Lizzy
@hopefullizzy.bsky.social
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Well put it this way, they’ve admitted it’s 5 or less, which is frankly shockingly bad in itself. Grateful to those 1-5 people. But when you think how many MPs, assistants, civil servants, etc etc there are, it’s appallingly low.
February 9, 2026 at 6:24 PM
Well put it this way, they’ve admitted it’s 5 or less, which is frankly shockingly bad in itself. Grateful to those 1-5 people. But when you think how many MPs, assistants, civil servants, etc etc there are, it’s appallingly low.
February 9, 2026 at 1:41 PM
Thank you so much. We will always try xx
February 7, 2026 at 11:00 PM
Thank you so much. We will always try xx
all with humour thrown in as always… they’re truly incredible.
Beyond glad for the strong unit.
74th day here, I hope this all makes sense as I’ve written in stages and don’t have energy to read back.
And lastly, Thank YOU too, for your love, support and kindness, it’s priceless. Lizzy x
Beyond glad for the strong unit.
74th day here, I hope this all makes sense as I’ve written in stages and don’t have energy to read back.
And lastly, Thank YOU too, for your love, support and kindness, it’s priceless. Lizzy x
February 7, 2026 at 2:53 PM
all with humour thrown in as always… they’re truly incredible.
Beyond glad for the strong unit.
74th day here, I hope this all makes sense as I’ve written in stages and don’t have energy to read back.
And lastly, Thank YOU too, for your love, support and kindness, it’s priceless. Lizzy x
Beyond glad for the strong unit.
74th day here, I hope this all makes sense as I’ve written in stages and don’t have energy to read back.
And lastly, Thank YOU too, for your love, support and kindness, it’s priceless. Lizzy x
As always, I’m so thankful to my mum who’s been by my side through so much of this, long days, and my dad, brother, and his partner who have had to see such awful declines, sit in on horrible meetings, help edit and compile emails, and worry about me and help me face the future…
February 7, 2026 at 2:53 PM
As always, I’m so thankful to my mum who’s been by my side through so much of this, long days, and my dad, brother, and his partner who have had to see such awful declines, sit in on horrible meetings, help edit and compile emails, and worry about me and help me face the future…
There’s also a push for my parents to meet with the health secretary & with our MP 🤞🏼
Keep writing to your MPs, keep using your voice if you can, this has to change, week on week it’s similar stories, similar situations coming to light across the UK, mainly of young women.
It isn’t ok.
Keep writing to your MPs, keep using your voice if you can, this has to change, week on week it’s similar stories, similar situations coming to light across the UK, mainly of young women.
It isn’t ok.
February 7, 2026 at 2:53 PM
There’s also a push for my parents to meet with the health secretary & with our MP 🤞🏼
Keep writing to your MPs, keep using your voice if you can, this has to change, week on week it’s similar stories, similar situations coming to light across the UK, mainly of young women.
It isn’t ok.
Keep writing to your MPs, keep using your voice if you can, this has to change, week on week it’s similar stories, similar situations coming to light across the UK, mainly of young women.
It isn’t ok.
(Alongside discussing my own situation and addressing some of those issues that have arisen).
I feel grateful that they as clinicians are also frustrated and willing to push for better, it feels like a rare thing, but I’m glad that me and my family speaking up is contributing to hopeful change.
I feel grateful that they as clinicians are also frustrated and willing to push for better, it feels like a rare thing, but I’m glad that me and my family speaking up is contributing to hopeful change.
February 7, 2026 at 2:53 PM
(Alongside discussing my own situation and addressing some of those issues that have arisen).
I feel grateful that they as clinicians are also frustrated and willing to push for better, it feels like a rare thing, but I’m glad that me and my family speaking up is contributing to hopeful change.
I feel grateful that they as clinicians are also frustrated and willing to push for better, it feels like a rare thing, but I’m glad that me and my family speaking up is contributing to hopeful change.
be set aside & a real framework guide for clinicians dealing with patients with Severe or Very Severe M.E, (and POTS & EDS patients also) because currently there is no treatments they can offer, and on the risky things they’re left with, there is not enough research evidence behind the efficacy.
February 7, 2026 at 2:53 PM
be set aside & a real framework guide for clinicians dealing with patients with Severe or Very Severe M.E, (and POTS & EDS patients also) because currently there is no treatments they can offer, and on the risky things they’re left with, there is not enough research evidence behind the efficacy.
My MP @kerrymp.bsky.social has been incredible as always, and her assistant, as has @tessamunt.bsky.social The hospital Chief Exec has arranged to meet with Kerry this week, with my consultants to have a wider discussion about pushing this in parliament for genuine biomedical research money to
February 7, 2026 at 2:53 PM
My MP @kerrymp.bsky.social has been incredible as always, and her assistant, as has @tessamunt.bsky.social The hospital Chief Exec has arranged to meet with Kerry this week, with my consultants to have a wider discussion about pushing this in parliament for genuine biomedical research money to
I’ve had to face things no one this age should have to face, but face things head on is what I do. Even when it’s terrifying
My consultant also spoke with me 1:1 yesterday on my request. She was so kind, & so upset about the situation I & so many of us are in. To have that compassion meant so much.
My consultant also spoke with me 1:1 yesterday on my request. She was so kind, & so upset about the situation I & so many of us are in. To have that compassion meant so much.
February 7, 2026 at 2:53 PM
I’ve had to face things no one this age should have to face, but face things head on is what I do. Even when it’s terrifying
My consultant also spoke with me 1:1 yesterday on my request. She was so kind, & so upset about the situation I & so many of us are in. To have that compassion meant so much.
My consultant also spoke with me 1:1 yesterday on my request. She was so kind, & so upset about the situation I & so many of us are in. To have that compassion meant so much.