcancer. She shares her journey, from unusual symptoms to treatment & coping strategies.

🎥 Epusode 1, Part 1 👉 youtu.be/48DcqhKTaXc
#LCSM

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Reposted by Oncogene Cancer Research

OncoDaily @oncodaily.bsky.social · Aug 19

Oncogene Cancer Research - Erin and Chloe Raise £800 for Lung Cancer Research

@oncogenecancer.bsky.social

oncodaily.com/positive/eri...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer

Erin and Chloe Raise £800 for Lung Cancer Research - Oncogene Cancer Research - OncoDaily

Erin and Chloe Raise £800 for Lung Cancer Research - Oncogene Cancer Research / Bath Two Tunnels 10K, cancer, Lung cancer, OncoDaily, Oncogene Cancer

oncodaily.com

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Oncogene Cancer Research @oncogenecancer.bsky.social · Aug 21

Being diagnosed w #cancer shouldn’t mean losing your rights at work.

This session w solicitor Colin Davidson of Cole Khan Solicitors, brought to you w EGFR+ UK & Roy Castle Lun Foundation covers how UK law protects you after a #lungcancer diagnosis.

🎥 Watch here: youtube.com/playlist?lis...
#LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · Aug 18

🏅 Huge thanks to Erin & Chloe for smashing the Bath Two Tunnels 10K in support of Oncogene Cancer Research!

🩵Their dedication, love, and heart behind this run are truly inspiring—and together you’ve raised over £800 for vital lung cancer research! Help us thank them 👏 @janclark1.bsky.social

Photo of Erin and Chloe crossing the finish line of the 10k they ran to fundraise funds for lung cancer research.

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Oncogene Cancer Research @oncogenecancer.bsky.social · Aug 14

Surgery isn’t usually offered for stage 4 #lungcancer.

Steve, diagnosed w stage 4 ALK+ in 2020, believed it could help prevent resistance. After targeted therapy shrank his tumour, he fought for surgery & got it.

Read his story + our patient info: oncogeneresearch.org/surgery
#LCSM

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Oncogene Cancer Research @oncogenecancer.bsky.social · Aug 1

This #WorldLungCancerDay, we’re reminding everyone: #lungcancer can hide behind ordinary symptoms.

A lingering cough, fatigue, bone pain — know what to watch for. Early detection saves lives. We need more research for everyone with lung cancer. 🩵 #LCSM

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Reposted by Oncogene Cancer Research

OncoDaily @oncodaily.bsky.social · Jul 5

Oncogene Cancer Research - Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis
@oncogenecancer.bsky.social
@yvonnediaz.bsky.social
@prof-ali-g.bsky.social

oncodaily.com/blog/talk-of...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedOnc #MedNews #TalkofHope #LungCancer

Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis - Oncogene Cancer Research - OncoDaily

Talk of Hope Podcast on Liquid Biopsy and Speed to Lung Cancer Diagnosis - Oncogene Cancer Research / Alastair Greystoke, cancer, Liquid Biopsies, Lung

oncodaily.com

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Oncogene Cancer Research @oncogenecancer.bsky.social · Jul 9

We’re proud to donate £10,425 to @icr.ac.uk to advance oncogene-driven lung cancer research, supporting the vital work of Dr Paul Huang.

This is just the start — stay tuned for more big research plans. 💙🔬

oncogeneresearch.org/icr-donation

#LCSM

Screen grab of our co-founders Yvonne Diaz and Jan Clark with the OCR’s Dr Paul Huang.

We’re thrilled to announce a £10,425 donation to the Institute of Cancer Research (ICR) to support vital work into oncogene-driven lung cancers, including research led by Dr Paul Huang’s team.

This donation builds on the £90,000+ already contributed by our co-founders and community to help establish a cross-biomarker biobank and support world-class research at ICR.

A huge thank you to our incredible marathoners —
🏃‍♀️ Christina Roberts
🏃‍♀️ Ruth Price
🏃‍♀️ Aude-Aline Eugene —
for going the distance and raising these essential funds. You’ve inspired us all.

And this is just the beginning. Stay tuned — we’ve got more big plans to support research on the way. 🔬💙

#OncogeneCancerResearch #ICR #LungCancerAwareness #PatientLedResearch #BiomarkerDriven #MarathonForResearch #ThankYou

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Reposted by Oncogene Cancer Research

OncoDaily @oncodaily.bsky.social · Jul 2

Oncogene Cancer Research - What Does it Take to Truly Move the Dial for People Facing Lung Cancer
@oncogenecancer.bsky.social
@yvonnediaz.bsky.social

oncodaily.com/blog/people-...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer

What Does it Take to Truly Move the Dial for People Facing Lung Cancer - Oncogene Cancer Research - OncoDaily

What Does it Take to Truly Move the Dial for People Facing Lung Cancer - Oncogene Cancer Research / cancer, Cecilia Pompili, Gianluca Casali, Giuseppe

oncodaily.com

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Oncogene Cancer Research @oncogenecancer.bsky.social · Jun 22

Why are so many young women getting #lungcancer?

Our co-founder @janclark1.bsky.social’s daughter Amy was just 20. Jules was 37 and Mel just 52.

Worth reading
👇

dailymail.co.uk/health/article…

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Reposted by Oncogene Cancer Research

The OncoAlert Network 🚨 @oncoalert.bsky.social · Jun 6

Post-ASCO 2025#LungCancer 🫁 Highlights by @VJOncology
👉 us06web.zoom.us/webinar/regi...

🗓 June 25, 2025
🕒 15:30–17:30 CEST | 08:30–10:30 CDT | 14:30–16:30 BST
📍 Virtual Webinar

Join us for an expert-led session unpacking the most important lung cancer data presented at ASCO 2025

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Oncogene Cancer Research @oncogenecancer.bsky.social · Jun 6

How can rib pain lead to a #lungcancer diagnosis?

For Michael, it was the sign of large cell lung cancer, a rare, aggressive type.
After he passed, his wife Christine learned of his STK11 mutation. She now advocates for answers, testing & research.
Read at 🔗 www.oncogeneresearch.org/michaels-story

Photo of Michael sky diving.

How can rib pain lead to a lung cancer diagnosis?

For Michael — a retired military skydiver, family man, and jack-of-all-trades — it was the first sign of large cell lung cancer, a rare and aggressive subtype.
Early surgery gave hope. But within months, the pain returned. The cancer had spread. Michael passed away in 2022.

It was only after his death that his wife, Christine, learned that Michael’s tumour had tested positive for the STK11 mutation — an important finding that had never been communicated to them. No one explained what it meant. No one mentioned the clinical implications.

Christine now carries not just grief, but unanswered questions.

She’s become a powerful voice in the lung cancer community — advocating for biomarker testing to be explained, for results to be shared with families, and for research that can offer patients not just more time, but better options.

Michael’s story is not just about loss — it’s about the need for transparency, trust, and change in cancer care.

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Reposted by Oncogene Cancer Research

ALK Positive Inc. @alkpositive.bsky.social · Jun 6

🧠 What if trivia could fuel cancer research?
Nikki Hirsch, an ALK+ patient, rallied her friends for a sold-out trivia night—raising $6K+ for research & awareness. 💙
Her secret? Turning connection into action.
📖 Read more: alkpositive.org/blog/trivia-...
#PoweredByPatients #ALKPositive

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Oncogene Cancer Research @oncogenecancer.bsky.social · Jun 5

📢 Help us understand the emotional toll of #lungcancer.

With @lungcancereurope.bsky.social & 46 orgs, we’re surveying patients & caregivers across Europe to explore the mental health impact of a diagnosis.

🧠 Your voice can shape better support.

🔗 surveymonkey.com/r/LuCESurvey20…#LCSMSM

💬 Help us understand the emotional toll of lung cancer.
Have you or a loved one been impacted by lung cancer?
We’re running a survey across Europe to explore the psychological impact of a lung cancer diagnosis—on both patients and caregivers.
🧠 We want to hear directly from you.
What’s been hardest to cope with?
What support (if any) have you received?
What’s missing?
📢 Your voice matters. By sharing your experience, you can help improve mental health services for others affected by this disease.
👉 Open to people diagnosed with lung cancer and their caregivers (excluding healthcare professionals) living in Europe.
Take the survey here

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Oncogene Cancer Research @oncogenecancer.bsky.social · May 25

Young people get #cancer.
Amy was just 20 when she was diagnosed w stage 4 #lungcancer.

Her story & others show why we must act now. Amy’s what’s inspired @janclark1.bsky.social to co-found our charity.

Thanks @thesun.co.uk for covering: thesun.co.uk/health/3502801… 🩵

These cards show case The Aun’s news coverage on the rising incidents of cancer in young people. It features the story of a young lady called Amy, who was diagnosed with stage four lung cancer at the age of 20. It also mentions her mother, Jan who co-founded our charity and campaigns for patient empowerment, advocacy and more lung cancer research funding

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Reposted by Oncogene Cancer Research

ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · May 23

CALLING RESEARCHERS! The ALK Positive Australia & TOGA Inspirational Research Grant for ALK+ NSCLC is back. We are seeking innovative research that makes a real difference for people living with ALK-positive lung cancer.

Now is the time to prepare a proposal. Further information coming soon.

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Reposted by Oncogene Cancer Research

Florez Lab @florezlab.bsky.social · May 14

Happy Women’s Health Month everyone! This month especially we want to take the opportunity to keep spotlighting women in our community! This week we have a very special message from lunglifebalance!

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Reposted by Oncogene Cancer Research

ALK Positive Inc. @alkpositive.bsky.social · May 18

Encouraging to see potential new treatment options like this combo showing strong responses & prolonged progression-free survival. Improved brain control is especially important to us. We look forward to more research that offers hope and better quality of life for ALK+ patients worldwide.

#LCSM

Yvonne Diaz @yvonnediaz.bsky.social · May 18

Promising signals from the ALEK-B ph 2 trial: combining alectinib w bevacizumab achieved 97.1% 12-mo PFS & median PFS of 39.6 months in ALK+ #NSCLC. Intracranial control also notably strong.

Could this combo help overcome resistance in more aggressive ALK variants?
#research #lungcancer

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