Little Lobbyists
@littlelobbyists.com
Family-led group advocating for our kids with complex medical needs and disabilities. Little Lobbyists Action Network is a 501(c)(4) org.
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Little Lobbyists
@littlelobbyists.com
· Nov 24
Today, Little Lobbyists honors #AliceWong, a ferocious advocate for disability justice and disability culture-maker who died on November 14 at the age of 51. Alice was a larger-than-life figure in the disability community and a friend to Little Lobbyists
1/🧵
1/🧵
I never set out to be an advocate or an activist. It just happened with the circumstances that my family was dealt.
My big advice for parents who are nervous about advocacy: you may not be a policy or legal expert, but you’re an expert on the care your child receives.
My big advice for parents who are nervous about advocacy: you may not be a policy or legal expert, but you’re an expert on the care your child receives.
Alexis' Story: Anyone Can Be an Advocate
Little Lobbyists mom Alexis Stadler shares what it's like to advocate with lawmakers, talk to media, and represent Little Lobbyists in the community.
littlelobbyists.org
January 14, 2026 at 7:59 PM
I never set out to be an advocate or an activist. It just happened with the circumstances that my family was dealt.
My big advice for parents who are nervous about advocacy: you may not be a policy or legal expert, but you’re an expert on the care your child receives.
My big advice for parents who are nervous about advocacy: you may not be a policy or legal expert, but you’re an expert on the care your child receives.
Reposted by Little Lobbyists
This. 100x this.
THE MONEY FUNDING MASKED ICE AGENTS 👇
IS THE SAME MONEY THAT COULD’VE FUNDED #MEDICAID FOR MEDICALLY COMPLEX AND DISABLED CHILDREN
IS THE SAME MONEY THAT COULD’VE FUNDED #MEDICAID FOR MEDICALLY COMPLEX AND DISABLED CHILDREN
January 13, 2026 at 6:50 PM
This. 100x this.
Reposted by Little Lobbyists
REPRESENTATION MATTERS ✅
Mattel Inc. is introducing an a Barbie with autism as the newest member of its line intended to celebrate diversity.
Mattel adds an autistic Barbie to doll line devoted to showcasing diversity and inclusion
The eyes of the new Barbie shift slightly to the side to represent how some people with autism sometimes avoid direct eye contact.
nbcnews.to
January 13, 2026 at 5:52 PM
REPRESENTATION MATTERS ✅
Without #Medicaid, panda-loving Danny Robeson would be institutionalized away from his family and community.
"Medicaid pays for everything our primary insurance doesn’t cover. Medicaid saved Danny’s life and has been so important for our family."
littlelobbyists.org/dannys-story...
"Medicaid pays for everything our primary insurance doesn’t cover. Medicaid saved Danny’s life and has been so important for our family."
littlelobbyists.org/dannys-story...
Danny's Story: An Animal-Loving Eighth Grader
Without Medicaid, panda-loving Danny Robeson would be institutionalized away from his family and community.
littlelobbyists.org
January 9, 2026 at 8:22 PM
Without #Medicaid, panda-loving Danny Robeson would be institutionalized away from his family and community.
"Medicaid pays for everything our primary insurance doesn’t cover. Medicaid saved Danny’s life and has been so important for our family."
littlelobbyists.org/dannys-story...
"Medicaid pays for everything our primary insurance doesn’t cover. Medicaid saved Danny’s life and has been so important for our family."
littlelobbyists.org/dannys-story...
The message to Congress could not be clearer:
➡️ Affordable Healthcare
➡️ Protect Medicaid
➡️ Keep promises made to medically complex and disabled children
➡️ Affordable Healthcare
➡️ Protect Medicaid
➡️ Keep promises made to medically complex and disabled children
Breaking news: More than a dozen House Republicans joined every Democrat to pass a bill extending enhanced Affordable Care Act subsidies for three years — the sharpest GOP break with party leadership yet.
House passes bill extending health care subsidies, bucking GOP leaders
Prospects for passage in the Senate are unclear. The enhanced subsidies expired at the end of 2025, driving costs up for millions.
wapo.st
January 8, 2026 at 11:01 PM
The message to Congress could not be clearer:
➡️ Affordable Healthcare
➡️ Protect Medicaid
➡️ Keep promises made to medically complex and disabled children
➡️ Affordable Healthcare
➡️ Protect Medicaid
➡️ Keep promises made to medically complex and disabled children
Jackson's Story: Healthcare is a Right
Medicaid-funded "support allowed us to invest in his health care early on, setting him up for a life as an independent, confident kid who is doing well into school and will grow into adulthood. "
littlelobbyists.org/jacksons-sto...
Medicaid-funded "support allowed us to invest in his health care early on, setting him up for a life as an independent, confident kid who is doing well into school and will grow into adulthood. "
littlelobbyists.org/jacksons-sto...
Jackson's Story: Healthcare is a Right
Jackson was a million dollar baby. Our family fights to make sure kids like him get the health care they need.
littlelobbyists.org
January 8, 2026 at 8:23 PM
Jackson's Story: Healthcare is a Right
Medicaid-funded "support allowed us to invest in his health care early on, setting him up for a life as an independent, confident kid who is doing well into school and will grow into adulthood. "
littlelobbyists.org/jacksons-sto...
Medicaid-funded "support allowed us to invest in his health care early on, setting him up for a life as an independent, confident kid who is doing well into school and will grow into adulthood. "
littlelobbyists.org/jacksons-sto...
Iowa Doesn't Have Enough OB-GYNs. The State’s Abortion Ban Might Be Making It Worse. kffhealthnews.org/news/article...
Iowa Doesn't Have Enough OB-GYNs. The State’s Abortion Ban Might Be Making It Worse. - KFF Health News
Abortion bans like Iowa’s have put OB-GYNs under increasing strain and surveillance, complicating the standard medical treatments for miscarriage, ectopic pregnancy, premature membrane rupture, and…
kffhealthnews.org
January 8, 2026 at 8:13 PM
Iowa Doesn't Have Enough OB-GYNs. The State’s Abortion Ban Might Be Making It Worse. kffhealthnews.org/news/article...
THEY. DON’T. HAVE. A. PLAN.
That is why we are where we are today.
That is why we are where we are today.
BARTIROMO: What is the GOP's healthcare plan?
RICK SCOTT: Many times you can buy it way cheaper by just going directly to a doctor or a hospital or surgery center rather than going through the insurance product. Let them buy their own insurance.
RICK SCOTT: Many times you can buy it way cheaper by just going directly to a doctor or a hospital or surgery center rather than going through the insurance product. Let them buy their own insurance.
January 7, 2026 at 11:08 PM
THEY. DON’T. HAVE. A. PLAN.
That is why we are where we are today.
That is why we are where we are today.
TODAY, an ICE agent killed a person
ONGOING, ICE is using #Medicaid records to further terrorize families while expanding their mass deportation efforts
ONGOING, ICE is using #Medicaid records to further terrorize families while expanding their mass deportation efforts
Earlier this week, ICE was allowed to use #medicaid data as part of their mass deportation efforts www.404media.co/here-is-the-...
Here is the Agreement Giving ICE Medicaid Patients' Data
On Tuesday, ICE was allowed to continue using Medicaid data in deportation cases.
www.404media.co
January 7, 2026 at 8:32 PM
TODAY, an ICE agent killed a person
ONGOING, ICE is using #Medicaid records to further terrorize families while expanding their mass deportation efforts
ONGOING, ICE is using #Medicaid records to further terrorize families while expanding their mass deportation efforts
Earlier this week, ICE was allowed to use #medicaid data as part of their mass deportation efforts www.404media.co/here-is-the-...
Here is the Agreement Giving ICE Medicaid Patients' Data
On Tuesday, ICE was allowed to continue using Medicaid data in deportation cases.
www.404media.co
January 7, 2026 at 6:57 PM
Earlier this week, ICE was allowed to use #medicaid data as part of their mass deportation efforts www.404media.co/here-is-the-...
Reposted by Little Lobbyists
Copy Editing Matters, from HHS's release on the new childhood vaccine schedule: All the diseases will still be available to anyone who wants them
January 6, 2026 at 1:12 AM
Copy Editing Matters, from HHS's release on the new childhood vaccine schedule: All the diseases will still be available to anyone who wants them
We can't believe we have to say this so early in 2026, but here we go: VACCINES WORK. VACCINES SAVE LIVES.
NEW: HHS dramatically overhauls childhood vaccine schedule, downgrading advice for flu, meningitis, other shots
www.politico.com/news/2026/01...
www.politico.com/news/2026/01...
HHS dramatically overhauls childhood vaccine schedule, downgrading advice for flu, meningitis, other shots
Federal officials say the U.S. schedule should be more in line with slimmer recommendations in other countries. Public health experts say the goal belies big differences between health systems and…
www.politico.com
January 5, 2026 at 9:09 PM
We can't believe we have to say this so early in 2026, but here we go: VACCINES WORK. VACCINES SAVE LIVES.
NEW: HHS dramatically overhauls childhood vaccine schedule, downgrading advice for flu, meningitis, other shots
www.politico.com/news/2026/01...
www.politico.com/news/2026/01...
HHS dramatically overhauls childhood vaccine schedule, downgrading advice for flu, meningitis, other shots
Federal officials say the U.S. schedule should be more in line with slimmer recommendations in other countries. Public health experts say the goal belies big differences between health systems and…
www.politico.com
January 5, 2026 at 9:07 PM
NEW: HHS dramatically overhauls childhood vaccine schedule, downgrading advice for flu, meningitis, other shots
www.politico.com/news/2026/01...
www.politico.com/news/2026/01...
HAPPY NEW YEAR 🎉
A reminder that millions of Americans are starting 2026 facing steep increases in their health insurance costs BECAUSE Congressional "Republicans cut more than $1 trillion in federal health care and food assistance with Trump’s big tax and spending cuts bill."
A reminder that millions of Americans are starting 2026 facing steep increases in their health insurance costs BECAUSE Congressional "Republicans cut more than $1 trillion in federal health care and food assistance with Trump’s big tax and spending cuts bill."
January 1, 2026 at 11:28 PM
HAPPY NEW YEAR 🎉
A reminder that millions of Americans are starting 2026 facing steep increases in their health insurance costs BECAUSE Congressional "Republicans cut more than $1 trillion in federal health care and food assistance with Trump’s big tax and spending cuts bill."
A reminder that millions of Americans are starting 2026 facing steep increases in their health insurance costs BECAUSE Congressional "Republicans cut more than $1 trillion in federal health care and food assistance with Trump’s big tax and spending cuts bill."
A North Texas family is fighting for the release of a man who was detained during a routine check-in at the ICE field office in Dallas.
They say he is the primary caregiver for his U.S.-born son, who is disabled and now faces life-threatening medical challenges.
They say he is the primary caregiver for his U.S.-born son, who is disabled and now faces life-threatening medical challenges.
Immigrant in Dallas to care for disabled son detained during annual check-in
The 62-year-old Jordan national has now been sitting in an ICE detention facility for more than two months. His family is demanding he be released on humanitarian grounds, claiming he is the primary c...
www.fox4news.com
December 31, 2025 at 4:41 PM
A North Texas family is fighting for the release of a man who was detained during a routine check-in at the ICE field office in Dallas.
They say he is the primary caregiver for his U.S.-born son, who is disabled and now faces life-threatening medical challenges.
They say he is the primary caregiver for his U.S.-born son, who is disabled and now faces life-threatening medical challenges.
You know who this will ultimately harm?
Children. Plain and simple.
Children. Plain and simple.
Trump administration says it's freezing child care funds to Minnesota after series of fraud schemes
The Trump administration has announced that it is freezing child care funds to Minnesota after a series of fraud schemes in recent years.
apnews.com
December 30, 2025 at 11:51 PM
You know who this will ultimately harm?
Children. Plain and simple.
Children. Plain and simple.
"As you may have noticed, I come with more tubes than the average 14-year-old," says Quinn Mackercher. He's been waiting for a multi-organ transplant to save his life.
"I want to grow up to help people, especially people with medical needs like me,"
littlelobbyists.org/quinns-story...
"I want to grow up to help people, especially people with medical needs like me,"
littlelobbyists.org/quinns-story...
Quinn's Story: Looking to Medicaid for a Multi-Organ Transplant
Quinn Mackercher urgently needs a multi-organ transplant, a procedure only offered in the U.S., and can only access it through Medicaid coverage.
littlelobbyists.org
December 26, 2025 at 8:30 PM
"As you may have noticed, I come with more tubes than the average 14-year-old," says Quinn Mackercher. He's been waiting for a multi-organ transplant to save his life.
"I want to grow up to help people, especially people with medical needs like me,"
littlelobbyists.org/quinns-story...
"I want to grow up to help people, especially people with medical needs like me,"
littlelobbyists.org/quinns-story...
Reposted by Little Lobbyists
The reality is: disabled children are the first to lose services. They talk a big talk about caring for innocent helpless kids, but children are the least valued members of society. They’re expendable. They can’t fight for themselves. We are awful to children and the people who care for them.
The Garners said they were shocked that the government would cut off assistance for raising a deafblind daughter. “
It seems like it should be a group of kids that everyone wants to help,” said Mr. Garner, a civil engineer. “Taking away help from deafblind kids? I don’t understand.”
It seems like it should be a group of kids that everyone wants to help,” said Mr. Garner, a civil engineer. “Taking away help from deafblind kids? I don’t understand.”
Born Deaf and Blind, She’s Caught in Trump’s Anti-Diversity Crusade
A program for deafblind children helped 3-year-old Annie Garner, born with poor vision and no ears, learn to communicate. The Trump administration cut the program’s funding over diversity goals.
A program for deafblind children helped 3-year-old Annie Garner, born with poor vision and no ears, learn to communicate. The Trump administration cut the program’s funding over diversity goals.
December 24, 2025 at 1:44 AM
The reality is: disabled children are the first to lose services. They talk a big talk about caring for innocent helpless kids, but children are the least valued members of society. They’re expendable. They can’t fight for themselves. We are awful to children and the people who care for them.
The Garners said they were shocked that the government would cut off assistance for raising a deafblind daughter. “
It seems like it should be a group of kids that everyone wants to help,” said Mr. Garner, a civil engineer. “Taking away help from deafblind kids? I don’t understand.”
It seems like it should be a group of kids that everyone wants to help,” said Mr. Garner, a civil engineer. “Taking away help from deafblind kids? I don’t understand.”
Born Deaf and Blind, She’s Caught in Trump’s Anti-Diversity Crusade
A program for deafblind children helped 3-year-old Annie Garner, born with poor vision and no ears, learn to communicate. The Trump administration cut the program’s funding over diversity goals.
A program for deafblind children helped 3-year-old Annie Garner, born with poor vision and no ears, learn to communicate. The Trump administration cut the program’s funding over diversity goals.
Born Deaf and Blind, She’s Caught in Trump’s Anti-Diversity Crusade
www.nytimes.com
December 24, 2025 at 1:35 AM
The Garners said they were shocked that the government would cut off assistance for raising a deafblind daughter. “
It seems like it should be a group of kids that everyone wants to help,” said Mr. Garner, a civil engineer. “Taking away help from deafblind kids? I don’t understand.”
It seems like it should be a group of kids that everyone wants to help,” said Mr. Garner, a civil engineer. “Taking away help from deafblind kids? I don’t understand.”
"People sometimes forget that disabled children grow into #disabled adults,"
Maya worries her children will come into adulthood without #Medicaid access and "make decisions based on what they want to do, not what they are forced to do by circumstance."
littlelobbyists.org/the-brown-fa...
Maya worries her children will come into adulthood without #Medicaid access and "make decisions based on what they want to do, not what they are forced to do by circumstance."
littlelobbyists.org/the-brown-fa...
The Brown Family's Story: An Uncertain Future Without Medicaid
Maya Brown worries that Medicaid won't be there when her children need it in the future.
littlelobbyists.org
December 23, 2025 at 7:30 PM
"People sometimes forget that disabled children grow into #disabled adults,"
Maya worries her children will come into adulthood without #Medicaid access and "make decisions based on what they want to do, not what they are forced to do by circumstance."
littlelobbyists.org/the-brown-fa...
Maya worries her children will come into adulthood without #Medicaid access and "make decisions based on what they want to do, not what they are forced to do by circumstance."
littlelobbyists.org/the-brown-fa...
Reposted by Little Lobbyists
Is for YOU to make a donation to @littlelobbyists.com BEFORE THE END OF THE YEAR!
littlelobbyists.org/donate/
littlelobbyists.org/donate/
Donate to Little Lobbyists
Our families tell us things like “I feel seen,” “I am so happy I found this group,”and “I wish I had found y’all sooner.”
Little Lobbyists puts families first with high-impact work as they share thei...
littlelobbyists.org
December 22, 2025 at 9:48 PM
Is for YOU to make a donation to @littlelobbyists.com BEFORE THE END OF THE YEAR!
littlelobbyists.org/donate/
littlelobbyists.org/donate/
“I think a lot of people will not be able to do anything” without Medicaid, says 16yo Isaac. Born before the #AffordableCareAct, he blew through his two-million-dollar lifetime cap before he was a year old!
Thanks to #Medicaid, he's thriving today ❤️💙
littlelobbyists.org/isaacs-story...
Thanks to #Medicaid, he's thriving today ❤️💙
littlelobbyists.org/isaacs-story...
Isaac's Story: The Two Million Dollar Baby
Isaac blew through his lifetime cap before he was even a year old. Medicaid saved his life, and keeps him thriving.
littlelobbyists.org
December 22, 2025 at 6:22 PM
“I think a lot of people will not be able to do anything” without Medicaid, says 16yo Isaac. Born before the #AffordableCareAct, he blew through his two-million-dollar lifetime cap before he was a year old!
Thanks to #Medicaid, he's thriving today ❤️💙
littlelobbyists.org/isaacs-story...
Thanks to #Medicaid, he's thriving today ❤️💙
littlelobbyists.org/isaacs-story...
Reposted by Little Lobbyists
"It’s important to me to tell our story so people understand the true faces of Medicaid and learn intimately about the people whose lives will be ripped apart by Medicaid cuts."
Forever grateful to all the brave families who share their stories publicly, helping put a face on #Medicaid.
Forever grateful to all the brave families who share their stories publicly, helping put a face on #Medicaid.
'Dying because someone took your health care away is not natural,' says foster and adoptive parent Ryan Jolly, who's only able to be that open door because of #Medicaid, 'neither is living a costly life in isolation in a hospital bed,"
Read Ryan's full story —> littlelobbyists.org/medically-co...
Read Ryan's full story —> littlelobbyists.org/medically-co...
December 20, 2025 at 7:13 PM
"It’s important to me to tell our story so people understand the true faces of Medicaid and learn intimately about the people whose lives will be ripped apart by Medicaid cuts."
Forever grateful to all the brave families who share their stories publicly, helping put a face on #Medicaid.
Forever grateful to all the brave families who share their stories publicly, helping put a face on #Medicaid.