Statistical Oddity
@statisticaloddity.bsky.social
Breast cancer outlier
Flat Closure friendly
Dxed 1998 de novo metastatic
Reoccurrence Mar 2022
Disease progression July 2024
(I am also Gremlands)
Flat Closure friendly
Dxed 1998 de novo metastatic
Reoccurrence Mar 2022
Disease progression July 2024
(I am also Gremlands)
Pinned
I suppose this is the test. I was dxed with breastcancer 26 yr ago. I am a Flat Closure advocate. I’ve posted for abt 5 yrs on on other apps. Will BlueSky support the breast cancer community when we work on normalizing all post mastectomy bodies?
Why was Pink Pony Club the song stuck in my head all throughout my oncology appointment yesterday?
April 16, 2025 at 4:38 PM
Why was Pink Pony Club the song stuck in my head all throughout my oncology appointment yesterday?
The SHARON clinical trial is stem cell rescue for metastatic pancreatic & HER2-negative breast cancers w/ BRCA1/2 or PALB2 mutations. My stem cell rescue in 1999 is looking like it was worth it. Maybe it has been my “secret” all along #BRCA #MetastaticCancer #ClinicalTrials #StemCellRescue #mbc
April 14, 2025 at 2:32 PM
The SHARON clinical trial is stem cell rescue for metastatic pancreatic & HER2-negative breast cancers w/ BRCA1/2 or PALB2 mutations. My stem cell rescue in 1999 is looking like it was worth it. Maybe it has been my “secret” all along #BRCA #MetastaticCancer #ClinicalTrials #StemCellRescue #mbc
In other news, my tumor markers are slowly dropping, PET scan looks okay to my layman’s eyes, but I’ll get the Dr view on Tuesday. Which happens to be my last appointment with her bcuz she is effing leaving! 😩 I’m a sad oddity
April 12, 2025 at 2:45 PM
In other news, my tumor markers are slowly dropping, PET scan looks okay to my layman’s eyes, but I’ll get the Dr view on Tuesday. Which happens to be my last appointment with her bcuz she is effing leaving! 😩 I’m a sad oddity
More GrokAi summary of clinical trials: ”DESTINY-Breast06 trial results are in! Trastuzumab deruxtecan (Enhertu) outperformed chemo in HR+, HER2-low metastatic breast cancer, delaying growth by 13.2 vs. 8.1 months. Final data expected 2025.” #breastcancer #mbc #stage4 #clinicaltrials
April 12, 2025 at 2:41 PM
More GrokAi summary of clinical trials: ”DESTINY-Breast06 trial results are in! Trastuzumab deruxtecan (Enhertu) outperformed chemo in HR+, HER2-low metastatic breast cancer, delaying growth by 13.2 vs. 8.1 months. Final data expected 2025.” #breastcancer #mbc #stage4 #clinicaltrials
Asked GROKai for a BlueSky post on MBC tings
“TROPION-Breast01 trial just wrapped up! Datopotamab deruxtecan (IV ADC) beat chemo in HR+, HER2- metastatic breast cancer, delaying growth by 6.9 vs. 4.9 months. Better quality of life too! Final survival data coming in 2025.Big step for MBC treatment!”
“TROPION-Breast01 trial just wrapped up! Datopotamab deruxtecan (IV ADC) beat chemo in HR+, HER2- metastatic breast cancer, delaying growth by 6.9 vs. 4.9 months. Better quality of life too! Final survival data coming in 2025.Big step for MBC treatment!”
April 11, 2025 at 3:11 PM
Asked GROKai for a BlueSky post on MBC tings
“TROPION-Breast01 trial just wrapped up! Datopotamab deruxtecan (IV ADC) beat chemo in HR+, HER2- metastatic breast cancer, delaying growth by 6.9 vs. 4.9 months. Better quality of life too! Final survival data coming in 2025.Big step for MBC treatment!”
“TROPION-Breast01 trial just wrapped up! Datopotamab deruxtecan (IV ADC) beat chemo in HR+, HER2- metastatic breast cancer, delaying growth by 6.9 vs. 4.9 months. Better quality of life too! Final survival data coming in 2025.Big step for MBC treatment!”
I’m having a salad for lunch. Wish me luck 😳
(For reference I’m on Verzenio, main side effect diarrhea proceeded by intense abdominal cramps, the kind that make you rock and uncontrollably say “ow ow ow fucking ow” out loud. This happens approximately 4-5 days a week. Sometimes at 2am.)
(For reference I’m on Verzenio, main side effect diarrhea proceeded by intense abdominal cramps, the kind that make you rock and uncontrollably say “ow ow ow fucking ow” out loud. This happens approximately 4-5 days a week. Sometimes at 2am.)
April 7, 2025 at 8:24 PM
I’m having a salad for lunch. Wish me luck 😳
(For reference I’m on Verzenio, main side effect diarrhea proceeded by intense abdominal cramps, the kind that make you rock and uncontrollably say “ow ow ow fucking ow” out loud. This happens approximately 4-5 days a week. Sometimes at 2am.)
(For reference I’m on Verzenio, main side effect diarrhea proceeded by intense abdominal cramps, the kind that make you rock and uncontrollably say “ow ow ow fucking ow” out loud. This happens approximately 4-5 days a week. Sometimes at 2am.)
Here there be arting
February 8, 2025 at 5:19 PM
Here there be arting
Reposted by Statistical Oddity
“Shingles doesn’t care” was my fave public health messaging until Ashley coined:
“Mumps makes your ball shrivel.”⭐️
“Mumps makes your ball shrivel.”⭐️
February 5, 2025 at 5:28 PM
“Shingles doesn’t care” was my fave public health messaging until Ashley coined:
“Mumps makes your ball shrivel.”⭐️
“Mumps makes your ball shrivel.”⭐️
I can’t TELL you how much I LOVE being told how lucky I am to have lived this long because so many others die from breast cancer. bESt peP TaLk eVeR 😐
February 5, 2025 at 5:43 PM
I can’t TELL you how much I LOVE being told how lucky I am to have lived this long because so many others die from breast cancer. bESt peP TaLk eVeR 😐
I started Verzenio on January 1st, and was encouraged that I wasn’t having too many side effects. Fast forward and starting this week I have been plagued with the worst GI gut cramping, 2am bathroom sprints, eating Imodium like they’re Pez candies side effects. The timing makes me go hmmmmm 🤨
January 24, 2025 at 11:30 PM
I started Verzenio on January 1st, and was encouraged that I wasn’t having too many side effects. Fast forward and starting this week I have been plagued with the worst GI gut cramping, 2am bathroom sprints, eating Imodium like they’re Pez candies side effects. The timing makes me go hmmmmm 🤨
If they think this stunt is going to endear him to us…they made a big mistake. Big. Huge. This has stirred up a deeper and wider level of disgust in me than ever before.
January 19, 2025 at 7:29 PM
If they think this stunt is going to endear him to us…they made a big mistake. Big. Huge. This has stirred up a deeper and wider level of disgust in me than ever before.
At least I’m stable 😏
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As per latest PET scan, at least 👍
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As per latest PET scan, at least 👍
January 8, 2025 at 5:17 PM
At least I’m stable 😏
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As per latest PET scan, at least 👍
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As per latest PET scan, at least 👍
Reposted by Statistical Oddity
Jimmy refused to put one toe in 2025. Can you blame him?
December 29, 2024 at 10:39 PM
Jimmy refused to put one toe in 2025. Can you blame him?
Does anyone else resist getting out of bed in the morning because they don’t want to acknowledge what their life has in store for them? Or is that just me? It can’t be just me.
December 30, 2024 at 3:10 PM
Does anyone else resist getting out of bed in the morning because they don’t want to acknowledge what their life has in store for them? Or is that just me? It can’t be just me.
Random reminder while I was flying on muscle relaxants for back spasms (and hopefully not new spinal mets)
Music by Ummet Ozcan
#breastcancer #mastectomy #flatclosure #stage4 #cansky #knowledgeispower #brca
Music by Ummet Ozcan
#breastcancer #mastectomy #flatclosure #stage4 #cansky #knowledgeispower #brca
December 28, 2024 at 4:26 AM
Random reminder while I was flying on muscle relaxants for back spasms (and hopefully not new spinal mets)
Music by Ummet Ozcan
#breastcancer #mastectomy #flatclosure #stage4 #cansky #knowledgeispower #brca
Music by Ummet Ozcan
#breastcancer #mastectomy #flatclosure #stage4 #cansky #knowledgeispower #brca
Back to the grind
December 27, 2024 at 3:49 PM
Back to the grind
The life of a MBC patient: it looks like my liver can’t tolerate Kisqali. This is the first time my body has said “nope” with its full chest (pun intended) While other treatments have been difficult, none of them have been a serious threat to my well being/life if continued. TBC tomorrow…
December 15, 2024 at 3:01 PM
The life of a MBC patient: it looks like my liver can’t tolerate Kisqali. This is the first time my body has said “nope” with its full chest (pun intended) While other treatments have been difficult, none of them have been a serious threat to my well being/life if continued. TBC tomorrow…
Reposted by Statistical Oddity
Elacestrant (Orserdu) monotherapy has people with ESR1 mutation who do really well and some who have rapid progression. Why?? IDK but we need biomarkers to figure this out!! #SABCS24
December 11, 2024 at 2:14 PM
Elacestrant (Orserdu) monotherapy has people with ESR1 mutation who do really well and some who have rapid progression. Why?? IDK but we need biomarkers to figure this out!! #SABCS24
Apparently some people have no issue with other people removing *some* healthy breast tissue (breast reduction) but removing the entire breast is tsk-tsked over.
Key phrase: OTHER PEOPLE
The point? You are not the one living in that meat suit, *they* are.
Key phrase: OTHER PEOPLE
The point? You are not the one living in that meat suit, *they* are.
December 11, 2024 at 10:41 PM
Apparently some people have no issue with other people removing *some* healthy breast tissue (breast reduction) but removing the entire breast is tsk-tsked over.
Key phrase: OTHER PEOPLE
The point? You are not the one living in that meat suit, *they* are.
Key phrase: OTHER PEOPLE
The point? You are not the one living in that meat suit, *they* are.
Reposted by Statistical Oddity
December 3, 2024 at 11:48 PM
Managed to get thru last week with minimal stress and moderate fatigue. Here’s the question: is it the actual social interaction or my anxiety leading up to it that is the most fatigue inducing? Or just a fine mixture of both… 🥺
December 3, 2024 at 4:17 PM
Managed to get thru last week with minimal stress and moderate fatigue. Here’s the question: is it the actual social interaction or my anxiety leading up to it that is the most fatigue inducing? Or just a fine mixture of both… 🥺
Reposted by Statistical Oddity
For the people who get upset that I post pictures of my chest…Chew on this: I’m showing nothing but scars, *you* are the ones imagining what used to be there. 😏
#sassypants #breastcancer #flatclosure #mastectomy #brca #flattiesky #cansky
#sassypants #breastcancer #flatclosure #mastectomy #brca #flattiesky #cansky
November 25, 2024 at 6:31 PM
For the people who get upset that I post pictures of my chest…Chew on this: I’m showing nothing but scars, *you* are the ones imagining what used to be there. 😏
#sassypants #breastcancer #flatclosure #mastectomy #brca #flattiesky #cansky
#sassypants #breastcancer #flatclosure #mastectomy #brca #flattiesky #cansky
Reposted by Statistical Oddity
Ummmmmm if you’re into vintage books and want your money to go to getting a random guy and his 3 dogs out of homelessness, you might like this thing I’m selling.
💙📚
www.ebay.com/itm/25672755...
💙📚
www.ebay.com/itm/25672755...
GREAT AGES OF MAN - COMPLETE Set of 21 Volumes - Time Life Hardcover | eBay
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November 24, 2024 at 9:53 PM
Ummmmmm if you’re into vintage books and want your money to go to getting a random guy and his 3 dogs out of homelessness, you might like this thing I’m selling.
💙📚
www.ebay.com/itm/25672755...
💙📚
www.ebay.com/itm/25672755...