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chrisbintener.bsky.social
ChrisBintener
@chrisbintener.bsky.social
1K followers 1K following 41 posts
Project Officer at Alzheimer Europe #Gerontologist interested in #health #digitalisation #neurodegeneration & related topics. @IHI-PROMINENT.bsky.social @fluidx-ad.bsky.social
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · Nov 13
Are you interested in ethical & inclusive #communication about #dementia and people with dementia?
Have a read of the Alzheimer Europe guidelines⤵️
bit.ly/AEGuide_Ethi...
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alzheimereurope.bsky.social
Alzheimer Europe @alzheimereurope.bsky.social · 1d
Arrivederci! That's a wrap on #35AEC!

Huge thanks to everyone. We loved having all 1,500+ of you there and sharing this great experience with you and co-hosts Federazione Alzheimer Italia and Alzheimer Uniti Italia.

Read all about this third and final day:
www.alzheimer-europe.org/news/final-d...
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neilchadborn.bsky.social
Neil Chadborn @neilchadborn.bsky.social · 2d
Claire Fyve tells us about her son’s condition Nieman-Picks disease. Known as “childhood Alzheimer’s”. It’s the first time childhood dementia has been presented at Alzheimer Europe Conference #35AEC @alzheimereurope.bsky.social see more info www.childhooddementia.org
Childhood Dementia Initiative
Urgently disrupting the impact of childhood dementia. Childhood Dementia Initiative exists to find answers and better ways to research and treat the 70+ disorders that lead to childhood dementia. Thro...
www.childhooddementia.org
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alzheimereurope.bsky.social
Alzheimer Europe @alzheimereurope.bsky.social · 2d
What a top notch bunch of people!
@alzheimereurope.bsky.social in Bologna for #35AEC
#GOTEAM
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · 2d
Time flies, so do we. #35AEC

@cindybirck.bsky.social @alzheimereurope.bsky.social
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fluidx-ad.bsky.social
FluiDx-AD @fluidx-ad.bsky.social · 4d
Ahead of @alzheimereurope.bsky.social #35AEC Bologna: members of the European Working Group of People with Dementia & the European Dementia Carers Working Group are consulting on @fluidx-ad.bsky.social prototype saliva-based screening tests for Alzheimer’s disease risk indication.
www.fluidx-ad.eu
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dementiaresearcher.bsky.social
Dementia Researcher @dementiaresearcher.bsky.social · 18d
Nominations open for AAIC Neuroscience Next 2026 🌟 Recognise mentors shaping careers & rising stars driving innovation in dementia research. Submit now!

www.dementiaresearcher.nihr.ac.uk/call-for-nom...
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yurikobackes.bsky.social
Yuriko Backes @yurikobackes.bsky.social · 21d
Une pensée pour ceux qui oublient.

#memorywalk2025
Association Luxembourg Alzheimer

#WorldAlzheimerDay
@mmtp-lu.bsky.social @megaluxembourg.bsky.social
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · 21d
Healthcare systems in Europe will need to adapt the way they support, treat and care for people with Alzheimer's disease.
You can read about Alzheimer Europe's position here: link.springer.com/article/10.1...
Anti-Amyloid Therapies for Alzheimer’s Disease: An Alzheimer Europe Position Paper and Call to Action - The Journal of Prevention of Alzheimer's Disease
The growing prevalence and burden of Alzheimer’s disease has catalysed huge investments in research on its causes, diagnosis, treatment and care. After many high-profile failures, recent clinical tria...
link.springer.com
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · 21d
Hi Maria, thank you for your comment. No, I don't think the healthcare systems are ready. Unfortunately, there are quite a few aspects to be taken into account. Even with disease-modifying treatments coming.
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douglasmcallister.bsky.social
Douglas McAllister @douglasmcallister.bsky.social · 24d
Dementia is the leading cause of death in the UK, yet too many families wait years for a diagnosis.

I am proud to support @alzresearchuk.bsky.social’s #DementiaUnseen campaign calling for early, accurate diagnosis.

Read my personal experience in @politics.co.uk:

www.politics.co.uk/mp-comment/2...
Douglas McAllister: ‘A dementia diagnosis should be a right, not a waiting game’ - Politics.co.uk
When we talk about the great health challenges facing the UK, cancer and heart disease rightly come to mind. But too often we overlook dementia – the leading cause of death in this country for some ti...
www.politics.co.uk
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ihi-prominent.bsky.social
PROMINENT project @ihi-prominent.bsky.social · Jul 24
#AAIC25 kicks off soon!
Catch Lena Sannemann (University of Cologne) presenting Poster #640: Evaluation & Validation of a Precision Medicine Platform in Neurodegenerative Disease @ihi-prominent.bsky.social @ihieurope.bsky.social

🗓️ Join on Sunday 27 July at 12:15 & 14:00!
vimeo.com/1050801411?f...
PROMINENT Spotlight on early career researchers - interview with Lena Sannemann
In this spotlight on early-career researchers, Lena Sannemann from the University Hospital Cologne shares how Public Involvement (PI) is shaping the development…
vimeo.com
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ihi-prominent.bsky.social
PROMINENT project @ihi-prominent.bsky.social · 29d
Members of Alzheimer Europe's Working Groups provided feedback on @ihi-prominent.bsky.social patient reports, helping to make them clearer and more relevant. #WorldAlzMonth #WAM2025 @ihieurope.bsky.social
Learn more: www.ihi-prominent.eu
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fluidx-ad.bsky.social
FluiDx-AD @fluidx-ad.bsky.social · 29d
People may have to wait far too long for an Alzheimer’s disease diagnosis.
FluiDx-AD aims to shorten diagnostic pathways by developing & standardising fluid-based biomarker tests. linktr.ee/FluiDx_AD
#WorldAlzheimersMonth #WAM2025 #WorldAlzMonth
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ihi-prominent.bsky.social
PROMINENT project @ihi-prominent.bsky.social · Sep 10
#WorldAlzheimersMonth: Research must reflect lived experience. In the @ihieurope.bsky.social funded PROMINENT project, people affected by dementia help design a digital decision-support platform to help clinicians make individualised & evidence-based decisions.
Learn more: www.ihi-prominent.eu
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · Sep 2
Are you interested in the estimated #prevalence of #dementia in Europe? 🇪🇺
The @alzheimereurope.bsky.social website just got an upgrade including interactive graphics, visualising the projections by country: www.alzheimer-europe.org/dementia/pre...
ine chart titled 'Country estimates of people living with dementia (including projections for 2025 & 2050)' showing data for Luxembourg. The x-axis shows age groups (30–59, 60–64, 65–69, 70–74, 75–79, 80–84, 85–89, 90+). The y-axis shows number of people (0–5,000). Three lines represent years: 2018 (blue), 2025 (orange), 2050 (green). Across all age groups, projected numbers rise sharply by 2050, especially from age 70 upwards, peaking around 5,000 in the 90+ group. Source: Dementia in Europe Yearbook 2019.
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · Sep 2
Your support in this quest is really crucial. Thank you for the participation!
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spietikainen.bsky.social
Sirpa Pietikäinen @spietikainen.bsky.social · Jun 4
It was a pleasure to collaborate with Alzheimer Europe to co-host an important lunch debate on new research and developments in preventing Alzheimer and other memory-disabling diseases.

With a full room, we had experts from across Europe sharing updates and opportunities from various projects💡❤️‍🩹
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w-i-d.de
Wissenschaft im Dialog @w-i-d.de · Aug 26
Mit der Umfrage „Künstliche Intelligenz in Citizen-Science-Projekten” untersucht mit:forschen! den aktuellen und zukünftigen Einsatz von KI-Tools in bürgerwissenschaftlichen Projekten. Teilt eure Erfahrungen und Einschätzungen bis zum 22. September: www.soscisurvey.de/KI-Citizen-S...
Umfrage: Künstliche Intelligenz in Citizen-Science-Projekten. Bunter Hintergrund. Logo mit:forschen!
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dementiaresearcher.bsky.social
Dementia Researcher @dementiaresearcher.bsky.social · Jul 31
🎙️ Final episode of our #AAIC25 Podcasts! Highlights include sleep & dementia risk, blood-based biomarkers, and the rise of AI in research. Guests: Dr Shea Andrews, Dr Joe Butler, Dr Lindsey Sinclair & @hdemnitzking.bsky.social

pod.fo/e/306803
Dementia Researcher: AAIC Day Four 2025 Highlights
In this podcast we share a few selected highlights from the Alzheimer’s Association International Conference (AAIC) day two and day three of the main event in Toronto and Online, 27the - 31st Jul...
pod.fo
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dementiaresearcher.bsky.social
Dementia Researcher @dementiaresearcher.bsky.social · Jul 29
Our second #AAIC25 special is live! Dr James Brady with @stirlandia.bsky.social, @isabelscst.bsky.social & @felixwittmann.bsky.social. Video & audio streaming now.

pod.fo/e/304afe
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jama.com
JAMA @jama.com · Jul 28
Editorial from @jama.com: The US POINTER study suggests that modest lifestyle interventions can enhance cognitive health in aging populations, offering a practical and cost-effective approach to dementia prevention.

ja.ma/3IIrv0f

#AAIC2025
Lifestyle Interventions to Improve Cognition in Later Life
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fluidx-ad.bsky.social
FluiDx-AD @fluidx-ad.bsky.social · Jul 22
🧠On #WorldBrainDay #WBD2025 we highlight FluiDx-AD, improving early Alzheimer’s diagnosis with saliva & blood-based tests.
Led by Oslo University Hospital & Pre Diagnostics, with Alzheimer Europe leading on communication & Public Involvement.
🎥 vimeo.com/1058971988
🔗 linktr.ee/FluiDx_AD
FluiDx-AD - A novel test trio to detect peptide biomarkers in saliva and blood for enhanced diagnosis and management of AD
Funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union. Neither…
vimeo.com
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ihi-prominent.bsky.social
PROMINENT project @ihi-prominent.bsky.social · Jul 22
🧠Today on #WorldBrainDay #WBD2025, we highlight the @ihieurope.bsky.social funded @ihi-prominent.bsky.social project, creating a digital platform for precision medicine in Alzheimer’s disease.
vimeo.com/835447757

🔗 www.ihi-prominent.eu
PROMINENT
PROMINENT will create a digital platform for precision medicine to improve the diagnosis and treatment of neurodegenerative disease and co-morbidities. The overriding…
vimeo.com
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chrisbintener.bsky.social
ChrisBintener @chrisbintener.bsky.social · Jul 14
Alzheimer Europe’s public opinion poll about attitudes and perceptions on dementia research and data sharing is still open. Participate today to help shape the future of #dementia research! alzheimereurope.qualtrics.com/jfe/form/SV_...
A promotional graphic from Alzheimer Europe inviting European residents aged 18 and over to take part in a public opinion poll on dementia research. The image is set on a blue background and includes the Alzheimer Europe logo in the top right corner. On the left side, there is a stylised mobile phone screen with a QR code and the text: “Scan here to participate!”. Below it reads: “Results will be published on the Alzheimer Europe website in October 2025.” On the right side, a blue speech bubble contains key information about the poll: “We are inviting all European residents (aged 18+) to take part in our public opinion poll.” “No prior experience with dementia research needed” “Available in 12 languages” “Takes approximately 10 minutes to complete” “Your input will help shape future research and data sharing” At the top left, a brain icon is followed by the heading: “Tell us what you think about dementia research!”
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ihi-prominent.bsky.social
PROMINENT project @ihi-prominent.bsky.social · Jul 1
Want to know more?
Check out our spotlight on early career researchers interview with first author Xin Xia: www.ihi-prominent.eu/spotlight-on...
Spotlight on early-career researchers, an interview with Xin Xia - Prominent
In this first edition of our spotlight on early-career researchers interview series, we talked with Xin Xia who does her PhD at the Karolinska Institutet in Stockholm, Sweden. Can you […]
www.ihi-prominent.eu
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