The #EuropeanHealthDataSpace Regulation has been published!

We reiterate our call to strengthen trust in European health systems by improving digital health literacy, ensuring transparency across all member states, ceasing fear-based communication and more: www.thelancet.com/journals/lan...

The Council of the European Union's adoption of the #EuropeanHealthDataSpace regulation marks a milestone, giving citizens control over their #electronichealthdata and fostering secure cross-border data sharing to advance healthcare across member states.

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TEHDAS2 joint action has launched a public consultation seeking feedback on draft guidelines and technical specifications critical for implementing the newly adopted #EuropeanHealthDataSpace regulation.

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Zweiter Teil unseres Seminars zur #Datenspende. Heute stehen die Regelung des #Datenaltruismus unter dem #DataGovernanceAct #DGA, die #EuropeanHealthDataSpace-Regulation #EHDS sowie die Frage auf dem Programm, ob sich die Datenspende tatsächlich überhaupt als #Schenkung organisieren läßt.

📖 Read 6 key recommendations from BBMRI-ERIC's Stakeholder Forum – Patients and Citizens Pillar on how to implement the opt-out process for the secondary use of #HealthData under #EHDS regulation.

🔗 Full position paper here: buff.ly/IgJkFQW

#EuropeanHealthDataSpace #DataGovernance #DataPrivacy

The #EuropeanHealthDataSpace regulation aims to transform EU healthcare and research by enabling secure, standardized access to #electronichealthdata.

Fulvia Raffaelli & Owe Langfeldt from @ec.europa.eu outlined its framework, key safeguards, and timeline.

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