@janegwill.bsky.social
Just simple old me, wanting to be around kindness & share what kindness I can. A severe ME/CFS struggler, who thought she recovered twice 🤣 who also has Dyslexia & ADHD🤯. With 🎓Degree in Care, community & citizenship, so a bit of a mixed bag 🥰 🇬🇧 🏳️🌈✊🏾💃🏻💕💙🌻
Reposted
Anti-Zionism is not Antisemitism.
August 18, 2025 at 4:21 PM
Anti-Zionism is not Antisemitism.
Reposted
Decode ME Study is hosting a webinar on 14th August at 15.30.
Register to hear more about the genetic results here:
shorturl.at/RywTZ
DecodeME says "If you can’t make the webinar, don’t worry. There will be a recording available afterwards”
Image Credit: DecodeME
#MECFS #DecodeME
Register to hear more about the genetic results here:
shorturl.at/RywTZ
DecodeME says "If you can’t make the webinar, don’t worry. There will be a recording available afterwards”
Image Credit: DecodeME
#MECFS #DecodeME
August 11, 2025 at 7:55 AM
Decode ME Study is hosting a webinar on 14th August at 15.30.
Register to hear more about the genetic results here:
shorturl.at/RywTZ
DecodeME says "If you can’t make the webinar, don’t worry. There will be a recording available afterwards”
Image Credit: DecodeME
#MECFS #DecodeME
Register to hear more about the genetic results here:
shorturl.at/RywTZ
DecodeME says "If you can’t make the webinar, don’t worry. There will be a recording available afterwards”
Image Credit: DecodeME
#MECFS #DecodeME
Reposted
Kara Jane Sings 2nd Album - In Limbo - out now!
The Spencer family released the posthumous second Album on Severe ME Day (8th Aug) in memory of their dear daughter who passed away in 2023.
All money raised goes into the MEA ring-fenced Ramsay Research Fund
BUY THE NEW ALBUM:
karajanesings.com
The Spencer family released the posthumous second Album on Severe ME Day (8th Aug) in memory of their dear daughter who passed away in 2023.
All money raised goes into the MEA ring-fenced Ramsay Research Fund
BUY THE NEW ALBUM:
karajanesings.com
August 9, 2025 at 1:17 PM
Kara Jane Sings 2nd Album - In Limbo - out now!
The Spencer family released the posthumous second Album on Severe ME Day (8th Aug) in memory of their dear daughter who passed away in 2023.
All money raised goes into the MEA ring-fenced Ramsay Research Fund
BUY THE NEW ALBUM:
karajanesings.com
The Spencer family released the posthumous second Album on Severe ME Day (8th Aug) in memory of their dear daughter who passed away in 2023.
All money raised goes into the MEA ring-fenced Ramsay Research Fund
BUY THE NEW ALBUM:
karajanesings.com
Reposted
BACME Statement on DecodeME study results
BACME has sent the ME Association the following statement to share with our followers for information purposes.
Read the statement here: meassociation.org.uk/juns
#MECFS #DecodeME
BACME has sent the ME Association the following statement to share with our followers for information purposes.
Read the statement here: meassociation.org.uk/juns
#MECFS #DecodeME
BACME Statement on DecodeME study results - The ME Association
BACME has sent the ME Association the following statement to […]
meassociation.org.uk
August 8, 2025 at 11:45 AM
BACME Statement on DecodeME study results
BACME has sent the ME Association the following statement to share with our followers for information purposes.
Read the statement here: meassociation.org.uk/juns
#MECFS #DecodeME
BACME has sent the ME Association the following statement to share with our followers for information purposes.
Read the statement here: meassociation.org.uk/juns
#MECFS #DecodeME
DecodeME showed that immunological and neurological processes are likely to play a part in ME/CFS. They also found a link to chronic pain, but not to anxiety or depression.
www.decodeme.org.uk/x-marks-the-...
www.decodeme.org.uk/x-marks-the-...
August 7, 2025 at 12:01 AM
DecodeME showed that immunological and neurological processes are likely to play a part in ME/CFS. They also found a link to chronic pain, but not to anxiety or depression.
www.decodeme.org.uk/x-marks-the-...
www.decodeme.org.uk/x-marks-the-...
Reposted
Calling #MECFS researchers: It’s your last chance to apply for free biosamples from the UK ME/CFS Biobank for your #MECFSResearch
Deadline: today at 23.59
How to apply: http://bit.ly/MECFS-samples
#pwME #MyalgicE
Deadline: today at 23.59
How to apply: http://bit.ly/MECFS-samples
#pwME #MyalgicE
July 31, 2025 at 8:51 AM
Calling #MECFS researchers: It’s your last chance to apply for free biosamples from the UK ME/CFS Biobank for your #MECFSResearch
Deadline: today at 23.59
How to apply: http://bit.ly/MECFS-samples
#pwME #MyalgicE
Deadline: today at 23.59
How to apply: http://bit.ly/MECFS-samples
#pwME #MyalgicE
Reposted
📢 Genetics Centre of Excellence webinar
Hear from researchers at the Uni of Edinburgh & PrecisionLife on key updates in #MECFS & #LongCovid genetics!
🗓 Fri 6 June
🕑 2–3pm
Register now 👇
us02web.zoom.us/webinar/regi...
📩 Send Qs for Q&A to: [email protected]
📹 Recording shared after
Hear from researchers at the Uni of Edinburgh & PrecisionLife on key updates in #MECFS & #LongCovid genetics!
🗓 Fri 6 June
🕑 2–3pm
Register now 👇
us02web.zoom.us/webinar/regi...
📩 Send Qs for Q&A to: [email protected]
📹 Recording shared after
May 9, 2025 at 12:14 PM
📢 Genetics Centre of Excellence webinar
Hear from researchers at the Uni of Edinburgh & PrecisionLife on key updates in #MECFS & #LongCovid genetics!
🗓 Fri 6 June
🕑 2–3pm
Register now 👇
us02web.zoom.us/webinar/regi...
📩 Send Qs for Q&A to: [email protected]
📹 Recording shared after
Hear from researchers at the Uni of Edinburgh & PrecisionLife on key updates in #MECFS & #LongCovid genetics!
🗓 Fri 6 June
🕑 2–3pm
Register now 👇
us02web.zoom.us/webinar/regi...
📩 Send Qs for Q&A to: [email protected]
📹 Recording shared after
Reposted
The ME Association is now on BlueSky, where we share the latest news and information, and helping raise awareness of ME/CFS.
Ready to join us over on BlueSky?
Follow us here: https://bsky.app/profile/meassociation.bsky.social
#BlueSky #pwME #MECFS #LongCovid #MEAssociation
Ready to join us over on BlueSky?
Follow us here: https://bsky.app/profile/meassociation.bsky.social
#BlueSky #pwME #MECFS #LongCovid #MEAssociation
May 1, 2025 at 9:02 AM
The ME Association is now on BlueSky, where we share the latest news and information, and helping raise awareness of ME/CFS.
Ready to join us over on BlueSky?
Follow us here: https://bsky.app/profile/meassociation.bsky.social
#BlueSky #pwME #MECFS #LongCovid #MEAssociation
Ready to join us over on BlueSky?
Follow us here: https://bsky.app/profile/meassociation.bsky.social
#BlueSky #pwME #MECFS #LongCovid #MEAssociation
Amazing information in Link. It’s a watch 5 mins, then research the words I don’t understand & then process, before I go on clips 🤣 how it gets me hope what they are learning & Sharing important information about ME/CFS lshtm.cloud.panopto.eu/Panopto/Page...
CureME event 19 September 2024
lshtm.cloud.panopto.eu
December 13, 2024 at 1:31 AM
Amazing information in Link. It’s a watch 5 mins, then research the words I don’t understand & then process, before I go on clips 🤣 how it gets me hope what they are learning & Sharing important information about ME/CFS lshtm.cloud.panopto.eu/Panopto/Page...
Photo shows a theoretical question about medication. However, I like the photo as it shows 3 fields of logic. Pointing towards a logic that is at least considering a causation to our ME/CFS
December 13, 2024 at 1:25 AM
Photo shows a theoretical question about medication. However, I like the photo as it shows 3 fields of logic. Pointing towards a logic that is at least considering a causation to our ME/CFS
Reposted
We could go on about how we welcome publishers, we don't demote links, we encourage independent developers to build apps and extensions on top of Bluesky's network.... but instead, we'll show you.
All thanks to the incredible community here! 🦋
All thanks to the incredible community here! 🦋
The Engagement Is Better on Bluesky - Bluesky
Bluesky is the lobby to the open web. Find and build your community here.
bsky.social
November 29, 2024 at 10:30 PM
We could go on about how we welcome publishers, we don't demote links, we encourage independent developers to build apps and extensions on top of Bluesky's network.... but instead, we'll show you.
All thanks to the incredible community here! 🦋
All thanks to the incredible community here! 🦋
❄️Snowing in the UK 🇬🇧 hardly ever happens so had to post 🥰
November 19, 2024 at 12:17 AM
❄️Snowing in the UK 🇬🇧 hardly ever happens so had to post 🥰
Brain 🧠 hurts with how clever some people are, but so grateful that ME/CFS finally getting research, looking forward to 2025 when DECODE ME data will be out
November 17, 2024 at 3:52 PM
Brain 🧠 hurts with how clever some people are, but so grateful that ME/CFS finally getting research, looking forward to 2025 when DECODE ME data will be out