Jayne Zbrainzzzzz
banner
jaynetunes.bsky.social
Jayne Zbrainzzzzz
@jaynetunes.bsky.social
480 followers 610 following 990 posts
Mandolin player. Songwriter. Roaster of coffee. Spoonie. Lover of twinkly lights and soft fabrics. Traveler. Language nerd. Lefty. Dislikes genocide and tyranny. Takes bad pictures of birds.
Posts Media Videos Starter Packs
Oh and a CFS subredditor recc’d noise-canceling headphones and eye mask for long car trip, also getting feet propped up as much as possible. You may of course already have your own prep for this.
I’ve been thinking about Visible; Stanford ME/CFS doc told me I didn’t need it, but that was before the monitor data. Sounds like you’re getting good use from it? My tachycardia seems to happen most when I’m lying down, which is confusing.

Sending you all good wishes for trip and clinic
Ugghhh so sorry about all of it. Hope the LC clinic treats you well & gives you something to work with.

I recently finished 2 weeks wearing a heart monitor; was surprised to learn that I was having an average of 56 episodes of tachycardia/day. Top HR of 188! LC/ME/CFS heart stuff sucks.
Haha yes we need a support group … this is my soon-to-be Pup-in-Law, who became my housemate a few months back. She’s an enormous personality in a tiny package, and she makes me laugh and swear every day. More laughing than swearing, most days.
Extremely decorative. This one lost her vision about 1.5 years ago and since then has refused to go for any kind of walk, which is probably kind of fair.
How long can you leave your #halloween ghouls up before the suburban neighbors start giving you side-eye in the street? Asking for me. I’m sad Halloween is over because I just got my ghouls done the day before.
I am super-duper tired of the self-appointed food police weighing in on what poor people should or shouldn’t be buying w/SNAP benefits.

And also of billionaires avoiding consequences for all their crimes, always.

And also of billionaires existing, in general. Billionaire=immoral. Period.
Errrggghhh. I got ME/CFS after a concussion and then Covid, and my brain has not been anywhere near the same since then (Sept 2019). I wish I were a brain doctor who could help you. I have had some relief from low-dose naltrexone prescribed by Stanford’s Long Covid/ME/CFS clinic.
You can’t spell “incel” without “ICE.”
You give me hope. If I lived in Illinois I’d so vote for you.
Oh it’s fine because we have robust social safety net for people who suddenly lose their livelihoods… oh wait… never mind.
Made some ghouls, sang a little song about it.
Oh good lord. Clues are entirely lacking.
Also would love to donate but I’m a Medicaid and SNAP recipient waiting for a determination on federal disability benefits so pennies are kinda being hoarded at the moment.
Mine’s overwhelmed by the toxic cloud of “cry about THIS now.”
I’m running out of laughs on the “laugh so you don’t cry” menu but this is good.
A fellow furloughed coworker posted this. Laugh so you don’t cry.
As a terrified SNAP recipient in California, I’m moved & inspired by Heretic & the beautiful people who’ve donated. Part of my fear around all this is feeling like a large % of my countrymen don’t care if I live or die. Or worse, actually want me dead —“useless eater.”
My head explodes on a daily basis.
White crowned sparrow was the first bird I noticed this morning. I let the basil plant go to seed and the birds are digging the snacks.
Luna kitty works it on the couch for #caturday