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solveme.bsky.social
Solve M.E.
@solveme.bsky.social
660 followers 260 following 200 posts
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
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solveme.bsky.social
Sign up for our webinar “Protecting the Ones You Love: Legal & Insurance Tools for ME/CFS Caregivers.” Andrew Kantor, Esq. (Kantor & Kantor, LLP) will share practical legal and insurance tools. Wed. Feb. 11, 2026 @ 12 pm PT / 3 pm ET.
ow.ly/JpSv50XmU3v
Ad for free webinar "Protecting the Ones You Love: Legal and Insurance Tools for ME/CFS Caregivers." With headshots for host Monique Wike and panelist Andrew Kantor. Feb. 11, 2026, 12-1 pm PT, 3-4 pm ET.
January 22, 2026 at 6:13 PM
solveme.bsky.social
We met up with our friends at
@meactnet.bsky.social ,
@openmedf.bsky.social y.social
and @batemanhornecenter.bsky.social
this week to share ideas.
We're so grateful for our partners!
#UnitedForME
Screengrab of meeting with CEOs and staff from Solve M.E., Bateman-Horn Center, #MEAction, and Open Medicine Foundation.
January 15, 2026 at 8:59 PM
solveme.bsky.social
🚨Big news in Maryland: A new bill (HB27) would fund Long COVID research, treatment, and innovation. It’s a huge opportunity to lead on post-viral illness. Here's how to help. 🧵
Maryland advances HB27 bill to fund Long COVID research, treatment, and innovation with a call to submit testimony this week.
January 15, 2026 at 8:33 PM
solveme.bsky.social
What’s New in ME/CFS?

We sat down with Dr. Roshan Kumar of @HiFiBio to talk about breakthroughs in immune profiling, treatment hope, and what’s next.

🎥 Watch now → youtu.be/20FcPa2L8M0

#MECFS #LongCOVID #SolveME #HopeInScience #MEAwarenessHour
Q&A series on ME/CFS featuring Dr. Roshan Kumar discussing breakthroughs and hope in research and treatment.
January 7, 2026 at 8:16 PM
solveme.bsky.social
🎆Thanks to you, we exceeded our year-end fundraising goal!

Your generosity is accelerating #MECFS & #LongCovid research and creating real momentum.

We’re deeply grateful and hopeful as we continue working alongside you to serve this community and move science forward.💙
White graphic with teal and orange shapes and the Solve M.E. logo reads: Thank you for helping us exceed our $321,000 fundraising goal!
January 5, 2026 at 6:04 PM
solveme.bsky.social
🚨There are just a few hours left to make a matched gift to Solve M.E.—the $321,000 year-end challenge ends at midnight! Momentum matters--when funding moves faster, discovery does too. Your gift can help ensure progress doesn’t slow as we enter a new year. ⏰
solvecfs.org/donate/
A teal graphic with white lettering asks readers to make a year-end gift to Solve by midnight tonight. All gifts made to Solve by midnight will be matched up to $321,000.
December 31, 2025 at 9:17 PM
solveme.bsky.social
Solve M.E. President Emily Taylor reflects on the impact of staying engaged, staying vocal, and staying invested in a future that still has so much left to build.

Read more here:
ow.ly/7qML50XQcqc

#MECFS #LongCovid #advocacy #research
A quote from Solve ME President and CEO Emily Taylor about the successful collaboration of patients, researchers, caregivers and clinicians in 2025.
December 31, 2025 at 9:15 PM
solveme.bsky.social
“Distinct datasets are now converging on similar disease signatures.” — Dr. Francisco Westermeier in the new "What’s New in ME/CFS?" Q&A . 📖 Read now → ow.ly/3lnc50XQck4
#MECFS #SolveME #LongCOVID #ResearchBreakthrough #HopeInScience
Q&A series on ME/CFS featuring Francisco Westermeier, PhD, discussing breakthroughs and hope in ME/CFS, Long Covid, and related illnesses.
December 31, 2025 at 9:13 PM
solveme.bsky.social
📢You can make a year-end gift to Solve that moves #MECFS and #LongCovid science forward—and doubles in impact.

All gifts made through Dec. 31st will be matched up to $321,000!

Please give today! solvecfs.org/donate/
Circular badge promoting a matching challenge to double donations to Solve M.E. up to $321,000 by December 31 to advance ME/CFS and Long Covid research.
December 29, 2025 at 7:23 PM
solveme.bsky.social
What if the confusing part of #MECFS, that it presents differently for each person, is actually the key to solving it?

Dr. Zack Shan’s work with brain scans, immune markers, and smart sensors is uncovering biological subtypes of ME/CFS.

📺 Full interview here:
ow.ly/XMCk50XNuw8
Banner for a Q&A series on ME/CFS research featuring a compass on wood and Dr. Zack Shan from The Thompson Institute at the University of the Sunshine Coast.
December 23, 2025 at 12:26 AM
solveme.bsky.social
In "What’s New in ME/CFS?" Dr. Peter Rowe says the clinical toolbox for #MECFS is expanding. He shares:

-How targeted questions during a physical exam can reveal treatable structural problems
-What gives him hope

Watch: ow.ly/1Ruq50XGuPO

#MEAwarenessHour
Promo graphic for "What's New in ME/CFS?" video interview series features a compass and a photo of Dr. Peter Rowe (Johns Hopkins School of Medicine) and the Solve M.E. logo).
December 10, 2025 at 8:13 PM
solveme.bsky.social
Your support funds bold ME/CFS and Long Covid research. This year, our Catalyst Award helped expand a promising rapamycin trial—and early results are encouraging. Join our $321,000 match & keep the momentum going. 💙 #MovingTheScienceForward
giving.solvecfs.org/page/FUNRSFN...
Researchers Dr. C. Gunnar Gottschalk and Dr. Avik Roy are pictured. Quote from Dr. C. Gunnar Gottschalk reads, "This funding from Solve M.E. will help us continue enrollment in our ongoing expanded phase and cover the cost of study drug and safety labs. Our goal is to develop a predictive test to identify which patients are more likely to benefit from rapamycin or other mTOR-targeted therapies.” At the bottom of the page are logos for Solve M.E. & the ME/CFS Catalyst Awards.
December 4, 2025 at 6:29 PM
solveme.bsky.social
"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next. We’re kicking off with Prof. Chris Ponting of the DecodeME study.
🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour
Compass on wooden surface symbolizing guidance in ME/CFS research updates is pictured along with a photo of Dr. Chris Ponting and text describing interview details. The Solve M.E. logo is placed in the bottom left corner.
December 3, 2025 at 8:11 PM
solveme.bsky.social
Celebrate radical generosity today, Giving Tuesday, with a gift to Solve! With our $321,000 matching challenge, your gift today will be matched – meaning double the amount of funding for ME/CFS and Long Covid research!

ow.ly/cWbq50XAqnk
teal graphic with Giving Tuesday and Solve M.E. logos reads: Breaking News! Double Your Impact $321,000 by December 31 Matching challenge Solve M.E. Moving Science Forward
December 2, 2025 at 7:38 PM
solveme.bsky.social
A recent study by the team at the Center for Infection and Immunity at Columbia Univ. describes how a hyperactive innate immune system can drive #MECFS -associated fatigue & #PEM, laying the groundwork for preventive treatments & advancing diagnostic tools. Read our summary here:
ow.ly/piKz50Xt44g
A white graphic with the Solve M.E. logo is superimposed on a background photo of a laboratory. It reads, "Solve Science Spotlight: Hyperstimulated Innate Immune System Can Drive ME/CFS Associated Fatigue and Post-Exertional Malaise. Read our Summary."
November 17, 2025 at 6:42 PM
solveme.bsky.social
For National Family #Caregivers Month, we're partnering with Kantor & Kantor, LLP to create practical tools for caregiving in complex illness.

This week’s focus: the Employee Retirement Income Security Act (ERISA).

Download our one-pager here:
solvecfs.org/wp-content/u...

#UnitedForME
A multicolored one-page document, "Supporting Loved Ones Through a Disability Insurance Claim ERISA 101 for ME/CFS Caregivers," contains legal tips for handling insurance disability claims, co-branded with logos from Solve M.E. and Kantor & Kantor, LLP.
November 11, 2025 at 6:50 PM
solveme.bsky.social
🚨 Breakthrough in #MECFS research! Join our free webinar “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test”
🧬Learn how a 96% accurate test could transform diagnosis + treatment.
🗓️ Jan 15, 2026 | 9–10 am PT / 12- 1 pm ET.
🔗https://ow.ly/aZk450XiOeU
Teal, orange, and white graphic promotes registration for Solve M.E.'s free webinar: "From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test." Includes headshots of Solve President Emily Taylor and panelists Dmitry Pshezhetskiy, Alexandre Akoulitchev, Ewan Hunter, and Dr. Bartu Ahiska. When: Thursday, January 15, 2026, at 9–10 am PT / 12–1 pm ET
November 3, 2025 at 9:52 PM
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🎓 Solve is proud to sponsor the IACC Case Competition at
University of Michigan Ross School of Business this Friday, Oct 31. Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more.

Registration (in-person or virtual) is free!

ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition hosted by University of Michigan Ross, focusing on infection-associated chronic conditions, October 31st, hybrid event.
October 27, 2025 at 10:39 PM
solveme.bsky.social
Even if you don’t have Medicare, this could affect your care as private insurers frequently follow Medicare’s lead.
📬 Details on how to make a public comment here:
solvecfs.org/speak-up-to-...
Action alert from Solve M.E. reads: Medicare alert: Coverage for emerging ME/CFS treatment at risk. 5 out of 7 medicare contractors (MACS) have proposed denying coverage for peripheral nerve block treatments such as stellate ganglion blocks. these procedures have been helping people with ME/CFS and Long Covid. Comment deadline: November 8th, 2025.
October 21, 2025 at 9:30 PM
solveme.bsky.social
Watch the replay of our webinar on the unhide® Solve Together Unified Platform! Panelists from the Brain Inflammation Collaborative discuss the secure platform allowing patients to contribute data to support research across 30+ conditions.
youtu.be/Yssihztzw_w

Visit unhidenow.org to enroll.
Webinar recording promotional graphic titled “The Unified Platform: Advancing Research Across ME/CFS, Long Covid, and Other Chronic Conditions.” Featured speakers with headshots: Megan L. Fitzgerald, PhD, Principal Investigator & Lived Experience Expert; Christy Jagdfeld, Co-founder and CEO of Brain Inflammation Collaborative; Chris Nowak, Platform Architect & Caregiver to a Person with ME/CFS, CareEvolution; and Emily Taylor, President of Solve M.E. Logos for Solve M.E., Unhide, Solve Together, and Brain Inflammation Collaborative are at the bottom.
October 15, 2025 at 5:05 PM
solveme.bsky.social
📢 Now enrolling for 30+ chronic conditions & patients of all ages! The Unified Platform is opening doors to pediatric participants (ages 2+), helping change how we understand chronic illness and brain inflammation across the lifespan.
unhidenow.org

#MECFS #LongCovid
Enrollment open for children and teens in a program tracking symptoms, connecting wearables, and supporting research for ages 2 and up.
October 14, 2025 at 8:04 PM
solveme.bsky.social
🎉It’s DAF Day 2025—a nationwide celebration of generosity through Donor-Advised Funds. Help make ME/CFS and Long Covid widely understood, diagnosable, and treatable. Join us and be part of the movement! 🧡
ow.ly/FNuU50X9pnb

#DAFDay2025 #MECFS #LongCovid #givingtogether
Bright orange background with text celebrating Donor-Advised Fund Day and encouraging gifts to support ME/CFS and Long Covid research by Solve M.E.
October 9, 2025 at 7:18 PM
solveme.bsky.social
📢Big thanks to advocate and caregiver Rebecca Groble (pictured right) and her friend for hosting a booth at their local Nurtured by Nature health fair. They handed out free educational literature to help raise awareness about #MECFS. 👏💙
#MEAwarenessHour
Two women sit outdoors at a table covered with a Solve M.E. banner.
October 8, 2025 at 7:20 PM
solveme.bsky.social
🎓 Solve is proud to sponsor the Oct 31 #IACC Case Competition at University of Michigan Ross School of Business! Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more. Registration (in-person or virtual) is free!
ow.ly/XqgT50X6tQ5
Invitation to the IACC Case Competition at University of Michigan Ross, focusing on infection-associated chronic conditions like Long COVID and ME/CFS, held October 31st, hybrid format.
October 3, 2025 at 10:08 PM
solveme.bsky.social
The federal government has shut down, and the impacts are already being felt across systems and services our community depends on. Read our summary of the key areas of impact and tips on ways to stay connected:
solvecfs.org/government-s...
Solve M.E. logo above text about government shutdown impacts on ME/CFS, Long COVID, and IACCI communities in muted green on teal background.
October 3, 2025 at 9:32 PM