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solveme.bsky.social
Solve M.E.
@solveme.bsky.social
650 followers 260 following 200 posts
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
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solveme.bsky.social
🎥 New webinar recording! Watch "From Mystery to Measurable: The Science Behind the New #MECFS Blood Test" and learn how a 96% accurate test could transform diagnosis + treatment.

▶️ youtu.be/DqRAsy_vqJo
From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test
YouTube video by SolveME
youtu.be
January 20, 2026 at 6:56 PM
solveme.bsky.social
We met up with our friends at
@meactnet.bsky.social ,
@openmedf.bsky.social y.social
and @batemanhornecenter.bsky.social
this week to share ideas.
We're so grateful for our partners!
#UnitedForME
Screengrab of meeting with CEOs and staff from Solve M.E., Bateman-Horn Center, #MEAction, and Open Medicine Foundation.
January 15, 2026 at 8:59 PM
solveme.bsky.social
🚨Big news in Maryland: A new bill (HB27) would fund Long COVID research, treatment, and innovation. It’s a huge opportunity to lead on post-viral illness. Here's how to help. 🧵
Maryland advances HB27 bill to fund Long COVID research, treatment, and innovation with a call to submit testimony this week.
January 15, 2026 at 8:33 PM
solveme.bsky.social
🚨Register for our free webinar tomorrow: “From Mystery to Measurable: The Science Behind the New #MECFS Blood Test.”

🧬Learn how a 96% accurate test could transform diagnosis + treatment.

🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.

🔗https://ow.ly/aZk450XiOeU
solveme.bsky.social Solve M.E. @solveme.bsky.social · Nov 3
🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU
Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET
January 14, 2026 at 5:58 PM
solveme.bsky.social
What’s New in ME/CFS?

We sat down with Dr. Roshan Kumar of @HiFiBio to talk about breakthroughs in immune profiling, treatment hope, and what’s next.

🎥 Watch now → youtu.be/20FcPa2L8M0

#MECFS #LongCOVID #SolveME #HopeInScience #MEAwarenessHour
Q&A series on ME/CFS featuring Dr. Roshan Kumar discussing breakthroughs and hope in research and treatment.
January 7, 2026 at 8:16 PM
solveme.bsky.social
🎆Thanks to you, we exceeded our year-end fundraising goal!

Your generosity is accelerating #MECFS & #LongCovid research and creating real momentum.

We’re deeply grateful and hopeful as we continue working alongside you to serve this community and move science forward.💙
White graphic with teal and orange shapes and the Solve M.E. logo reads: Thank you for helping us exceed our $321,000 fundraising goal!
January 5, 2026 at 6:04 PM
solveme.bsky.social
🚨There are just a few hours left to make a matched gift to Solve M.E.—the $321,000 year-end challenge ends at midnight! Momentum matters--when funding moves faster, discovery does too. Your gift can help ensure progress doesn’t slow as we enter a new year. ⏰
solvecfs.org/donate/
A teal graphic with white lettering asks readers to make a year-end gift to Solve by midnight tonight. All gifts made to Solve by midnight will be matched up to $321,000.
December 31, 2025 at 9:17 PM
solveme.bsky.social
Solve M.E. President Emily Taylor reflects on the impact of staying engaged, staying vocal, and staying invested in a future that still has so much left to build.

Read more here:
ow.ly/7qML50XQcqc

#MECFS #LongCovid #advocacy #research
A quote from Solve ME President and CEO Emily Taylor about the successful collaboration of patients, researchers, caregivers and clinicians in 2025.
December 31, 2025 at 9:15 PM
solveme.bsky.social
“Distinct datasets are now converging on similar disease signatures.” — Dr. Francisco Westermeier in the new "What’s New in ME/CFS?" Q&A . 📖 Read now → ow.ly/3lnc50XQck4
#MECFS #SolveME #LongCOVID #ResearchBreakthrough #HopeInScience
Q&A series on ME/CFS featuring Francisco Westermeier, PhD, discussing breakthroughs and hope in ME/CFS, Long Covid, and related illnesses.
December 31, 2025 at 9:13 PM
solveme.bsky.social
In "2025 Advocacy in Review: What You Helped Push Forward," Solve Director of Advocacy Monique Wike looks back at a year of gridlock for biomedical research and public health and how community members kept #MECFS on the agenda.

Read it here:
solvecfs.org/2025-advocac...
2025 Advocacy in Review: What You Helped Push Forward - Solve ME/CFS Initiative
In 2025, advocates led meetings, shared their stories, and pushed lawmakers to act on our community’s top federal priorities. It made a difference.
solvecfs.org
December 30, 2025 at 1:04 AM
solveme.bsky.social
📢You can make a year-end gift to Solve that moves #MECFS and #LongCovid science forward—and doubles in impact.

All gifts made through Dec. 31st will be matched up to $321,000!

Please give today! solvecfs.org/donate/
Circular badge promoting a matching challenge to double donations to Solve M.E. up to $321,000 by December 31 to advance ME/CFS and Long Covid research.
December 29, 2025 at 7:23 PM
solveme.bsky.social
Solve is proud to support the @cleanairla.bsky.social petition for the City of Los Angeles to recognize International #LongCovid Awareness Day and light up City Hall in teal on March 15. Everyone can sign, no matter where you live. Please join us and sign here: ow.ly/bskH50XQ6kx
Recognize "International Long Covid Awareness Day" in LA
March 15 is International Long Covid Awareness Day. Sign the petition to tell the LA City Council that you want Long Covid acknowledged and City Hall lit teal in observance.
ow.ly
December 29, 2025 at 6:14 PM
solveme.bsky.social
What if the confusing part of #MECFS, that it presents differently for each person, is actually the key to solving it?

Dr. Zack Shan’s work with brain scans, immune markers, and smart sensors is uncovering biological subtypes of ME/CFS.

📺 Full interview here:
ow.ly/XMCk50XNuw8
Banner for a Q&A series on ME/CFS research featuring a compass on wood and Dr. Zack Shan from The Thompson Institute at the University of the Sunshine Coast.
December 23, 2025 at 12:26 AM
solveme.bsky.social
In "What’s New in ME/CFS?" Dr. Peter Rowe says the clinical toolbox for #MECFS is expanding. He shares:

-How targeted questions during a physical exam can reveal treatable structural problems
-What gives him hope

Watch: ow.ly/1Ruq50XGuPO

#MEAwarenessHour
Promo graphic for "What's New in ME/CFS?" video interview series features a compass and a photo of Dr. Peter Rowe (Johns Hopkins School of Medicine) and the Solve M.E. logo).
December 10, 2025 at 8:13 PM
solveme.bsky.social
Your support funds bold ME/CFS and Long Covid research. This year, our Catalyst Award helped expand a promising rapamycin trial—and early results are encouraging. Join our $321,000 match & keep the momentum going. 💙 #MovingTheScienceForward
giving.solvecfs.org/page/FUNRSFN...
Researchers Dr. C. Gunnar Gottschalk and Dr. Avik Roy are pictured. Quote from Dr. C. Gunnar Gottschalk reads, "This funding from Solve M.E. will help us continue enrollment in our ongoing expanded phase and cover the cost of study drug and safety labs. Our goal is to develop a predictive test to identify which patients are more likely to benefit from rapamycin or other mTOR-targeted therapies.” At the bottom of the page are logos for Solve M.E. & the ME/CFS Catalyst Awards.
December 4, 2025 at 6:29 PM
solveme.bsky.social
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.

We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.

🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
What's New in ME/CFS? Interview with Dr. Chris Ponting
YouTube video by SolveME
youtu.be
December 3, 2025 at 8:16 PM
solveme.bsky.social
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next. We’re kicking off with Prof. Chris Ponting of the DecodeME study.
🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
Compass on wooden surface symbolizing guidance in ME/CFS research updates is pictured along with a photo of Dr. Chris Ponting and text describing interview details. The Solve M.E. logo is placed in the bottom left corner.
December 3, 2025 at 8:11 PM
solveme.bsky.social
Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!

ow.ly/cWbq50XAqnk
teal graphic with Giving Tuesday and Solve M.E. logos reads: Breaking News! Double Your Impact $321,000 by December 31 Matching challenge Solve M.E. Moving Science Forward
December 2, 2025 at 7:38 PM
solveme.bsky.social
A recent study by the team at the Center for Infection and Immunity at Columbia Univ. describes how a hyperactive innate immune system can drive #MECFS -associated fatigue & #PEM, laying the groundwork for preventive treatments & advancing diagnostic tools. Read our summary here:
ow.ly/piKz50Xt44g
A white graphic with the Solve M.E. logo is superimposed on a background photo of a laboratory. It reads, "Solve Science Spotlight: Hyperstimulated Innate Immune System Can Drive ME/CFS Associated Fatigue and Post-Exertional Malaise. Read our Summary."
November 17, 2025 at 6:42 PM
solveme.bsky.social
For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness.

This week’s focus: the Employee Retirement Income Security Act (ERISA).

Download our one-pager here:
solvecfs.org/wp-content/u...

#UnitedForME
A multicolored one-page document, "Supporting Loved Ones Through a Disability Insurance Claim ERISA 101 for ME/CFS Caregivers," contains legal tips for handling insurance disability claims, co-branded with logos from Solve M.E. and Kantor & Kantor, LLP.
November 11, 2025 at 6:50 PM
solveme.bsky.social
🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU
Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET
November 3, 2025 at 9:52 PM
solveme.bsky.social
🎓 Solve is proud to sponsor the IACC Case Competition at
University of Michigan Ross School of Business this Friday, Oct 31. Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more.

Registration (in-person or virtual) is free!

ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition hosted by University of Michigan Ross, focusing on infection-associated chronic conditions, October 31st, hybrid event.
October 27, 2025 at 10:39 PM
Reposted by Solve M.E.
solveme.bsky.social
The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms — shaping global campaigns for people with ME, a disease long neglected & stigmatized.

💻 Remote (UK or +/-3 hours of pacific time)
⏰ 14 hrs/wk

Apply by 10 Nov 2025 👉

worldmealliance.org/2025/10/were...
We're recruiting a new Head of Advocacy and Comms - World ME Alliance
We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested? About the Role Are you a strategic thinker who loves connecting peopl...
worldmealliance.org
October 20, 2025 at 6:29 PM
solveme.bsky.social
Medicare contractors want to restrict access to Peripheral Nerve Blocks like Stellate Ganglion Block (SGB), which some w/ #MECFS & #LongCOVID have just been starting to access and report early benefits from.
October 21, 2025 at 9:30 PM
solveme.bsky.social
The World ME Alliance is hiring! Apply now for the role of Head of Advocacy & Comms — shaping global campaigns for people with ME, a disease long neglected & stigmatized.

💻 Remote (UK or +/-3 hours of pacific time)
⏰ 14 hrs/wk

Apply by 10 Nov 2025 👉

worldmealliance.org/2025/10/were...
We're recruiting a new Head of Advocacy and Comms - World ME Alliance
We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested? About the Role Are you a strategic thinker who loves connecting peopl...
worldmealliance.org
October 20, 2025 at 6:29 PM