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Reposted by Professor Jonathan Koffman

gemma-clarke.bsky.social @gemma-clarke.bsky.social · 8d

With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala,
@jonathankoffman.bsky.social

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Reposted by Professor Jonathan Koffman

gemma-clarke.bsky.social @gemma-clarke.bsky.social · 8d

Our new study in The British Journal of Cancer shows ethnic inequalities in opioid prescribing for cancer pain at the end of life. www.nature.com/articles/s41...

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Reposted by Professor Jonathan Koffman

Wolfson Palliative Care Research Centre @wolfsonpallcare.bsky.social · 12d

www.hyms.ac.uk/research/res... @proflizwalker.bsky.social @jonathankoffman.bsky.social

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Reposted by Professor Jonathan Koffman

gemma-clarke.bsky.social @gemma-clarke.bsky.social · 8d

With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar,
@gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social

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Professor Jonathan Koffman @jonathankoffman.bsky.social · Jul 2

@wolfsonpallcare.bsky.social
Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss

Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study - BMC Palliative Care

Background Bereaved parents are at higher risk of poor mental and physical health outcomes than people bereaved under other circumstances. These challenges are exacerbated by the continued effects on ...

bmcpalliatcare.biomedcentral.com

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Reposted by Professor Jonathan Koffman

Jamilla Hussain @jamillahussain1.bsky.social · Jun 13

It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done

I summarise the key findings here

MPs must not take the silencing of these groups as reassurance

#AssistedDying
@katiewhitemp.bsky.social

Tom Lawton @lawtontri.bsky.social · Jun 13

A colleague has written this, which I think nicely sums up some of the reasons I have mixed feelings about the #AssistedDying bill.

No simple right answers here; just tradeoffs - but hopefully we can recognise and help those who are at risk.

www.politicshome.com/opinion/arti...

I consulted marginalised groups on the assisted dying bill – there is fear

The Terminally Ill Adults Bill offers a choice to a small but important group of people who want the option of assisted dying.

www.politicshome.com

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Reposted by Professor Jonathan Koffman

Dr Ben Bowers @drbenbowers.bsky.social · Jun 15

Community nursing colleagues in the UK - please could you help with our short survey. We have 1300 participants and keen to reach 1400 if we can

Please share too! Survey:
cambridge.eu.qualtrics.com/jfe/form/SV_...

@theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · Jun 16

When you were considering being offended at being called a nerd last week
……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺
…..& realise its true 🤓😆
#NerdsAreCool 😎

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · May 30

Well done Tara 👏👏👏

Presenting her #PhD #Research
- with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups

With supervisor @jonathankoffman.bsky.social

Team
@wolfsonpallcare.bsky.social 🙌

#Ethnicity #Inequalities

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · May 30

Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮

We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · May 23

Really looking forward to this!

eapcvzw.bsky.social @eapcvzw.bsky.social · May 21

📢 You're Invited!
Join us for the Launch of the EAPC European Atlas of Palliative Care 2025 at the upcoming EAPC World Congress in Helsinki!

🗓 Date: Thursday, 29th May 2025
🕐 Time: 13:00 – 14:00 CET
📍 Location: Hall 1, Helsinki (EAPC Congress Venue)
More info: eapccongress.eu/2025/...

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Reposted by Professor Jonathan Koffman

Fuse, the Centre for Translational Research in Public Health @fuseonline.bsky.social · May 22

🎉 Delighted to see Fuse Senior Investigator @profbambra.bsky.social elected as a Fellow @acmedsci.bsky.social! A prestigious and well-deserved recognition of her outstanding contribution to public health research understanding and reducing health inequalities, both in the North East and beyond. 👏

Clare Bambra @profbambra.bsky.social · May 22

I am delighted to have been elected as a Fellow of The Academy of Medical Sciences @acmedsci.bsky.social
www.ncl.ac.uk/press/articl...

Prestigious academy elects leading scientists to its Fellowship

The Academy of Medical Sciences has elected two prominent Newcastle University academics to its Fellowship.

www.ncl.ac.uk

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · May 23

Family/friend caregivers are an important source of support- but who cares for the #carers?

We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here

#PalliativeCare

journals.sagepub.com/doi/10.1177/...

How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivat...

Background: Family caregivers play a vital role in supporting patients at the end of life, a role that can impact their own well-being. Healthcare professionals...

journals.sagepub.com

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · May 23

📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓

“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC

Photograph of out family’s voice diary which has red Japanese maple leaves on the cover, in front of a Japanese maple tree

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Reposted by Professor Jonathan Koffman

Donna Wakefield @donnawakefield.bsky.social · May 23

One of the (many) take home messages being that people struggle to communicate about death and dying - even healthcare professionals

As a society we need to normalise talking about dying (since we all will)

#PalliativeCare #EndOfLifeCare
#HaPC #HPC #MedSky

Donna Wakefield @donnawakefield.bsky.social · May 23

📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓

“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC

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Professor Jonathan Koffman @jonathankoffman.bsky.social · May 25

Wonderful! Very persuasive.

Reposted by Professor Jonathan Koffman

Primary Care Unit, University of Cambridge @pcucambridge.bsky.social · May 23

Are you a community nurse in the UK?

Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled.

Share your input below:
cambridge.eu.qualtrics.com/jfe/form/SV_...

#CommunityNursing #EndOfLifeCare

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Reposted by Professor Jonathan Koffman

Prof Katherine Sleeman @katherinesleeman.bsky.social · May 21

Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social

“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”

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Professor Jonathan Koffman @jonathankoffman.bsky.social · May 21

Quite the legend. An extraordinary clinician.

Clare Gardiner @claregardiner.bsky.social · May 21

Sad news, but what a legacy she left for hospice and palliative care. 💔
ehospice.com/africa_posts...

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Reposted by Professor Jonathan Koffman

Clare Gardiner @claregardiner.bsky.social · Apr 1

Our EAPC webinar on Family Caregiving in Palliative Care is now available and FREE to view.

Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions.

www.youtube.com/watch?v=GuSu...

EAPC Webinar: Family caregiver research in palliative care

YouTube video by European Association for Palliative Care EAPCvzw

www.youtube.com

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Professor Jonathan Koffman @jonathankoffman.bsky.social · May 21

Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...

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Reposted by Professor Jonathan Koffman

Joshua Gallagher @jallagher1.bsky.social · Dec 10

First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request!

onlinelibrary.wiley.com/doi/abs/10.1...

The Janus Face of Person‐Centred Care

Click on the article title to read more.

onlinelibrary.wiley.com

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Reposted by Professor Jonathan Koffman

Simon Etkind @simonnoahetkind.bsky.social · Feb 4

How do you say "I don't know" whilst maintaining trust?

Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out.

Register here: www.mariecurie.org.uk/research-and...

#MCResearch2025

Research Conference 2025

We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025.

www.mariecurie.org.uk

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Reposted by Professor Jonathan Koffman

The BMJ @bmj.com · Mar 13

Terminal illness is already characterised by uncertainty about the future trajectory.

Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...

People protesting for assisted dying outside Parliament

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Professor Jonathan Koffman @jonathankoffman.bsky.social · May 19

Citing the correct evidence in relation to the assisted dying discussion is critical. Letter in the @thetimes.com yesterday

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