María Richardson
@diatoma.bsky.social
3.2K followers 3.3K following 480 posts
Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
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diatoma.bsky.social
For the folks asking "What can I do to help people with #MyalgicEncephalomyelitis?", here's an Action Bingo for #MEAwarenessMonth ❤️.

Comment below when you've covered one or many of these boxes so I can rejoice with you! (1/4)

#MillionsMissing #WorldMEDay #DisabilitySOS #GreatestMEdicalScandal
Bingo board titled #MEAwarenessMonth 2025 ACTION BINGO 
With an illustration of a diatom and a piñata 

There are 9 boxes that contain the messages: 
1. AMPLIFY (like, comment, share) posts by #pwME with #MyalgicEncephalomyelitis #MillionsMissing #MEAwareness #WorldMEDay #MECFS #DisabilitySOS 
2. SIGN the MEAction Network letter in support of the "ME/CFS Research Roadmap." 
3. Learn more about #GreatestMEdicalScandal at www.johnvsjon.com 
4. SEND the Mao Clinic Proceedings Concise Review #Diagnosis and Management of MyalgicEncephalomyelitis/Chronic Fatigue Syndrome" to your doctors and friends in healthcare. 
5. SEND the new Bateman Horne Center "Clinical Care Guide to Managing ME/CFS, Long Covid, and IACCs" to your doctors and friends in healthcare. 
6. Follow the MEAction Network, the World ME Alliance, The Sick Times and other advocacy and news orgs to stay informed on ME, Long Covid, and IACCs news & campaigns. 
7. FOLLOW and if possible DONATE to orgs advancing research, for example: Open Medicine Foundation, Polybio Foundation 
8. DONATE to Mutual Aid #pwmE #MutualAid #MECFS #SevereME #DontLetMEDie 
9. JOIN @johnvsjonvsme in tagging journalists, actors, scientists, and other professionals you want to see cover and champion #GreatestMEdicalSCandal
Reposted by María Richardson
ifycomedy.com
I’ve said it before, any judge who so comfortably and clearly shows their prejudice should immediately be barred from their jobs, but we don’t live in a world that makes sense.

We live in a world where white people get to deem racism as a simple inconvenience and be the sole arbiter of its weight.
Reposted by María Richardson
ryankenacts.bsky.social
Those AI pics and videos don’t make y’all spirits itch?
Reposted by María Richardson
sabrinapoirier.bsky.social
Thank you for sharing and supporting us Maria!

Here is the registration page link too, in case it’s helpful.

icancme.ca/research/202...
2025 ME Conference - ICanCME
icancme.ca
diatoma.bsky.social
I am very excited about the ICANCME #MyalgicEncephalomyelitis conference. (At a time when I am generally struggling to hold on to hope.) Gracias @sabrinapoirier.bsky.social & co ❤️. Stellar presenters,updates,overviews
@scishow.bsky.social @hankgreen.bsky.social @johngreensbluesky.bsky.social
batemanhornecenter.bsky.social
Free, virtual ME conference (Nov 4–6, 1–5 pm ET).
BHC's Dr. Brayden Yellman speaks on dysautonomia & connective tissue disorders and joins the comorbidities Q&A panel.
Register: https://forms.gle/R8tJgR2x3WBNr9pF8

#ICanCME2025 #MECFS #LongCOVID #MedEdMatters #MedicalEducation
ICANCME Canadian Conference on Myalgic Encephalomyelitis, Nov 4-6, 2025, 1-5 PM Eastern. Virtual, free, and open to all. Register now.
Reposted by María Richardson
batemanhornecenter.bsky.social
Free, virtual ME conference (Nov 4–6, 1–5 pm ET).
BHC's Dr. Brayden Yellman speaks on dysautonomia & connective tissue disorders and joins the comorbidities Q&A panel.
Register: https://forms.gle/R8tJgR2x3WBNr9pF8

#ICanCME2025 #MECFS #LongCOVID #MedEdMatters #MedicalEducation
ICANCME Canadian Conference on Myalgic Encephalomyelitis, Nov 4-6, 2025, 1-5 PM Eastern. Virtual, free, and open to all. Register now.
Reposted by María Richardson
wilhelminaj.bsky.social
An excellent article by Laurie Jones, executive director of @meaction-mi.bsky.social, about the difficulties that proposed Medicaid work requirements would cause the ME/CFS community.
medpagetoday.com
"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do."

ME/CFS and long COVID advocate Laurie Jones writes on Medicaid work requirements. https://www.medpagetoday.com/opinion/second-opinions/117839?trw=no
Opinion | Medicaid Work Requirements Will Devastate People With Invisible Disabilities
ME/CFS and long COVID patients must qualify as 'medically frail'
www.medpagetoday.com
Reposted by María Richardson
heatherfeather.bsky.social
one of the biggest names in trans healthcare discrimination is also one of the biggest names in ME/CFS healthcare discrimination (Simon Wessely) & as a trans person with ME/CFS i'm begging all of us to make this intercommunity connection
Reposted by María Richardson
katieklocksin.bsky.social
Great thread from the British journalist who coined the phrase #GreatestMEdicalScandal referring to myalgic encephelomyelitis or ME/CFS. #JohnVsJonVsME
georgemonbiot.bsky.social
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
www.theguardian.com
diatoma.bsky.social
I remember and appreciate that self! And also the work you do now 🙏🏻
diatoma.bsky.social
Been meaning to read Saunders :)
Reposted by María Richardson
daralind.bsky.social
Anyway, this is your regular reminder that my Signal is available in my bio, and that if you have something you want publicly known I'm happy to chat with you about it and come up with a plan.

Not so that I can break it -- breaking news isn't my profession anymore! -- but so it can get out there.
Reposted by María Richardson
inneiennyfas.bsky.social
... without suffering for it afterward. I still work part-time from my bed, but that's basically all I can manage, and with my health being so fragile, I live in constant fear of becoming even worse or losing my sick pay and not having the energy to fight for it. The disease is...
Reposted by María Richardson
inneiennyfas.bsky.social
Thank you so much for writing about this 🌸 I became ill in early 2020, and my life has been destroyed. I worked full-time
at the university, enjoyed my social life, did all kinds of sports, and had many other hobbies too. I'm housebound now, and can't even shower or walk around inside the house...
Reposted by María Richardson
henry1967.bsky.social
Got this illness back in 1990, and it took a huge amount of energy to fight scepticism , energy that you needed just to cope with this condition.
I truly hope that this will change for real this time. Its truly devestating for all the #MeCfs sufferers as it is now & have been for decades.
Reposted by María Richardson
hopefullizzy.bsky.social
I long to study, to work, to go out, to help others, to contribute to society, to hike, and look out at the views.
Instead I cried this morning because I am so exhausted that digesting my feed through my feeding tube had taken all my energy.
Reposted by María Richardson
Reposted by María Richardson
diatoma.bsky.social
I also second and strongly encourage inviting David Tuller and @georgemonbiot.bsky.social to discuss #GreatestMEdicalScandal
diatoma.bsky.social
Gracias for your voice & clarity, querido @georgemonbiot.bsky.social. Any thoughts on why it’s so hard to get more people to care about #GreatestMEdicalScandal? At @johnvsjonvsme.bsky.social we’ve been trying to get @weeklyshowpodcast.bsky.social @lastweektonight.com to cover it.
www.johnvsjon.com
diatoma.bsky.social
Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
I’ve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social
diatoma.bsky.social
Still dreaming Jon Stewart will look into Wessely’s malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com
Reposted by María Richardson
emmadoty.bsky.social
Fellow Americans who may be reading this: If you’ve never heard of Simon Wessely, he wrote an article in 2002 arguing that illnesses caused by exposures on 9/11 are just psychosomatic.
Reposted by María Richardson
cabruce.bsky.social
Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help