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TheRaCil Project

@theracilproject.bsky.social

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A European research consortium on Therapies for Renal Ciliopathies. Co-funded by the Horizon Europe programme and UKRI - 16 partners, coordination @institutimagine.bsky.social, website https://theracil.eu/

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PKD International @pkdinternational.bsky.social · 15d

🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!

PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛

#PKDResearch #ADPKD #ARPKD

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TheRaCil Project @theracilproject.bsky.social · 23d

🥳TheRaCil Publication Alert 🚨 theracil.eu/publications... - Dahmer-Heath et al highlight need to develop nephronophthisis-specific tools for collecting patient-reported outcomes. Including patients' and families' perspectives in our research is a critical goal we pursue in TheRaCil.

Systematic review of outcomes reported in clinical research on nephronophthisis: how do they align with SONG Kids priorities? - TheRaCil

Dahmer-Heath, Optenhövel, Hechler et al, Pediatric Nephrology, August 2025.

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ERDERA @erdera.bsky.social · Sep 7

📣 Applications are now open! #EURORDIS Open Academy applications open today for the Medicines R&D and Scientific Innovation Schools.
🎓 80 fully funded spots via #ERDERA
🧪 Hands-on sessions
🤝 Network with advocates & researchers
🔗 https://loom.ly/oK6lwVI #RareDiseases

Open Academy Schools 2026: applications open 8 September 2025 - ERDERA

From 25–28 May 2026, Barcelona will host the next EURORDIS Open Academy Schools. Applications for the Medicines Research & Development School and the Scientific Innovation & Translation School open on 8 September 2025. Subscribe to the Open Academy and EURORDIS newsletters to receive the link as soon as the call goes live. What awaits in

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TheRaCil Project @theracilproject.bsky.social · Jun 24

🥳TheRaCil Publication Alert🚨 Visit theracil.eu/news-and-pub... for the latest findings on #ARPKD by our teams: predictive risk score at the age of 2 months, urinary peptide signatures and perspectives on polycystic kidney diseases in children. #cilia #kidney #kids

News and Publications - TheRaCil

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TheRaCil Project @theracilproject.bsky.social · May 7

Recent article from TheRaCil published in Kidney International Reports by Alice Tata, Guillaume Rocha, Sophie Saunier, Alexandre Benmerah and their colleagues from @institutimagine.bsky.social and collaborators. #cilia #ciliopathies #kidney

HKD-lab @hkd-l.bsky.social · May 7

Our last paper is now available on the Kidney International website! Thanks to all collaborators and special congrats to Alice and Guillaume... #cilia #ciliopathies #kidney

www.sciencedirect.com/science/arti...

Prostaglandin Analogs and Eupatilin as Treatments for Nephronophthisis

Primary cilia are sensory antennas that are present on the majority of quiescent vertebrate cells where they mediate key signaling during development …

www.sciencedirect.com

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