Epilepsy Talk!
@epilepsytalk.bsky.social
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Welcome to Epilepsy Talk! A place to connect with those who are impacted by epilepsy.
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Let's talk! Many people don't know proper seizure first aid, share this post to spread #EpilepsyAwareness!
#epilepsy #seizure #disability
Congratulations! You are doing exactly what the epilepsy community needs 💜
People who don't know anything about #epilepsy may appear ignorant at first. Let's make it a point to teach before judging 💜

#chronicillness #disability #invisibledisability
MYTH: People with epilepsy cannot drive.
FACT: Those with controlled epilepsy are perfectly okay to drive! Driving restrictions are usually temporary, only requiring the operator has gone a certain amount of time without seizure activity.
Happy Tuesday! A bit of a social media break was needed, but we're back! Do any of you take social media breaks when things get a little too stressful?
#epilepsy #chronicillness #disability
Happy Valentine's Day to all! Today isn't the only day to express love and gratitude. It's our hope that each day is filled with love and gratitude toward our family, friends, care team, and anyone else who understands WHY we fight to hold it constantly when it's so easy to give up 💜
That is a great thought! Though most are able to put emergency info on their phone's lock screen, the watch would be a quick one-stop shop for responders and allow them to go back to their duties sooner 😀
Love it! I have a "sport" and "everyday" style. Though I made sure the "everyday" was also waterproof and durable, because I get highly infuriated at taking bracelets on and off! So the only difference really is the sport band doesn't slip 😀
Happy International Epilepsy Day! It's great to celebrate with all of you 💜
#epilepsyawareness #epilepsy #disability #chronicillness
Reposted by Epilepsy Talk!
For many people with epilepsy, a "clock reset" is slang term for a seizure, because the seizure resets the duration of time one has accumulated since the last seizure. -- When was your clock last reset? #EpilepsyAwareness
I made sure I checked out how to do it before the next post 😊 I really appreciate you bringing that up!
Thank you for pointing that out! This is the first time having such a public profile, feedback is encouraged. Alt text will always be provided now 💜
A statement posted on Twitter yesterday by the Epilepsy Foundation of America. Sharing, as they do not have a Bluesky account!
#epilepsy #epilepsyawareness
Blue Sky is a good place to be right now 😀 Hopefully the steam runs out soon with everything else.
I actually posted this in my Insta story yesterday!
Absolutely stay informed. I was told I'm overreacting at Trump throwing the word "epilepsy"out there. His power has always come from fear & hatred. He's silenced trans people, everyone brown is an ICE target, reversed EEO which was heavily influenced by race discrimination. now who is there to hate?
in a sense, do you even WANT to know? 😂
It's hard to admit, but disability benefits/rights have potential to be interfered with in the near future. Let's try our best to keep vigilant on the nuances & plan as best as we can to maintain quality of life 💜 plan for the worst, be delighted when it's not!
#epilepsy #disability #chronicillness
While we want to be positive, we have to consider this misinformation is going to hurt the way people perceive epilepsy, especially in the workplace, and it's okay to have strong emotions about the unknown.
Turning tragedy into disability blaming is NOT how we want to promote #epilepsyawareness, but it's more important now than ever to speak up and tackle misinformation while it's a hot topic!
#epilepsy #disability #DEI