Lizzy
@hopefullizzy.bsky.social
1.6K followers 320 following 120 posts
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
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hopefullizzy.bsky.social
Thank you, She is😍 it’s so beautiful I’m very lucky!
hopefullizzy.bsky.social
Here is a sneak peak but I will ask mum to take a photo for me tomorrow 😍 I’d love to share it with you, thank you for asking!! X
hopefullizzy.bsky.social
Mum has hung the beautiful autumnal bunting she made me for my 30th birthday last October, up across my room. It looks so lovely!
hopefullizzy.bsky.social
Sending tons of love xx
Reposted by Lizzy
kerrymp.bsky.social
First day back in Parliament, so time to get this Bluesky thing up and running. Thanks for follows so far. Also working on new website. If constituent, please do email. Going to be a busy week, with statements likely this afternoon. Congrats to @darrenpjones.bsky.social on his new job!
hopefullizzy.bsky.social
I long to study, to work, to go out, to help others, to contribute to society, to hike, and look out at the views.
Instead I cried this morning because I am so exhausted that digesting my feed through my feeding tube had taken all my energy.
hopefullizzy.bsky.social
George, as always thank you so much for covering this topic, it takes knowledge, understanding, empathy and bravery to do so, but my goodness does it mean the world to those of us you speak on behalf of.
Reposted by Lizzy
georgemonbiot.bsky.social
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
hopefullizzy.bsky.social
Thank you lovely, and much love back to you x
Reposted by Lizzy
rainbowsteph.bsky.social
I saw a pic of that lavish banquet next to a photo of people starving in Gaza and it just made me sick. Obscene how wealth is not shared out. Nobody should be starving in this day and age 😡😡
Reposted by Lizzy
ozgib.bsky.social
I detest the fact that people will retort with [insert moany voice] "£15m isn't enough to run the nhs for a day". My argument for that is the nhs is being mismanaged then, and £15m could go a hell of a way to fill food banks for millions of people, not just an elite few at a banquet.
#solidarity
Reposted by Lizzy
dignityindying.org.uk
The Terminally Ill Adults (End of Life) Bill has passed its Second Reading in the House of Lords, the house did not divide on the issue. #YesToDignity
Reposted by Lizzy
batemanhornecenter.bsky.social
For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g
Illustration of a mitochondrion glowing in orange against a dark background with silhouettes of a man and woman, titled "Mitochondria in the Spotlight".
Reposted by Lizzy
peterstefanovic.bsky.social
The UK government's climate change advisory panel has said it has not yet been asked to formally assess how plans to expand Heathrow airport would impact on carbon emissions targets

www.bbc.co.uk/news/article...
Ministers yet to seek climate advice on Heathrow expansion
The government faces calls to give the Climate Change Committee a bigger role in advising on airport expansion.
www.bbc.co.uk
Reposted by Lizzy
zackpolanski.bsky.social
"My door is always open for conversations with Jeremy and Zarah, two people committed to making our country fairer who I really respect. All my energy is focused on what I can do towards that end, and that’s to keep growing @greenparty.org.uk"

www.theguardian.com/politics/202...
Green party membership surges after public split between Corbyn and Sultana
Almost 1,400 people sign up in 24 hours to increase party membership by 10% since Zack Polanski’s leadership win this month
www.theguardian.com
Reposted by Lizzy
strandjunker.com
Someone asked if I was ready for the fall, and it actually took me a moment to realize that they meant autumn, not the complete collapse of democracy.
Reposted by Lizzy
sherry2.bsky.social
Trump looks like he's trying figure out how to steal some of their gold decor
hopefullizzy.bsky.social
Still can’t get over the fact that Trumps visit has cost the UK taxpayer £15million (again)

Yet we’re constantly told there is no public money. Not enough NHS funding. Reduced public services. Lack of social care funds. Children in desperate poverty. Elderly without heating in winter.

#ukpolitics
mrsbettybowers.bsky.social
I can't get over how weird this photo is. I love that someone in England captioned it: "Darling, be a dear and DO click on the floor lamp."
Reposted by Lizzy
bradleywhitford.bsky.social
When authoritarianism is on the rise, you can count on the richest, least vulnerable men on the planet to be the biggest cowards.
Reposted by Lizzy
mrsbettybowers.bsky.social
I can't get over how weird this photo is. I love that someone in England captioned it: "Darling, be a dear and DO click on the floor lamp."
Reposted by Lizzy
ilhanmn.bsky.social
I am proud to be born a Muslim.
I am proud to be born in Somalia.
I am proud to have become an American.

None of you can change that no matter how much you rage tweet.

Drink some water and touch grass.
hopefullizzy.bsky.social
Thank you so much, that really means a lot. Sending love also x
Reposted by Lizzy
ozgib.bsky.social
"what doesn’t kill you, doesn’t always leave you stronger, sometimes it leaves you weak, and shocked, and sad."

Truth.
Sending big love to Lizzy 💞
hopefullizzy.bsky.social
Days are spent just getting by, bedbaths, medication, feed, sleep, sometimes a little bit of tv, and the occasional 5-10min visitor.

People forget how impactful this illness can be, and, what doesn’t kill you, doesn’t always leave you stronger, sometimes it leaves you weak, and shocked, and sad.
hopefullizzy.bsky.social
Love to you all, I’ve thought of you so often. X