TheRaCil Project
@theracilproject.bsky.social
A European research consortium on Therapies for Renal Ciliopathies. Co-funded by the Horizon Europe programme and UKRI - 16 partners, coordination @institutimagine.bsky.social, website https://theracil.eu/
Reposted by TheRaCil Project
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
November 7, 2025 at 8:50 AM
💬 Polycystic Kidney Disease (PKD) Charity UK offers free educational events, both in-person and online, open to people living with #ADPKD and #ARPKD, their families, and caregivers.
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🔗 Discover upcoming events and get involved → pkdcharity.org.uk/support/educational-events
#PKDInternational
🥳TheRaCil Publications Alert🚨Visit theracil.eu/news-and-pub... - cilia biology & perspectives for AI in nephrology👉KIF13B controls ciliary protein content, Rezi et al @lottepedersen.bsky.social 👉AI for diagnosis and care in rare kidney disease review, Chen et al @knebel.bsky.social #cilia #kidney
News and Publications - TheRaCil
theracil.eu
November 10, 2025 at 2:03 PM
🥳TheRaCil Publications Alert🚨Visit theracil.eu/news-and-pub... - cilia biology & perspectives for AI in nephrology👉KIF13B controls ciliary protein content, Rezi et al @lottepedersen.bsky.social 👉AI for diagnosis and care in rare kidney disease review, Chen et al @knebel.bsky.social #cilia #kidney
💥 Check the Cilia special issue #JCSciliaSI from @jcellsci.bsky.social co-edited by @lottepedersen.bsky.social and with several exciting papers by other @theracilproject.bsky.social members - congrats Bernhard Schermer @cilib.bsky.social Ronald Roepman Soren Christensen John Sayer and co-authors 💥
Our #JCSciliaSI is complete
Explore our ToC: journals.biologists.com/jcs/issue/13...
Our cover image shows tracheal epithelial cells from an air-liquid interface culture imaged using U-ExM from Oliver Mercey and Marine Brunet @centriolelab.bsky.social.
journals.biologists.com/jcs/article/...
Explore our ToC: journals.biologists.com/jcs/issue/13...
Our cover image shows tracheal epithelial cells from an air-liquid interface culture imaged using U-ExM from Oliver Mercey and Marine Brunet @centriolelab.bsky.social.
journals.biologists.com/jcs/article/...
November 6, 2025 at 10:32 AM
💥 Check the Cilia special issue #JCSciliaSI from @jcellsci.bsky.social co-edited by @lottepedersen.bsky.social and with several exciting papers by other @theracilproject.bsky.social members - congrats Bernhard Schermer @cilib.bsky.social Ronald Roepman Soren Christensen John Sayer and co-authors 💥
👉Do not miss talks by our coordinator Sophie Saunier and by John Sayer at #KidneyWk 2025 in Houston, TX, the meeting of the @asnkidney.bsky.social - 📅Thursday Nov 6th, 2pm, Room310A - 💊Leading Edge of Therapeutic Development in Cystic Kidney Disease session #NPH #ciliopathies @hkd-l.bsky.social
November 5, 2025 at 7:05 PM
👉Do not miss talks by our coordinator Sophie Saunier and by John Sayer at #KidneyWk 2025 in Houston, TX, the meeting of the @asnkidney.bsky.social - 📅Thursday Nov 6th, 2pm, Room310A - 💊Leading Edge of Therapeutic Development in Cystic Kidney Disease session #NPH #ciliopathies @hkd-l.bsky.social
Reposted by TheRaCil Project
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
September 23, 2025 at 12:49 PM
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
🥳TheRaCil Publication Alert 🚨 theracil.eu/publications... - Dahmer-Heath et al highlight need to develop nephronophthisis-specific tools for collecting patient-reported outcomes. Including patients' and families' perspectives in our research is a critical goal we pursue in TheRaCil.
Systematic review of outcomes reported in clinical research on nephronophthisis: how do they align with SONG Kids priorities? - TheRaCil
Dahmer-Heath, Optenhövel, Hechler et al, Pediatric Nephrology, August 2025.
theracil.eu
September 15, 2025 at 3:31 PM
🥳TheRaCil Publication Alert 🚨 theracil.eu/publications... - Dahmer-Heath et al highlight need to develop nephronophthisis-specific tools for collecting patient-reported outcomes. Including patients' and families' perspectives in our research is a critical goal we pursue in TheRaCil.
Reposted by TheRaCil Project
📣 Applications are now open! #EURORDIS Open Academy applications open today for the Medicines R&D and Scientific Innovation Schools.
🎓 80 fully funded spots via #ERDERA
🧪 Hands-on sessions
🤝 Network with advocates & researchers
🔗 https://loom.ly/oK6lwVI #RareDiseases
🎓 80 fully funded spots via #ERDERA
🧪 Hands-on sessions
🤝 Network with advocates & researchers
🔗 https://loom.ly/oK6lwVI #RareDiseases
Open Academy Schools 2026: applications open 8 September 2025 - ERDERA
From 25–28 May 2026, Barcelona will host the next EURORDIS Open Academy Schools. Applications for the Medicines Research & Development School and the Scientific Innovation & Translation School open on 8 September 2025. Subscribe to the Open Academy and EURORDIS newsletters to receive the link as soon as the call goes live. What awaits in
erdera.org
September 7, 2025 at 10:01 PM
📣 Applications are now open! #EURORDIS Open Academy applications open today for the Medicines R&D and Scientific Innovation Schools.
🎓 80 fully funded spots via #ERDERA
🧪 Hands-on sessions
🤝 Network with advocates & researchers
🔗 https://loom.ly/oK6lwVI #RareDiseases
🎓 80 fully funded spots via #ERDERA
🧪 Hands-on sessions
🤝 Network with advocates & researchers
🔗 https://loom.ly/oK6lwVI #RareDiseases
🥳TheRaCil Publication Alert🚨 Visit theracil.eu/news-and-pub... for the latest findings on #ARPKD by our teams: predictive risk score at the age of 2 months, urinary peptide signatures and perspectives on polycystic kidney diseases in children. #cilia #kidney #kids
News and Publications - TheRaCil
theracil.eu
June 24, 2025 at 12:17 PM
🥳TheRaCil Publication Alert🚨 Visit theracil.eu/news-and-pub... for the latest findings on #ARPKD by our teams: predictive risk score at the age of 2 months, urinary peptide signatures and perspectives on polycystic kidney diseases in children. #cilia #kidney #kids
Recent article from TheRaCil published in Kidney International Reports by Alice Tata, Guillaume Rocha, Sophie Saunier, Alexandre Benmerah and their colleagues from @institutimagine.bsky.social and collaborators. #cilia #ciliopathies #kidney
Our last paper is now available on the Kidney International website! Thanks to all collaborators and special congrats to Alice and Guillaume... #cilia #ciliopathies #kidney
www.sciencedirect.com/science/arti...
www.sciencedirect.com/science/arti...
Prostaglandin Analogs and Eupatilin as Treatments for Nephronophthisis
Primary cilia are sensory antennas that are present on the majority of quiescent vertebrate cells where they mediate key signaling during development …
www.sciencedirect.com
May 7, 2025 at 12:58 PM
Recent article from TheRaCil published in Kidney International Reports by Alice Tata, Guillaume Rocha, Sophie Saunier, Alexandre Benmerah and their colleagues from @institutimagine.bsky.social and collaborators. #cilia #ciliopathies #kidney