Lizzy
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Reposted by Lizzy
Yesterday, MPs gathered in Westminster Hall to debate government support for people with ME and what needs to change. We’ve pulled together a summary of the key points, actions, and commitments discussed, using AI to assist in summarising the Westminster Hall debate transcript.
November 20, 2025 at 2:50 PM
Yesterday, MPs gathered in Westminster Hall to debate government support for people with ME and what needs to change. We’ve pulled together a summary of the key points, actions, and commitments discussed, using AI to assist in summarising the Westminster Hall debate transcript.
Reposted by Lizzy
#MEAction has been working hard this year to be a lantern in the darkness. We have had some wins, moments that stood out, and times where this community made a difference. See our list: www.meaction.net/post/meactio...
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
#MEAction's Top 10 Accomplishments of 2025
This year has been hard- we know because we have been on the ground fighting for ME and Long COVID every single day. In 2025, #MEAction has accomplished a lot. Just take a look below.1. Advocating for...
www.meaction.net
November 20, 2025 at 7:49 PM
#MEAction has been working hard this year to be a lantern in the darkness. We have had some wins, moments that stood out, and times where this community made a difference. See our list: www.meaction.net/post/meactio...
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
We need your support. Your gift will be matched up to $50k!
#pwME #pwLC #MECFS
Reposted by Lizzy
The UK Covid-19 Inquiry confirms what our communities have lived for years: the government’s pandemic response wasn’t just a failure - it was a historic abandonment. “Too little, too late” doesn’t capture the scale of the harm. /1
November 20, 2025 at 5:43 PM
The UK Covid-19 Inquiry confirms what our communities have lived for years: the government’s pandemic response wasn’t just a failure - it was a historic abandonment. “Too little, too late” doesn’t capture the scale of the harm. /1
Here is the transcript for yesterday’s APPG for ME debate in parliament
hansard.parliament.uk/Commons/2025...
With a big thank you to @tessamunt.bsky.social for organising, @kerrymp.bsky.social @joplatt.bsky.social and all the MPs who attended and/or spoke during. We so desperately need you.
hansard.parliament.uk/Commons/2025...
With a big thank you to @tessamunt.bsky.social for organising, @kerrymp.bsky.social @joplatt.bsky.social and all the MPs who attended and/or spoke during. We so desperately need you.
Myalgic Encephalomyelitis - Hansard - UK Parliament
Hansard record of the item : 'Myalgic Encephalomyelitis' on Wednesday 19 November 2025.
hansard.parliament.uk
November 20, 2025 at 5:13 PM
Here is the transcript for yesterday’s APPG for ME debate in parliament
hansard.parliament.uk/Commons/2025...
With a big thank you to @tessamunt.bsky.social for organising, @kerrymp.bsky.social @joplatt.bsky.social and all the MPs who attended and/or spoke during. We so desperately need you.
hansard.parliament.uk/Commons/2025...
With a big thank you to @tessamunt.bsky.social for organising, @kerrymp.bsky.social @joplatt.bsky.social and all the MPs who attended and/or spoke during. We so desperately need you.
2wks after being admitted, I’ve been discharged.
Things are far from ‘better’ but I’m not critically ill like I was going in so that’s good, & I have some source of nutrition. Still didn’t get answers for my GI inflammatory markers being so high but 🤞🏼 my other team will help.
Glad to be home❤️
Things are far from ‘better’ but I’m not critically ill like I was going in so that’s good, & I have some source of nutrition. Still didn’t get answers for my GI inflammatory markers being so high but 🤞🏼 my other team will help.
Glad to be home❤️
November 11, 2025 at 7:10 PM
2wks after being admitted, I’ve been discharged.
Things are far from ‘better’ but I’m not critically ill like I was going in so that’s good, & I have some source of nutrition. Still didn’t get answers for my GI inflammatory markers being so high but 🤞🏼 my other team will help.
Glad to be home❤️
Things are far from ‘better’ but I’m not critically ill like I was going in so that’s good, & I have some source of nutrition. Still didn’t get answers for my GI inflammatory markers being so high but 🤞🏼 my other team will help.
Glad to be home❤️
Reposted by Lizzy
UK photographer Shirley Baker documented the city of Manchester's streets in the 1960s #WomensArt
November 8, 2025 at 5:34 AM
UK photographer Shirley Baker documented the city of Manchester's streets in the 1960s #WomensArt
Update: a week after my 31st birthday I was taken back into hospital. Still here a week later.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
November 4, 2025 at 8:09 AM
Update: a week after my 31st birthday I was taken back into hospital. Still here a week later.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
Fed up, but still here and still persevering.
On my 10th failed cannula, extremely frustrated, and totally wiped out. I guess we’ll see what today brings.
October 12, 2025 at 10:11 AM
Reposted by Lizzy
Also, here's mine.
Cobwebs are models own. 😆
Cobwebs are models own. 😆
October 11, 2025 at 12:49 PM
Also, here's mine.
Cobwebs are models own. 😆
Cobwebs are models own. 😆
So the currently level of hospital admissions from #COVID in the UK is 50x higher than hospital admissions from flu.
A direct result of @teamlabouruk.bsky.social drastically decreasing autumn/winter covid vaccinations for many elderly or at risk adults…
It will get worse. It won’t save money.
A direct result of @teamlabouruk.bsky.social drastically decreasing autumn/winter covid vaccinations for many elderly or at risk adults…
It will get worse. It won’t save money.
October 11, 2025 at 12:47 PM
So the currently level of hospital admissions from #COVID in the UK is 50x higher than hospital admissions from flu.
A direct result of @teamlabouruk.bsky.social drastically decreasing autumn/winter covid vaccinations for many elderly or at risk adults…
It will get worse. It won’t save money.
A direct result of @teamlabouruk.bsky.social drastically decreasing autumn/winter covid vaccinations for many elderly or at risk adults…
It will get worse. It won’t save money.
Reposted by Lizzy
1) The Physios for ME team published a randomized trial on pacing with a heart rate monitor. It included 32 patients with ME/CFS and 15 with Long Covid.
A brief breakdown of the main results 🧵
A brief breakdown of the main results 🧵
October 10, 2025 at 12:59 PM
1) The Physios for ME team published a randomized trial on pacing with a heart rate monitor. It included 32 patients with ME/CFS and 15 with Long Covid.
A brief breakdown of the main results 🧵
A brief breakdown of the main results 🧵
Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!
October 8, 2025 at 4:33 PM
Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!
Reposted by Lizzy
First day back in Parliament, so time to get this Bluesky thing up and running. Thanks for follows so far. Also working on new website. If constituent, please do email. Going to be a busy week, with statements likely this afternoon. Congrats to @darrenpjones.bsky.social on his new job!
September 1, 2025 at 9:10 AM
First day back in Parliament, so time to get this Bluesky thing up and running. Thanks for follows so far. Also working on new website. If constituent, please do email. Going to be a busy week, with statements likely this afternoon. Congrats to @darrenpjones.bsky.social on his new job!
Reposted by Lizzy
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
October 8, 2025 at 6:10 AM
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
Reposted by Lizzy
I saw a pic of that lavish banquet next to a photo of people starving in Gaza and it just made me sick. Obscene how wealth is not shared out. Nobody should be starving in this day and age 😡😡
September 20, 2025 at 11:25 AM
I saw a pic of that lavish banquet next to a photo of people starving in Gaza and it just made me sick. Obscene how wealth is not shared out. Nobody should be starving in this day and age 😡😡
Reposted by Lizzy
I detest the fact that people will retort with [insert moany voice] "£15m isn't enough to run the nhs for a day". My argument for that is the nhs is being mismanaged then, and £15m could go a hell of a way to fill food banks for millions of people, not just an elite few at a banquet.
#solidarity
#solidarity
September 20, 2025 at 6:20 AM
I detest the fact that people will retort with [insert moany voice] "£15m isn't enough to run the nhs for a day". My argument for that is the nhs is being mismanaged then, and £15m could go a hell of a way to fill food banks for millions of people, not just an elite few at a banquet.
#solidarity
#solidarity
Reposted by Lizzy
The Terminally Ill Adults (End of Life) Bill has passed its Second Reading in the House of Lords, the house did not divide on the issue. #YesToDignity
September 19, 2025 at 2:46 PM
The Terminally Ill Adults (End of Life) Bill has passed its Second Reading in the House of Lords, the house did not divide on the issue. #YesToDignity
Reposted by Lizzy
For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g
September 19, 2025 at 3:11 PM
For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g
Reposted by Lizzy
The UK government's climate change advisory panel has said it has not yet been asked to formally assess how plans to expand Heathrow airport would impact on carbon emissions targets
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Ministers yet to seek climate advice on Heathrow expansion
The government faces calls to give the Climate Change Committee a bigger role in advising on airport expansion.
www.bbc.co.uk
September 19, 2025 at 3:30 PM
The UK government's climate change advisory panel has said it has not yet been asked to formally assess how plans to expand Heathrow airport would impact on carbon emissions targets
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Reposted by Lizzy
"My door is always open for conversations with Jeremy and Zarah, two people committed to making our country fairer who I really respect. All my energy is focused on what I can do towards that end, and that’s to keep growing @greenparty.org.uk"
www.theguardian.com/politics/202...
www.theguardian.com/politics/202...
Green party membership surges after public split between Corbyn and Sultana
Almost 1,400 people sign up in 24 hours to increase party membership by 10% since Zack Polanski’s leadership win this month
www.theguardian.com
September 19, 2025 at 5:00 PM
"My door is always open for conversations with Jeremy and Zarah, two people committed to making our country fairer who I really respect. All my energy is focused on what I can do towards that end, and that’s to keep growing @greenparty.org.uk"
www.theguardian.com/politics/202...
www.theguardian.com/politics/202...
Reposted by Lizzy
Someone asked if I was ready for the fall, and it actually took me a moment to realize that they meant autumn, not the complete collapse of democracy.
September 19, 2025 at 7:20 PM
Someone asked if I was ready for the fall, and it actually took me a moment to realize that they meant autumn, not the complete collapse of democracy.
Reposted by Lizzy
Trump looks like he's trying figure out how to steal some of their gold decor
September 20, 2025 at 1:18 AM
Trump looks like he's trying figure out how to steal some of their gold decor
Still can’t get over the fact that Trumps visit has cost the UK taxpayer £15million (again)
Yet we’re constantly told there is no public money. Not enough NHS funding. Reduced public services. Lack of social care funds. Children in desperate poverty. Elderly without heating in winter.
#ukpolitics
Yet we’re constantly told there is no public money. Not enough NHS funding. Reduced public services. Lack of social care funds. Children in desperate poverty. Elderly without heating in winter.
#ukpolitics
I can't get over how weird this photo is. I love that someone in England captioned it: "Darling, be a dear and DO click on the floor lamp."
September 20, 2025 at 3:43 AM
Still can’t get over the fact that Trumps visit has cost the UK taxpayer £15million (again)
Yet we’re constantly told there is no public money. Not enough NHS funding. Reduced public services. Lack of social care funds. Children in desperate poverty. Elderly without heating in winter.
#ukpolitics
Yet we’re constantly told there is no public money. Not enough NHS funding. Reduced public services. Lack of social care funds. Children in desperate poverty. Elderly without heating in winter.
#ukpolitics
Reposted by Lizzy
When authoritarianism is on the rise, you can count on the richest, least vulnerable men on the planet to be the biggest cowards.
September 19, 2025 at 11:46 PM
When authoritarianism is on the rise, you can count on the richest, least vulnerable men on the planet to be the biggest cowards.
Reposted by Lizzy
I can't get over how weird this photo is. I love that someone in England captioned it: "Darling, be a dear and DO click on the floor lamp."
September 19, 2025 at 11:48 PM
I can't get over how weird this photo is. I love that someone in England captioned it: "Darling, be a dear and DO click on the floor lamp."