Author | Lightnews

Becky @beckyrwhin.bsky.social · 29d

Recovering from this tough time is hard and messy. To a certain extent I think my husband and I have ended up clinging on to each other for dear life. It's how we've coped. I would be lost if I hadn't had this closeness, not just to him, but our other kids too.

A drawing of 3 people embracing under swirling dark shapes. Handwritten text below reads "Patience and kindness while it storms"

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Becky @beckyrwhin.bsky.social · Oct 3

I've always been something of a hermit and a loner, but since the long hospitalisation of my daughter, it's turned up to 11

A drawing of a tired looking person cradling a mug of drink whilst their other hand is on a phone that is ringing. Handwritten text below reads "Sam's need for alone time was becoming unworkable"

Becky @beckyrwhin.bsky.social · Oct 2

I really really miss having a bath

A drawing of a figure looking anxious. The background is a blue arch shape, some black lines and bubbles. Handwritten text below reads "Totally overwhelmed, all Nathan could think of was a nice hot bath"

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Becky @beckyrwhin.bsky.social · Oct 1

Morning

A drawing of one person embracing another. Both their eyes are closed. Handwritten text above and below reads "Billy and Flo were beginning to feel acceptance........of what, they weren't completely sure"

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Becky @beckyrwhin.bsky.social · Sep 30

It has been hard to see our daughter change so much. I've struggled with sadness for what has been lost.

But being with her and seeing how hard she tries to move her body, even when doing so triggers a seizure, is mind-blowing. The love I feel is massive.

I guess as a family we're regrouping

A colour sketch of a seated person with a tracheostomy. They are lifting one arm. Another figure floats nearby with their hand outstretched to the seated person. They are surrounded by colourful blobs and bubbles

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Becky @beckyrwhin.bsky.social · Sep 29

Our new life is often overwhelming. I really miss having spontaneous zone out time.

A drawing of a figure holding a vast rock on their back. The word EVERYTHING is etched on the rock. Handwritten text below reads "Kirsty was desperate to sit down and zone out"

Reposted by Becky

Ember Green @embergreen.bsky.social · Sep 29

If I was an allegedly centrist Prime Minister of the UK who is facing being wiped out by fascists in a few years, I probably wouldn’t be building them infrastructure with which they can track & surveil citizens.

But that’s probably just me.

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Becky @beckyrwhin.bsky.social · Sep 29

The line is pretty blurred at the moment

A drawing of a person, drawn simply, administering something via a syringe to another person who has their eyes closed. Handwritten text below reads "Mum Nurse Numb"

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Becky @beckyrwhin.bsky.social · Sep 26

A lot of the last 8 weeks has felt chaotic. Full of love but equally matched by mayhem.

A drawing. There's a person, very simply drawn (think snowman levels of drawing). They have very wide shocked eyes and one hand reaches outside of the frame. Above them in large drawn letters are the words "EVERYTHING FEELS WRONG". Handwritten text below reads "Susan was stuck in a parallel universe"

Becky @beckyrwhin.bsky.social · Sep 25

Getting used to our new normal has been difficult

A drawing of 2 simply drawn figures. One is sat at a table, head in hands, eyes shut. The other is at a window, back turned to the seated figure. They seem quite detached from one another apart from small curving lines at the bottom of the frame with some small red shapes within, connecting them both.

Becky @beckyrwhin.bsky.social · Sep 23

A couple of quickies

A drawing of a simple figure standing with their eyes shut. They are surrounded by a dark background that is shaped a bit like a loose archway. Handwritten text below reads "She sleepwalked"

A drawing of a simple figure slumped face down on the floor crying. Handwritten text below reads "He was unexpectedly floored by a stab of sadness"

Becky @beckyrwhin.bsky.social · Sep 21

So I did actually draw one picture since A and I came home at the end of July. I haven't wanted to post it as it's pretty raw, but I've decided to post it now.

Oof

A drawing of a person, eyes closed, with their head in their hands and brain full of stars. They are framed in a heart shaped full of red and orange colours and stars overflowing from the head. They look maybe sad? Handwritten text below reads "Brain full. Heart Breaking"

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Becky @beckyrwhin.bsky.social · Sep 21

Not sure it's finished tbh and may tinker with it, but I cannot describe how good it feels to be drawing again, finally.

A colour drawing of a person, drawn very simply, embracing a dark spiky shaggy black figure that has forked tail. There is a circular background mostly in yellows and greens

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Becky @beckyrwhin.bsky.social · Aug 27

Good news - getting discharged today!

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Becky @beckyrwhin.bsky.social · Aug 27

Another trip to Oxford unfortunately, this time seizure related. Hoping it's a swift one this time. 🤞

A photo of our daughter asleep in a hospital bed

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Reposted by Becky

Lee Hurley @hleehurley.com · Aug 25

Here's the problem - the right make up a story and the media plaster it everywhere.

The left tell a true story and the media ignore it.

The right hasn't actually 'hijacked' anything. The right have been given an open door while the left - the majority - are barricaded away.

Caroline Lucas @carolinelucas.bsky.social · Aug 25

Spot on @johnharris1969.bsky.social. The Right are hijacking Englishness with narratives of exclusion, exceptionalism & imperial nostalgia,& progressives haven’t even got onto the bloody pitch. We urgently need to tell more compelling stories of who we are #AnotherEngland👇

Flags as symbols of prejudice, not pride – and a distinct air of menace. Welcome to England 2025 | John Harris

The rapid spread of these banners is unsettling – and shows how the hard right is reaching people and places the left cannot, says Guardian columnist John Harris

www.theguardian.com

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Becky @beckyrwhin.bsky.social · Jul 24

Exactly

Reposted by Becky

Jill Hayward @frdragonspouse.bsky.social · Jul 24

I want at least one political party which is proudly and vociferously pro-trans rights that i can vote for. I really don't think it's too much to ask that we no longer have to put up with "let's listen to the people who just want trans people not to exist."

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Reposted by Becky

Ramandeep Kaur @mumof3amigos.bsky.social · Jul 24

Seeing/hearing people who previously had nothing to say about what is happening to the people of Gaza, now coming out and saying ‘it’s gone too far’.

All I can say is ⬇️

Book with the title ‘One day, when it’s safe, when there’s no personal downside to calling a thing what it is, when it’s too late to hold anyone accountable, everyone will have always been against this. Omar El Akkad.

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Becky @beckyrwhin.bsky.social · Jul 24

I've missed my partner so much this last year. Can't wait to be properly back home

A drawing of two people, in different venues with a dividing line through the middle of the drawing, one on a single bed, one on a sofa, looking at their phones. Handwritten text below reads "Longing to be a team again"

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Becky @beckyrwhin.bsky.social · Jul 24

Tuesday morning was fraught with scary desats and hitting 999

It was a frightening and demoralising day but thank goodness, our daughter has bounced back fast.

Today we'll take her home from Oxford for the second time this week!

A drawing of a floating figure teaching out to a scene below where two people are looking after someone in bed. Handwritten text below reads "Fraser held his breath as the ambulance arrived for his daughter"

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Becky @beckyrwhin.bsky.social · Jul 22

Bad news folks. We're heading back to Oxford

Becky @beckyrwhin.bsky.social · Jul 21

Oh my goodness, today's the day! My daughter is coming home

A drawing of a person, eyes closed, embracing another person, eyes open. They are surrounded by glowing yellow lights in a pointed oval shape, filled with blue bubbles. Handwritten text below reads "Lost in dreams of home"

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Reposted by Becky

Jolyon Maugham KC @goodlawproject.org · Jun 30

Earlier in Labour's term I put this down to growing pains. But I'm increasingly sure I was wrong - a continuation of the Tories' cultural politics really is what Labour wants.

Jolyon Maugham KC @goodlawproject.org · Jun 29

None of these pieces discuss progressives' frustration with Labour being *culturally* indistinguishable from the Tories. Labour has embraced - often accelerated - the cruelty, authoritarianism and hypocrisy of the Tories and we wanted better.

Jolyon Maugham KC @goodlawproject.org · Jun 28

The Telegraph is concerned.

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Reposted by Becky

Kelly @broadwaybabyto.bsky.social · Jun 29

People are afraid of disability. They can’t comprehend the “chronic” part of chronic illness.

They expect us to tell them we’re “fine”.

They ask if we’re “better yet?”

They ghost us when we don’t improve.

Disability is not a moral failing. It happens to most people eventually

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