Stealthy Jess
@advancedtweaker.bsky.social
Respirator Fit Testing. #Covid/#LongCovid stuff. Science over everything. Optimist and problem solving addict.
Reposted by Stealthy Jess
Anyone living with chronic illness has at least one horror story of being gaslit, dismissed or infantilized by a doctor. Many have numerous stories, yet non disabled people often doubt us
The comments on this Reddit post about EDS, MCAS & POTS show why many disabled people refuse to go to hospital:
The comments on this Reddit post about EDS, MCAS & POTS show why many disabled people refuse to go to hospital:
From the FamilyMedicine community on Reddit
Explore this post and more from the FamilyMedicine community
www.reddit.com
May 1, 2025 at 1:50 AM
Anyone living with chronic illness has at least one horror story of being gaslit, dismissed or infantilized by a doctor. Many have numerous stories, yet non disabled people often doubt us
The comments on this Reddit post about EDS, MCAS & POTS show why many disabled people refuse to go to hospital:
The comments on this Reddit post about EDS, MCAS & POTS show why many disabled people refuse to go to hospital:
Reposted by Stealthy Jess
Threaded version of the 🎯 posts below by Prof Haddrell, for easier reading or for sharing beyond this platform
skywriter.blue/pages/ukhadd...
skywriter.blue/pages/ukhadd...
March 22, 2025 at 10:55 PM
Threaded version of the 🎯 posts below by Prof Haddrell, for easier reading or for sharing beyond this platform
skywriter.blue/pages/ukhadd...
skywriter.blue/pages/ukhadd...
Reposted by Stealthy Jess
Given the proposed mask ban in New York, now feels like a good time to remind folks that disability advocates in Illinois are trying to codify the right to wear masks into law
If successful this could be a critical step in protecting the right to mask across the US
See below for how you can help!
If successful this could be a critical step in protecting the right to mask across the US
See below for how you can help!
Mask bans already exist in certain States and counties.
Vance spearheaded a federal ban on mask mandates.
Organizing to codify the right to wear medical masks and respirators is (sadly) needed.
Masking is community care and resistance.
Illinois attempting to codify right to mask into law:
Vance spearheaded a federal ban on mask mandates.
Organizing to codify the right to wear medical masks and respirators is (sadly) needed.
Masking is community care and resistance.
Illinois attempting to codify right to mask into law:
HB3853: The Protective Medical Equipment Freedom Act
The website of the Protective Medical Equipment Freedom Act, a landmark Illinois bill which establishes the right to wear masks and other protective equipment.
pmefa.org
March 22, 2025 at 12:03 AM
Given the proposed mask ban in New York, now feels like a good time to remind folks that disability advocates in Illinois are trying to codify the right to wear masks into law
If successful this could be a critical step in protecting the right to mask across the US
See below for how you can help!
If successful this could be a critical step in protecting the right to mask across the US
See below for how you can help!
Reposted by Stealthy Jess
🧵
"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."
www.sciencenorway.no/chronic-fati...
#MEcfs #CFS #PwME
1/
"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."
www.sciencenorway.no/chronic-fati...
#MEcfs #CFS #PwME
1/
March 21, 2025 at 3:03 PM
🧵
"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."
www.sciencenorway.no/chronic-fati...
#MEcfs #CFS #PwME
1/
"Almost no ME/CFS patients return to work: "The help we have provided to patients through the welfare and healthcare systems has had little rehabilitative effect," says a researcher."
www.sciencenorway.no/chronic-fati...
#MEcfs #CFS #PwME
1/
Reposted by Stealthy Jess
“I don’t know anyone with Long Covid!”
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
March 8, 2025 at 3:47 AM
“I don’t know anyone with Long Covid!”
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
I promise you that you do.
Long Covid is an invisible illness. You won’t know someone is impacted unless they choose to tell you.
Many folks hide their disabilities because the world is NOT kind to disabled people. Be an ally. Be someone we can confide in
Reposted by Stealthy Jess
It's been great to see the influx of people from the ME/CFS and long Covid community in the last week.
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
October 20, 2024 at 11:19 PM
It's been great to see the influx of people from the ME/CFS and long Covid community in the last week.
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
Reposted by Stealthy Jess
PolyBio president Dr. Amy Proal outlines the direction that research must take to address long COVID in her new op-ed for @latimes.com: “The urgency of long COVID is a call to arms for government and private funders to help bring medications and protocols to the people who need them.”
Opinion: Long COVID is solvable, but we need more clinical trials
Some people may remain ill after COVID infection because the virus still lurks in their bodies. The looming question now is: Who will pay for drug development and trials?
www.latimes.com
February 16, 2025 at 6:02 PM
PolyBio president Dr. Amy Proal outlines the direction that research must take to address long COVID in her new op-ed for @latimes.com: “The urgency of long COVID is a call to arms for government and private funders to help bring medications and protocols to the people who need them.”
Reposted by Stealthy Jess
I don’t know what comes next, but I know Canadians will rise to the challenge. We will continue to extend a hand in friendship to our American neighbours. We know most of you don’t want this either.
We will stand proud and remain true to our values always. We will overcome /13
We will stand proud and remain true to our values always. We will overcome /13
February 2, 2025 at 3:33 AM
I don’t know what comes next, but I know Canadians will rise to the challenge. We will continue to extend a hand in friendship to our American neighbours. We know most of you don’t want this either.
We will stand proud and remain true to our values always. We will overcome /13
We will stand proud and remain true to our values always. We will overcome /13
Reposted by Stealthy Jess
I want to commend Trudeau for stating that it’s important that “no one part of the country should carry a heavier burden than any other. We’re all in this together and we will get through this together.”
That’s the Canadian way. We don’t abandon one another. We come together.
That’s the Canadian way. We don’t abandon one another. We come together.
February 2, 2025 at 2:38 AM
I want to commend Trudeau for stating that it’s important that “no one part of the country should carry a heavier burden than any other. We’re all in this together and we will get through this together.”
That’s the Canadian way. We don’t abandon one another. We come together.
That’s the Canadian way. We don’t abandon one another. We come together.
It would be such a relief to be able to just trust. Trust a doctor, trust a family member, trust a co-worker.
Having to be skeptical and plan ahead at every step is such a burden to bear.
Having to be skeptical and plan ahead at every step is such a burden to bear.
January 31, 2025 at 4:02 PM
It would be such a relief to be able to just trust. Trust a doctor, trust a family member, trust a co-worker.
Having to be skeptical and plan ahead at every step is such a burden to bear.
Having to be skeptical and plan ahead at every step is such a burden to bear.
Reposted by Stealthy Jess
Welcome to #longCOVID world.
What's worse than a huge chunk of highly-skilled workers in life-critical industries suffering from COVID-induced cognitive impairment?
When it happens and *nobody is telling them what's happening, why, or how to protect themselves*.
m.independent.ie/irish-news/i...
What's worse than a huge chunk of highly-skilled workers in life-critical industries suffering from COVID-induced cognitive impairment?
When it happens and *nobody is telling them what's happening, why, or how to protect themselves*.
m.independent.ie/irish-news/i...
‘I dread the feeling of realising I forgot to do something’ – doctors continue to work despite being mentally unwell
More than six in 10 doctors in Ireland say they have continued to work despite not feeling mentally well, according to a new survey.
m.independent.ie
January 29, 2025 at 11:27 PM
Welcome to #longCOVID world.
What's worse than a huge chunk of highly-skilled workers in life-critical industries suffering from COVID-induced cognitive impairment?
When it happens and *nobody is telling them what's happening, why, or how to protect themselves*.
m.independent.ie/irish-news/i...
What's worse than a huge chunk of highly-skilled workers in life-critical industries suffering from COVID-induced cognitive impairment?
When it happens and *nobody is telling them what's happening, why, or how to protect themselves*.
m.independent.ie/irish-news/i...
Good explanation of mechanisms behind PEM in LC.
I do think they meant to say there's no cure for LC, not that there's no treatment ;)
I do think they meant to say there's no cure for LC, not that there's no treatment ;)
January 30, 2025 at 4:37 AM
Good explanation of mechanisms behind PEM in LC.
I do think they meant to say there's no cure for LC, not that there's no treatment ;)
I do think they meant to say there's no cure for LC, not that there's no treatment ;)