Team Telomere
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teamtelomere.bsky.social
Team Telomere
@teamtelomere.bsky.social
Nonprofit organization
International advocacy for those treating, researching, and affected by Telomere Biology Disorder. #TeamTelomere #DyskeratosisCongenita
Team Telomere is thrilled to once again represent the Telomere Biology Disorder community at the American Society of Hematology Annual Meeting! Visit us at Booth 1811 - connect, grab some TBD resources, and treat yourself to telomere goodies! #ASH25
December 6, 2025 at 9:01 PM
As we continue our Good News Hour celebration, we’re reminded of something that is at the heart of Team Telomere: we are truly a global advocacy organization. Our community spans continents and time zones - yet we are united by connection.
December 2, 2025 at 7:08 PM
In a powerful interview, Dr. Ferrer and anchor Jena Robertson shared why micro-meetings matter - short, focused conversations that help families navigate diagnosis and care with clarity, confidence, and support.
December 2, 2025 at 6:01 PM
Today on #GivingTuesday, we’re celebrating the good news shining across the Team Telomere community.
December 2, 2025 at 2:07 PM
Today and every day, we honor veterans in our community who’ve served with strength and dedication. This #VeteransDay, we celebrate Damian, Lisa, Nicole & Mike for their service to our country and the TBD community. 💙
#HonoringAllWhoServed #TeamTelomere
November 11, 2025 at 8:57 PM
Throughout #Telomere Biology Disorder #Awareness Month, we are dedicating Fridays to spreading education and awareness. Each “Fact Friday,” we’ll highlight important science and how ongoing #research connects to care and advocacy. Today we are talking about what #telomeres are - check out our video!
November 8, 2025 at 1:58 AM
Last week our Executive Director, Katie Stevens, was invited to attend the inaugural Galien Patient Summit in New York City. Katie was invited for our work on building international Centers of Excellence and our relationship with the Chan Zuckerberg Initiative.
November 6, 2025 at 11:32 PM
Over 120 attendees from 11 countries came together for our Micro Meeting and Cocktails & Chromosomes event - diving deep into diagnosis, management, and driving actionable progress for the TBD community. 🧬
October 30, 2025 at 7:02 PM