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Team Telomere @teamtelomere.bsky.social · 2d

💙 Team Telomere is powered by YOU! Help us keep our nonprofit status by completing our quick community review 🧬

Your feedback keeps us supporting families & driving rare disease research.
✅ Do it here: greatnonprofits.org/write-review...

#TeamTelomere #RareCommunity #NonprofitSupport

Team Telomere @teamtelomere.bsky.social · 3d

👉 Are you signed up for our newsletter? That’s where all the behind-the-scenes highlights, photos, and updates live! Don’t miss out - sign up today!
Link: teamtelomere.org/stay-connect...

#TeamTelomere #CocktailsAndChromosomes #RareDiseaseResearch #CommunityScience #MicroMeeting2025

Stay Connected | Team Telomere

Every single day, Team Telomere is working to create a brighter future for those impacted by Telomere Biology Disorders. Stay up to date with research findings, community events, advocacy efforts,…

teamtelomere.org

Team Telomere @teamtelomere.bsky.social · 3d

What do you get when you mix science, community, and a splash of fun? Our Micro Meeting + Cocktails & Chromosomes event! 🧬🍸

Over 120 people joined us in person and virtually to connect, learn, and raise a glass to rare disease research!

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Team Telomere @teamtelomere.bsky.social · 5d

There is much to celebrate in October - yesterday was the start of Diwali, the Festival of Lights!

To all who observe, we’re wishing lots of joy, light, and mithai this Diwali! We hope that this marks the beginning of a bright and prosperous new year.

A square graphic, with a background that is red at the top and fades to yellow at the bottom, shows a drawing of a hand wearing bangles and holding a small red candle that is burning and throwing off sparkles. Purple stylized text above the hand says “Happy Diwali!” The very top and upper sides of the graphic are lined with strings of orange and yellow flowers. The bottom says “From everyone at Team Telomere.”

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Team Telomere @teamtelomere.bsky.social · 11d

Dr. Rodrigo T. Calado is a member of our Medical Advisory Board as well as our South America Medical Advisor. Dr. Calado has has helped to characterize the molecular genetics of Telomere Biology Disorders and work to develop novel therapies.

Team Telomere @teamtelomere.bsky.social · 11d

Next up is Mayra Garcia, our Hispanic/Latino Ambassador! From the very first day her son was found to have a mutation in DKC1, her and her family looked for ways to advocate for him and search for a perfect match. She always sought the very best for Julian - and brings this to our community.

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Team Telomere @teamtelomere.bsky.social · 11d

Dr. Alfredo de Jesús Rodríguez Gómez is a biologist and Doctor of Science from the National Autonomous University of Mexico. His lab focuses on diagnosing bone marrow failure syndromes, conducting cytogenetic follow-up, and identifying biomarkers for early cancer detection in these patients.

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Team Telomere @teamtelomere.bsky.social · 11d

We also acknowledge the systemic barriers that many in the Latinx community face when accessing healthcare.

We are honored to highlight some of the incredible Latinx TBD community whose work, advocacy, and leadership are creating incredible strides.

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Team Telomere @teamtelomere.bsky.social · 11d

As National Hispanic Heritage Month comes to an end, Team Telomere celebrates the achievements and cultural contributions of Latinx Americans. Established in 1988, this month honors the rich histories and diversity of the Latinx community and their profound impact on United States culture.

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Team Telomere @teamtelomere.bsky.social · 13d

Thanks to Ben Tran with Tran Creative for his work with the Native Tribes and providing this beautiful graphic to share.

We also want to honor Rachelle Cobell for her time writing these words in 2022. 1982-2023

#TeamTelomere #CDATribe #RareDisease #IndigenousPeoplesDay

Team Telomere @teamtelomere.bsky.social · 13d

Educating our clinicians on how to work with Indigenous Communities at our Scientific Summit, giving our families precious time and experiences during our Community Summit, and generously funding our mission.

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Team Telomere @teamtelomere.bsky.social · 13d

The disparities are glaring with Native peoples and it is our duty not just listen to the needs of their communities but act as active allies and partners.

We want to thank the Coeur d’Alene Tribe for hosting us on their sovereign land.

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Team Telomere @teamtelomere.bsky.social · 13d

We acknowledge their rights as sovereign nations, and work to help ensure the promises made within the multiple treaties signed with various tribes across our nation are fulfilled.

These promises include rights to sacred lands, natural resources, education and #HealthCare.

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Team Telomere @teamtelomere.bsky.social · 13d

#IndigenousPeoplesDay went into effect in the United States in 2021. We celebrate by honoring Indigenous Peoples and acknowledging the health disparities found in this nation.

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Team Telomere @teamtelomere.bsky.social · 15d

👉 Give the gift of cookies & photos today! Let’s make these events meaningful (and a little magical ✨) - together.

Donate here: teamtelomere.networkforgood.com/projects/261...

#SupportScience #CocktailsAndChromosomes #MicroMeeting #MayoClinic #DonateNow #ScienceCommunity #RochesterMN

Join us in advancement of Telomere Biology Disorder science - the researchers behind it & the community it serves

Team Telomere is celebrating how far science has brought us and cheering to advancmenet ahead. Join in on the celebration by donating!

teamtelomere.networkforgood.com

Team Telomere @teamtelomere.bsky.social · 15d

🍪TT logo cookies for dessert
&
📸 Adding a photo booth to capture the fun and memories like the one featured from Boots & Genes 2024!

Join us in advancement of Telomere Biology Disorder science - the researchers behind it & the community it serves

Team Telomere is celebrating how far science has brought us and cheering to advancmenet ahead. Join in on the celebration by donating!

teamtelomere.networkforgood.com

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Team Telomere @teamtelomere.bsky.social · 15d

Cocktails & Chromosomes Rochester will celebrate the advancement of Telomere Biology Disorder science, the researchers behind them and the community it serves. We have a few last minute items we need help with!

Join us in advancement of Telomere Biology Disorder science - the researchers behind it & the community it serves

Team Telomere is celebrating how far science has brought us and cheering to advancmenet ahead. Join in on the celebration by donating!

teamtelomere.networkforgood.com

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Team Telomere @teamtelomere.bsky.social · 15d

Every event Team Telomere hosts is designed to support the community we love, allowing opportunity for you to be involved. From Base Camp activities and games to Camp Sunshine goodies, we can always count on special people to sponsor our events.

Image with blue background, cookie border on left side of image. picture of a photo booth reel on bottom left.

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Team Telomere @teamtelomere.bsky.social · 16d

You matter. You’re not alone. And it's okay to ask for help.

#WorldMentalHealthDay #MentalHealthMatters #EndTheStigma #YouAreNotAlone #RareDisease #TBD

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Team Telomere @teamtelomere.bsky.social · 16d

“Team Telomere was there for me during one of the darkest times in my life. Receiving a diagnosis of a rare disease can feel very isolating. For families like ours, it’s a lifeline, a community that turns isolation into support and fear into courage.” - Community Member

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Team Telomere @teamtelomere.bsky.social · 16d

Whether you're thriving, struggling, or somewhere in between - your feelings are valid. Healing isn’t always linear, but every step forward counts.

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Team Telomere @teamtelomere.bsky.social · 16d

Let’s take today to:

💬 Talk openly about mental health

🧠 Check in with ourselves and others

🤝 Offer support without judgment

🕊️ Advocate for better mental health services

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Team Telomere @teamtelomere.bsky.social · 16d

This year’s theme is about making mental health a universal human right. That means access to support, resources, and care for everyone, everywhere, without stigma or shame.

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Team Telomere @teamtelomere.bsky.social · 16d

Today is World Mental Health Day, a reminder that mental health is just as important as physical health - and that no one should face their struggles alone.

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Team Telomere @teamtelomere.bsky.social · 18d

We’ve launched a digital natural history study for TBDs! Help accelerate research by securely organizing your de-identified health data.
Sign up: teamtelomere.org/citizen-heal...

🎉 Hoodie giveaway winners announced + more to come!