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Brent Orr @baoflex.bsky.social · 18d

important, perhaps?

Brent Orr @baoflex.bsky.social · Aug 20

Terrible news for pediatric brain tumor research and incredible amount of hard work wasted. This very likely will result in some active trials prematurely closing without sufficient accrual to answer their aims.

Pratiti (Mimi) Bandopadhayay @bandolab.bsky.social · Aug 19

Devastating news. The Pediatric Brain Tumor Consortium has lost its ability to apply for federal funding upon which it is structured. Without this, it cant exist. This threatens access to clinical trials for children.
These children need MORE funding and MORE trials, not less.
They deserve better

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Reposted by Brent Orr

Jeremy Berg @jeremymberg.bsky.social · Jun 19

Important update about local impacts of funding cuts.

Depressing but compelling...

Thanks to @joshuasweitz.bsky.social and his team for putting this together.

scienceimpacts.org

SCIMaP - Impacts of Federal Cuts to Science and Medical Research

Developed by an interdisciplinary research team, this website shows how funding cuts reduce economic activity and employment nationwide

scienceimpacts.org

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🏳️‍🌈 Jenn 💜ᴼᵀ⁷ ✊ 💙💛 @iamjniles.bsky.social · May 10

Don't really have a question, just came across this the other day and it sounded about right. I can't even believe this is America right now. We're not well.

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Mark Little @marklittle.bsky.social · Apr 20

Learning from the Luddites.

The critical challenge of the age of AI: designing an economic system which incentivises the augmentation of human expertise rather than the automation that replaces it.

www.newyorker.com/magazine/202...

How to Survive the A.I. Revolution

The Luddites lost the fight to save their livelihoods. As the threat of artificial intelligence looms, can we do any better?

www.newyorker.com

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Rachael Sirianni, PhD @docsirianni.bsky.social · Mar 20

Pediatric research. When grants are pulled, the infrastructure suffers
www.wcvb.com/article/bost...

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Dare Obasanjo @carnage4life.bsky.social · Mar 9

The coolest thing I’ve seen today is that a bunch of volunteer public health professionals and developers have restored the CDC website from before January 20th 2025.

This differs from an archive in that they want to rebuild the links between pages and replicate the full website.

Centers for Disease Control and Prevention

restoredcdc.org

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Nicole Tersigni @nicsigni.bsky.social · Mar 5

you’re fired. wait you’re rehired. email us a list of things you’ve done today wait forget it you’re fired again. come back your job was important. you’re fired. or hired. come in to the office. wait the office has no computers go home. we are the department of government efficiency.

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Wendy Woodward, MD, PhD @ibcradiation.bsky.social · Mar 1

www.sensible-med.com/p/the-nih-is... #medsky #cansky

The NIH is Being Slashed and Burned, not “Reformed”

A strong and well-argued rebuttal to NIH criticism

www.sensible-med.com

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Anne Carpenter @drannecarpenter.bsky.social · Mar 1

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Brent Orr @baoflex.bsky.social · Mar 1

Anne Carpenter @drannecarpenter.bsky.social · Mar 1

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ex-Lethality Jane @lethalityjane.bsky.social · Feb 15

The measles outbreak in Texas is reminding me of the public letter Roald Dahl wrote about losing his daughter to measles in 1962, just before the vaccine was publicly available.

Excerpt from a public letter Roald Dahl wrote encouraging people to vaccinate their children.

Olivia, my eldest daughter, caught measles when she was seven years old. As the illness took its usual course I can remember reading to her often in bed and not feeling particularly alarmed about it. Then one morning, when she was well on the road to recovery, I was sitting on her bed showing her how to fashion little animals out of coloured pipe-cleaners, and when it came to her turn to make one herself, I noticed that her fingers and her mind were not working together and she couldn’t do anything.

“Are you feeling all right?” I asked her.

“I feel all sleepy,” she said.

In an hour, she was unconscious. In twelve hours she was dead.

The measles had turned into a terrible thing called measles encephalitis and there was nothing the doctors could do to save her. That was twenty-four years ago in 1962, but even now, if a child with measles happens to develop the same deadly reaction from measles as Olivia did, there would still be nothing the doctors could do to help her.

On the other hand, there is today something that parents can do to make sure that this sort of tragedy does not happen to a child of theirs. They can insist that their child is immunized against measles. I was unable to do that for Olivia in 1962 because in those days a reliable measles vaccine had not been discovered. Today a good and safe vaccine is available to every family and all you have to do is to ask your doctor to administer it.

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Daniel Bolnick @danielbolnick.bsky.social · Feb 1

The US gained its international leadership in science (& economic benefits of that leadership) starting in the 1930s when Nazi germany drove away its leading scientists.
The US can lose that leadership in much the same way, which will take many years to recover from.

Oppose RFK
Save NIH/NSF/CDC

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Reposted by Brent Orr

Chise @sailorrooscout.bsky.social · Feb 2

PLEASE SHARE 🧪‼️

Since CDC websites and datasets are being taken down by the Administration…

The ENTIRE archive of ALL CDC datasets uploaded BEFORE January 28th, 2025 can be found here: archive.org/details/2025...

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Brent Orr @baoflex.bsky.social · Dec 7

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Richard M. Carpiano, PhD, MPH @rmcarpiano.medsky.social · Dec 7

Great tip sheet for journalists reporting on RFK Jr., by @tarahaelle.bsky.social
🧪 science communication 🛟 medsky

What to know about Robert F. Kennedy Jr’s anti-vaccine advocacy

Audiences need ongoing, accurate information about Kennedy's beliefs on vaccines and health policy — and what he could do as HHS Secretary.

healthjournalism.org

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