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Clare Hadley

@feltwright.bsky.social

270 followers 140 following 450 posts

Retired medical physicist from Poole, with a long held passion for textiles & now pottery too! Posting nice pics & a bit of art & craft - also keeping in touch with with the MS community #MSFriday #MS

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Clare Hadley @feltwright.bsky.social · 25m

Sorry to hear that, hope all goes well

Clare Hadley @feltwright.bsky.social · 2d

Yes but it’s frustrating! It feels like I’m not the person I was yesterday. I always throw myself into everything when I have energy & ignore the consequences. I never learn!

Clare Hadley @feltwright.bsky.social · 2d

So glad everything’s gone well for your aunt. I hope you can rest up a bit now!
Forgot about #MSFriday again, it’s been a feet up sort of day after a day full of bounce & energy yesterday 🤷🏻‍♀️

Clare Hadley @feltwright.bsky.social · 3d

I'm doing some carving into them to get a good effect with the glazes

Clare Hadley @feltwright.bsky.social · 3d

I jumped in & bought myself a cheap pottery wheel which actually doesn't do a bad job!
Playing with mugs & handles....

Clare Hadley @feltwright.bsky.social · 7d

I agree & think it's probably designed for a hanging light fitting. If the trees were the right way up the fitting would be at the top of the shade, so not meant for standing lamp.

Clare Hadley @feltwright.bsky.social · 9d

Sounds like a good plan. I was full time when first diagnosed & dropped a day when things got difficult. It made a big difference. I still had to give up completely a couple of years later when I had a long time off for a big flare up, but you just have to go with it. I'm so much better now.

Clare Hadley @feltwright.bsky.social · 10d

Can you reduce work or other commitments at all? If you can give yourself a bit more time & head space it won’t feel so difficult. It takes time & mental effort to live well with MS but just making the effort helps with feeling more positive & in control.

Clare Hadley @feltwright.bsky.social · 22d

Managed to avoid being out in it!
We’re camped on the hillside nr Makers Heights so we’ve had it all battering against the van. Great view out across the sea when the weather allows.

Clare Hadley @feltwright.bsky.social · 22d

Getting blown away over the other side of Plymouth!
Delicious lunch at the Devonport Inn today & a long slow climb back up to the campsite…

Clare Hadley @feltwright.bsky.social · 23d

Worth eating there, pan roasted cod on an Italian chickpea stew.
There's a lot of bell tents for camping too. I was getting Kate Aldridge vibes.....

Clare Hadley @feltwright.bsky.social · 23d

Sounds good! We're cycling downhill from Makers heights to Cawsand tomorrow & then using a lot of e-bike battery to get back up the hill!
We lunched at the Canteen at Makers heights today, can definitely recommend if you haven't tried it already.

Clare Hadley @feltwright.bsky.social · 23d

Hope you can have a chilled weekend & put your feet up!

Clare Hadley @feltwright.bsky.social · 23d

We're down in your part of the world again this weekend. Campervanning on the Rame peninsula. New area for us, feels quite remote from other areas.

Clare Hadley @feltwright.bsky.social · 23d

Our old clothes always carry stories. It's hard to let them go without passing some of that on.
I recently spotted a dress I made maybe 40yrs ago in the back of the wardrobe - it's beautifully made, good quality fabric & would still look good on, so it's staying. I'd better wear it though!

Clare Hadley @feltwright.bsky.social · 23d

Best plan!

Clare Hadley @feltwright.bsky.social · 23d

I think I'd pay for shots if I wasn't eligible too.

Clare Hadley @feltwright.bsky.social · 23d

I've got mine in a couple of weeks at local pharmacy. Don't get an invite despite being eligible due to kesimpta. Just book online & tell them I'm on a 'mab' when I get there.

Clare Hadley @feltwright.bsky.social · 23d

Hope all goes well!
I only have a 10min cycle for mine but still turn up way too early 🤣

Clare Hadley @feltwright.bsky.social · Sep 12

It's hard to stop dwelling on the 'what ifs..'
I'm fairly stable but we can never live without expecting it to all change tomorrow

Clare Hadley @feltwright.bsky.social · Sep 12

..the increase in availability of DMTs & getting them to patients but there wasn’t a coordinated approach.
I’ve been involved with the group as part of their patient engagement, it’s very interesting.

Clare Hadley @feltwright.bsky.social · Sep 12

@denpru-qm.bsky.social (Dementia & neurodegeneration policy research unit) has recently been looking at variation in MS services inc what’s offered & how they’re structured. Hopefully this will help inform policy going forwards. Apparently services were set up quickly & a bit randomly to cope with…

Clare Hadley @feltwright.bsky.social · Sep 12

I love your #MSFriday musings, it always gives me something to think about & makes me look at the way I handle my own MS.
For me it’s the unpredictability- I’m unusually energetic this week but will I wake up tomorrow feeling a wreck & also did I do too much with the energy I had?

Clare Hadley @feltwright.bsky.social · Sep 11

Best flash mob I’ve seen, brightened up my lunchtime!

Clare Hadley @feltwright.bsky.social · Sep 10

Very happy to get back to pottery classes this week.
Straight back on the wheel & a new technique to try - double walled pots!
#pottery #ceramic