Lightnews — Scholar-powered news

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺

@sahara88uk.bsky.social

150 followers 85 following 97 posts

#HealthAdvocacy; #IBD #Ostomy #MentalHealth #ChronicPain #Fibro. Healthcare Pt. Consultant. IBDSuperHeroes Founder. Find me: https://advocatinghealth.com/ 🐝Pursuing calm ~ #Nature #Gardening #Plants #Yoga🧘

advocatinghealth.com

Posts Media Videos Starter Packs

Pinned

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Nov 16

🔗 You can find me on other platforms linktr.ee/sahara88uk_ 🔗

Find all of my #PatientAdvocate articles about topics such as #InflammatoryBowelDisease, #Ostomy life, #ChronicPain, #MentalHealth etc on my website advocatinghealth.com 🌐

#IBDSuperHeroes #IBD #GI #CrohnsDisease #UlcerativeColitis

4 17

Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺

IBDSuperHeroes @ibdsuperheroes.bsky.social · 6d

🌍 Today on #WorldOstomyDay, we’re raising awareness of the diverse realities of living with a #stoma.

For some in our #IBD community, it’s life-saving, liberating, and brings relief. For others, it can feel overwhelming, isolating, or a reminder of what’s been lost. 💜

1 4 6

Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺

IBDSuperHeroes @ibdsuperheroes.bsky.social · Aug 21

📣 NEW from #IBDSuperHeroes 💫

We’ve launched movement classes designed for people with #Crohns, #Colitis & #ChronicIllness.

These free videos are made to meet you where you are — no pressure, no expectations.
🎥 Available now on YouTube: tinyurl.com/IBDSHMove

#YogaForIBD #OstomyYoga #IBD

3 4

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Aug 17

4 months ago, I received a message alerting me that one of my old images had been "lifted" to create a meme... and then posted in "sick f*cks" Facebook group. Don't even get me started on why a group like that would exist 🙈

Anyway, h...https://www.instagram.com/p/DNdMIvdMieU/?igsh=YjJhOWxxNjEzcTJx

1 1

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Aug 16

I realise I've been AWOL for a while. It's just life. It's been busy (by my standards). To most people, my life probably doesn't look busy, but #ChronicIllness means not having the same in the stores as "normal, healthy people." Every day, I weigh up... instagram.com/p/DNaxTihMSqQ/

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jul 23

which until last week I thought was bird food only! This is hulled, whereas bird feed is not...

If you've any suggestions, I'm all ears 👂

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible ##InflammatoryBowelDisease

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jul 23

Quite difficult to do when you have to avoid foods with insoluble fibre due to intestinal blockages!

Anyway, during the last few weeks I've been exploring different wholegrains and pulses - quinoa, red lentils, mung dal, and today, we have millet,

1 1

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jul 23

Always learning 📖

Just last week, I learnt that cous cous is not a grain ❌️ It's actually durum wheat 🙈

I've been making some dietary changes. I mentioned my mission to increase my fibre intake in a previous post, due to the multitude of health benefits.

1 2

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jul 10

Happy #GuruPurnima to my friends and community who are always teaching me about resilience, strength, dignity, and survival.

Forever grateful for the wisdom we share 💜🙏

#IBD #IBDjourney #Crohns #Colitis

IBDSuperHeroes @ibdsuperheroes.bsky.social · Jul 10

💜 Today is #GuruPurnima - a day to thank those who guide us.

Living with #IBD often means leaning on others: doctors, friends, carers, or fellow patients. Their support matters.

Tag someone who’s helped you on your #IBDjourney and show some love today. 🙏💜

#Crohns #Colitis

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 29

Some of them have become like family to me, and I honestly don’t know what I’d do without them.

This is why I share. To raise awareness. To connect. To make the invisible a little more visible 💜

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 29

or manage complex health issues behind the scenes every single day.

But invisibility doesn’t mean insignificance.

And not all invisible things are difficult. There's a whole community of people who truly get it, who offer support, strength, humour, and compassion.

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 29

how we socialise, sleep, and even how we show up in the world.

You can’t see #ChronicFatigue, pain, #BrainFog, nausea, or the daily disruptions that come with life after bowel disease. You probably wouldn’t guess I’ve had seven major abdominal surgeries, live with a #stoma,

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 29

📸 It’s #GutSelfie time again with @gutscharityuk.bsky.social – and this year’s theme really hits home: #MakingTheInvisibleVisible.

So many of us live with invisible conditions that shape many different areas of our lives; how we eat, move, plan our days (or can’t plan them at all),

1 2 7

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 28

A quickie of my latest #BotanicalSleeve 🌸💮🏵🌺🌻🌼🌷🪻 Not a rose or Lily in sight 😂

#Tattoo #TattooGirl #InkedLife #SleeveTattoo #TattooSleeve

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 26

🫖 Herbal tea selection
💧 Oral rehydration solution tabs
🕯 Scented candle set
💎 Chakra aromatherapy bracelet

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 26

Final call to take part in my Instagram giveaway! Ends at midnight on June 30th!

Head to my Insta profile & the pinned post to take part www.instagram.com/sahara88uk_

Includes:
🧖‍♂️ 3 collagen face masks
🛌 Hyaluronic acid night cream/mask
📒 1 adult activity book
📖 1 things to do while you poo book

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 25

This is not a complaint, just a reminder that “everyday activities” often take extra everything when you live with #ChronicIllness.

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #IBDWarrior #CutTheCrap

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 25

🧼 I have to thoroughly wash all the chlorine off my skin and scalp to avoid a #psoriasis flare and ensure quick hydration of the skin. Plus, I have to completely dry my #OstomyBag - because nobody wants a damp crotch situation.

1 1

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 25

Went to aquacise this morning and came away thinking about the fact that when you live with health challenges, everything seems to take that bit more time and effort. There’s no quick rinse after the pool for me.

1 2

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 21

Saturday morning chores 💊

The joy, and reality, of #ChronicIllness life.

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #Ostomy

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 19

We sleep on an earthing sheet every night now, and honestly – we’d never go back.

If you’re curious, check out @getgrounded.bsky.social – they’ve got loads of great info and products to get started.

You can use code SAHARA10 at checkout for 10% off too 💜

#PatientAdvocate #IBDSuperHeroes

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 19

The earth has a natural negative charge, and when we connect directly with it, our bodies can absorb those negative ions. Research has shown this can help reduce inflammation, support better sleep, ease pain, and even regulate cortisol levels (our stress hormone!).

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 19

#Grounding, also called #earthing, might look simple – just me with my bare feet on the earth – but there’s real science behind it 🌿⚡

Modern life tends to leave us positively charged – thanks to things like electronics and synthetic materials. Grounding helps rebalance that.

1 1

Reposted by 🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺

Anne @vegdodger.bsky.social · Jun 16

Totally see you too Sahara, it's hard not to think worse case scenario at the first twinge. I've had many blockages over the years, I drink lots to try to make things easier to pass (if only it was that simple). I've added new foods to my 'avoid' list lately too that have not been an issue before 😕

1 1 1

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 18

💕 I'm sorry to hear that x

🐝Sahara Fleetwood-Beresford🌱Patient Advocate🩺 @sahara88uk.bsky.social · Jun 18

Thanks so much to everyone who’s entered and shared so far 🫶

#PatientAdvocate #IBDSuperHeroes #Crohns #Colitis #IBD #CrohnsDisease #UlcerativeColitis #IBDawareness #IBDVisible #InflammatoryBowelDisease #ItTakesGuts #NoColonStillRollin #Ostomate #Stoma #Ileostomy #GiveawayContest #GiveawayTime