We invite you to continue supporting our Giving Tuesday goal: bit.ly/TTGT2025.

#TelomereBiologyDisorders #GlobalAmbassadors #DyskeratosisCongenita #HHS #GoodNewsHour #GivingTuesday

Together, we’re building a future where no one faces a Telomere Biology Disorder alone. Thank you for helping make this a worldwide movement of good news.

Read more about our Global Ambassadors under “About Us” on our website.

Hamish’s voice represents just one beautiful example of how good news, connection, and community are reaching every corner of the globe. From Australia to the U.S., from Europe to South America, community members are finding support and resources through Team Telomere.

Since then, he bravely underwent a liver transplant, continuing his journey with the same strength and spirit that inspire everyone who meets him.

In this Good News Hour, Hamish shares a little bit about himself, his family, and his favorite things.

Hamish was diagnosed with Dyskeratosis Congenita at just two years old, after nearly 18 months of testing to understand the cause of his critically low blood counts. Only four months after diagnosis, Hamish received a life-saving Bone Marrow Transplant in Queensland.

Today, we’re honored to spotlight our incredible Junior Global Ambassador: Hamish.

Support events like Micro Meeting and more by donating today! bit.ly/TTGT2025

#MicroMeeting #TelomereBiologyDisorders #DyskeratosisCongenita #GivingTuesday #GoodNewsHour

Dr. Ferrer reminded us that over 120 people attended the two-day session in October with over 11 countries being represented and diving deep into diagnosis, management, and driving real, actionable progress for the TBD community. 🧬

🧡 Donate + share your Good News Hour moment: bit.ly/TTGT2025

And today, your impact goes even further — a generous donor is matching all gifts up to $45,000 through year’s end.

Your Giving Tuesday donation is doubled, helping families access the advocacy, resources, and support that make moments like these possible.

Families facing Telomere Biology Disorders carry so much — yet their strength creates incredible moments of hope:
🎓 Graduations
🧬 Life-changing treatments
🤝 Community Summits
👶 Becoming big siblings
…and more.

These wins remind us what’s possible when a community stands beside them.

Comment below with your favorite Thanksgiving dish once you find them all!

Happy Thanksgiving from Team Telomere. 🧡
#DyskeratosisCongenita #TelomereBiologyDisorders #Community #Thankful #TurkeyTrot #FindTheLogos

#TeamTelomere #TBDawareness #TelomereBiologyDisorders #RareTogether #CitizenHealth #RareDisease #PulmonaryFibrosis #DyskeratosisCongenita #IPF #ILD #AplasticAnemia #AdvocacyInAction

Tomorrow (Nov 19) at 7 PM ET, Citizen Health is hosting a webinar on their AI Advocate tool—built to help interpret genetic/medical reports, prep for school meetings, decode provider notes, and more. Register here → ciitizen.zoom.us/webinar/regi...

We’re also highlighting Citizen Health, our digital natural history study helping families organize medical info and contribute real-world data to accelerate TBD research and care.

Grab your bib 👉 teamtelomere.org/volunteer/#teamtelomere
Start a fundraiser & tag your pics #TurkeyTrotForTT

Community > Research > Advocacy > Cure

#TeamTelomere #TBDawareness #TBD #RareTogether #DyskeratosisCongenita

Nucleoside Therapy in Patients With Telomere Biology Disorders is an active Phase 1 clinical trial. To learn more about the study questions, objectives, and eligibility criteria, visit clinicaltrials.gov and search for NCT06817590.