#wAIHA
ぶるーすかいおみくじの結果は「吉」でした。
#ぶるーすかいおみくじ
oracle.heion.net?handle=waiha...

リアルで引いた奴と同じだった
ぶるーすかいおみくじ | Bluesky
Blueskyアカウントでおみくじが引けます(毎年結果が変わります)
oracle.heion.net
January 1, 2026 at 6:08 AM
like with my wAIHA, I have fatigue and shortness of breathe and it can become life threatening when triggered by stress and none of that aligns to the expectations of modern capitalist society, especially when it comes to work, AND I don’t have any good treatments to get myself back on track
February 14, 2025 at 11:31 AM
for me, I found those people through social media. since then, I’ve found the advocacy group for wAIHA, and I’ve started getting involved with them. we have our awareness day and virtual conference next week, and it’s exciting to know I’ll meet others like me!
March 17, 2025 at 10:45 PM
In fairness, eculizumab would probably also be helpful in WAIHA
September 20, 2024 at 11:47 AM
fuck me, I forgot to take my meds before I left the house and I have to go get my bloodwork done today because I’m having some shortness of breath possibly due to WAIHA and those things are not related but I just want to complain about my shitty little body
January 7, 2025 at 1:12 PM
I think there is a higher risk in primary WAIHA (what I have) vs secondary, but there’s not a ton of literature unfortunately

I just remember 3 weeks in to my hospital stay with no diagnosis I was convinced I had PNH and was trying to convince my hem/onc fellow I needed eculizumab lol
September 20, 2024 at 11:46 AM
It also is a proven medical fact that the possession and distribution of dozens of Taco Bell hot sauce packets is an effective way of halting wAIHA in its tracks along your mortal coil.
August 2, 2025 at 3:49 PM
The liveliest poster session ever! #ASH25 #Orlando #wAIHA #Rilzabrurinib #Medsky #Hemesky
December 8, 2025 at 3:09 PM
if I could work on bringing a treatment for wAIHA to patients like me, I would be the happiest worker on the planet
March 1, 2025 at 5:41 PM
yes! like once I was bleeding it was life/death very quickly! if I had made it full term without knowing I had WAIHA, actual childbirth would have been even more dangerous!
January 15, 2025 at 2:48 PM
most people with WAIHA with a first episode as severe as mine don’t make it out of the hospital

they don’t live to tell their stories

they don’t get to have their experiences documented in research reports

it’s sobering to think about
January 22, 2025 at 8:57 PM
I work in a blood bank and we know all our WAIHA patients by name, because the antibodies make compatibility testing really difficult. It can take hours to get together the safest possible blood for transfusion.
February 27, 2024 at 5:07 PM
The current standard of care for warm autoimmune hemolytic anemia (#wAIHA) requires significant use of health care resources, according to results presented at the 2025 @ash.hematology.org (ASH) Annual Meeting.

Read more: https://bit.ly/4p25dWq

#RareDisease #Hematology
High Health Care Use and Treatment Heterogeneity in wAIHA
High health care resource use and inconsistent rituximab dosing practices highlight the need for standardized wAIHA treatment guidelines.
bit.ly
December 22, 2025 at 6:11 PM
my boss told me I should write a book about being a patient with WAIHA and how it has impacted how I see the world and you know what? I might really do that
January 24, 2025 at 7:35 PM
also I got to educate a bunch of people on WAIHA and about what it’s like to live with a rare disease, and that was cool as shit! that fed my soul for real
January 29, 2025 at 12:28 AM
in that time, she survived cancer while I survived wAIHA, and I’m just very thankful we both made it through so we could find our friendship again!
September 12, 2025 at 12:41 AM
I seriously hate having ADHD more than I hate having WAIHA, like this impacts my quality of life in such a horrible way
August 15, 2024 at 7:10 PM
WAIHA
October 10, 2023 at 8:27 PM
Florida’s natural beauty is stunning, but the state government continues to create danger for medically vulnerable children and adults. Overturning vaccine mandates makes no sense. #vaccineswork #autoimmunedisease #autoimmunity #waiha #coldagglutinindisease #lupus #autoimmunehemolyticanemia
September 5, 2025 at 7:00 PM
probably. I’m in a trial for an FcRn inhibitor. I worked on an FcRn inhibitor for other IgG mediated autoimmune disorders, so I’ve been convinced for a while that that’s the way to go for WAIHA, and 2 different companies are now running trials!
September 20, 2024 at 11:48 AM
I was so convinced I had PNH when I had my first episode of WAIHA, largely because I found this pee picture (or perhaps a similar one)
September 20, 2024 at 11:38 AM
and what an honor it is that I might be able to help educate physicians and ensure that this treatment makes it to the patients who need it

what an honor it is to be alive and to be able to share my story, especially when so many wAIHA patients never got to share their own
April 12, 2025 at 2:22 PM
📡 Military healthcare modernization supports the WAIHA Market. Market insights 👉 www.marketresearchfuture.com/reports/waih...
Waiha Market Size, Share & Global Industry Report 2035
The Waiha Market will grow from USD 34.45 billion in 2024 to USD 53.49 billion by 2035, CAGR 4.08%.
www.marketresearchfuture.com
December 31, 2025 at 6:02 AM