Long COVID Labs
@longcovidlabs.bsky.social
Non-profit accelerating a cure for 100M+ people with Long COVID.
Longcovidlabs.org
Longcovidlabs.org
Reposted by Long COVID Labs
I've been sharing research long enough to watch people flip their beliefs completely. That's why science has to feel close, not distant.
We trust what we can see. H. pylori proved that and now we're watching the same story unfold with SARS-CoV-2.
We trust what we can see. H. pylori proved that and now we're watching the same story unfold with SARS-CoV-2.
November 21, 2025 at 3:20 AM
I've been sharing research long enough to watch people flip their beliefs completely. That's why science has to feel close, not distant.
We trust what we can see. H. pylori proved that and now we're watching the same story unfold with SARS-CoV-2.
We trust what we can see. H. pylori proved that and now we're watching the same story unfold with SARS-CoV-2.
Reposted by Long COVID Labs
🚨Attn: Our long COVID Labs iOS app has been SUBMITTED from Testflight to the App Store!!! ✨
You can use our app track to your symptoms, contribute data to our Treatment Leaderboard and integrate with our ECG wearable for an additional biosignal layer. 📈
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You can use our app track to your symptoms, contribute data to our Treatment Leaderboard and integrate with our ECG wearable for an additional biosignal layer. 📈
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November 20, 2025 at 5:47 PM
🚨Attn: Our long COVID Labs iOS app has been SUBMITTED from Testflight to the App Store!!! ✨
You can use our app track to your symptoms, contribute data to our Treatment Leaderboard and integrate with our ECG wearable for an additional biosignal layer. 📈
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You can use our app track to your symptoms, contribute data to our Treatment Leaderboard and integrate with our ECG wearable for an additional biosignal layer. 📈
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Our founder Rohan spoke today at Devconnect ARG - The First Ethereum World's Fair! @devcon.org
Rohan demoed our mobile app and clinical-grade wearable, as we get ready to launch our upcoming Patient Registry! ✨
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Rohan demoed our mobile app and clinical-grade wearable, as we get ready to launch our upcoming Patient Registry! ✨
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November 19, 2025 at 9:08 PM
Our founder Rohan spoke today at Devconnect ARG - The First Ethereum World's Fair! @devcon.org
Rohan demoed our mobile app and clinical-grade wearable, as we get ready to launch our upcoming Patient Registry! ✨
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Rohan demoed our mobile app and clinical-grade wearable, as we get ready to launch our upcoming Patient Registry! ✨
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This is big!
Great to see VICE covering Long COVID! 🙏
Great to see VICE covering Long COVID! 🙏
VICE: “A New Study Could Explain Why Long COVID Lingers for So Many”
“Turns out the problem might be microscopic—and everywhere.”
www.vice.com/en/article/a...
“Turns out the problem might be microscopic—and everywhere.”
www.vice.com/en/article/a...
A New Study Could Explain Why Long COVID Lingers for So Many
A long COVID microclots study suggests your lingering brain fog and exhaustion might come down to microscopic clots that just won’t quit.
www.vice.com
November 19, 2025 at 6:11 PM
This is big!
Great to see VICE covering Long COVID! 🙏
Great to see VICE covering Long COVID! 🙏
LONG COVID LABS just set a new precedent in digital health and patient-led science. For the first time, a patient registry has achieved IRB approval while using blockchain tokens to reward participants—not with speculative crypto, but with meaningful governance power and real research impact.
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November 18, 2025 at 3:51 PM
LONG COVID LABS just set a new precedent in digital health and patient-led science. For the first time, a patient registry has achieved IRB approval while using blockchain tokens to reward participants—not with speculative crypto, but with meaningful governance power and real research impact.
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Reposted by Long COVID Labs
On the way to school my 7 year old said
“Dad, I’m going to be a vet so I can take viruses out of animals”
Then, after a pause
“Is your virus going away with the new medicine?”
If a kid can understand care that easily, why can’t we?
It shouldn’t be complicated to be kind.
“Dad, I’m going to be a vet so I can take viruses out of animals”
Then, after a pause
“Is your virus going away with the new medicine?”
If a kid can understand care that easily, why can’t we?
It shouldn’t be complicated to be kind.
November 14, 2025 at 2:06 PM
On the way to school my 7 year old said
“Dad, I’m going to be a vet so I can take viruses out of animals”
Then, after a pause
“Is your virus going away with the new medicine?”
If a kid can understand care that easily, why can’t we?
It shouldn’t be complicated to be kind.
“Dad, I’m going to be a vet so I can take viruses out of animals”
Then, after a pause
“Is your virus going away with the new medicine?”
If a kid can understand care that easily, why can’t we?
It shouldn’t be complicated to be kind.
Wow... this is big. In the coming decade, we're going to be uncovering SO much about how viruses impact our biology - and how to treat them. 🦠
Epstein-Barr Virus --> lupus
Epstein-Barr Virus --> lupus
'Stanford Links Lupus to Common Virus'
"This is the single most impactful finding to emerge from my lab in my entire career," said William Robinson , MD, PhD, a professor of immunology and rheumatology..."We think it applies to 100% of lupus cases."
www.miragenews.com/stanford-lin...
"This is the single most impactful finding to emerge from my lab in my entire career," said William Robinson , MD, PhD, a professor of immunology and rheumatology..."We think it applies to 100% of lupus cases."
www.miragenews.com/stanford-lin...
Stanford Links Lupus to Common Virus
One of humanity's most ubiquitous infectious pathogens bears the blame for the chronic autoimmune condition called systemic lupus erythematosus or
www.miragenews.com
November 13, 2025 at 8:09 PM
Wow... this is big. In the coming decade, we're going to be uncovering SO much about how viruses impact our biology - and how to treat them. 🦠
Epstein-Barr Virus --> lupus
Epstein-Barr Virus --> lupus
Reposted by Long COVID Labs
The art and imagination shaped by people living with long COVID these past six years feels almost miraculous.
And I keep wondering what we’ll create when this strange confinement finally breaks.
I’m not sure the world is ready for the brightness waiting beyond it.
And I keep wondering what we’ll create when this strange confinement finally breaks.
I’m not sure the world is ready for the brightness waiting beyond it.
November 13, 2025 at 7:52 PM
The art and imagination shaped by people living with long COVID these past six years feels almost miraculous.
And I keep wondering what we’ll create when this strange confinement finally breaks.
I’m not sure the world is ready for the brightness waiting beyond it.
And I keep wondering what we’ll create when this strange confinement finally breaks.
I’m not sure the world is ready for the brightness waiting beyond it.
Looking forward to this X space today at 12 pm EST! 🕛
Our founder Rohan will be there as well, speaking about our upcoming Patient Registry. It's designed to create high-quality scientific evidence as to what works in Long COVID, STAT! 💊
See you there! ✨
Our founder Rohan will be there as well, speaking about our upcoming Patient Registry. It's designed to create high-quality scientific evidence as to what works in Long COVID, STAT! 💊
See you there! ✨
🧬 The future of biotech is being built on-chain and ValleyDAO is part of it.
Join us and Bio Protocol, Cerebrum DAO, SpineDAO, and LONG COVID LABS for a Twitter Space hosted by DeSci News.
We’ll dive into what’s next for open science, real-world biotech, and the growing $BIO & $GROW ecosystem.
Join us and Bio Protocol, Cerebrum DAO, SpineDAO, and LONG COVID LABS for a Twitter Space hosted by DeSci News.
We’ll dive into what’s next for open science, real-world biotech, and the growing $BIO & $GROW ecosystem.
November 12, 2025 at 1:26 PM
Looking forward to this X space today at 12 pm EST! 🕛
Our founder Rohan will be there as well, speaking about our upcoming Patient Registry. It's designed to create high-quality scientific evidence as to what works in Long COVID, STAT! 💊
See you there! ✨
Our founder Rohan will be there as well, speaking about our upcoming Patient Registry. It's designed to create high-quality scientific evidence as to what works in Long COVID, STAT! 💊
See you there! ✨
🚨We need ✨root cause✨ treatments for Long COVID, STAT!
NIH RECOVER-NEURO results demonstrate you can't treat brain fog if you don't understand what's causing it.
We believe that for many, it's SARS-CoV-2 persistence - we need ways to treat and clear it, now!🧠
NIH RECOVER-NEURO results demonstrate you can't treat brain fog if you don't understand what's causing it.
We believe that for many, it's SARS-CoV-2 persistence - we need ways to treat and clear it, now!🧠
RECOVER: 'RECOVER-NEURO clinical trial shares results of three non-drug treatments for cognitive symptoms of Long COVID'
'None of our rehabilitation approaches to treatment for cognitive Long COVID proved to be effective.'
recovercovid.org/news/recover...
'None of our rehabilitation approaches to treatment for cognitive Long COVID proved to be effective.'
recovercovid.org/news/recover...
RECOVER: Researching COVID to Enhance Recovery
The long-term effects of COVID are real. Join the NIH in the search for answers.
recovercovid.org
November 11, 2025 at 1:54 PM
🚨We need ✨root cause✨ treatments for Long COVID, STAT!
NIH RECOVER-NEURO results demonstrate you can't treat brain fog if you don't understand what's causing it.
We believe that for many, it's SARS-CoV-2 persistence - we need ways to treat and clear it, now!🧠
NIH RECOVER-NEURO results demonstrate you can't treat brain fog if you don't understand what's causing it.
We believe that for many, it's SARS-CoV-2 persistence - we need ways to treat and clear it, now!🧠
Reposted by Long COVID Labs
Such an important topic, thank you Chloé, @lisamccorkell.bsky.social @julialmv.bsky.social @leticiasaurus.bsky.social and coauthors for drawing attention to it!
#LongCovid #MECFS
#LongCovid #MECFS
Many Long COVID trials have reported negative results in 2024 and 2025. In our Comment for @thelancetinfdis.bsky.social we argue that inadequate outcome measures might have played a role. (1/12)
November 8, 2025 at 12:13 AM
Such an important topic, thank you Chloé, @lisamccorkell.bsky.social @julialmv.bsky.social @leticiasaurus.bsky.social and coauthors for drawing attention to it!
#LongCovid #MECFS
#LongCovid #MECFS
Reposted by Long COVID Labs
Thank you to the Irish Independent for this article and this is why so many folks are off sick. Sadly now six of my friends have long covid. This is a national crisis behind closed doors. www.independent.ie/life/health-...
Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone
The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...
www.independent.ie
November 10, 2025 at 12:29 PM
Thank you to the Irish Independent for this article and this is why so many folks are off sick. Sadly now six of my friends have long covid. This is a national crisis behind closed doors. www.independent.ie/life/health-...
Thymosin Alpha 1 & Long COVID
Our team is curious if anyone out there has tried the peptide Thymosin Alpha 1 for Long COVID. We’re asking for research purposes (not endorsing a treatment ofc!).
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Our team is curious if anyone out there has tried the peptide Thymosin Alpha 1 for Long COVID. We’re asking for research purposes (not endorsing a treatment ofc!).
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Thymosin alpha 1: A comprehensive review of the literature
Thymosin alpha 1 is a peptide naturally occurring in the thymus that has long been recognized for modifying, enhancing, and restoring immune function. Thymosin alpha 1 has been utilized in the treatment of immunocompromised states and malignancies, ...
pmc.ncbi.nlm.nih.gov
November 6, 2025 at 1:56 PM
Thymosin Alpha 1 & Long COVID
Our team is curious if anyone out there has tried the peptide Thymosin Alpha 1 for Long COVID. We’re asking for research purposes (not endorsing a treatment ofc!).
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Our team is curious if anyone out there has tried the peptide Thymosin Alpha 1 for Long COVID. We’re asking for research purposes (not endorsing a treatment ofc!).
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🚨This is so important:
"After years of denial the international consensus is now shifting,” according to physicist @yaneerbaryam.bsky.social
COVID-19 is:
🛑creating a 12.9% increase in workplace absences compared to pre-pandemic
🛑causing a 2% increase in excess deaths vs. pre-pandemic
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"After years of denial the international consensus is now shifting,” according to physicist @yaneerbaryam.bsky.social
COVID-19 is:
🛑creating a 12.9% increase in workplace absences compared to pre-pandemic
🛑causing a 2% increase in excess deaths vs. pre-pandemic
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November 4, 2025 at 1:44 PM
🚨This is so important:
"After years of denial the international consensus is now shifting,” according to physicist @yaneerbaryam.bsky.social
COVID-19 is:
🛑creating a 12.9% increase in workplace absences compared to pre-pandemic
🛑causing a 2% increase in excess deaths vs. pre-pandemic
1/
"After years of denial the international consensus is now shifting,” according to physicist @yaneerbaryam.bsky.social
COVID-19 is:
🛑creating a 12.9% increase in workplace absences compared to pre-pandemic
🛑causing a 2% increase in excess deaths vs. pre-pandemic
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Reposted by Long COVID Labs
"This Physicist Says We Don’t Take COVID Seriously Enough"
"We downplay the virus at our peril, warns Yaneer Bar-Yam. And children are more at risk than we thought."
Source: archive.li/Op73F
"We downplay the virus at our peril, warns Yaneer Bar-Yam. And children are more at risk than we thought."
Source: archive.li/Op73F
November 1, 2025 at 11:25 PM
"This Physicist Says We Don’t Take COVID Seriously Enough"
"We downplay the virus at our peril, warns Yaneer Bar-Yam. And children are more at risk than we thought."
Source: archive.li/Op73F
"We downplay the virus at our peril, warns Yaneer Bar-Yam. And children are more at risk than we thought."
Source: archive.li/Op73F
New review in The Nurse Practitioner Journal raises awareness of #SARS-Cov-2 persistence in Long COVID! ✨
LC patients are ALL too familiar with the experience of seeking out help from medical professionals - only to be met with confusion and doubt over what this disease is.
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LC patients are ALL too familiar with the experience of seeking out help from medical professionals - only to be met with confusion and doubt over what this disease is.
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November 1, 2025 at 5:29 PM
New review in The Nurse Practitioner Journal raises awareness of #SARS-Cov-2 persistence in Long COVID! ✨
LC patients are ALL too familiar with the experience of seeking out help from medical professionals - only to be met with confusion and doubt over what this disease is.
1/
LC patients are ALL too familiar with the experience of seeking out help from medical professionals - only to be met with confusion and doubt over what this disease is.
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📢New study out of Mass General looks at microclots in kids with Long COVID 🩸
In this study, researchers examined blood samples from 59 children with Long COVID and 14 healthy controls.
They found that the rates of microclots were SIGNIFICANTLY higher in the Long COVID patients.
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In this study, researchers examined blood samples from 59 children with Long COVID and 14 healthy controls.
They found that the rates of microclots were SIGNIFICANTLY higher in the Long COVID patients.
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October 28, 2025 at 2:28 PM
📢New study out of Mass General looks at microclots in kids with Long COVID 🩸
In this study, researchers examined blood samples from 59 children with Long COVID and 14 healthy controls.
They found that the rates of microclots were SIGNIFICANTLY higher in the Long COVID patients.
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In this study, researchers examined blood samples from 59 children with Long COVID and 14 healthy controls.
They found that the rates of microclots were SIGNIFICANTLY higher in the Long COVID patients.
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Highly recommend this review from Oba et al. on the current status of Long COVID research & treatment -- worth a read! ✨
Here, the authors outline the major hypotheses for the root causes of LC. The research community has largely been coalescing around these ideas in the last 1-2 years. 📊
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Here, the authors outline the major hypotheses for the root causes of LC. The research community has largely been coalescing around these ideas in the last 1-2 years. 📊
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October 23, 2025 at 9:35 PM
Highly recommend this review from Oba et al. on the current status of Long COVID research & treatment -- worth a read! ✨
Here, the authors outline the major hypotheses for the root causes of LC. The research community has largely been coalescing around these ideas in the last 1-2 years. 📊
1/
Here, the authors outline the major hypotheses for the root causes of LC. The research community has largely been coalescing around these ideas in the last 1-2 years. 📊
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📣 New Clinical Trial Compares Efficacy of Paxlovid vs. Ensitrelvir
Researchers in Thailand and Laos compared the rates of recovery from acute SARS-CoV-2 infection while patients were taking these two antiviral drugs:
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Researchers in Thailand and Laos compared the rates of recovery from acute SARS-CoV-2 infection while patients were taking these two antiviral drugs:
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October 17, 2025 at 4:27 PM
📣 New Clinical Trial Compares Efficacy of Paxlovid vs. Ensitrelvir
Researchers in Thailand and Laos compared the rates of recovery from acute SARS-CoV-2 infection while patients were taking these two antiviral drugs:
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Researchers in Thailand and Laos compared the rates of recovery from acute SARS-CoV-2 infection while patients were taking these two antiviral drugs:
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🚨New case study provides compelling evidence for a shocking conclusion:
👉Not only can the SARS-CoV-2 virus persist in the GI tract, but these chronic infections may eventually give rise to new variants of concern.
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👉Not only can the SARS-CoV-2 virus persist in the GI tract, but these chronic infections may eventually give rise to new variants of concern.
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October 10, 2025 at 11:25 AM
🚨New case study provides compelling evidence for a shocking conclusion:
👉Not only can the SARS-CoV-2 virus persist in the GI tract, but these chronic infections may eventually give rise to new variants of concern.
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👉Not only can the SARS-CoV-2 virus persist in the GI tract, but these chronic infections may eventually give rise to new variants of concern.
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Really enjoyed this insightful PBS News Hour with Long COVID advocate @meighanstone.bsky.social and leading researcher @michaelpelusomd.bsky.social! #LongCOVID
www.pbs.org/video/long-c...
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www.pbs.org/video/long-c...
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PBS News Hour | What to know about RFK Jr.’s efforts to address long COVID | Season 2025
What to know about RFK Jr.’s efforts to address long COVID research and treatments
www.pbs.org
October 7, 2025 at 4:13 PM
Really enjoyed this insightful PBS News Hour with Long COVID advocate @meighanstone.bsky.social and leading researcher @michaelpelusomd.bsky.social! #LongCOVID
www.pbs.org/video/long-c...
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www.pbs.org/video/long-c...
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✨ New study confirms tenofovir efficacy against SARS-CoV-2! (This includes Truvada!). ✨
In this study, researchers looked at two forms of the anti-HIV antiviral: tenofovir alafenamide (TAF) and tenofovir disoproxil fumarate (TDF).
They found both drugs effective against the virus in-vitro!
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In this study, researchers looked at two forms of the anti-HIV antiviral: tenofovir alafenamide (TAF) and tenofovir disoproxil fumarate (TDF).
They found both drugs effective against the virus in-vitro!
1/
October 1, 2025 at 5:39 PM
✨ New study confirms tenofovir efficacy against SARS-CoV-2! (This includes Truvada!). ✨
In this study, researchers looked at two forms of the anti-HIV antiviral: tenofovir alafenamide (TAF) and tenofovir disoproxil fumarate (TDF).
They found both drugs effective against the virus in-vitro!
1/
In this study, researchers looked at two forms of the anti-HIV antiviral: tenofovir alafenamide (TAF) and tenofovir disoproxil fumarate (TDF).
They found both drugs effective against the virus in-vitro!
1/
🚨Fascinating new analysis from @ucirvine.bsky.social researchers on the possible role of SARS-CoV-2 persistence in Long COVID:
The authors outline several mechanisms by which the virus could remain in the human body and cause disease.
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The authors outline several mechanisms by which the virus could remain in the human body and cause disease.
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![Figure 1 from the paper:
Caption says: Five major mechanisms by which the virus, vRNA, and viral antigens may cause multiple and different pathologies in Long COVID patients. (A) A causative factor in a large subset of patients with LC is that reservoirs of virus, viral RNA (vRNA), and/or fragments may persist in multiple sites of the body. (B) This causes chronic inflammation, overstimulating innate and adaptive immune cells, and providing continuous viral antigenic stimuli to (C) exhausted CD4+ and CD8+ T cells [31,33,34,35,36]. This may result in damage to major organ systems, leading to neurological, cardiovascular, pulmonary, muscular, and psychiatric pathologies [43,44]. (D–F) Other possible causative factors of LC include metabolic disturbances, immune dysbiosis, micro-clotting, endothelial dysfunction [38,43,45,46,47], and the reactivation of HSV-1, HSV-2, EBV, CMV, and HHV-6 [48,49]. This Figure is created using BioRender.](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:j64ln53qmu6kvcof3esgtihb/bafkreicjq4wm6pts3qhm7e2qs3eivfc2pj5x2ow6axayc7f4ftpraicrk4@jpeg)
September 30, 2025 at 1:58 PM
🚨Fascinating new analysis from @ucirvine.bsky.social researchers on the possible role of SARS-CoV-2 persistence in Long COVID:
The authors outline several mechanisms by which the virus could remain in the human body and cause disease.
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The authors outline several mechanisms by which the virus could remain in the human body and cause disease.
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🚨 New UNLOCK LC Consortium paper finds circulating nucleocapsid protein in Long COVID Patients AND Healthy Controls
👉Researchers found circulating nucleocapsid protein in 10/39 Long COVID patients, and 6/21 healthy controls.
#longcovid #medsky #pedsky
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www.medrxiv.org/content/10.1...
👉Researchers found circulating nucleocapsid protein in 10/39 Long COVID patients, and 6/21 healthy controls.
#longcovid #medsky #pedsky
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www.medrxiv.org/content/10.1...
controls.ing
September 23, 2025 at 7:26 PM
🚨 New UNLOCK LC Consortium paper finds circulating nucleocapsid protein in Long COVID Patients AND Healthy Controls
👉Researchers found circulating nucleocapsid protein in 10/39 Long COVID patients, and 6/21 healthy controls.
#longcovid #medsky #pedsky
1/
www.medrxiv.org/content/10.1...
👉Researchers found circulating nucleocapsid protein in 10/39 Long COVID patients, and 6/21 healthy controls.
#longcovid #medsky #pedsky
1/
www.medrxiv.org/content/10.1...