Lightnews — Scholar-powered news

Tina Katsaros @tinakatsaros.bsky.social · Aug 26

Are there many #pwME still active on here?

I haven't been posting much lately but thinking about putting more energy into building up my #MECFS and #LongCovid community on here. 💙

Would love to know who's around! 😊

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Reposted by Tina Katsaros

Simon McGrath @simonmcg.bsky.social · Aug 10

#DecodeME A brilliant interview with Chris Ponting by @davetuller1.bsky.social

Chris gave new details, including:
- They got feedback on a draft of the pre-print from independent researchers, to help them test their findings and improve the manuscript.
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youtu.be/CGUmcB_YIaA?...

Interview with Professor Chris Ponting about the DecodeME results.

YouTube video by David M Tuller

youtu.be

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Reposted by Tina Katsaros

Emerge Australia @emergeaustralia.bsky.social · Jul 16

Nominate now for the 2025 ME/CFS & Long COVID Media Awards! Help honor journalism that correctly depicts these conditions and fights stigma. Open to all mediums, both Australian and international. More info: vist.ly/3y6q7

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Reposted by Tina Katsaros

#MEAction Network @meactnet.bsky.social · Jul 16

It's almost that time of year again! Our Severe ME Artists Project is coming up! Can you believe it will be the 5th one?!?

Deadline to submit is July 24th! Details and submission link: www.meaction.net/2025/07/10/s...

If you need help, email us at [email protected].

#pwME #SevereME

Simple sketch in white against black background showing a bedroom. There is a bed on the right with an easel beside it. The text on the easel says "Severe ME Artists Project 2025"

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Reposted by Tina Katsaros

Meagan Tyler @drmeagantyler.bsky.social · May 12

Great post here from @tinakatsaros.bsky.social on what she learned about research communication and awareness raising through the 3 Minute Thesis and Visualise Your Thesis competitions #3MT #VYT #resdev redalert.blogs.latrobe.edu.au/2025/05/me-a...

ME and VYT: Raising awareness for myalgic encephalomyelitis / chronic fatigue syndrome (Tina Katsaros)

Image supplied by Tina Katsaros Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS): A hard disease to say, and a practically impo...

redalert.blogs.latrobe.edu.au

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GrasLab @graslab.bsky.social · Apr 1

If you are on campus in Bundoora @latrobeuni.bsky.social on Wednesday 2nd of April come and help research 😉👍

GrasLab @graslab.bsky.social · Mar 27

🚨Roll up your sleeves for ME/CFS, COVID, Long COVID Research

Blood sample – NO fasting please
and/or Stool sample (on site or at home, $20 reimbursement)

Wednesday 2nd April, 8am-6pm
@latrobeuni.bsky.social
Bundoora, HS1-101

register graslab.com.au/covid-19-stu... for Blood draw day

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Reposted by Tina Katsaros

Billy Hanlon @bhanlon15.bsky.social · Mar 15

I hear you.
I see you.
I care.

#LongCovidAwarenessDay

#LongCovidAwarenessDay2025

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Reposted by Tina Katsaros

Niko Suvisto @nikosuvisto.bsky.social · Mar 15

Today is Long Covid Awareness Day! And I want to support my LC friends. 1/9

#5YearsLongCovid #HalfADecadeOfNeglect #LongCovidAwarenessDay2025
#LongCovid
#MECFS
#pwME

A black and white photograph of a white man, Niko, with short hair and a beard, sitting on a hospital bed. He wears a sweatshirt and holds a tablet displaying a message about Long COVID. The text on the tablet reads: “5 YEARS OF LONG COVID. HALF A DECADE OF NEGLECT! WHERE’S THE ACTION?! - BERLIN BUYERS CLUB.” Niko has a serious expression, and the background includes a framed picture on the wall, a lamp, and part of a headboard.

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Reposted by Tina Katsaros

Ebony Monson @ebony-monson.bsky.social · Mar 7

Happy #IWD2025 to all the wonderful women in STEM, and to our male colleagues that support us 👩‍🔬

Diversity is so important in science and I'm very lucky to be part of a group that celebrates this!

@helbiglab.bsky.social @irumii.bsky.social @jacintaagius.bsky.social @timetogoz.bsky.social

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Tina Katsaros @tinakatsaros.bsky.social · Feb 26

Mid-candidature talk ✅
Now onto the final stretch of the PhD 😎

#MECFS

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Reposted by Tina Katsaros

PZ @itsmepz.bsky.social · Feb 23

⚠️Attention #pwME

Scoping survey for Australian Clinical Practice Guidelines for ME/CFS

consultations.nhmrc.gov.au/clinical-pra...

Open to everyone so I encourage #pwME & carers outside 🇦🇺 to provide input if they are able!

#MyalgicEncephalomyelitis
#MECFS

**Please repost**

https://consultations.nhmrc.gov.au/clinical-pract…

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Reposted by Tina Katsaros

Niko Suvisto @nikosuvisto.bsky.social · Dec 28

Yesterday I managed to go to our living room and I photographed our Christmas tree, which is a tradition of mine.

Why is that significant to me? Well, as I’m 99% bedbound by #MECFS, the last time I visited that room was in April. So that happens only a handful of times in a year. 1/3

#photography

A colour image. In the middle of the photo there is a Christmas tree, it has lots of ornaments on it: candles, red balls, white snowflakes. In the lower right corner there is a part of sofa, and there is a pillow on it. Behind the tree there are a couple of old photographs on the wall. In the left side of the image, there is a large wooden clock on the wall, in the background. Also a table and a couple of chairs can be seen in the background.

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Reposted by Tina Katsaros

Tom Kindlon @tomkindlon.bsky.social · Jan 5

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some of the scientists, researchers, clinicians & advocates involved with ME, Long Covid, & similar to submit nice comments were @danielmissailidis.bsky.social @physiosforme.bsky.social @aryback.bsky.social @buonsenso.bsky.social @tinakatsaros.bsky.social @exceedhergrasp1.bsky.social

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lifeatthewindow.bsky.social @lifeatthewindow.bsky.social · Dec 24

Mum just dropped by with my presents, so I have something to open in the morning.

Sending lots of love to everyone who can’t have the Christmas you’d like to have, owing to illness.

It’s a hard time of year to face it all. Wishing you much coziness 🎄❄️🌟

#pwME #MECFS #Chronicillness

The photo shows a few Christmas presents stacked on a brown wooden floor. One present is large and flat and wrapped in silver paper. Two other rectangular presents are on top of this one and wrapped in colourful paper with a Christmas tree pattern and have Santa Claus faces for gift tags.

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Reposted by Tina Katsaros

Niko Suvisto @nikosuvisto.bsky.social · Dec 24

I have now shared one Christmas themed album every day until it’s Christmas. So today I want to share one more as the final one. Today’s album is:

Leevi and the Leavings - Varasteleva joulupukki / A Thieving Santa Claus (1990) (pop)

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#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

Varasteleva joulupukki

Leevi and the leavings · Album · 1990 · 10 songs

open.spotify.com

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Reposted by Tina Katsaros

Ólafur Waage @olafurw.com · Dec 24

Hans has fallen.
Happy Holidays.

Hans Gruber falling at the end of Die Hard.

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Tina Katsaros @tinakatsaros.bsky.social · Dec 25

Happy Christmas Niko! ❤️🎄
Love the festive fit! 😊

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Reposted by Tina Katsaros

Niko Suvisto @nikosuvisto.bsky.social · Dec 24

As a severe #MECFS patient I don’t dress up often, as I’m always just in bed. But I’ve tried to do that if there’s a special occasion, like today! It sure feels nice to put on some proper clothes. So this is my outfit for today’s ”festivities”.

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#SpendChristmasWithME #pwME

A colour image. The author of the post is sitting on a hospital bed. The bed has been lifted to a sitting position. He is wearing a red turtle neck wool jumper, white pants and grey socks. He is signaling the peace sign with his left hand. He is looking at the camera and having a slight smile on his face. Behind him there are some objects on the next bed: electronics and cables and such.

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Reposted by Tina Katsaros

Ellie @madknittrsteaparty.bsky.social · Dec 24

Sending solidarity to everyone with a limiting illness. It's so hard if this week is quiet,& if it isn't. Being left out. Saying no when you'd love to say yes. Being asked to make an effort because it's Christmas when you've already overdone it. Good luck all!
#SpendChristmasWithME
#MECFS #LongCovid

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Tina Katsaros @tinakatsaros.bsky.social · Dec 25

Oh that’s so lovely. I’m glad you were able to share that memory with them even though you couldn’t watch the movie.
Merry Christmas! Sending love 🫶🏼

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Tina Katsaros @tinakatsaros.bsky.social · Dec 25

Sending my love this Xmas to everyone with #MECFS and #LongCovid, especially those spending the day alone at home or in bed ❤️

I leave you with a gift of hope. Just know, even if you are spending Xmas alone, you are not forgotten and you are not alone 🫶🏼

#SpendChristmasWithME

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Tina Katsaros @tinakatsaros.bsky.social · Dec 23

Day #5 of #SpendChristmasWithME 🎄

Today's movie recommendations:
- The Nightmare Before Christmas 💀🎄
- Home Alone 🏠

Remember to use #SpendChristmasWithME in any of your posts and interact with other posts!

Let's spend Xmas Eve together from home 🫶🏼

#MECFS #LongCovid

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Tina Katsaros @tinakatsaros.bsky.social · Dec 23

The Holiday 🏠

Been a few years since I last saw this one. Forgot how much I liked it.

Snack of choice is Christmas Tree Cookies from Aldi. 🎄
Aldi only sell these cookies around Xmas but they are possibly one of my favourite biscuits. Highly recommend.

#SpendChristmasWithME

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Niko Suvisto @nikosuvisto.bsky.social · Dec 23

I’ll listen to and share one Christmas themed album every day until it’s Christmas. Today’s album is:

Various Artists - Stax Christmas (2023) (funk, soul)

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#SpendChristmasWithME #MusaSky #MusicSky #MECFS #LongCovid

Stax Christmas

Various Artists · Compilation · 2023 · 12 songs

open.spotify.com

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Tina Katsaros @tinakatsaros.bsky.social · Dec 23

"If you look for it, I've got a sneaky feeling you'll find that love actually is all around".

Love actually ❤️

Watching from my bed tonight.

#SpendChristmasWithME

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