#RDDatFDANIH
One more week until #RDDatFDANIH! Amidst these horrible times, I think this event will be a great opportunity to showcase how impactful these federal agencies are at moving #RareDisease therapies toward the clinic!

My talk will be at 2PM on 2/27. In-person, livestreamed, and recorded :)
Registration for the livestream of NIH-FDA Rare Disease Day is live (and free)! It should be a great lineup of speakers. My talk will be at 2PM on 2/27. My talk is on patient-scientist life which I've never shared publicly before! Support would mean the world to me! ncats.nih.gov/news-events/...
FDA-NIH Rare Disease Day 2025 | National Center for Advancing Translational Sciences
Background and event information for FDA-NIH Rare Disease Day 2025, scheduled for February 27-28, 2025.
ncats.nih.gov
February 20, 2025 at 1:27 PM
Team Telomere is proud to participate in FDA/NIH Rare Disease Day from February 26-28 in Washington, DC! Join us as we collaborate with experts and advocates to spotlight the urgent needs of the rare disease community. Together, we can drive meaningful change. 💙 #RareDiseaseDay #RDDatFDANIH
January 27, 2025 at 11:18 PM
Explore how the Disease Ontology supports rare diseases data accessibility. doi.org/10.6084/m9.f...

#RDDatFDANIH
February 27, 2025 at 3:18 PM