EDS Life Coach
@edslifecoach.bsky.social
Reposted by EDS Life Coach
A good story about the time I accidentally hit on a celebrity… And lived to regret it.
TikTok - Make Your Day
www.tiktok.com
May 18, 2024 at 3:00 PM
A good story about the time I accidentally hit on a celebrity… And lived to regret it.
Reposted by EDS Life Coach
Hey baggage handlers, it’s a lot more fun if you just Nancy Kerrigan us… bc that’s wtf this is. And it happens EVERY DAY.
It is no secret in the disabled community that people in this job think it’s hilarious to make wheelchair users utterly immobile… (1/2)
It is no secret in the disabled community that people in this job think it’s hilarious to make wheelchair users utterly immobile… (1/2)
Video showing American Airlines worker mishandling wheelchair sparks outrage
A video of an American Airlines worker dropping a wheelchair down a luggage chute while another watches it crash onto the tarmac at Miami International Airport is drawing outrage and concern.
www.nbcmiami.com
November 24, 2023 at 12:21 AM
Hey baggage handlers, it’s a lot more fun if you just Nancy Kerrigan us… bc that’s wtf this is. And it happens EVERY DAY.
It is no secret in the disabled community that people in this job think it’s hilarious to make wheelchair users utterly immobile… (1/2)
It is no secret in the disabled community that people in this job think it’s hilarious to make wheelchair users utterly immobile… (1/2)
God, I wish my legs worked, and I had the energy to use them.
October 5, 2023 at 2:52 AM
God, I wish my legs worked, and I had the energy to use them.
Reposted by EDS Life Coach
Do NOT go to Laguna Beach, CA unless you are white (preferably w/ blond hair), straight & fully able-bodied… Bc this is the most racist, homophobic, anti-disabled town I’ve ever been to in my life… Don’t come here for the pretentious $10K “art” either, bc this crap isn’t suitable for motel walls.
September 25, 2023 at 9:00 PM
Do NOT go to Laguna Beach, CA unless you are white (preferably w/ blond hair), straight & fully able-bodied… Bc this is the most racist, homophobic, anti-disabled town I’ve ever been to in my life… Don’t come here for the pretentious $10K “art” either, bc this crap isn’t suitable for motel walls.
Overheard in my house (not verbatim, as one of us is stoned): I wouldn’t even know that there’s a WGA strike if it weren’t for you. It’s actually nice to have a break so I can catch up on all the streaming stuff I’m behind on! 🤦♀️
September 10, 2023 at 2:04 AM
Overheard in my house (not verbatim, as one of us is stoned): I wouldn’t even know that there’s a WGA strike if it weren’t for you. It’s actually nice to have a break so I can catch up on all the streaming stuff I’m behind on! 🤦♀️
RIP Stephanie Aston. Told she was lying. Told she was sneaking needles and draining her blood as part of Munchausen’s. They threw her in a psych hospital, rather than treating her illness. A week ago, she died from undiagnosed Ehlers-Danlos Syndrome. I hope those doctors never forgive themselves.
September 9, 2023 at 8:41 AM
RIP Stephanie Aston. Told she was lying. Told she was sneaking needles and draining her blood as part of Munchausen’s. They threw her in a psych hospital, rather than treating her illness. A week ago, she died from undiagnosed Ehlers-Danlos Syndrome. I hope those doctors never forgive themselves.
MFers. I despise the NIH, for saying weed might cause gastroparesis & a million other BS studies they’ve done. Government shills.
But this beats anything I’ve seen… A 2003 NIH study which concluded that BEING A CARING DOCTOR IS BAD FOR THE DOCTOR’S HEALTH. 🤬
But this beats anything I’ve seen… A 2003 NIH study which concluded that BEING A CARING DOCTOR IS BAD FOR THE DOCTOR’S HEALTH. 🤬
Being a caring doctor may be bad for you
www.ncbi.nlm.nih.gov
September 8, 2023 at 7:47 PM
MFers. I despise the NIH, for saying weed might cause gastroparesis & a million other BS studies they’ve done. Government shills.
But this beats anything I’ve seen… A 2003 NIH study which concluded that BEING A CARING DOCTOR IS BAD FOR THE DOCTOR’S HEALTH. 🤬
But this beats anything I’ve seen… A 2003 NIH study which concluded that BEING A CARING DOCTOR IS BAD FOR THE DOCTOR’S HEALTH. 🤬
Reposted by EDS Life Coach
I have PROVEN that we are in The Matrix. And I did it in Latin. There is no spoon? There is no explanation… GET ME THE WACHOWSKIS!
“There Is No Spoon” in Latin WTF?!
Are we living in the Matrix? Even if I knew, Google Translate told me I shouldn’t say anything……
youtu.be
September 4, 2023 at 8:12 PM
I have PROVEN that we are in The Matrix. And I did it in Latin. There is no spoon? There is no explanation… GET ME THE WACHOWSKIS!
Idk what’s going on, but I’ve been getting absolutely stonewalled on social lately. Did I do something to piss off the AI? Or China?? Or God???
September 4, 2023 at 2:33 PM
Idk what’s going on, but I’ve been getting absolutely stonewalled on social lately. Did I do something to piss off the AI? Or China?? Or God???
Please Bluesky, send this to anyone who knows Latin, and anyone who knows the Wachowski sisters. 🌈
#matrix #thematrix #thereisnospoon #dicula #cochlear #spoon #spoons #spoonie #spoonies #latin #latinlanguage #googletranslate #wachowskisisters #Wachowski #Wachowskis #keanu #keanureeves #saynothing
#matrix #thematrix #thereisnospoon #dicula #cochlear #spoon #spoons #spoonie #spoonies #latin #latinlanguage #googletranslate #wachowskisisters #Wachowski #Wachowskis #keanu #keanureeves #saynothing
Paula Dixon on Instagram: "Please @instagram, send this to anyone who knows Latin, and anyone who kn...
3 likes, 0 comments - edslifecoach on September 4, 2023: "Please @instagram, send this to anyone who knows Latin, and anyone who knows the Wachowski sister..."
www.instagram.com
September 4, 2023 at 11:23 AM
Please Bluesky, send this to anyone who knows Latin, and anyone who knows the Wachowski sisters. 🌈
#matrix #thematrix #thereisnospoon #dicula #cochlear #spoon #spoons #spoonie #spoonies #latin #latinlanguage #googletranslate #wachowskisisters #Wachowski #Wachowskis #keanu #keanureeves #saynothing
#matrix #thematrix #thereisnospoon #dicula #cochlear #spoon #spoons #spoonie #spoonies #latin #latinlanguage #googletranslate #wachowskisisters #Wachowski #Wachowskis #keanu #keanureeves #saynothing
AEIOU? It seems that “Ehlers-Danlos” is a universally mispronounced term. Let’s figure this out, zebras! 🌈
Paula Dixon on Instagram: "AEIOU? It seems that “Ehlers-Danlos” is a universally mispronounced t...
0 likes, 0 comments - edslifecoach on August 27, 2023: "AEIOU? It seems that “Ehlers-Danlos” is a universally mispronounced term. Let’s figure this..."
www.instagram.com
August 27, 2023 at 9:17 AM
AEIOU? It seems that “Ehlers-Danlos” is a universally mispronounced term. Let’s figure this out, zebras! 🌈
If you have (or think you may have) Ehlers-Danlos, I'm here to help. 🌈
I’m a Health & Life Coach specializing in EDS: A person I wish I'd had when working at my own Dx & struggling to manage EDS & all "the whatnots" that come with.
Please DM on IG/TT/FB for more info. I'm here for you, zebras. 🦓
I’m a Health & Life Coach specializing in EDS: A person I wish I'd had when working at my own Dx & struggling to manage EDS & all "the whatnots" that come with.
Please DM on IG/TT/FB for more info. I'm here for you, zebras. 🦓
Paula Dixon on Instagram: "If you have (or think you might have) Ehlers-Danlos Syndrome, I’m here ...
14 likes, 2 comments - edslifecoach on August 25, 2023: "If you have (or think you might have) Ehlers-Danlos Syndrome, I’m here to help. 🌈
Who am I?..."
www.instagram.com
August 25, 2023 at 7:15 PM
If you have (or think you may have) Ehlers-Danlos, I'm here to help. 🌈
I’m a Health & Life Coach specializing in EDS: A person I wish I'd had when working at my own Dx & struggling to manage EDS & all "the whatnots" that come with.
Please DM on IG/TT/FB for more info. I'm here for you, zebras. 🦓
I’m a Health & Life Coach specializing in EDS: A person I wish I'd had when working at my own Dx & struggling to manage EDS & all "the whatnots" that come with.
Please DM on IG/TT/FB for more info. I'm here for you, zebras. 🦓
Every. Single. Time. This is why I go IN with a single sheet of bullet points with my diagnoses and current issues. Docs never read our full paperwork, and they don't have time to do a long interview into our issues… Like the Boy Scouts, we chronic illness warriors must always be prepared! 🌈
August 24, 2023 at 7:27 PM
Every. Single. Time. This is why I go IN with a single sheet of bullet points with my diagnoses and current issues. Docs never read our full paperwork, and they don't have time to do a long interview into our issues… Like the Boy Scouts, we chronic illness warriors must always be prepared! 🌈
It’s an amazing con. Investors can say, “I only own some shares. I can’t dictate how that company does its day to day business.” While corporations are saying, “So sorry, but we have to dick the public over again to KEEP OUR SHAREHOLDERS HAPPY.”
August 24, 2023 at 6:33 PM
It’s an amazing con. Investors can say, “I only own some shares. I can’t dictate how that company does its day to day business.” While corporations are saying, “So sorry, but we have to dick the public over again to KEEP OUR SHAREHOLDERS HAPPY.”
Genie pops out of a bottle. You get SEVEN wishes, he says…
Me:
1. Cure my Ehlers-Danlos
2. Cure my gastroparesis
3. Cure my hyperPOTS
4. Cure my osteoarthritis
5. Cure my bipolar 1
6. Cure what I’m pretty sure is my myasthenia gravis
7. World peace
🌈
Me:
1. Cure my Ehlers-Danlos
2. Cure my gastroparesis
3. Cure my hyperPOTS
4. Cure my osteoarthritis
5. Cure my bipolar 1
6. Cure what I’m pretty sure is my myasthenia gravis
7. World peace
🌈
August 23, 2023 at 8:43 PM
Genie pops out of a bottle. You get SEVEN wishes, he says…
Me:
1. Cure my Ehlers-Danlos
2. Cure my gastroparesis
3. Cure my hyperPOTS
4. Cure my osteoarthritis
5. Cure my bipolar 1
6. Cure what I’m pretty sure is my myasthenia gravis
7. World peace
🌈
Me:
1. Cure my Ehlers-Danlos
2. Cure my gastroparesis
3. Cure my hyperPOTS
4. Cure my osteoarthritis
5. Cure my bipolar 1
6. Cure what I’m pretty sure is my myasthenia gravis
7. World peace
🌈
Need some relief from the epic chronic fatigue of Ehlers-Danlos Syndrome? Try vitamin ball… It really works! 🌈
Paula Dixon on Instagram: "Need relief from the fatigue of Ehlers-Danlos? Try vitamin ball… It rea...
5 likes, 0 comments - edslifecoach on August 22, 2023: "Need relief from the fatigue of Ehlers-Danlos? Try vitamin ball… It really works! 🌈
#chroni..."
www.instagram.com
August 23, 2023 at 12:49 AM
Need some relief from the epic chronic fatigue of Ehlers-Danlos Syndrome? Try vitamin ball… It really works! 🌈
What are the genetics behind Ehlers-Danlos Syndrome? Here’s a quick primer… Follow for more! 🌈
Paula Dixon on Instagram: "A quick primer on the genetics behind Ehlers-Danlos Syndrome. Follow for ...
24 likes, 1 comments - edslifecoach on August 21, 2023: "A quick primer on the genetics behind Ehlers-Danlos Syndrome. Follow for more! 🌈
#genetics #g..."
www.instagram.com
August 22, 2023 at 7:28 PM
What are the genetics behind Ehlers-Danlos Syndrome? Here’s a quick primer… Follow for more! 🌈
33 joints in each foot. All hypermobile, thanks to Ehlers-Danlos Syndrome.
This is how I manage my dainty leg-spoons with this wily condition... 🌈
This is how I manage my dainty leg-spoons with this wily condition... 🌈
EDS Life Coach on TikTok
33 joints per foot. All hypermobile, thanks to Ehlers-Danlos Syndrome. How are yours holding up? 🌈 #podiatry #footproblems #ehlersdanlos #ehlersdanlossyndrome #heds 🦓
www.tiktok.com
August 20, 2023 at 10:44 PM
33 joints in each foot. All hypermobile, thanks to Ehlers-Danlos Syndrome.
This is how I manage my dainty leg-spoons with this wily condition... 🌈
This is how I manage my dainty leg-spoons with this wily condition... 🌈
Dislocations and subluxations are par for the course for most people with Ehlers-Danlos Syndrome. Here’s a little story about me and my shoulder. 🌈
Paula Dixon on Instagram: "Dislocations and subluxations are par for the course for most people with...
3 likes, 0 comments - edslifecoach on August 18, 2023: "Dislocations and subluxations are par for the course for most people with Ehlers-Danlos Syndrome...."
www.instagram.com
August 19, 2023 at 6:43 AM
Dislocations and subluxations are par for the course for most people with Ehlers-Danlos Syndrome. Here’s a little story about me and my shoulder. 🌈
https://linktr.ee/edslifecoach 🌈
🔄 Updated my *fabulous* Linktree!
It has 🔗 to my socials, photography, education, random favorites, Ehlers-Danlos tools, support & info resources, etc.
Trust me, you’re gonna ♥️ it more than your grandma’s cookies. Especially if your grandma was a shitty cook.
🔄 Updated my *fabulous* Linktree!
It has 🔗 to my socials, photography, education, random favorites, Ehlers-Danlos tools, support & info resources, etc.
Trust me, you’re gonna ♥️ it more than your grandma’s cookies. Especially if your grandma was a shitty cook.
August 16, 2023 at 7:56 PM
https://linktr.ee/edslifecoach 🌈
🔄 Updated my *fabulous* Linktree!
It has 🔗 to my socials, photography, education, random favorites, Ehlers-Danlos tools, support & info resources, etc.
Trust me, you’re gonna ♥️ it more than your grandma’s cookies. Especially if your grandma was a shitty cook.
🔄 Updated my *fabulous* Linktree!
It has 🔗 to my socials, photography, education, random favorites, Ehlers-Danlos tools, support & info resources, etc.
Trust me, you’re gonna ♥️ it more than your grandma’s cookies. Especially if your grandma was a shitty cook.
I made this for my 12,000 followers on my OG TikTok account. After all, I have left them hanging most of the year… 🤫
’s videos with | TikTok
www.tiktok.com
August 15, 2023 at 10:49 PM
I made this for my 12,000 followers on my OG TikTok account. After all, I have left them hanging most of the year… 🤫
Gastroparesis sucks, but I'm battling this B with all I've got! The following are the only reasons I don't have a stomach tube, be no med has ever worked... 🌈
EDS Life Coach on TikTok
For most of my adult life, I yarfed every day (and often all day). I was so close to needing a stomach tube. After I was finally diagnosed with #gastroparesis, I learned to control my symptoms, so tha...
www.tiktok.com
August 15, 2023 at 5:56 AM
Gastroparesis sucks, but I'm battling this B with all I've got! The following are the only reasons I don't have a stomach tube, be no med has ever worked... 🌈
After 15 years of daily (and often all day) yarfing, I was finally diagnosed w/ gastroparesis. I now manage it well, which means more like once a week. Here’s how:
- Tiny, slowly-eaten meals
- Very low fiber diet
- Cannabis
- Papaya enzyme pills
- Magic Wand vibrator on tummy
- And finally, this…
- Tiny, slowly-eaten meals
- Very low fiber diet
- Cannabis
- Papaya enzyme pills
- Magic Wand vibrator on tummy
- And finally, this…
August 15, 2023 at 2:38 AM
After 15 years of daily (and often all day) yarfing, I was finally diagnosed w/ gastroparesis. I now manage it well, which means more like once a week. Here’s how:
- Tiny, slowly-eaten meals
- Very low fiber diet
- Cannabis
- Papaya enzyme pills
- Magic Wand vibrator on tummy
- And finally, this…
- Tiny, slowly-eaten meals
- Very low fiber diet
- Cannabis
- Papaya enzyme pills
- Magic Wand vibrator on tummy
- And finally, this…
For every Ehlers-Danlos-er who legit can’t use ice, there are 20 who don’t want to. They think bc they have arthritis/Raynaud’s/sensitivity to cold weather, it’ll hurt. For 90 sec, an ice bath feels like hell. Then I dry off, and I feel like a young gazelle (comparatively, of course) for a week. 🦓🌈🧊
EDS Life Coach on TikTok
ICE ICE BABY! 🦓🌈🧊 #ehlersdanlos #ehlersdanlossyndrome #heds #edslifecoach
www.tiktok.com
August 15, 2023 at 12:20 AM
For every Ehlers-Danlos-er who legit can’t use ice, there are 20 who don’t want to. They think bc they have arthritis/Raynaud’s/sensitivity to cold weather, it’ll hurt. For 90 sec, an ice bath feels like hell. Then I dry off, and I feel like a young gazelle (comparatively, of course) for a week. 🦓🌈🧊
Ppl ♥️ to argue w/ me about the validity of the benefits of ice when you have Ehlers-Danlos Syndrome. All I know is I have osteoarthritis in every joint and Raynaud’s w/ EDS… But an ice bath takes me from near-paralysis to walking around w/ almost 0 pain. Same w/ foot ice baths, ice bags & Col-Pacs.
August 14, 2023 at 6:15 PM
Ppl ♥️ to argue w/ me about the validity of the benefits of ice when you have Ehlers-Danlos Syndrome. All I know is I have osteoarthritis in every joint and Raynaud’s w/ EDS… But an ice bath takes me from near-paralysis to walking around w/ almost 0 pain. Same w/ foot ice baths, ice bags & Col-Pacs.