Lyme Disease Action
@lymediseaseaction.org.uk
The longest established UK charity working on Lyme disease and associated tick-borne diseases. Accredited to the PIF Tick UK quality mark for trustworthy information. www.lymediseaseaction.org.uk
Reposted by Lyme Disease Action
Thanks!
We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.
We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.
February 7, 2026 at 4:57 PM
Thanks!
We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.
We do not know much about the micro-ecology of vectors&reservoirs (Lyme). Using his-res vegetation does not work: researchers collected the tick at low res. for many years (eg. 1 km. res.). We need high-res records and data. Also, the lack of homogeneous data for hunting, conservation, etc.
Fascinating and with surprising UK results, though we notice the careful word "tendency"! Thank you for the work and glad you enjoyed it. The other factors such as nature conservation may be more difficult to analyse as I guess data harder to come by.
The main point when you are semi-retired is the spare time to explore what is still seating in your mind.
I've enjoyed exploring this. A tipping point of climate in Europe, around half 1980's, could govern the trend of spread of Ixodes ricinus in parts of the continent.
rdcu.be/e2Jwm
🧪
I've enjoyed exploring this. A tipping point of climate in Europe, around half 1980's, could govern the trend of spread of Ixodes ricinus in parts of the continent.
rdcu.be/e2Jwm
🧪
Sixty years of climate impact on Ixodes ricinus (Ixodidae)
rdcu.be
February 7, 2026 at 1:47 PM
Fascinating and with surprising UK results, though we notice the careful word "tendency"! Thank you for the work and glad you enjoyed it. The other factors such as nature conservation may be more difficult to analyse as I guess data harder to come by.
Reposted by Lyme Disease Action
You may have noticed that it has been a little bit wet recently ☔
This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌
Find out more by reading on below 🔽
This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌
Find out more by reading on below 🔽
The best nature walks in London
A selection of the best nature walks in London for you to enjoy
www.royalparks.org.uk
February 7, 2026 at 8:00 AM
You may have noticed that it has been a little bit wet recently ☔
This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌
Find out more by reading on below 🔽
This shouldn't stop you from getting out into the parks to connect with nature, especially as it is one of the best things we can do for our physical and emotional wellbeing 🙌
Find out more by reading on below 🔽
Approach your GP carefully if worrying about #Lyme disease. They know there is a lot of poor info on the internet, so stick to facts and have a look here first www.lymediseaseaction.org.uk/resources/se...
January 26, 2026 at 1:57 PM
Approach your GP carefully if worrying about #Lyme disease. They know there is a lot of poor info on the internet, so stick to facts and have a look here first www.lymediseaseaction.org.uk/resources/se...
Gosh - all those familiar faces who helped us from May 2010 all the way through to publication in Jan 2013! Huge thanks to you all for keeping going and growing and strengthening the JLA to where you are now.
📢What's new on the JLA website?
In our latest blog post we share the early history of the James Lind Alliance (JLA) and how it has grown into the initiative that it has become today.
🌐Check it out here:
In our latest blog post we share the early history of the James Lind Alliance (JLA) and how it has grown into the initiative that it has become today.
🌐Check it out here:
The History of the JLA: The First Decade
Our timeline, James Lind Alliance: The History 2003-2013, demonstrates how over the course of a decade, the JLA evolved from the seed of an idea to the influential methodology that it is today.
buff.ly
January 26, 2026 at 1:53 PM
Gosh - all those familiar faces who helped us from May 2010 all the way through to publication in Jan 2013! Huge thanks to you all for keeping going and growing and strengthening the JLA to where you are now.
Pain systems in the brain light up when people are rejected. Would this amplify pain of people with post treatment #Lyme disease? They are rejected, not investigated & not even considered to have a real problem. @liverpooluni.bsky.social seems to have abandoned the area. @benedictneuro.bsky.social
1 in 5 people are experiencing pain, and in the UK over 34% of adults regularly experience chronic pain.
@benedictneuro.bsky.social and Prof. Michelle Briggs @lincneurosci.bsky.social discuss on the latest episode of Original Ideas 🧠💡🎙️▶️ liverpool.ac.uk/research/original-ideas/neuroscienceandpain/
@benedictneuro.bsky.social and Prof. Michelle Briggs @lincneurosci.bsky.social discuss on the latest episode of Original Ideas 🧠💡🎙️▶️ liverpool.ac.uk/research/original-ideas/neuroscienceandpain/
January 14, 2026 at 1:24 PM
Pain systems in the brain light up when people are rejected. Would this amplify pain of people with post treatment #Lyme disease? They are rejected, not investigated & not even considered to have a real problem. @liverpooluni.bsky.social seems to have abandoned the area. @benedictneuro.bsky.social
Reposted by Lyme Disease Action
New blog on the hub this week - When lived experience is embedded at every stage of research.
Link: www.pslhub.org/learn/patien... #patientsafety
Link: www.pslhub.org/learn/patien... #patientsafety
January 8, 2026 at 11:45 AM
New blog on the hub this week - When lived experience is embedded at every stage of research.
Link: www.pslhub.org/learn/patien... #patientsafety
Link: www.pslhub.org/learn/patien... #patientsafety
Worth noting that health organisations accredited to the @pifonline.bsky.social #PIFTick have proved that they have "obtained, recorded and referenced up to date, relevant and trustworthy evidence sources".
Remember to #AskForEvidence whenever you encounter health information - online or off.
senseaboutscience.org/ask-for-evid...
senseaboutscience.org/ask-for-evid...
Ask for Evidence - Sense about Science
Ask for Evidence helps you ask the right questions to find out what evidence lies behind health claims, news stories, ads and policies
senseaboutscience.org
January 8, 2026 at 4:16 PM
Worth noting that health organisations accredited to the @pifonline.bsky.social #PIFTick have proved that they have "obtained, recorded and referenced up to date, relevant and trustworthy evidence sources".
Reposted by Lyme Disease Action
🌟 @lymediseaseaction.org.uk is now PIF TICK re-certified.
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
January 5, 2026 at 12:45 PM
🌟 @lymediseaseaction.org.uk is now PIF TICK re-certified.
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
Happy Christmas to everyone out there and here's looking forward to some research insights on #Lyme disease in 2026. If you didn't know how a sheep #tick could disguise itself at Christmas, try this jigsaw. Best on tablet or PC. www.lymediseaseaction.org.uk/what-you-can...
Light Relief | Lyme Disease Action
www.lymediseaseaction.org.uk
December 25, 2025 at 4:56 PM
Happy Christmas to everyone out there and here's looking forward to some research insights on #Lyme disease in 2026. If you didn't know how a sheep #tick could disguise itself at Christmas, try this jigsaw. Best on tablet or PC. www.lymediseaseaction.org.uk/what-you-can...
Don't know where we'd be without brilliant @pdfsam.org Just used it to split out #tick-borne disease specific parts of Chris Whitty's CMO annual report for circulation. Gets 38Mb into something more easily readable, esp on mobiles! www.gov.uk/government/p...
Chief Medical Officer’s annual report 2025: infections
Professor Chris Whitty’s annual report considers trends, successes and challenges in preventing and treating infectious diseases.
www.gov.uk
December 10, 2025 at 2:20 PM
Don't know where we'd be without brilliant @pdfsam.org Just used it to split out #tick-borne disease specific parts of Chris Whitty's CMO annual report for circulation. Gets 38Mb into something more easily readable, esp on mobiles! www.gov.uk/government/p...
Reposted by Lyme Disease Action
🌟 @encephalitisint.bsky.social is now PIF TICK re-certified.
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
December 10, 2025 at 10:41 AM
🌟 @encephalitisint.bsky.social is now PIF TICK re-certified.
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/how...
#HealthInformation
#PIFTICK
A real challenge is the start of the journey. #Researchers are signposted by their university department interests. #Patients are signposted by their (sometimes desperate) needs for solutions. Often the paths never even cross. @jameslindalliance.bsky.social
🧭Are academic and community researchers on the same journey?
Our new blog explores insights from journey mapping with both groups.
Key themes:
🗣️ Communication
🎓 Training
🤝 Power sharing
Addressing these challenges will help move towards genuine collaboration.
arc-w.nihr.ac.uk/research-jou...
Our new blog explores insights from journey mapping with both groups.
Key themes:
🗣️ Communication
🎓 Training
🤝 Power sharing
Addressing these challenges will help move towards genuine collaboration.
arc-w.nihr.ac.uk/research-jou...
Research journeys of academic and community researchers - ARC West
Are academic and community researchers fellow travellers or just moving in the same direction? In this blog, the team behind the ARC West project to create a co-production community of practice reflec...
arc-w.nihr.ac.uk
November 28, 2025 at 12:14 PM
A real challenge is the start of the journey. #Researchers are signposted by their university department interests. #Patients are signposted by their (sometimes desperate) needs for solutions. Often the paths never even cross. @jameslindalliance.bsky.social
Reposted by Lyme Disease Action
Social media can be a great way to find health information, but there are risks when using and sharing content.
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
November 27, 2025 at 1:25 PM
Social media can be a great way to find health information, but there are risks when using and sharing content.
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
Our updated guide for the public gives tips on how to find trusted health information on social media.
Download at piftick.org.uk/guide/how-to...
#PIFTICK
#HealthInformation
Now we know when we have the best chance of collecting nymph #ticks for demo - at night, in November, when it's damp! Wonderful study - big thanks to the persisting researchers. @hannahvineer.bsky.social www.biorxiv.org/content/bior... Night hunting #cats need continued tick protection.
www.biorxiv.org
November 11, 2025 at 2:17 PM
Now we know when we have the best chance of collecting nymph #ticks for demo - at night, in November, when it's damp! Wonderful study - big thanks to the persisting researchers. @hannahvineer.bsky.social www.biorxiv.org/content/bior... Night hunting #cats need continued tick protection.
BBC World Service asks 4 experts about #Lyme disease. www.bbc.co.uk/sounds/play/... First quick summary fails to say it was a mother, Polly Murray, who pushed for investigation of the arthritis outbreak in Connecticut. Why are patients always brushed aside? @patients-association.org.uk
The Inquiry - Why are more people getting Lyme disease? - BBC Sounds
Lyme disease is becoming more common. But what’s driving that?
www.bbc.co.uk
October 29, 2025 at 7:13 PM
BBC World Service asks 4 experts about #Lyme disease. www.bbc.co.uk/sounds/play/... First quick summary fails to say it was a mother, Polly Murray, who pushed for investigation of the arthritis outbreak in Connecticut. Why are patients always brushed aside? @patients-association.org.uk
AI can gather stories in the blink of an eye. But from where? Only from stories all ready digitally told. Potentially useful (many of them) but potentially misleading, so safeguards on context and date are vital.
How do you see AI fitting into the future of PPI storytelling? And what safeguards or opportunities do you think matter most?
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
Read the latest IPPIN blog post from Patrick Toland - 'Patient Voices in the Age of AI: Opportunity or Visibility Theft?'
intppinetwork.wixsite.com/ippin/post/p...
October 27, 2025 at 8:54 PM
AI can gather stories in the blink of an eye. But from where? Only from stories all ready digitally told. Potentially useful (many of them) but potentially misleading, so safeguards on context and date are vital.
Reposted by Lyme Disease Action
Topics from the use of health data for research to the medicines supply chain are explained in a new set of videos from @abpi.bsky.social.
The series of short clips cover key topics central to the ABPI work and mission. Head to their YouTube page to see the full list here: lnkd.in/ecCH_hPN
The series of short clips cover key topics central to the ABPI work and mission. Head to their YouTube page to see the full list here: lnkd.in/ecCH_hPN
October 10, 2025 at 10:23 AM
Topics from the use of health data for research to the medicines supply chain are explained in a new set of videos from @abpi.bsky.social.
The series of short clips cover key topics central to the ABPI work and mission. Head to their YouTube page to see the full list here: lnkd.in/ecCH_hPN
The series of short clips cover key topics central to the ABPI work and mission. Head to their YouTube page to see the full list here: lnkd.in/ecCH_hPN
To bring people outdoors is undoubtedly good for their mental health. We do need to make people aware of #ticks and #Lyme disease in a way that does not put them off outdoor activity @newforestnpa.bsky.social @saragandy.bsky.social @bethpurse.bsky.social
🌳 How do new woodlands shape wellbeing and sense of place?
Research led by Dr Beth Brockett at Forest Research found communities see local tree planting as good for both nature and people.
🔍 Learn more: ow.ly/kLaK50XaSGB
#WoodlandCreation | #SocialScience
Research led by Dr Beth Brockett at Forest Research found communities see local tree planting as good for both nature and people.
🔍 Learn more: ow.ly/kLaK50XaSGB
#WoodlandCreation | #SocialScience
New woodland offers unique social benefits to local communities - Forest Research
Forest Research explored views and benefits of tree planting and woodland creation.
ow.ly
October 14, 2025 at 10:18 AM
To bring people outdoors is undoubtedly good for their mental health. We do need to make people aware of #ticks and #Lyme disease in a way that does not put them off outdoor activity @newforestnpa.bsky.social @saragandy.bsky.social @bethpurse.bsky.social
Reposted by Lyme Disease Action
We are very happy to announce the new-look PIF TICK website is now live.
The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation.
See the updated PIF TICK website here: piftick.org.uk
Read the news story here: pifonline.org.uk/news/pif-tic...
The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation.
See the updated PIF TICK website here: piftick.org.uk
Read the news story here: pifonline.org.uk/news/pif-tic...
October 6, 2025 at 12:21 PM
We are very happy to announce the new-look PIF TICK website is now live.
The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation.
See the updated PIF TICK website here: piftick.org.uk
Read the news story here: pifonline.org.uk/news/pif-tic...
The revamped PIF TICK website helps people find trusted health information and avoid dangerous misinformation.
See the updated PIF TICK website here: piftick.org.uk
Read the news story here: pifonline.org.uk/news/pif-tic...
Paper for consideration by those looking at post treatment #Lyme disease. #Lyme arthritis solved, so what about other manifestations caused by interaction of #Borrelia with #immune system? Any #research interest out there thinking of #PPIE? (said more in hope than expectation). @nihr.bsky.social
Host-directed therapies for infectious disease are here & coming!
Simple equation proposed to consider best interventions:
⭐ Microorganism + immune response = clinical presentation/status ⭐
Will require futuristic-sounding real-time diagnostics = exciting!
#IDSky #MedSky #ImmunoSky #TBSky
Simple equation proposed to consider best interventions:
⭐ Microorganism + immune response = clinical presentation/status ⭐
Will require futuristic-sounding real-time diagnostics = exciting!
#IDSky #MedSky #ImmunoSky #TBSky
The Changing Paradigm in Infectious Diseases - Host-Directed Medicine: Implications for the Next Generation of ID Physicians
academic.oup.com
October 2, 2025 at 1:43 PM
He also emphasised that uncertainties must be acknowledged, or trust is lost. You cannot reach people (to inform on misinformation) if they do not trust you.
At our recent @lshtm.bsky.social event on misinformation, Chris Whitty gave some useful reflections on common causes and some important considerations for handling it.
Full event: www.youtube.com/live/H_nClQ2...
Full event: www.youtube.com/live/H_nClQ2...
October 1, 2025 at 12:59 PM
He also emphasised that uncertainties must be acknowledged, or trust is lost. You cannot reach people (to inform on misinformation) if they do not trust you.
A mistake to support it perhaps, as not fair to encourage people to spend money on those T-spot tests which have been shown not to be useful. A desperately sad story, and we do need more UK research.
We supported this powerful @theguardian.com piece on Milly’s fight for a Lyme diagnosis. Her story shows why the UK urgently needs better testing, awareness & research. Read here www.theguardian.com/world/2025/s...
#LymeDisease @patrickbarkham.bsky.social
#LymeDisease @patrickbarkham.bsky.social
As my daughter got sicker and sicker, our quest for answers dragged on. How did we all miss the bacteria taking over her body?
I write about nature, but when Milly got sick with a mystery illness, it never occurred to me that a long-forgotten tick bite could be the cause
www.theguardian.com
September 28, 2025 at 9:08 PM
A mistake to support it perhaps, as not fair to encourage people to spend money on those T-spot tests which have been shown not to be useful. A desperately sad story, and we do need more UK research.
It doesn't help, does it. Really sorry for the girl and her family. We have a Reality Check page which mentions that T-spot tests have been shown not to be useful. www.lymediseaseaction.org.uk/about-lyme/r... NB some late Lyme cases can test -ve if immunosuppression, or early inadequate treatment.
September 28, 2025 at 8:31 PM
It doesn't help, does it. Really sorry for the girl and her family. We have a Reality Check page which mentions that T-spot tests have been shown not to be useful. www.lymediseaseaction.org.uk/about-lyme/r... NB some late Lyme cases can test -ve if immunosuppression, or early inadequate treatment.
Quite right. That is why amoxicillin is recommended by NICE when a second treatment is needed. Point about doxycycline is that it penetrates spinal fluid well and sometimes that is needed. Need #research on UK patients, though, which is not happening @ukhsa.bsky.social @hpruezi.bsky.social
“Many infectious disease experts don’t believe borrelia can survive blasting by doxycycline“
#Doxycycline is a #bacteriostatic, it does not kill, but prevents bacteria *replicating*. Eradication is by your own immune system. If that fails you do not get rid of #borrelia #lyme
#Doxycycline is a #bacteriostatic, it does not kill, but prevents bacteria *replicating*. Eradication is by your own immune system. If that fails you do not get rid of #borrelia #lyme
September 28, 2025 at 5:45 PM
Quite right. That is why amoxicillin is recommended by NICE when a second treatment is needed. Point about doxycycline is that it penetrates spinal fluid well and sometimes that is needed. Need #research on UK patients, though, which is not happening @ukhsa.bsky.social @hpruezi.bsky.social