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Inclusive New Normal @inclusivenew.bsky.social · 6h

Do you know if this study look at indoor air pollution/ quality or just outdoor? 🙏

Inclusive New Normal @inclusivenew.bsky.social · 8h

Important report 🙏. But tricky getting balance right. 'Independent' can also mean an interest-group marks their own homework without quality assurance, meaningful oversight, public accountability, transparency or access, as seems true of the body for Infection Prevention & Control in Scotland.

Inclusive New Normal @inclusivenew.bsky.social · 8h

But perhaps there are other risks too - people marking their own homework with no independent quality assurance, meaningful oversight, public accountability, transparency or access. That certainly seems to be the case with the body responsible for Infection Prevention & Control in Scotland.

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Inclusive New Normal @inclusivenew.bsky.social · 8h

We have to get the corrupting influence of political & commercial imperatives out of 'independent' scientific bodies. Democracies everywhere - if they exist in more than name - should be taking action now, before too late. Like so much learning from the pandemic this continues to be wholly ignored.

Prof Christina Pagel @chrischirp.bsky.social · 3d

🧵🚨

The UK’s independent scientific bodies are highly vulnerable to politicisation - over the past 5 months I've been working with @martinmckee.bsky.social to map out their vulnerabilities and it's not good news.

Today our report is published!
www.ucl.ac.uk/policy-lab/n...

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UK’s arm’s length public bodies are highly vulnerable to politicisation

Seven in ten Britons say it is important for top scientific institutions to be independent in exclusive new polling.

www.ucl.ac.uk

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 5d

⚠️The NHS once protected us.

Now, millions of Clinically Vulnerable people are being told we don’t qualify for a Covid vaccine - even as new variants spread.

This is a dangerous, preventable mistake.

#KeepCovidBoosters

NEW CVF BLOG - Screenshot of top of page

A Preventable Winter Crisis: Why Clinically Vulnerable People Need Your Help

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Inclusive New Normal @inclusivenew.bsky.social · 7d

Very helpful thread 🙏

Steve Griffin @profstevegriffin.bsky.social · 7d

Folks have been asking me which of the currently available UK #COVID vaccines are best, given that an older flavour, "KP2" is being given free on the NHS to the twelve or so people that remain eligible (😜🙄), whilst the newer "LP8.1" is available privately...

I'll do my best...

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Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social · 7d

🧠 New Research Summary

Healthcare worker stress when treating Long Covid patients.

📚Read Summary: shh-uk.org/?p=34787
📚 Full study: pubmed.ncbi.nlm.nih....

#LongCovid #LongCovidSupport #LongCovidRecovery #LongCovidAwareness #LongCovidCommunity #LongCovidResources

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Inclusive New Normal @inclusivenew.bsky.social · 7d

More evidence of the role of viral persistance as an underlying disease mechanism.

Long COVID Labs @longcovidlabs.bsky.social · 13d

🚨Fascinating new analysis from @ucirvine.bsky.social researchers on the possible role of SARS-CoV-2 persistence in Long COVID:

The authors outline several mechanisms by which the virus could remain in the human body and cause disease.

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Figure 1 from the paper:

Caption says: Five major mechanisms by which the virus, vRNA, and viral antigens may cause multiple and different pathologies in Long COVID patients. (A) A causative factor in a large subset of patients with LC is that reservoirs of virus, viral RNA (vRNA), and/or fragments may persist in multiple sites of the body. (B) This causes chronic inflammation, overstimulating innate and adaptive immune cells, and providing continuous viral antigenic stimuli to (C) exhausted CD4+ and CD8+ T cells [31,33,34,35,36]. This may result in damage to major organ systems, leading to neurological, cardiovascular, pulmonary, muscular, and psychiatric pathologies [43,44]. (D–F) Other possible causative factors of LC include metabolic disturbances, immune dysbiosis, micro-clotting, endothelial dysfunction [38,43,45,46,47], and the reactivation of HSV-1, HSV-2, EBV, CMV, and HHV-6 [48,49]. This Figure is created using BioRender.

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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 7d

The MILLIONS of people who were denied vaccines are suddenly realising.

@rthonwesstreeting.bsky.social this was a terrible idea.

Not only will the NHS struggle this autumn / winter, but people will suffer and die unnecessarily.

It isn't too late for a U-turn!

Community Pharmacy England

Q

Pharmacy teams have reported major issues to us over the last two days related to large numbers of patients booking COVID-19 vaccinations via the National Booking System (NBS) who are not eligible for the vaccine this winter.

We are working with NHS England to try to address this unacceptable situation and to get more NHS communications issued to help people understand whether they are eligible for the vaccine.

In the meantime, we have created three posters that pharmacy teams can use to help explain about vaccine eligibility this winter:

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Inclusive New Normal @inclusivenew.bsky.social · 8d

Well, part of the reason is because Universities and educational establishments in general do absolutely nothing to ensure clean, safe, healthy indoor quality, so it's not just students having a party but airborne infections. No mention of that or the current Covid wave www.bbc.co.uk/news/article...

Freshers' flu: Why is it so hard for students to dodge?

It's not the actual flu, and it's rarely serious, but when thousands of students arrive on campus they bring a cocktail of viruses.

www.bbc.co.uk

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Inclusive New Normal @inclusivenew.bsky.social · 11d

It's also vital to reduce the damage to public health, economy and education still being caused by the current pandemic. theconversation.com/why-investme...

Why investment in clean indoor air is vital preparation for the pandemics and climate emergencies to come

Unchecked airborne infections cost billions in lost health and productivity each year – likely more than the cost of better ventilation to clean up indoor air.

theconversation.com

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Eric Topol @erictopol.bsky.social · 12d

Children and teens who had a Covid reinfection had a doubling of #LongCovid risk (PASC) and a significant increase in many other adverse outcomes (Figure) www.thelancet.com/journals/lan...

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Inclusive New Normal @inclusivenew.bsky.social · 14d

The (ongoing) adverse impact of SARS CoV 2 on our children is a scandal, particularly when so much could now be done to prevent it. Big week for @cvcev.bsky.social & @longcovidkids.bsky.social at the UK Covid Inquiry. Wishing you the best of luck in forcing those responsible to be held to account 🍀

Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 14d

Clinically Vulnerable Families at the start of the Children and Young People’s module this morning.

Support us if you can! I will be here on Wednesday to speak. Tickets are available.

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Inclusive New Normal @inclusivenew.bsky.social · 17d

Now that's a novel twist. Hands up how many of you have recently been to the doctors and asked them questions because you 'became more aware of yourselves' during lockdowns 5 years ago.... 🤔

Dr Sally Witcher @salwitcher.bsky.social · 18d

If you thought you'd heard it all where it concerns explanations for increased demand for healthcare 'post-Covid' without mentioning the health impacts of ongoing Covid, I refer you to Cabinet Sec Neil Gray's response to the Citizen Participation & Petitions Committee yesterday 😕

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Safe Air Schools UK @safeairschoolsuk.bsky.social · 18d

“We invite governments, non-governmental organizations, cities, universities, schools, healthcare facilities, professional associations, advocacy organizations, businesses, and community groups to sign the Pledge”.

Has yours signed?

#AirClub #SafeAirSchools

www.airclub.org

Air Club

A global coalition aspiring towards healthy indoor air.

www.airclub.org

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Inclusive New Normal @inclusivenew.bsky.social · 19d

Hugely proud that our Founder & Director Dr Sally Witcher is be part of this incredible initiative. Keen to know what your priorities would be for action on healthy indoor air. There's a long way to go to get even health, social care & education settings to take this seriously here in Scotland & UK.

Dr Sally Witcher @salwitcher.bsky.social · 19d

1. As someone at high clinical risk interacting online daily with others locally & globally whose lives are similarly restricted due to unsafe indoor air, I couldn't be more honoured & excited to be part of this landmark initiative to make healthy indoor air a priority for every country & community

Image says "Proud to serve on the Global Commission on Healthy Indoor Air. Meeting the call to action to improve public health and boost human performance

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thetranscendedman @atranscendedman.bsky.social · 21d

Vancouver researchers studied 30 people and found that pulmonary long COVID is linked to an overactive T cell response in the blood and lungs along with higher autoantibodies.

This points to lingering airway inflammation driven by autoimmunity.

www.medrxiv.org/content/10.1...

Single-cell multi-omics show disruption of blood and airway T-cells in pulmonary long COVID

Background: Approximately 10% of individuals who recover from COVID-19 experience residual respiratory symptoms impacting their quality of life, but the mechanisms behind pulmonary long COVID (PLC) ar...

www.medrxiv.org

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Eric Topol @erictopol.bsky.social · 24d

A consensus report on the cardiovascular manifestations, diagnosis, prevention and treatment from Covid and #LongCovid
academic.oup.com/eurjpc/advan...

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Tania J. Spencer @taniaspencer.bsky.social · 27d

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"University of Michigan, Yale, & others conducted a meta-analysis of 442 studies (429 meta-analysed) covering confirmed #COVID cases, with follow-ups of at least 2 months. They estimated that worldwide, about 36% of people who had #COVID develop #LongCOVID":

academic.oup.com/ofid/article...

Global Prevalence of Long COVID, Its Subtypes, and Risk Factors: An Updated Systematic Review and Meta-analysis

Quantitative evidence shows a persistent prevalence of long COVID globally, with a significant burden of symptoms that last 1–2 years postinfection, unders

academic.oup.com

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Inclusive New Normal @inclusivenew.bsky.social · 28d

This is disgraceful 'reporting' by @bbcnews.bsky.social Six years ago it was not normal for the majority of the population to be experiencing what present as early symptoms of dementia due to cognitive impairment. Surely that's what they should be investigating and reporting on.

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Inclusive New Normal @inclusivenew.bsky.social · 28d

We do, and we need to prevent more children being similarly avoidably harmed, as continues to happen.

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Inclusive New Normal @inclusivenew.bsky.social · 28d

millenniumcourt.co.uk

Millennium Court – we organise, sponsor and conduct a wide range of events such as educational and training workshops and classes.

we organise, sponsor and conduct a wide range of events such as educational and training workshops and classes.

millenniumcourt.co.uk

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Inclusive New Normal @inclusivenew.bsky.social · 28d

Wonderful, powerful exhibition of art works by kids with Long Covid. Many congratulations to the hugely talented artists and to the organisers 👏

Colin Pidgeon @baldypidge.bsky.social · 29d

Walkthrough of the #WeAreStillHere exhibition that opened yesterday.

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Inclusive New Normal @inclusivenew.bsky.social · 29d

Colin Pidgeon @baldypidge.bsky.social · 29d

#WeAreStillHere
#LongCovidKids

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Inclusive New Normal @inclusivenew.bsky.social · Sep 12

Our 'benefits' group was thrilled to have an amazing opportunity recently to talk to Social Security Scotland staff (devolved benefits delivery body) about the reality of Long Covid, ME/CFS, vax injury, high clinical risk, & the need for inclusive assessment & delivery processes. Thanks so much! 🙏

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