Karen
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karenpearny.bsky.social
Karen
@karenpearny.bsky.social
I have ME & fibromyalgia ♿️ 📚 🎧 🌊 🌳 Cornwall🩵
❤️ Manchester United 💙 country music 🤠 my boys 💙💙💙
Pinned
music.apple.com/gb/album/und...
I’m super proud of my eldest - this is his Christmas song.
Please could you all share and stream it for him. Would mean the world!
He wrote it, sang vocals and played all instruments and recorded it with help of his best mate Chris.
Under The Tree (2025) by Harry Drake on Apple Music
music.apple.com
Reposted by Karen
December 6, 2025 at 12:10 PM
Reposted by Karen
The Trump administration sinks to a new low – opening fire on drowning men | Jonathan Freedland
The Trump administration sinks to a new low – opening fire on drowning men | Jonathan Freedland
These deadly US boat strikes are the latest example of a president corrupting both the law and morality, says Guardian columnist Jonathan Freedland
www.theguardian.com
December 5, 2025 at 7:12 PM
Reposted by Karen
Thank you for all the support to our Big Give #ChristmasChallenge – so far we have raised over £118,000!⭐

We are so grateful for your support and incredible generosity – every donation means a lot to us and will enable us to continue to support people affected by ME of all ages.
December 5, 2025 at 5:26 PM
Reposted by Karen
(1/3)

This week, your support can go twice as far for #pwME.

During our Big Give Christmas Challenge (2–9 December) every £1 donated to us is doubled, helping us provide vital services and drive change for the 404,000 people living with #MECFS in the UK.

⬇️
December 3, 2025 at 7:05 PM
Reposted by Karen
(3/4)
🔗 For full details of the LOCOME findings, visit PrecisionLife: precisionlife.com/longcovid-me...

🎙️ Join us tomorrow for a webinar with PrecisionLife where we’ll break down what these findings mean for people with ME and the next steps for research.
Unraveling the Biological Drivers of ME and Long COVID | PrecisionLife
We have identified the first reproducible genetic mechanisms causing ME/CFS and long COVID. Learn more about our research.
precisionlife.com
December 4, 2025 at 8:28 AM
Reposted by Karen
(1/4) 🧬 @precisionlife.bsky.social has released exciting results from the LOCOME project

Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.
December 4, 2025 at 8:26 AM
Reposted by Karen
Delighted how @precisionlife.bsky.social and @actionforme.bsky.social et al used consented @decodemestudy.bsky.social data to
-replicate #MEcfs genetic signal &
-show its shared/distinct genetics with Long Covid.
Next: replicate ME/CFS subtypes w/ targeted therapies
www.medrxiv.org/content/10.6...
Identification of Novel Reproducible Combinatorial Genetic Risk Factors for Myalgic Encephalomyelitis in the DecodeME Patient Cohort and Commonalities with Long COVID
Background: Myalgic encephalomyelitis (also known as ME/CFS or simply ME) has severely impacted the lives of tens of millions of people globally, but the disease currently has no accurate diagnostic t...
www.medrxiv.org
December 4, 2025 at 8:13 AM
Reposted by Karen
WEBINAR TODAY:
Our researchers are unpacking the new ME genetics study today - join the live webinar to hear the findings first-hand and get your questions answered.

📅 Today
🕑 2PM GMT
🔗 Register: us02web.zoom.us/webinar/regi...

#pwME #MECFS #longCOVID #MissingMillions
December 5, 2025 at 10:58 AM
music.apple.com/gb/album/und...
I’m super proud of my eldest - this is his Christmas song.
Please could you all share and stream it for him. Would mean the world!
He wrote it, sang vocals and played all instruments and recorded it with help of his best mate Chris.
Under The Tree (2025) by Harry Drake on Apple Music
music.apple.com
December 5, 2025 at 8:35 AM
Reposted by Karen
Human cost of the Post Office scandal.

Sub-postmaster passed away from a heart attack at the age of 58 without receiving full compensation.

A "constant cycle of stress" created by false prosecutions of many. Lives destroyed.

No one charged.
My husband would still be alive if he'd received Post Office compensation
The widow and daughter of Jonathan Armstrong tell the BBC about the toll the Horizon scandal took on his health.
www.bbc.co.uk
December 5, 2025 at 7:35 AM
#Raceacrosstheworld is just brilliant ! Love seeing all the places and different cultures and love seeing the couples relationships. Loving Dillon and his mum but sad at what’s she has been through. Love Molly and Tyler too! Here’s to the final next week! World 🌎 🌍
December 4, 2025 at 9:03 PM
Reposted by Karen
Wherever you are, be there totally

Image: www.instagram.com/lisacongdon
December 4, 2025 at 7:00 PM
Reposted by Karen
UK energy bills to rise by £108 to pay for infrastructure upgrades.

Since 2020 energy companies made £125bn profit.

6.1m live in fuel poverty.
£4.43bn energy bills arrears.
128,000 a year die in fuel poverty.

Eliminate privatisation of profit. Use it to fund infrastructure. Nationalise.
UK energy bills to rise by £108 to pay for infrastructure upgrades
Britain’s energy watchdog gives go-ahead to initial £28bn of investment to upgrade UK energy infrastructure but reveals move will push up network charges
www.independent.co.uk
December 4, 2025 at 3:46 PM
Reposted by Karen
ONE WEEK TO GO!
'THE SHOW OF A LOST WORLD' IN CINEMAS NEXT THURSDAY!
GET YOUR TICKETS NOW AT HTTPS://THECURELOSTWORLD.COM/
December 4, 2025 at 3:48 PM
Reposted by Karen
Disabled people deserve healthcare.

Disabled people deserve housing.

Disabled people deserve food.

Disabled people deserve support.

Our ability to work and produce should not determine our value.

Disability is not a moral failing. Most people will experience it someday.
December 4, 2025 at 8:25 AM
Reposted by Karen
The countdown starts now! The #BeyondParadise and #DeathInParadise Christmas specials will be coming to your living rooms on Sunday 21 and Sunday 28 December.

Save us a mince pie? 🎄
December 3, 2025 at 7:30 PM
Reposted by Karen
Quite incredible that this unapologetic racist could be our next PM
We kept the receipts. These comments, taken together, paint a picture of the man he is today.
December 3, 2025 at 10:42 AM
Reposted by Karen
December 3, 2025 at 6:03 PM
How nice it was to get a lovely therapist for my next lot of counselling sessions. After waiting 6 months for these sessions. NHS is so overwhelmed with people struggling with their MH. I wish I didn’t need it again so soon,but stuff happened and spiralled me at down again. DWP are one of the causes
December 3, 2025 at 4:19 PM
Reposted by Karen
It's International Day of Persons with Disabilities.

To mark this we are looking at ways to help those house-bound or bed-bound with Long Covid or chronic illness with vital screening & testing. 🇬🇧 /1
🧵👇
December 3, 2025 at 1:42 PM
Reposted by Karen
IT'S WEDNESDAY!

It's #buyastrangerabook day.

The grooviest of all the days.

I'll give out TWO books.

FOR FREE.

If you'd like one, let me know.

Also, if you'd like to #BuyAStrangerABook too, let me know.

It's a thing! Look.

biggreenbookshop.com/stuff-you-mi...

UK only.
Buy A Stranger A Book. #buyastrangerabook - Stuff you might like... - Big Green Bookshop. @biggreenbooks on Twitter. Cheese fan. My Mum says hi.
The Big Green Bookshop an independent online bookshop in selling awesome titles by awesome authors to awesome people
biggreenbookshop.com
December 3, 2025 at 12:37 PM
Reposted by Karen
When enough is enough. 💙
December 2, 2025 at 9:54 PM