Holly Schofield
@hollscho.bsky.social
530 followers 180 following 19 posts
Patient and Public Involvement Officer and Adviser. Clinical trials PPIE and inclusive research. Experienced PPI lead in stroke research. Personal interest in mental health and neurodiversity research Love music, visual arts, nature walking and gaming
Posts Media Videos Starter Packs
hollscho.bsky.social
I'll be speaking at this event on what makes a good Chief Investigator, focusing on the role of meaningful PPI and embedding EDI from the start. Looking forward to it! 🌟
ukcrc-ctu.org.uk
🚀 Exciting News! 🚀

Interested in or leading a clinical trial?

Want to be the best Chief Investigator you can be?

This updated course is for you!

tinyurl.com/HTBAGCI

#ClinicalTrials #CITraining

@leedsctru.bsky.social @amandafarrin.bsky.social
Flyer advertising a training course on How to be a great chief investigator for clinical trials.  Find out more via the following link https://tinyurl.com/HTBAGCI
Reposted by Holly Schofield
leedsctru.bsky.social
PhD Student, Ella Howes, has just released the latest episode of the Trials Methodology podcast with our very own @willjcragg.bsky.social , covering all things to do with the 'how' of trials methodology💡

Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...
Reposted by Holly Schofield
louca-mai.bsky.social
Following on from our very popular December webinar on 'the invisible labour of #PublicInvolvement' registrations are now open for the second webinar in the series, on Emotions in #PPI, led by colleagues from @penarc.bsky.social.
Come join us!

@arceastofengland.bsky.social @elspethma.bsky.social
arc-southlondon.bsky.social
What role do emotions play in public involvement? To what extent is PPI labour emotional labour? Join us to explore how we can recognise, value and make space for this kind of labour in research.

arc-sl.nihr.ac.uk/events-train...
Text on a blue background reads:

"Webinar: Emotions in Public Involvement 
Join Lauren Asare, Naomi Morley and Kristin Liabo of the ARC South West Peninsula patient and public involvement (PPI) team to discuss their research into the role of empotions in public involvement. The webinar will be chaired by Stan Papoulias, (PPI research theme lead, ARC South London)."
There is an image of people engaging with emotions expressed as smiling or sad faces.
hollscho.bsky.social
I had an enjoyable time presenting at the RadResearch Conference in Leeds today, hosted by RadResearch and the NIHR-supported Incubator for Diagnostic and Therapeutic Radiographers. I really hope my presentation inspired attendees to embed #PPIE #PublicInvolvement into their research plans 🌟
Reposted by Holly Schofield
chrisgrahamuk.bsky.social
There's already one at bsky.app/profile/did:... - @brynphd.com kindly directed me to this yesterday
hollscho.bsky.social
I tried to create a #PPI / #PPIE feed, but found it a bit confusing. If anyone else want to have a go - please do. Otherwise I'll try again another day 😅
hollscho.bsky.social
The nature of roles and how payment guidelines are interpreted can often be left to the discretion of research budget holders and research teams, despite guidelines providing differentiation between types of role and activity. Consistency is so important!
hollscho.bsky.social
University of Leeds. Faculty of Medicine and Health.
hollscho.bsky.social
£30. Faculty guidelines. If it's an enhanced role with additional prep work or responsibility, I round up to the next bracket (£50).
Reposted by Holly Schofield
amymrussell.bsky.social
Only today in an ARC sesssion on #evaluatingPPI we were talking about invisible work and emotional labour in #PPI and #co-production. Great to see @louca-mai.bsky.social will be speaking about this next month.

It’s labour that is not recognised, costed or valued - yet it’s essential
louca-mai.bsky.social
@nihrarcs.bsky.social webinar: 'the invisible labour of #PublicInvolvement' with me & Stan Papoulias, chaired by @elspethma.bsky.social. Thurs 5/12/24 15:30-17:00
Info & booking: url.uk.m.mimecastprotect.com/s/Fcz7CzBW2u...
@arceastofengland.bsky.social @nihrarcs.bsky.social
@penarc.bsky.social #PPI
Flyer with text: This is the first in a series of ARC National events on Patient and Public Involvement research which aim to foster conversations and methodological development of patient and public involvement, inclusive involvement and co-production.
The first webinar will explore the importance of understanding the perspectives and needs of the NIHR public involvement workforce, both for embedding public involvement in health and care research, and in relation to new NIHR requirements for inclusive research and sustainable community engagement with a facilitated discussion.
 Thursday 5th December 2024, 15:30-17:00
Who should attend? Anyone who is interested or involved in supporting, facilitating or leading Patient and Public Involvement.
Reposted by Holly Schofield
amymrussell.bsky.social
So pleased to see this adapted version of the #EQ5D for people with a #LearningDisability we began this work in 2014 & @johnodwyer.bsky.social made it happen.

If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures

rdcu.be/d0YUL
Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities | Health and Quality of Life Outcomes
rdcu.be
Reposted by Holly Schofield
diervilla.bsky.social
I've started a second University of Leeds starterpack! go.bsky.app/HUKJ7bK
hollscho.bsky.social
I'd really like to watch the recording too if possible, as I am unable to attend on the day.
hollscho.bsky.social
Just a few autumn pics to brighten up your feed 🍂
hollscho.bsky.social
No worries at all. And thank you! 👍
hollscho.bsky.social
Starter pack on #PublicInvolvement #PPI #PPIE #Coproduction and #ParticipatoryResearch.

Kindly put together by @louca-mai.bsky.social 🌟
hollscho.bsky.social
Can you add me please? Sorry it wasn't in my bio, but I'm based in the School of Medicine.
hollscho.bsky.social
Lots of training and guidance available, but I'm not aware of any formalised qualifications or accreditation. I always start with Learning for Involvement, as Louca-Mai suggested. Cambridge BRC regularly run sessions, but these might focus more on the basics.
Reposted by Holly Schofield
confluxcoldwell.bsky.social
First post on Bluesky. I’ve made a film. It’s going to be screened @leedsunimedia.bsky.social in December. #aicinema
Reposted by Holly Schofield
sarahobrien.bsky.social
Over 200k people waiting (on NHS waiting lists) for an autism, surely this is the point at which something has to change.

The current models have never been sustainable and are only becoming less so.
mindtheflap.bsky.social
The waiting list for NHS autism assessments has surpassed 200,000 for the first time.

Today's data shows that as of Sept 2024, 204,876 people were waiting. That's more than the population of Reading.

Children face a median wait time of a year for *first contact*.

digital.nhs.uk/data-and-inf...
Autism Statistics, October 2023 to September 2024 - NHS England Digital
Autism statistics; waiting times; autism diagnosis; autism referral; diagnostic pathways; autism; Wait between referral and first care contact for patients with suspected autism; Wait between referral...
digital.nhs.uk
hollscho.bsky.social
Great to get so many new follows from health researchers here on Bluesky! But I hope you’ve actually left X—because if you still have an account, you're supporting Elon Musk, who continues to back Trump. We all have a moral duty to choose platforms that reflect our values 🌍💙 #LeaveX #HealthResearch