#Feedingtube
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lypftinvolve.bsky.social
It's Feeding Tube Awareness Week.
Guts UK Charity is the national charity for the digestive system and have put together lots of helpful information for people to learn more about feeding tubes. They want to raise awareness and reduce stigma around feeding tubes #TubeFeeding #FeedingTube #Tubie
Feeding Tube Awareness Week image from the charity Guts UK
February 3, 2026 at 2:48 PM
nowhalle.bsky.social
#NEISVoid what are your wildness tricks for dealing with #Nausea? I take several meds and have a #G-tube and a #J-Tube for #Gastroparesis. I have #GERD, #MCAS, #FoodAllergies, and #EosinophilicEsophagitis.

Liquids are difficult, but small flushes of peppermint tea through my #FeedingTube can help❤️‍🩹
February 3, 2026 at 12:22 AM
alsnewstoday.bsky.social
Contribute your voice: https://bit.ly/4hRmyzn

#ALS #ALSNewsToday #Bionews #LifeWithALS #FeedingTube
January 25, 2026 at 7:02 PM
nowhalle.bsky.social
I hope everybody stays safe with this winter storm! A PSA that if the power goes out and you have a generator, please reach out to any disabled neighbors who might need to charge medical devices!

#Disabled #Disability #WinterStormFern #ChronicIllness #FeedingTube #Oxygen #ElectricWheelchair
January 24, 2026 at 8:23 PM
shortstackvoi.bsky.social
Don't worry he has spare clothes....

#FurryArt #Furry #Mirror #Forcefeeding #FeedingTube #Belly #Fat #Fatfur #WG #WeightGain #Art #NSFW
January 22, 2026 at 12:13 AM
redvinylkitty.bsky.social
Kinda better to start it whilst I recover, too. Then I'm not missing out on much. But I'm still hoping that I can do some stuff tomorrow, rather than just rest. #FeedingTube 🩺❤️
December 30, 2025 at 9:49 PM
redvinylkitty.bsky.social
Ehh second tube formula didn't work out after all. 😓 But the dietitian is working to have a third one sent out. So maybe this one will be the new winner? 🤞🏻 (So annoying the one I was doing the best on got discontinued). #FeedingTube
December 19, 2025 at 9:04 PM
s-saucy.bsky.social
I ask because I have MCAS as well and I am very sensitive to everything. The meds I do take our very, very tiny doses. I also have pots do you have that or any symptoms like that? Sorry for all the questions, but. I have severe PEM and I'm bedbound with a feedingtube so I'm pretty desperate..
December 11, 2025 at 9:52 PM
oiedecravan.bsky.social
Yeah it's hard to send vinyls to the US right now. At least you can buy the digital tracks - & you can write them personnaly, maybe they can get some US distro (@forcedexposure ?) or get a nice US label (@feedingtube ?)
November 28, 2025 at 8:04 PM
nowhalle.bsky.social
I’ve been a monkey in the middle between my GI office and my tube supply company all week 😠

I’m on my last day of formula and rely on tube feeds. Tomorrow is Saturday!

I NEED them to deliver my formula TODAY or I won’t have nutrition this weekend 😭

#Gastroparesis #FeedingTube #Disabled #Spoonie
November 21, 2025 at 6:39 PM
alsnewstoday.bsky.social
Contribute your voice: https://bit.ly/4hRmyzn

#ALS #ALSNewsToday #Bionews #LifeWithALS #FeedingTube
November 20, 2025 at 7:03 PM
nowhalle.bsky.social
My new feeding tube formula trial starts today and ya girl is nervous 😬

Fingers crossed and all the good vibes that I tolerate this one better 🍀

#NEISVoid #Disabled #Disability #Gastroparesis #FeedingTube #JTube #Tubie #Spoonie #ChronicIllness
November 14, 2025 at 5:14 PM
nowhalle.bsky.social
I get 90% of my nutrition through my #JTube #FeedingTube. This is what’s best due to my severe #Gastroparesis, #MCAS, & #FoodAllergies.

#FedIsBest no matter how you get your nutrition!

Sending spoons to all 🥄 🥄 this holiday season!

#NEISVoid #Disabled #ChronicIllness #Tubie #Spoonie #Disability
Noelle, a white person with glasses and braided blonde hair, smiling and giving a thumbs up. She is standing in her bathroom and there are towels on the racks behind her. She is wearing a cropped black shirt that exposes her scarred abdomen. You can see her G-tube and her J-tube. She is wearing blue leggings and clipped to the side of her leggings is a purple drainage bag cover with stars on it.
November 13, 2025 at 7:41 PM
redvinylkitty.bsky.social
On the one hand: new formula is going better than the last two. 🎉🎉🎉 On the other: the battery in my bag died today so I think it was accidentally unplugged from the wall overnight. 🙃🙃🙃 #FeedingTube #Fail
November 3, 2025 at 5:04 PM
nowhalle.bsky.social
I’ve talked with my insurance, pharmacy, and dr’s office so much in the last two weeks!

📞 35 calls
💬 ~20 portal messages

All to get ONE med 💊

Being disabled is a full time job 😮‍💨

#PostOp #NEISVoid #Disabled #Disability #ChronicIllness #Spooine #Gastroparesis #FeedingTube #JTube #GTube #EDS
October 23, 2025 at 7:02 PM
nowhalle.bsky.social
Me (to myself): why am I hungry?

Also me: it’s because you haven’t connected to feeds you silly goose 🤣🪿

#TubeFed #KateFarms #FeedingTube #Tubie #Gastroparesis #FedIsBest #JTube #NEISVoid #EDS #EhlersDanlosSyndrome #Spoonie #Disabled #Disability #ChronicIllness
October 19, 2025 at 3:30 PM
meetinghouse.bsky.social
The procedures were very successful😊

Initially, I could tell by her speech being clearer. Then she went home a few hours later rather than staying overnight for observation 😌

She had a cookie 🍪 at therapy and she is eating small soft meals every day.

#dysphagia
#SwallowingDisorder
#FeedingTube
October 19, 2025 at 2:18 PM
zebrabande.bsky.social
Werde?
Ich weiß es nicht.

So absurd es sein mag
Leider macht das krank sejn nicht leichter...

#dis #kptbs #svv #Psychiatrie #MentalHealth #kjp #Jugendhilfe #NotJustSad #EhlersDanlosSyndrom #hEDS #SFN #MCAS #Piccline #Jpeg #FeedingTube #Neuropathie #Motilitätsstörung #rareDisease
October 5, 2025 at 7:55 PM
redvinylkitty.bsky.social
Steggie's Always Right: youtu.be/uaJA3QvTUT0 #Vlog #FeedingTube #AlternativeLifestyle ❤️
Steggie sits on Red Vinyl Kitty's shoulder, and he's telling her she celebrated a little too soon. He's not wrong though.
October 2, 2025 at 4:45 PM
zebrabande.bsky.social
Erfahrung gemacht,
Die mir in zukunft vielleicht einen Teil der Angst nehmen kann

#EhlersDanlosSyndrom #hEDS #jPEG #FeedingTube #Dis #dissoziativeIdentitätsstörung #Kptbs #Trauma #selteneErkrankung #schoenesGegenDoofes #raredisease #Dankbarkeit #NotJustSad #chronischKrank #unsichtbar #Gewaltfolgen
September 29, 2025 at 8:56 PM
zebrabande.bsky.social
So waren die letzten Monate wirklich eindrücklich und doch sehr erschreckend für mich

Umso mehr hoffe ich auf di

#EhlersDanlosSyndrom #SelteneErkrankung #hEDS #dis #smallFiber #Neuropathie #SlowTransitConstipation #Motilitätsstörung #Gastroparese #feedingTube #Piccline #MedizinBrennt
September 14, 2025 at 10:22 PM
zebrabande.bsky.social
Lebensrealität in frage zu stellen.

#ChronischKrank #ehleesDanlosSyndrom #hEDS #SmallFiberNeuropathie #feedingTube #Piccline #Kptbs #dis #Autismus #ADHS #NotJustSad #Motilitätsstörung #SevereIllness #RareDisease #SelteneErkrankung #MentalHeath
September 9, 2025 at 2:42 AM
zebrabande.bsky.social
Gefunden.😊
Eine Erfahrung die mir ebenfalls Kraft gibt.

#SchoenesGegenDoofes #SonnenscheinMomente #NotJustSad #Kptbs #dis #Autismus #Adhs #jpeg #feedingTube #Motilitätsstörung #ehlerDanlosSyndrom #hEDS #MCAS #SmallFiberNeuropathie #bskyRudel #Hund #assistenzhund (in ausbildung) #SelteneErkrankung
September 4, 2025 at 9:39 PM
soulfight.bsky.social
Vital Vanishing Time, 2025
#MECFS #chronicillness #collage #multimedia #feedingtube
August 28, 2025 at 8:07 PM
skrunklesnail.bsky.social
I think my clip on my peg tube is broken 😭 It's leaking anytime the cap is unscrewed but with the clamp on 💔

#feedingtube #gtube #pegtube #disabled #disability
August 28, 2025 at 5:43 PM