Sammie McFarland
@sammiemc.bsky.social
Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Pinned
⚠️ No parent should ever be in this position, no child should be refused healthcare.
If the truth had been shared with the general public, we wouldn’t have been left without support.
Module 8. U.K. COVID Inquiry
@longcovidkids.bsky.social
#CovidInquiry #LongCovidKids #Parenting
If the truth had been shared with the general public, we wouldn’t have been left without support.
Module 8. U.K. COVID Inquiry
@longcovidkids.bsky.social
#CovidInquiry #LongCovidKids #Parenting
Reposted by Sammie McFarland
2. The CLoCK study was designed prior to the development of the consensus core outcomes which did not select the #ChalderFatigueScale as the recommended outcome measure for assessing fatigue in paediatric Long Covid.
Table 3
pmc.ncbi.nlm.nih.gov/articles/PMC...
Table 3
pmc.ncbi.nlm.nih.gov/articles/PMC...
November 23, 2025 at 11:14 AM
2. The CLoCK study was designed prior to the development of the consensus core outcomes which did not select the #ChalderFatigueScale as the recommended outcome measure for assessing fatigue in paediatric Long Covid.
Table 3
pmc.ncbi.nlm.nih.gov/articles/PMC...
Table 3
pmc.ncbi.nlm.nih.gov/articles/PMC...
Reposted by Sammie McFarland
"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021"
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
Marcie's Story | Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids
www.youtube.com
November 23, 2025 at 8:39 PM
"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021"
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
Reposted by Sammie McFarland
🔸NEW #CLoCK paper
📍https://bit.ly/47W7tJI
Improving co-production would support the analysis to better consider broader challenges for children & young people with #LongCovid.
#PEM #PESE #PENE
Coproducing research with enough patients, with relevant lived experience is vital in study.
📍https://bit.ly/47W7tJI
Improving co-production would support the analysis to better consider broader challenges for children & young people with #LongCovid.
#PEM #PESE #PENE
Coproducing research with enough patients, with relevant lived experience is vital in study.
November 23, 2025 at 11:14 AM
🔸NEW #CLoCK paper
📍https://bit.ly/47W7tJI
Improving co-production would support the analysis to better consider broader challenges for children & young people with #LongCovid.
#PEM #PESE #PENE
Coproducing research with enough patients, with relevant lived experience is vital in study.
📍https://bit.ly/47W7tJI
Improving co-production would support the analysis to better consider broader challenges for children & young people with #LongCovid.
#PEM #PESE #PENE
Coproducing research with enough patients, with relevant lived experience is vital in study.
Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion.
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
November 21, 2025 at 6:25 PM
Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion.
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement
Reposted by Sammie McFarland
“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
November 20, 2025 at 10:37 PM
“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
If you haven't yet seen Baroness Hallett’s statement, here is the link:
www.youtube.com/watch?v=a6xY...
www.youtube.com/watch?v=a6xY...
Modules 2, 2A, 2B, 2C Report - Statement from the Chair, The Rt Hon the Baroness Hallett DBE
YouTube video by UK Covid-19 Inquiry
www.youtube.com
November 21, 2025 at 1:11 PM
If you haven't yet seen Baroness Hallett’s statement, here is the link:
www.youtube.com/watch?v=a6xY...
www.youtube.com/watch?v=a6xY...
Reposted by Sammie McFarland
Quotes from;
@sammiemc.bsky.social Founder & CEO
@kirstyes.bsky.social OT & Health Lead
@profmarkfaghy.bsky.social Trustee, Long Covid Researcher
on behalf of #LongCovidKids
@sammiemc.bsky.social Founder & CEO
@kirstyes.bsky.social OT & Health Lead
@profmarkfaghy.bsky.social Trustee, Long Covid Researcher
on behalf of #LongCovidKids
November 20, 2025 at 10:57 PM
Quotes from;
@sammiemc.bsky.social Founder & CEO
@kirstyes.bsky.social OT & Health Lead
@profmarkfaghy.bsky.social Trustee, Long Covid Researcher
on behalf of #LongCovidKids
@sammiemc.bsky.social Founder & CEO
@kirstyes.bsky.social OT & Health Lead
@profmarkfaghy.bsky.social Trustee, Long Covid Researcher
on behalf of #LongCovidKids
I can't express the feeling of seeing it in black & white today- #LongCovid got the validation we all deserve in the Mod 2 report.
By sharing our lived experience we assured this recognition - expertly guided by our dedicated legal team led by Jane Ryan @bhattmurphy.bsky.social
My statement
By sharing our lived experience we assured this recognition - expertly guided by our dedicated legal team led by Jane Ryan @bhattmurphy.bsky.social
My statement
November 20, 2025 at 10:47 PM
I can't express the feeling of seeing it in black & white today- #LongCovid got the validation we all deserve in the Mod 2 report.
By sharing our lived experience we assured this recognition - expertly guided by our dedicated legal team led by Jane Ryan @bhattmurphy.bsky.social
My statement
By sharing our lived experience we assured this recognition - expertly guided by our dedicated legal team led by Jane Ryan @bhattmurphy.bsky.social
My statement
Thanks to @aldiukstores.bsky.social for a pre festive #GlutenFree #Christmas snacking experience. A rare treat.
Soooo good. 😋
#snacks #popcorn #cinnamonbun
Soooo good. 😋
#snacks #popcorn #cinnamonbun
November 15, 2025 at 4:07 PM
Thanks to @aldiukstores.bsky.social for a pre festive #GlutenFree #Christmas snacking experience. A rare treat.
Soooo good. 😋
#snacks #popcorn #cinnamonbun
Soooo good. 😋
#snacks #popcorn #cinnamonbun
Reposted by Sammie McFarland
🎁 We hope to raise £17,500 in just 1 wk.
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
November 15, 2025 at 10:18 AM
🎁 We hope to raise £17,500 in just 1 wk.
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
These vital funds will support our “Voices, Support & Hope for Children with Long Covid” project.
Find out more, inc how to get involved -sign up to our newsletter - using the link in the footer of our website.
www.longcovidkids.org
#LongCovidKids #Christmas
Reposted by Sammie McFarland
our work with young people living with Long Covid and overlapping illnesses - like Eden.
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
November 14, 2025 at 10:23 AM
our work with young people living with Long Covid and overlapping illnesses - like Eden.
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
Want to have your LCK donations doubled this #Christmas? ⭐
2 - 9 December, you can make double the difference with one donation. Save the date now!
#YouthAdvisoryBoard #YouthPanel #LongCovid #Charity #Donate
Reposted by Sammie McFarland
21 year old Eden Bryrne
shared her lived experience with IDEA-FAST
Eden is a valued member of our Youth Advisory Panel and assists with communications, she says:
I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and
shared her lived experience with IDEA-FAST
Eden is a valued member of our Youth Advisory Panel and assists with communications, she says:
I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and
November 14, 2025 at 10:23 AM
21 year old Eden Bryrne
shared her lived experience with IDEA-FAST
Eden is a valued member of our Youth Advisory Panel and assists with communications, she says:
I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and
shared her lived experience with IDEA-FAST
Eden is a valued member of our Youth Advisory Panel and assists with communications, she says:
I’m “glad to be able to share my story as part of my work on the IDEA FAST advisory board ! I discuss how living with long covid and
Families need clear #PublicHealth information on risk of hospitalisation AND post infectious diseases.
I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid.
#Flu #Facts #Childhealth
www.rcpch.ac.uk/resources/fl...
#LongCovidKids
I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid.
#Flu #Facts #Childhealth
www.rcpch.ac.uk/resources/fl...
#LongCovidKids
Every #winter, thousands of children need hospital care because of the #flu. #Paediatricians play a vital role to increase uptake of the flu vaccine to protect children from this virus, and to reduce winter strains on the NHS.
#RCPCH factsheet
www.rcpch.ac.uk/resources/fl...
#RCPCH factsheet
www.rcpch.ac.uk/resources/fl...
November 12, 2025 at 11:33 AM
Families need clear #PublicHealth information on risk of hospitalisation AND post infectious diseases.
I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid.
#Flu #Facts #Childhealth
www.rcpch.ac.uk/resources/fl...
#LongCovidKids
I urge @rcpch.bsky.social to collaborate with @longcovidkids.bsky.social on similar fact sheets for COVID / #LongCovid.
#Flu #Facts #Childhealth
www.rcpch.ac.uk/resources/fl...
#LongCovidKids
'By comparing blood, immune-cell profiles, and gene activity in people with and without long COVID, researchers uncovered biological differences that map onto those harsher, longer lasting symptoms.'
www.earth.com/news/why-lon...
#WomensHealth #LongCovid
www.earth.com/news/why-lon...
#WomensHealth #LongCovid
November 12, 2025 at 8:18 AM
'By comparing blood, immune-cell profiles, and gene activity in people with and without long COVID, researchers uncovered biological differences that map onto those harsher, longer lasting symptoms.'
www.earth.com/news/why-lon...
#WomensHealth #LongCovid
www.earth.com/news/why-lon...
#WomensHealth #LongCovid
It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic.
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
Even previously healthy children can become seriously ill with flu, the Royal College of #Paediatrics and Child Health (RCPCH) said.
A troublesome mutant strain of the flu is believed to be behind a concerning early spike in flu cases, which experts say may be more severe than usual.
This is because
A troublesome mutant strain of the flu is believed to be behind a concerning early spike in flu cases, which experts say may be more severe than usual.
This is because
November 12, 2025 at 7:45 AM
It hurts every cell in my body that parents weren’t warned about infection risk in the early pandemic.
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
I welcome this information from the RCPCH but it needs to be louder and everywhere. Hopefully it will flood media outlets this week.
#Parenting #Information #Flu #Chidren #PostViralIllness
“Like many of us, she recovered from this bout of illness and wasn’t overly concerned when she experienced the illness for the second time a few months later.” @independent.ie
Thank you for your advocacy Lydia.
#LongCovid #Ireland
m.independent.ie/life/health-...
Thank you for your advocacy Lydia.
#LongCovid #Ireland
m.independent.ie/life/health-...
November 11, 2025 at 7:32 AM
“Like many of us, she recovered from this bout of illness and wasn’t overly concerned when she experienced the illness for the second time a few months later.” @independent.ie
Thank you for your advocacy Lydia.
#LongCovid #Ireland
m.independent.ie/life/health-...
Thank you for your advocacy Lydia.
#LongCovid #Ireland
m.independent.ie/life/health-...
The #BigGive is an incredible opportunity for @longcovidkids.bsky.social to secure funds needed to help continue the mission to provide support, drive action and improve outcomes for children living with the impact of a novel virus that we were told wouldn't impact them.
#SaveTheDate #LongCovidKids
#SaveTheDate #LongCovidKids
🔔#SaveTheDate
Soon, your generosity can go twice as far.
From 2nd–9th December, every donation to LCK will be doubled through @biggiveorg #ChristmasChallenge!
We are delighted to be taking part again this year - thanks to our match funders.
If you’re ...
Soon, your generosity can go twice as far.
From 2nd–9th December, every donation to LCK will be doubled through @biggiveorg #ChristmasChallenge!
We are delighted to be taking part again this year - thanks to our match funders.
If you’re ...
November 10, 2025 at 6:57 PM
The #BigGive is an incredible opportunity for @longcovidkids.bsky.social to secure funds needed to help continue the mission to provide support, drive action and improve outcomes for children living with the impact of a novel virus that we were told wouldn't impact them.
#SaveTheDate #LongCovidKids
#SaveTheDate #LongCovidKids
A collaboration for progress makes me so happy!
One voice sharing overlapping challenges to improve lives - what's not to love!
#OIA #OverlappingIllnesses #JoinedUpAction
One voice sharing overlapping challenges to improve lives - what's not to love!
#OIA #OverlappingIllnesses #JoinedUpAction
🌟Today we are proud to launch the Overlapping Illness Alliance.
A coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
Check out:
www.overlappingillnessalliance.org.uk
#OIA #OverlappingIllnesses #JoinedUpAction
A coalition of charities working to improve recognition, care and support for those living with complex, overlapping conditions.
Check out:
www.overlappingillnessalliance.org.uk
#OIA #OverlappingIllnesses #JoinedUpAction
November 4, 2025 at 1:19 PM
A collaboration for progress makes me so happy!
One voice sharing overlapping challenges to improve lives - what's not to love!
#OIA #OverlappingIllnesses #JoinedUpAction
One voice sharing overlapping challenges to improve lives - what's not to love!
#OIA #OverlappingIllnesses #JoinedUpAction
Imagine if we had the funds to create an awareness campaign like this!
Clara's poster looks fantastic sized up!
We would love to hear from anyone out there who would like to help us?
#Philanthropy #FundraisingSupport
#Goals #PublicHealth #Awareness #Charity #Children #LongCovidKids #LongCovid
Clara's poster looks fantastic sized up!
We would love to hear from anyone out there who would like to help us?
#Philanthropy #FundraisingSupport
#Goals #PublicHealth #Awareness #Charity #Children #LongCovidKids #LongCovid
🙏 to everyone who took part in the LCK Summer Poster Competition, our judges were blown away by the creativity and powerful messaging in the 30+ entries
🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
November 4, 2025 at 7:53 AM
Imagine if we had the funds to create an awareness campaign like this!
Clara's poster looks fantastic sized up!
We would love to hear from anyone out there who would like to help us?
#Philanthropy #FundraisingSupport
#Goals #PublicHealth #Awareness #Charity #Children #LongCovidKids #LongCovid
Clara's poster looks fantastic sized up!
We would love to hear from anyone out there who would like to help us?
#Philanthropy #FundraisingSupport
#Goals #PublicHealth #Awareness #Charity #Children #LongCovidKids #LongCovid
Reposted by Sammie McFarland
‘This large retrospective study shows moderate protective effect of severe acute respiratory coronavirus 2 vaccination against long COVID. The effect is stronger in adolescents, who have higher risk of long COVID, and wanes over time.’
publications.aap.org/pediatrics/a...
#Longcovid
publications.aap.org/pediatrics/a...
#Longcovid
November 3, 2025 at 9:09 PM
‘This large retrospective study shows moderate protective effect of severe acute respiratory coronavirus 2 vaccination against long COVID. The effect is stronger in adolescents, who have higher risk of long COVID, and wanes over time.’
publications.aap.org/pediatrics/a...
#Longcovid
publications.aap.org/pediatrics/a...
#Longcovid
While raising vital funds Anita is shining a light on paediatric Long Covid - & the need for action. Her determination, despite living with the condition herself, is truly inspiring.
Her words echo those we hear from CYP facing LC - they want to get on with their lives!
#MondayGratitude
Her words echo those we hear from CYP facing LC - they want to get on with their lives!
#MondayGratitude
"I want to get busy," she says. "I want to get out there.
"I want to be working, I want to be doing something."
"Some days I can walk and walk, and then other days I get out of the house, take a few steps and say 'that's enough for today'." Anita
www.bbc.co.uk/news/article...
#LongCovidKids
"I want to be working, I want to be doing something."
"Some days I can walk and walk, and then other days I get out of the house, take a few steps and say 'that's enough for today'." Anita
www.bbc.co.uk/news/article...
#LongCovidKids
November 3, 2025 at 10:58 AM
While raising vital funds Anita is shining a light on paediatric Long Covid - & the need for action. Her determination, despite living with the condition herself, is truly inspiring.
Her words echo those we hear from CYP facing LC - they want to get on with their lives!
#MondayGratitude
Her words echo those we hear from CYP facing LC - they want to get on with their lives!
#MondayGratitude
Sarah found her motivation for these swims while teaching a child with Long Covid, one of LCK's young members, and has just completed her personal challenge.
If you can spare the price of a coffee (or more) she would be delighted to end on a high.
🙏
www.justgiving.com/page/sarah-s...
#Swimming
If you can spare the price of a coffee (or more) she would be delighted to end on a high.
🙏
www.justgiving.com/page/sarah-s...
#Swimming
November 2, 2025 at 9:11 AM
Sarah found her motivation for these swims while teaching a child with Long Covid, one of LCK's young members, and has just completed her personal challenge.
If you can spare the price of a coffee (or more) she would be delighted to end on a high.
🙏
www.justgiving.com/page/sarah-s...
#Swimming
If you can spare the price of a coffee (or more) she would be delighted to end on a high.
🙏
www.justgiving.com/page/sarah-s...
#Swimming
Progress to see that early lived experience advice has now been adopted by the #NHS
It needs to go further to reduce risks to patients- avoid exercising for 12 weeks after any COVID infection.
www.nhs.uk/conditions/l...
It needs to go further to reduce risks to patients- avoid exercising for 12 weeks after any COVID infection.
www.nhs.uk/conditions/l...
October 31, 2025 at 7:01 AM
Progress to see that early lived experience advice has now been adopted by the #NHS
It needs to go further to reduce risks to patients- avoid exercising for 12 weeks after any COVID infection.
www.nhs.uk/conditions/l...
It needs to go further to reduce risks to patients- avoid exercising for 12 weeks after any COVID infection.
www.nhs.uk/conditions/l...
Reposted by Sammie McFarland
The Clinical Post Covid Society is now called
The International Post Covid and Post Infection Conditions Society.
More info here:
www.ipicsociety.org.uk
The International Post Covid and Post Infection Conditions Society.
More info here:
www.ipicsociety.org.uk
October 30, 2025 at 2:45 PM
The Clinical Post Covid Society is now called
The International Post Covid and Post Infection Conditions Society.
More info here:
www.ipicsociety.org.uk
The International Post Covid and Post Infection Conditions Society.
More info here:
www.ipicsociety.org.uk
